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(Message started by: Katie B on Jan 31st, 2004, 6:32pm)

Title: another new member
Post by Katie B on Jan 31st, 2004, 6:32pm
hi everyone, i've been watching the board for the last week or so and finally decided to post. i'm a 23 year old female and was diagnosed in november by my family doc. i'm definitely an episodic, getting CHs only a few times a year for the last year and half or so. he gave me imitrex but fortunately i haven't had opportunity to use it, haven't had an episode since november  ;;D . i haven't started keeping a headache diary yet so i really don't even recognize a pattern yet. i'm sure i have a lot to learn, and it seems that i'm in the right place. so hello to all of you!

Title: Re: another new member
Post by Kevin_M on Jan 31st, 2004, 6:42pm
Prop up a pillow and get comfortable.  Stick around, glad you're here.  Welcome Katie B.  Whatever you are looking for or need, just ask.  Lots of people have two cents in their pocket to give. ;)

Kevin M

Title: Re: another new member
Post by Edna on Jan 31st, 2004, 7:00pm
Hiya KatieB

So glad you've found us here, but so sad that you had to though.

Please take the time NOW to read, read, and then read some more around here. Especially now, while you're perhaps not in a cycle period. You'll better be able to understand most things instead of when you're getting hit with attacks from the beast.

We'll be glad to help with what we can, and are always interested in your progress.

Join us also most nights at our common meeting ground:  

we chat there most evenings and would love to have you join us.

Keep us posted on your progress, and again



Title: Re: another new member
Post by cakelady on Jan 31st, 2004, 7:20pm
Hey Katie,
   Glad you decided to jump in. There are  a bunch of great people here who can offer help and support.

Ditto on the comment to read up on this beast. That way if he hits you full force, you will be armed


Title: Re: another new member
Post by thomas on Jan 31st, 2004, 10:12pm
Welcome aboard, sorry to hear that you are dealing with this damnable thing.......... when keeping your diary, just for curiosity's sake, see if there is a difference in frequency and duration of your cycles when using imitrex........

Title: Re: another new member
Post by Callico_Kid on Jan 31st, 2004, 10:20pm
Welcome!  Glad you are PF, hope it stays that way.


Title: Re: another new member
Post by tiredofclusters on Jan 31st, 2004, 11:17pm
Welcome Katie
Glad you found us, Very sorry about your CH
Every time i hear of someone else having CH tears come to my eyes. I wouldn't wish this BEAST on my worst enemys. When i found out i had CH. my doc. ask me to keep a diary. Not sure it done any good though. Didn't learn much from it.

Good luck

Don't let the BEAST get u down, we're born to live, not to hurt!


Title: Re: another new member
Post by TxBasslady on Jan 31st, 2004, 11:49pm
Welcome Katie.........

Thomas is right......keeping a diary can be very helpful.  Not just for your information, but it is something you can share with your doctor.

Glad to know you are pf at this time.  Hope you have lots of pf time!

PF vibes,


Title: Re: another new member
Post by Tiannia on Feb 1st, 2004, 1:00am
Welcome Katie - When I first started a diary for my doc I would just put down start and stop times and he said it was usless. So after that I really got retailed. When I felt shadows, if I got sweats. Then it hit how it felt did it change in intenstiy while it was hitting and such and then when it stopped.  Witht he times andsuch.  This finally got my doc to see that I was not blowing smoke to see that I really had somethign going on consistentily that was causing me serious pain. So just write down everything. You never now wht it might show.


Title: Re: another new member
Post by tsayswhy on Feb 1st, 2004, 1:31am
Hello Katie

welcome a board :D

glad to see you are PF. There is so much to learn here and while you are pain free its a good time to sit down and read everything so that when you are in cycle you understand exactly what is happening and how to deal with it, wish you well ;)


Title: Re: another new member
Post by ShariRae on Feb 1st, 2004, 2:13pm
Hi Katie..welcome aboard..
stick around.. lots of helpful info as well as a great group of lifelong friends..

Title: Re: another new member
Post by Kirk on Feb 1st, 2004, 4:12pm
Welcome to the Maelstrom. So glad to see you're getting a handle on this early.
Stick around there are some very nice knowledgeble people here to help somewhere. A few are even sane.

TTFN [smiley=wave.gif]

Title: Re: another new member
Post by Charlie on Feb 1st, 2004, 4:13pm
Welcome aboard Katie. While there is nothing to say that you'll ever experience this horror again, if you  have serious evidence that Imitrex will help, you might want to stockpile the stuff. HMOs are really nasty about it. If I'm nuts, the others will correct me.

I was 23 in 1969 when I was first hit with this horror and 45 when they went into remission. Maybe you'll never hear from this monster again.

Here are two links that you might find useful (especially if he dares to appear again:)

This is a great one for describing to others that this has nothing to do with what is thought of as a "headache:"

Let us know how things are going.


Title: Re: another new member
Post by Little Deb on Feb 1st, 2004, 5:08pm
Welcome Katie.  Welcome to Clusterville.  Nice to meet you.

Little Deb
Raleigh, NC

Title: Re: another new member
Post by chronic_chic on Feb 1st, 2004, 5:19pm
Welcome, fellow 23 year old who it already seems that I have things in common with based on talking to you! :)

When my dad's best friend was in college, he got clusters and they were chronic for 9 years.  He even went through law school with them.  However, in 1980, they went away and did not come back.  Charlie is right...maybe one day they'll just leave!  It's always a possibility.  Take care!

~Lizzie :)

Title: Re: another new member
Post by Paigelle on Feb 2nd, 2004, 9:29am
Glad you are not in cycle at the moment.  Welcome!

Title: Re: another new member
Post by Katie B on Feb 2nd, 2004, 9:08pm
thanks to all of you for the warm welcome and the links and the smiles!

Title: Re: another new member
Post by amen on Feb 6th, 2004, 5:49pm
Sorry you have to be here but WELCOME.  These people will take good care of you!
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