Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
May 20th, 2019, 3:06pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Hi......almost new »


   Clusterheadaches.com Message Board
   New Message Board Archives
   2004-2005 Getting to Know Ya Posts
(Moderator: DJ)
   Hi......almost new
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Hi......almost new  (Read 1523 times)
Changeling
New Board Newbie
United_Kingdom 
*




Rehab is for Quitters

   


Gender: male
Posts: 11
Hi......almost new
« on: Dec 17th, 2005, 9:08am »
Quote Quote Modify Modify

I am not quite a newbie, i have been registered here under another name, but it was a name i no longer wish to use.
 
I didn't post much before, i'm an OUCH-UK member and mostly posted there, but i thought it was time i had a look here too, it seems to be a friendly and helpful site, and being larger has more experience to draw on, also to tell th truth there is a lot of fighting on the uk site atm, and i want to keep out of it if i can, im not that good at confrontation........this doesn't mean i'm abandoning th uk site, i have good friends there, many of whom come here too, hi Lelimey Cheesy....i just thought it was time i broadened my horizons.
 
I'm a 53 yr old man who acts 1/4 his age Embarassed, ive had episodic CH for 12 yrs, adn it has just turned chronic Sad Angry.....so i will be looking for advice about how to cope with that, but now i just want to say hi (again  Grin) adn hope you will be happy to have me here, i'm sure i'll be happy to be here Smiley Smiley Smiley,
 
 
tony
« Last Edit: Dec 17th, 2005, 9:09am by Changeling » IP Logged

'I'm the Changeling........see me Change' Jim Morrison
LeLimey
CH.com Alumnus
New Board Hall of Famer
Great_Britain 
*****



OUCH-US - Less "ME" and more "WE"

  lelimey  
WWW Email

Gender: female
Posts: 11720
Re: Hi......almost new
« Reply #1 on: Dec 17th, 2005, 9:41am »
Quote Quote Modify Modify

You don't act a 1/4 of your age.. not even your shoe size  Tongue Now how long have I been telling you to get yourself over here huh? Glad you finally listened! This is a terrific place with lovely lovely people and I know you'll really enjoy it. Just wait until you see all the reading you have to do now! LOL
see you soon I hope
Helen
IP Logged





The arsehole I'm divorcing needs to get a life and stop stalking mine

Jasmyn
CH.com Alumnus
New Board Hall of Famer
Mozambique 
*****




Each day will be a new trick in life's journey

  JazzdeBeer+de+Beer  
Email

Gender: female
Posts: 2762
Re: Hi......almost new
« Reply #2 on: Dec 17th, 2005, 10:09am »
Quote Quote Modify Modify

Hi Tony.
 
This the best place in the world to be for a ClusterHead!
 
Welcome home and we won't hold your age against you Wink
 
Jas
IP Logged

Jazz Wink

Madness is proclaimed by society’s inability to accept its own infallibility
Changeling
New Board Newbie
United_Kingdom 
*




Rehab is for Quitters

   


Gender: male
Posts: 11
Re: Hi......almost new
« Reply #3 on: Dec 17th, 2005, 11:21am »
Quote Quote Modify Modify

thxx for your replies and yes my shoe size IS 7 1/2  so it's time i threw a tantrum now Tongue but i dont seem to have the energy today Sad...........but i feel welcome already Grin
 
 
txxx
 
edited for typos i have to do that a lot Embarassed
« Last Edit: Dec 17th, 2005, 11:22am by Changeling » IP Logged

'I'm the Changeling........see me Change' Jim Morrison
Beastfodder
New Board Old Timer
United_Kingdom 
****



O2 and clusterbusters - naturally

   


Gender: male
Posts: 294
Re: Hi......almost new
« Reply #4 on: Dec 19th, 2005, 6:50am »
Quote Quote Modify Modify

Changeling
 
Fighting at OUCH UK? - surely not.
 
