Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
May 19th, 2019, 3:00pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Hello From Pa. »


   Clusterheadaches.com Message Board
   New Message Board Archives
   2004-2005 Getting to Know Ya Posts
(Moderator: DJ)
   Hello From Pa.
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Hello From Pa.  (Read 1221 times)
GingerS224
New Board Newbie
USA 
*



I hate pain!

   
WWW

Gender: female
Posts: 9
Hello From Pa.
« on: Dec 15th, 2005, 11:40am »
Quote Quote Modify Modify

Just a little Hello from a newbie.  My name is Ginger and I've suffered with cluster headaches for almost 5 years now.  
 
All I know is the pain I feel with a cluster is more intense than the pain I felt giving birth to my children, which for a woman is saying Alot.   laugh  
 
I am on daily medication and take shots when I feel a cluster coming on, that is when I have the shots to take.  They are quite expensive and I have no insurance so my Neurologist has been supplying me with the shots.  
 
I have felt rather alone in my suffering with them and was very glad to find this forum.  I am looking forward to speaking with other sufferers and the occasional shoulder to cry on after a particularily bad cluster.  I would of course return the shoulder for whom ever would need it.
 
Nice to meet you all and Here's to a Cluster Free Day I pray!
 
Sincerely,
GingerS224 - newbie
IP Logged
MJ
New Board Hall of Famer
USA 
*****





   


Gender: male
Posts: 911
Re: Hello From Pa.
« Reply #1 on: Dec 15th, 2005, 12:17pm »
Quote Quote Modify Modify

Welcome Ginger.
 
Your alone no more.
IP Logged

MJ
RichardN
New Board Hall of Famer
USA 
*****





  lastchantsranch   babbleontn
Email

Gender: male
Posts: 690
Re: Hello From Pa.
« Reply #2 on: Dec 15th, 2005, 3:28pm »
Quote Quote Modify Modify

Welcome Ginger
 
  You've hit the motherlode of CH info, caring and sharing.
 
  And . . . . here, you'll meet many people all of whom know and share (or have shared) your pain.
 
  One of my favortie mottos on this board is, "Nothing works for everyone, but SOMETHING works for everyone" . . .  and here you might get a line on the "something" that works for you.  And, you never know, YOU might be the one to help those here who haven't found their "something" yet.
 
  Welcome to Clusterville . . .  
 
   Be Safe,   PFDANs
 
 Richard
IP Logged

I can live with the beast as long as I don't have to "dance" with the bastard.
marlinsfan
New Board Hall of Famer
USA 
*****




I love this place!

   
Email

Gender: male
Posts: 876
Re: Hello From Pa.
« Reply #3 on: Dec 15th, 2005, 7:55pm »
Quote Quote Modify Modify

Welcome, Ginger. Tell us a bit more. What daily med are you on.? Do you get hits during the day or mostly at night? Are you episodic or chronic? The more you share, the more we can try to help.
PF wishes.
Jose
IP Logged
Kris_in_SJ
New Board Hall of Famer
USA 
*****




There's no place like home.

   
Email

Gender: female
Posts: 1539
Re: Hello From Pa.
« Reply #4 on: Dec 15th, 2005, 8:19pm »
Quote Quote Modify Modify

Welcome Ginger,
 
Sorry you had to find us, but glad you did.
 
It sounds like you have a really understanding neuro.  I'm assuming your injections are Imitrex, and we all know how expensive they are.  The fact that he/she is supplying you proves that understanding.
 
There is no better place than here to learn about the latest treatments and therapies, and to receive support from others who know your pain.
 
There is a great program that Gator told me about - I'm sorry I can't find the link now - Bridges to Access is the program.  It's run by the company that makes Imitrex and covers the cost of the drug for uninsured, diagnosed patients.  
 
Perhaps he'll come along.  In the meantime, I'll search the archives for it.  It could be a great help in the event your neuro runs out of free samples.  Meantime - read, read, read!  The sooner you learn and take charge of your disease, the sooner you'll find ways of coping with it.
 
Hugs,
 
Kris
IP Logged

I'm a small woman in small town being chased by a VERY BIG BEAST!
Jasmyn
CH.com Alumnus
New Board Hall of Famer
Mozambique 
*****




Each day will be a new trick in life's journey

  JazzdeBeer+de+Beer  
Email

Gender: female
Posts: 2762
Re: Hello From Pa.
« Reply #5 on: Dec 16th, 2005, 2:46am »
Quote Quote Modify Modify

Welcome to the family Ginger, sorry about the pain you'll have to cope with.
 
It is true, here you will never feel alone again with this affliction.  Support, info and unity is what this site is about.
 
We are an abnormal family with normal going-ons but this is the best place you could have found to deal with CH better.
 
PF wishes to you.
Jas
IP Logged

Jazz Wink

Madness is proclaimed by society’s inability to accept its own infallibility
burnt-toast
New Board Hall of Famer
USA 
*****





   


Gender: male
Posts: 1686
Re: Hello From Pa.
« Reply #6 on: Dec 16th, 2005, 10:33am »
Quote Quote Modify Modify

You don't have to feel alone anymore.  Folks here understand what you are enduring.  Support is only a few keyboard strokes away - we'll be glad to help when we can.
 
