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New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Hello Everbody
(Message started by: Scooter on Feb 26th, 2004, 6:13pm)

Title: Hello Everbody
Post by Scooter on Feb 26th, 2004, 6:13pm
I have been a Cluster headache suffer for over twenty years.  From about 1997 till 2000 they were chronic I was using a lot of O2 and imitrex.  In 2000 I discovered I had Heart diease and had two stints put in to keep the blockage open also around that time I had been takeing Verapamil and the Doctor added Inderal and the Headaches stopped.  Its has been four years with out  a headache I thought for sure I was cured.  About six months ago Doctor put me on Niaspan 1000mg to get my HDLs up every thing seemed to be going fine till two weeks ago and the Clusters are back they started miled but are getting more intense.  Here one of the bad things the Doctor does not want me to use imitrex, so Iam trying to control the beast with O2 and fioricert,  the fioricet does not work worth a darn.  Great job DJ has done with this sight it has really grown in four years and Ill keep reading for new ideas do not know what to try now. (Thanks DJ great services for us Cluster suffers)

Title: Re: Hello Everbody
Post by Belle on Feb 26th, 2004, 6:19pm
Welcome back Scooter.  Sorry to hear that your CH's have returned.  I'm surprised that your doc doesn't want you to try Imitrex.  Every doc I've been to about this, the first thing they suggest is Imitrex.  Although it doesn't work for me most CHer"s swear by it.  How come he doesn't want you to use it?

Hope you find some relief soon.


Title: Re: Hello Everbody
Post by pubgirl on Feb 26th, 2004, 6:36pm

Vasoconstrictors aint the greatest idea in the world if you have heart trouble!


Title: Re: Hello Everbody
Post by Prense on Feb 26th, 2004, 8:22pm
...and fioricet normally does notta for CH.

Title: Re: Hello Everbody
Post by amen on Feb 27th, 2004, 3:08pm
Everyone is different.  The fiorcet worked for me.  (this time)  Welcome back, but sorry you had to come back.

Title: Re: Hello Everbody
Post by TxBasslady on Mar 1st, 2004, 1:35am
Welcome Scooter,

Hope you find what you need to control the beast.

Have you tried melatonin?  You might read up on some of the posts where it is discussed.  Seems to help alot of folks here.

Good luck and PF vibes,


Title: Re: Hello Everbody
Post by Belle on Mar 2nd, 2004, 5:13pm
I didn't know that Wendy thanx for the info.  See we are always learning.

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