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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> I am glad I found this site
        
(Message started by: BrianS on Apr 16^th, 2004, 11:37pm)

Title: I am glad I found this site
Post by BrianS on Apr 16^th, 2004, 11:37pm

Hi all!

Just when I thought I was nuts... I would explain my headaches to friends, doctors and others who would ask why my eye watered and why I would stick my finger in my eye or sit with my eyes shut as tight as I could till I got relief. I found this site.
I would classify my CH as chronic. I am turning 27 on April 19 and have had CH for at least the last 3 years. I am a minister in a fairly large church and there are times I walk in the hallway of the church with my eyes closed cause the CH is so bad. My CH seem to be a little diffrent then what I have read thus far in that my CH occur at least 4-6 times a day, are at least 9's on your scale (and your saying how are they diffrent) mine last less than 3 minutes. Sometimes I worry about driving because I can hardly keep my eyes open. Like you guys I do wake up in the middle of the night crying and hitting the bed till they subside.
Sometimes they are so bad 11's on your scale that I get up and chew asprin with shots of vodka now again I am a minister who has never drank in my life. I am not sure if it works.
Do any of you have CH like mine?

Blessings
BrianS

Title: Re: I am glad I found this site
Post by HypnoticFreddy on Apr 16^th, 2004, 11:49pm

ummm doing vodka chasers certainly don't sound like clusters to me, but thats my opinion.

Also 3 min headaches could be something else. Perhaps someone else knows?

-Scott

Title: Re: I am glad I found this site
Post by BobG on Apr 17^th, 2004, 4:34am

Welcome to the board Brian. Sorry you're hurting.

The description of your pain does not sound like cluster headache to me. But, I’m not a doctor so don’t go by my word. Because you say it only lasts 3 minutes it sounds more like pain called Chronic Paroxysmal Hemicrania (CPH)
Here’s a couple of sites to click on:

http://www.clusterheadaches.org/comparison_table.htm

About the asprin chewing…….click this:
And it has a little more about CPH just below the rebound headache paragraph.
http://mhni.com/faqs_other_headaches.html#CPH

Title: Re: I am glad I found this site
Post by pubgirl on Apr 17^th, 2004, 9:15am

Bob is right

Your symptoms are much more like other TAC's e.g. PH/CPH/SUNCT/TN.
The good news is that some of these are eminently more treatable than CH.

Have a good read of the information available in the OUCH library and I think you may find your condition may not be CH at all. No less painful of course, but maybe less resistant to treatment

Wendy

Title: Re: I am glad I found this site
Post by Melissa on Apr 17^th, 2004, 10:37am

Brian, since I really cannot add to the great advice that has already been given, I will just say welcome to ch.com and I am so sorry for your pain.

Take care,
:)mel

Title: Re: I am glad I found this site
Post by BrianS on Apr 17^th, 2004, 10:25pm

Thank you guys very much I believe you are correct. The cluster was the closest thing I had ever seen to what I experienced. Now I believe it is CPH. Thank you again

BrianS