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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> new guy- old sufferer
        
(Message started by: randal on Feb 10^th, 2004, 7:20pm)

Title: new guy- old sufferer
Post by randal on Feb 10^th, 2004, 7:20pm

Will it seems like I am an old sufferer.Anyway Hello My name is Randy and I have had CH for about 25 years now. So far this website has been awesome.
Married- Father of Two/22 & 15
It seems I have tried every medication there is but I know thats not possible.I was one of Stanfords first Ginni-Pigs in 1979 for a Prednisone study of clusterheadaches.They put me on 100 Mg a day for 3 months before even starting the taper.Of course at that time I had no Idea you had to taper off this stuff I was willing to try anything to get rid of this Devil or whatever the hell it was out of my head. I wound up not suffering as bad but the side effect where WOW. I gained 150 pound of water fat-3 chins and my face looked like the surface of the moon.What a memory....Thanks for your help so far and cant wait to learn anything I can.[email]clusterhed@aol.com

Title: Re: new guy- old sufferer
Post by Paigelle on Feb 10^th, 2004, 7:31pm

Welcome to the family! Sorry you had to find us, but glad you did. We are all a little nutso here and we have all been guinea pigs, as a matter of fact we still are. Stick around and be brave it is hard to tell what you will see and hear!

Paige

Title: Re: new guy- old sufferer
Post by fubar on Feb 10^th, 2004, 8:07pm

Welcome aboard Randy. What's your current condition? In/Out of cycle, or (God forbid) chronic? Have you tried any of the suggestions here like Oxygen, Melatonin, etc...

-fubar

Title: .Re: new guy- old sufferer
Post by katlee on Feb 10^th, 2004, 8:19pm

Hello Randal I'm a new gal-old sufferer! I have had CH for around 20 or so years,not chronic, but was told I had migraines. Found out differently a few years ago but did not know about any meds for CH till I found this site. This place has been very helpful to me and I hope it will for you too.

Title: Re: new guy- old sufferer
Post by Charlie on Feb 10^th, 2004, 8:47pm

Welcome to the fold. Here, you'll find lots for support and some good ways to deal with this horror. Sadly, the club grows every day but so does our determination to survive.

Here is a link to something that worked very well for me:

http://www.netsync.net/users/charlies/

I hope you stick around and let us know how you're doing.

Charlie

Title: Re: new guy- old sufferer
Post by BlueMeanie on Feb 10^th, 2004, 8:58pm

Welcome Randal !

Looks like you've suffered abunch. You should find some good info here. Read all you can. Hopefully you'll find something new that will help you deal with the Beast.

Title: Re: new guy- old sufferer
Post by ClusterChuck on Feb 11^th, 2004, 1:20am

Welcome aboard!

on 02/10/04 at 19:31:50, Paigelle wrote:

We are all a little nutso here

Don't mind Paige, she is ONLY a female!!! I just wish she would go back to the "home", they have her padded room waiting for her.

Not all of us are nuts ... well maybe a LITTLE bit ...

Chuck

(Now running to hide, before the flying frying pans start at me ... )

Title: Re: new guy- old sufferer
Post by TxBasslady on Feb 11^th, 2004, 2:06am

Hi Randy,

Welcome to the board.

Tons of good information here. Read the links on the left, if you haven't already done so.

Wow, sounds like you were on a helluva Prednisone trip!

Would be interesting to know if you are currently on any meds. And like Shawn said.....are you chronic, episodic, in or out of cycle?

Let us know how you're doing.

PF vibes,

Jean

Title: Re: new guy- old sufferer
Post by mediccpc on Feb 11^th, 2004, 9:12am

Randy Welcome,Sorry your here. One of the things I felt when I found this site was,I'm truly not alone. learn as much as you can.

Title: Re: new guy- old sufferer
Post by randal on Feb 11^th, 2004, 5:07pm

I am in a cycle right now and it will most likley go on for about 6 weeks.I am not chronic but I have had a few CH during the rest of year out of cycle if I eat something wrong or dont quit the habit. (to many ciggs). I am just taking IMITREX 100 MG and still take Varapamil 240 MG every day.
Take Care RB