Welcome aboard.
 
Tom  
 
IP Logged

Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
Bob_Johnson
New Board Hall of Famer
USA 
*****





   
Email

Gender: male
Posts: 1796
Re: Hello From Pa.
« Reply #7 on: Dec 16th, 2005, 1:24pm »
Quote Quote Modify Modify

If you are near Philly there is a first rate headache clinic at Jefferson.
 
Print this and show your doc. Some of us are getting excellent results and much lower per dose cost compared to Imitrex.
 
1: Headache 2001 Sep;41(Cool:813-6  
 
 
Olanzapine as an Abortive Agent for Cluster Headache.
 
Rozen TD.
 
Department of Neurology, Jefferson Headache Center/Thomas Jefferson University Hospital, Philadelphia, Pa.
 
OBJECTIVE: To evaluate olanzapine as a cluster headache abortive agent in an open-label trial. BACKGROUND: Cluster headache is the most painful headache syndrome known. There are very few recognized abortive therapies for cluster headache and fewer for patients who have contraindications to vasoconstrictive drugs. METHODS: Olanzapine was given as an abortive agent to five patients with cluster headache in an open-label trial. The initial olanzapine dose was 5 mg, and the dose was increased to 10 mg if there was no pain relief. The dosage was decreased to 2.5 mg if the 5-mg dose was effective but caused adverse effects. To be included in the study, each patient had to treat at least two attacks with either an effective dose or the highest tolerated dose. RESULTS: Five patients completed the investigation (four men, one woman; four with chronic cluster, one with episodic cluster). Olanzapine reduced cluster pain by at least 80% in four of five patients, and two patients became headache-free after taking the drug. Olanzapine typically alleviated pain within 20 minutes after oral dosing and treatment response was consistent across multiple treated attacks. The only adverse event was sleepiness. CONCLUSIONS: Olanzapine appears to be a good abortive agent for cluster headache. It alleviates pain quickly and has a consistent response across multiple treated attacks. It appears to work in both episodic and chronic cluster headache.
 
 
 
------------------------------------------------------------------------ --------
 
Olanzapine has a brand name of "Zyprexa" and is a antipsychotic. Don't be put off by this primary usage. Several of the drugs used to treat CH are cross over applications, that is, drugs approved by the FDA for one purpose which are found to be effective with unrelated conditions--BJ.
IP Logged

Bob Johnson
GingerS224
New Board Newbie
USA 
*



I hate pain!

   
WWW

Gender: female
Posts: 9
Re: Hello From Pa.
« Reply #8 on: Dec 19th, 2005, 10:00am »
Quote Quote Modify Modify

Thank you all for the warm welcome!
 
Yes the shots I take are Imitrex and am on a daily dose of Verapamil which I may need to have up'd again ugh...dr. gave me 14 shots a little over a month ago, was supposed to last about 2-3 mo. and I am almost out already.  Think my Neurologist was being psychic at my last visit and had said something about them increasing...I didn't think so at the time but the last mo. has been Hell.   My CH is chronic and as for a day or night CH I get Both, they started as night time ones and progressed into both day and night time.  I was getting them several times a day every day before I finally went in and got diagnosed, I was petrified that it was something really aweful like a tumor or something and waited way to long to go in to get diagnosed.  
 
I hope I answered all Q's lol   If I seem to be a little knowledgable on Neurology it's mainly because my son has suffered from Migraines since he was two years old.  He gets the migraines and I get the CH's.  Oh what a pair we make LOL
 
I also have another Q for you all ... Has anyone else here noticed a coralation with Berometric Preasure changes and thier headaches ?  
 
Again Thank you all for the warm welcome!
 
Here's Hoping for a Pain Free Day for all !!!
 
Ging...
 
« Last Edit: Dec 19th, 2005, 10:07am by GingerS224 » IP Logged
jon019
Guest

Email

Re: Hello From Pa.
« Reply #9 on: Dec 19th, 2005, 11:16am »
Quote Quote Modify Modify Remove Remove

Hi Ginger,
 
Glad you found ch.com. You won't be disappointed.
 
Re your question about barometric pressure. Oh yeah,
that's a big one for me. First noticed it when I realized every time I went to the O2 shop for a refill I had to put on my shades. The weather had changed and I was "in cycle",( higher baro pressure seems to be worse than lower). Don't think its the sunshine or warm weather itself because summer time is no more or no less likely to include cycles (for me).
 
Regards
 
Jon
IP Logged
r_headache
New Board Junior
Germany 
**



Air Force Rocks!!

   


Gender: male
Posts: 79
Re: Hello From Pa.
« Reply #10 on: Dec 19th, 2005, 3:04pm »
Quote Quote Modify Modify

barometric pressure???? YEP! I'm better at telling the upcomming weather then the guy on the news.  When a front is blowing thru I get the worst hits.  
 
I wonder if anyone has ever done a study on that.
 
Welcome to your new family, the information and friends that you get here will keep you sane.
 
Rick
 
 
IP Logged
Mattchew
Guest

Email

Re: Hello From Pa.
« Reply #11 on: Dec 19th, 2005, 6:33pm »
Quote Quote Modify Modify Remove Remove

Hello Ginger, and welcome.
IP Logged
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss