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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Freshly Diagnosed
        
(Message started by: rollerzonly61 on Apr 29^th, 2004, 9:14am)

Title: Freshly Diagnosed
Post by rollerzonly61 on Apr 29^th, 2004, 9:14am

Hi everyone,
I am have just recently been diagnosed with episodic clusters. I had my first episode 2 years ago, but the doctors thought I had a pinched nerve and gave me anti-inflammatories. Funny, my cycle had just broke after a month when I was finallly treated, so I thought my medication worked, but I was really just ending a cycle.

I am in my second cycle now, and I have finals week right now, plus I am graduating college, and I do my physical fitness testing for the police academy in ten days. I am at my wits end, I can't see a neurologist because my referral is from a doctor in Philadelphia, not Pittsburgh where I go to school. I have to suffer through each headache, they are usually 7 or 8's. The only thing I have to take is Imitrex pills, but they take forever to work. Matter of fact, I ws just awaken from dead sleep with one of these evil headaches. I can only pray that this cycle will break soon. It has been almost three weeks with a headache or two every other day.

I just wanted to share with everyone because no one else can even come close to grasping the pain of a cluster. At least the people on this site understand what I'm going through and what bad, bad timing these headaches take. Thanks for reading.

Title: Re: Freshly Diagnosed
Post by daffyswacky on Apr 29^th, 2004, 11:27am

hey roller...oh how i feel your pain..itoo was finally diagnosed yesterday although my suffering started just about 5 weeks ago...same deal pinched nerves, sinus's, trauma fom earlier severe concusion which resulted in my having spinal cord surgery whick made that my lucky #13 back surgery. i too was given imitrex plus i was also given a strong dose of prednisone to start i am sorry that you are going thru such stress with finals and the police academy i wish you well.please feel free to to e-mail me...i cannot believe there are so many of us out there ;;D

Title: Re: Freshly Diagnosed
Post by rollerzonly61 on Apr 29^th, 2004, 2:09pm

Yeah,
I never knew so many people suffered. No one else understands the pain levels...."Is it like a migraine?" Yeah, multiply that by about 100 and you still won't even have a slight concept of the pain. Flying wall headbutts are really my new talent these days.

Anyway, I will be back to Philly next week for good, so hopefully my doc will try some prednisone on me. I've used it before for poison ivy and such, so I'm not allergic. Thanks for the support.

Title: Re: Freshly Diagnosed
Post by thomas on Apr 29^th, 2004, 2:16pm

Ask your doc about O2. Welcome aboard, dude.

Title: Re: Freshly Diagnosed
Post by Filbert on Apr 29^th, 2004, 2:30pm

Hi Rollerz
Welcome to the board but very sorry you have been diagnosed with CH. They do have a habit at surfacing at just the wrong time in your life [not that there's ever a good time]. Hope you get some relief soon so you can get on with the events coming up!!

Filbert

Title: Re: Freshly Diagnosed
Post by UN_SOLVED on Apr 30^th, 2004, 3:49am

on 04/29/04 at 14:09:58, rollerzonly61 wrote:

Flying wall headbutts are really my new talent these days.

Sounds like a clusterhead to me !
Sorry you got CH but welcome to the boards. There's alot to learn about dealing with this SHIT ... read up and hang around the boards !

Unsolved