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Topic: Hi (Read 4981 times) |
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E-Double
CH.com Alumnus
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Are we ourselves?
  
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Re: Hi
« Reply #25 on: Dec 2nd, 2005, 3:24pm » |
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Go right for the Imitrex tip!
Learn it! love it! use it!
Piece of cake 
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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ben_uk
New Board Veteran
100%O2
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Re: Hi
« Reply #26 on: Dec 2nd, 2005, 9:17pm » |
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Hey Delts
Hi ya neighbour 
Yours Ben at clustermasx
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www.clustermasx.com
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Delts
New Board Newbie
I love YaBB 1G - SP1!
Posts: 14
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Re: Hi
« Reply #27 on: Dec 2nd, 2005, 11:40pm » |
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Lo Ben
Right it is now 4 35 am , just got back from casualty, absolutely raving pissed  , had an argument with the Doc regarding clusters and why they classify them under normal headaches and was told she would not give me anything else regardless of how bad it was or would get as the jab they gave me just did not cut the pain just faded it out all this SS officer disguised a sa doctor gave me was codeine and a 20mg tablet of diazepam, can feel it creeping back as i type. will fill you in on the full story tomorrow, and by the way i am filing a strong complaint so can anyone direct me to the right channel as they had no info on that procedure that i could see, with one eye any way. speak soon
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LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
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Re: Hi
« Reply #28 on: Dec 3rd, 2005, 5:03am » |
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Hi Delts,
You will never get an A&E doctor knowing about CH.. its just too specialised and its not going to be something they see. Chances of finding one who knows what it is - well.. from highly unlikely to better odds on the lottery!
I would suggest you speak to your GP and get them to write you a letter you can carry around stating what your condition is and what meds are effective, o2 at 15LPM Imigran injections and so on. It only needs to be abortive meds.
Your GP might be interested in this site, its a GP specialised site at ouch uk and its very informative.
http://gpinfo.ouchuk.org/
Ben is just up the road from you there, get in touch with him. I can promise you hand on heart there is no one better to help you with this, and that if it wasn't for him and his wonderful masx I'm not sure I'd be here typing this now
Take care, you're not alone with this, we all understand
Helen
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| « Last Edit: Dec 3rd, 2005, 5:04am by LeLimey » |
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lionsound
CH.com Alumnus
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breathe
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Re: Hi
« Reply #29 on: Dec 3rd, 2005, 7:50am » |
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Hi Delts,
I'm sorry that was such a miserable experience. A lot of us need to carry some kind of note or card to explain what CH is.
Please listen to Helen about the O2. It really does work.
Be well and PF,
lionsound
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E-Double
CH.com Alumnus
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Are we ourselves?
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Re: Hi
« Reply #30 on: Dec 3rd, 2005, 7:57am » |
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That sucks and I 'm sorry you ar anyone has to go through that.
that was my fear but lucked out when they had a clue.
Get a letter!!! This way atleast you have a chance.
E
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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astings
New Board Newbie
Nil Taurus Excretum
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Posts: 20
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Re: Hi
« Reply #31 on: Dec 3rd, 2005, 9:33am » |
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Hi Delts
Sorry you have to be here, as you may guess by my posting name I also live in Hastings, please check your messages, I'll send you my contact details and hopefully we can get you sorted, so if you need any help just give me a call.
Take care my friend
Tom
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Delts
New Board Newbie
I love YaBB 1G - SP1!
Posts: 14
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Re: Hi
« Reply #32 on: Dec 3rd, 2005, 1:03pm » |
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Helen, i know what you mean about the high flow O2 was on it in the ambulance last night and within 5-7 mins it was under control  , great stuff, and although i have my jabs , inhaler etc, i feel that if O2 can abort it then so much for the better, cant beleive how much info and hope i have got from posting on a forum more than in the last 5 years of looking and asking 'professionals'.
After last night it became apparent that this condition we have needs promoting at medical level and further, i am going to be looking to do as much as i can to achieve this as i feel clusters are so massively understated it is unbelievable
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LeLimey
CH.com Alumnus
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OUCH-US - Less "ME" and more "WE"
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Re: Hi
« Reply #33 on: Dec 4th, 2005, 4:13am » |
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Welcome aboard Delts, we need all the voices we can get, stamping and shouting but preferably NOT banging our heads eh?! 
I'm so so glad you have already tried O2, now try it with a clustermasx (Jungle drums tell me you might have done this last night ) BOY!! Will you ever see a difference! I'll bet Mrs Delts is dancing for joy isn't she?! I'm so very glad you've had the chance to try it
love
Helen
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Delts
New Board Newbie
I love YaBB 1G - SP1!
Posts: 14
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Re: Hi
« Reply #34 on: Dec 4th, 2005, 5:38am » |
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Clustermasx what can i say, four attacks aborted completely since midnight last night got my first full nights sleep in 10 days.
Ben i cant thank you enough mate , 1 for taking the time to pop over and impart your knowledge and 2 for the high flow reg and mask, you sir are a top man, my confidence in beating this debillitating curse of CH has soared in just 12 hours. people if you havent got a clustermasx all i can say is get one, bloody amazing, totally changed my beleif in preventing and aborting, this system works like you would not beleive
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LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
Gender:
Posts: 11720
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Re: Hi
« Reply #35 on: Dec 4th, 2005, 3:41pm » |
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Delts, seeing how you got on is music to my ears, I'm sitting here beaming from ear to ear, you've just made my whole weekend!
I'm so so pleased for you.. way to got matey!
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Delts
New Board Newbie
I love YaBB 1G - SP1!
Posts: 14
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Re: Hi
« Reply #36 on: Dec 8th, 2005, 12:01pm » |
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Yes i am stoked at how well this system works, i am in the first year of a surveying degree and the clustermaskx system has let me continue and catch up with all my work this week with out any worries, i have needed no other medication other than a high flow reg and a cluster mask, i have jabs of imi and the nasal inhalers and they are now both redundant. Ben m8 i cannot thank you enough.
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