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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> never met other ch suffers
        
(Message started by: painfulbrain on Mar 22^nd, 2004, 5:53pm)

Title: never met other ch suffers
Post by painfulbrain on Mar 22^nd, 2004, 5:53pm

I am just glad to hear that I am not alone.
For 15 years I have been suffering with clusters.
My doctors did not seem to understand. They thought
I was having mygrains. Need help with meds.
I am 43 years old and would like to see another 40.
Thanks for a place to relate with someone who understands.

Title: Re: never met other ch suffers
Post by Luke63 on Mar 22^nd, 2004, 5:58pm

Hey buddy...welcome...lots of help here for ya..there really is.You'll learn alot and get goin right away...a vast wealth of knowledge and wonderful people on here...so get goin...what are you waitin for......bet your head stopped hurtin just abit already..didn't it? Mine did when I found this place! [smiley=wave.gif] Luke

Title: Re: never met other ch suffers
Post by thomas on Mar 22^nd, 2004, 6:01pm

Well, I guess you'll just have to walk down the street in July to Nashville and meet a whole bunch of us. ;;D You need to find an abortive that works, that is the #1 priority. Then work on finding a preventive strategy that works.

Title: Re: never met other ch suffers
Post by jonny on Mar 22^nd, 2004, 6:28pm

Yeah Dude....How would you like to meet a whole shit load of us?

Check this link....We are coming to YOU....LOL

http://www.clusterheadaches.org/conventions/2004/index.htm

Welcome aboard!

.......................jonny

Title: Re: never met other ch suffers
Post by Superpain on Mar 22^nd, 2004, 6:46pm

on 03/22/04 at 17:53:38, painfulbrain wrote:

Me too. I just joined last week and have learned more in this week than any Dr told me in 18 yrs!

Mission #1 for you = GET A TANK OF OXYGEN! Medical or welding, there is no difference except for price. It's a life saver! No shit... ;)

Title: Re: never met other ch suffers
Post by Luke63 on Mar 22^nd, 2004, 6:50pm

CONVENTION...CONVENTION...CONVENTION.....Gettin pumped for it man...just printed my form to send in. Go for it too painfulbrain!!!! [smiley=hammer.gif]...Luke

Title: Re: never met other ch suffers
Post by christinenscott on Mar 23^rd, 2004, 1:19am

Hi There!!

ClusterFolks understand!!

You are not alone! My husband (43) just started this shit. Nobody deserves this. NOBODY!!

Since we are first timers, we don't have sage advice, but we can tell you that there is strength in numbers. Knowing that we are not alone is a huge help.

Pain, pain, pain. What a demon. We call it the Enemy in this house. The Enemy attacks. We are currently looking for ways to attack the Enemy back. We'll let you know what those ways are when we know.

Get a neurologist. We just got one and he put my husband on Verapamil. 3 days into it. 10 hours pain free today, but one GrandDaddy of an attack tonight. Hopefully the pain free trend continues.

You are in our thoughts.

Christine and Scott

Title: Re: never met other ch suffers
Post by TxBasslady on Mar 23^rd, 2004, 1:30am

Hi and welcome to the board.

Read all the info in the links on the left. You'll learn alot about meds and also home remedies that work for some.

Don't be afraid to ask questions and by all means, let us know how you're getting along.

Lots of knowledge, support and great folks here!

PF vibes,

Jean