Confess that up till now I've bypassed OUCH UK but have seen a couple of rants here about them.  They were great helping me get O2 this year and over the phone too.
 
However (and delighted to see the LSA seeds posting on the site) it was the lack of fight to at least promote clusterbusters that I worry about most.
 
For me it's a true godsend - aborted clusters and effective pain relief.  I believe if you've got CH you need at least to know of this option - and how many chronic and episodic  sufferers lives it has changed.    
 
Ought to do something about this silly name I use too - coz I am simply no longer Beastfodder.
IP Logged

O2 and clusterbusters - naturally
Changeling
New Board Newbie
United_Kingdom 
*




Rehab is for Quitters

   


Gender: male
Posts: 11
Re: Hi......almost new
« Reply #5 on: Dec 19th, 2005, 8:40am »
Quote Quote Modify Modify

Hi Beastfodder, ,glad u are no longer beast fodder, it's still chewing on me a bit but one way or another i have to sort it.
 
It is a shame that ouch-uk is so quarrelsome atm, they have been a help to  me, getting my O2 sorted amongst other things, but th fighting over clustermasx adn alternative treatments ( though it IS possible now to talk about LSA at least) was really getting me down,,,,,,,,i have no intention of slagging off ppl there while i am here,many of them are good ppl and ther's too much of thtat already, and while i believe that some of them are a bit too stuffy about some things, i think their hearts are in th right place, just misguided.
 
I am certainly aware of some of the alternatives, and as i am told that i cant increase my verapamil dose,bad for my heart, adnt th next treatment iwas offered is lithium about which i have some doubts, i think it very likely that i shall try one or more of them before long, i already have some LSA seeds, but havent used them yet.
 
tony
IP Logged

'I'm the Changeling........see me Change' Jim Morrison
mrs mac
New Board Veteran
Scotland 
***



I love YaBB 1G - SP1!

   


Gender: female
Posts: 213
Re: Hi......almost new
« Reply #6 on: Dec 19th, 2005, 9:11am »
Quote Quote Modify Modify

hi tony, good to see you over here!!!! Wink
 
hope you are well
 
 
mrs mac xxxxxxxxxxx
IP Logged
Beastfodder
New Board Old Timer
United_Kingdom 
****



O2 and clusterbusters - naturally

   


Gender: male
Posts: 294
Re: Hi......almost new
« Reply #7 on: Dec 19th, 2005, 9:18am »
Quote Quote Modify Modify

Changeling - couldn't agree more with your prognosis of OUCH UK.  
 
Some really good helpful people who do care and yet they're always getting in the firing line - the clustermasx stuff was just plain silly of them.
 
I was even told that Prof Goadsby backs clusterbusters - tho' it can never be on record with things as they are.  What more do you need than the growing number of people who say it's absolutely brilliant and works for me for it at least to be taken seriously?
 
I've seen and read enough to be a very enthusiatic backer and it works really well for me. There's the website and an discussion group on Yahoo both with loads of information.
 
Further down the line you'll get every support - but it's at your disposal now whether or not you have a shot at a painfree Christmasn (you've got the seeds?).
 
If it works it could just be the best Xmas present you ever got for yourself (for life - not just for Xmas!!). Feel free to give me an email or shout if it'd help.
 
All the best
 
Andrew
IP Logged

O2 and clusterbusters - naturally
Beastfodder
New Board Old Timer
United_Kingdom 
****



O2 and clusterbusters - naturally

   


Gender: male
Posts: 294
Re: Hi......almost new
« Reply #8 on: Dec 19th, 2005, 9:28am »
Quote Quote Modify Modify

Tony - one last thought (I forgot) have a look at the side effects of Lithium and its long term use.
 
It won't be good reading, neither will reading up any of the prescription alternatives. It's nasty chemicals we get given (O2 excepted) - I've been on carbazemine (Sp?) and Pizotifen in the past, both had unpleasant side effects.
 
All the best
 
Andrew
IP Logged

O2 and clusterbusters - naturally
Changeling
New Board Newbie
United_Kingdom 
*




Rehab is for Quitters

   


Gender: male
Posts: 11
Re: Hi......almost new
« Reply #9 on: Dec 20th, 2005, 2:07pm »
Quote Quote Modify Modify

Hi thxx again for all your replies, i feel quite at home already Smiley....i havent finally decided about treatments, but as i already said in th Treatments forum, i am not v happy about lithium, i have some LSA seeds, i think i WILL try them for xmas Grin,
 
tony
« Last Edit: Dec 20th, 2005, 2:07pm by Changeling » IP Logged

'I'm the Changeling........see me Change' Jim Morrison
cazman
New Board Veteran
USA 
***



if ya dont like it take a walk

    kingcazman
Email

Gender: male
Posts: 223
Re: Hi......almost new
« Reply #10 on: Dec 20th, 2005, 3:18pm »
Quote Quote Modify Modify

welcome i like the name lol that was the name of my second band when i was 19.
grab a chair sit down have some coffee and get to know us we care and we are always there.
IP Logged
Changeling
New Board Newbie
United_Kingdom 
*




Rehab is for Quitters

   


Gender: male
Posts: 11
Re: Hi......almost new
« Reply #11 on: Dec 20th, 2005, 7:21pm »
Quote Quote Modify Modify

on Dec 20th, 2005, 3:18pm, cazman wrote:
welcome i like the name lol that was the name of my second band when i was 19.
grab a chair sit down have some coffee and get to know us we care and we are always there.

 
Hi Cazman glad you like the name, funnily enough it's what my mum said i was when she was pissed off with me, but later i heard th Doors song and  decided to take th name for my own.What was the band like? I'm a musician too, play electric guitar (original '61 Strat) amongst other things. Cool
 
Thxx for both th caring and th virtual cofee, i'll be staying around i think, until they find a cure for CH anyway Grin Cheesy
 
 
tony
« Last Edit: Dec 20th, 2005, 7:21pm by Changeling » IP Logged

'I'm the Changeling........see me Change' Jim Morrison
cazman
New Board Veteran
USA 
***



if ya dont like it take a walk

    kingcazman
Email

Gender: male
Posts: 223
Re: Hi......almost new
« Reply #12 on: Dec 20th, 2005, 8:23pm »
Quote Quote Modify Modify

it was an all rock band im still doing it today im a vocalist i was recently in studio working on some original music of my own i wrote a song about ch called the beast inside  ive put it aside for the moment to finish some other projects and keep a promise to a kid i met in new orleans. ill get back to it after the first of the years thou. im glad you have found this place my friend , the people here have litterally saved my life , im pf right now but i feel a great debt to this place and i come here in pain or not, hang in there buddy and be strong, music is a great source of strenght.
IP Logged
MJ
New Board Hall of Famer
USA 
*****





   


Gender: male
Posts: 911
Re: Hi......almost new
« Reply #13 on: Dec 22nd, 2005, 1:24am »
Quote Quote Modify Modify

Welcome Tony.
IP Logged

MJ
Ghost
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Farting relieves the pressure

   


Gender: male
Posts: 4024
Re: Hi......almost new
« Reply #14 on: Dec 22nd, 2005, 3:24pm »
Quote Quote Modify Modify

Like you just recently went chronic and have been getting good advise here thank god for people that care enough to help, to many to name but at or near the top being jonny, Helen, Nani(Mom), Maria(Langa,Langaroo, lasanga) Grin Frank, Eric Eric, Wink Exploding, Jaz oh heck everyone especially all the CHenz(Cluster Henz), Sooo much help and always seems to have someone here hanging out waiting to help, talk, whatever. I even hope I can help too and will try but mostly here as comic relief.... laugh Grin Wink Grin
IP Logged

Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?

***WARNING*** Oxygen will rust your pipes!Wink
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss