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Title: Re: 20 yrs is to long Post by Superpain on Apr 30th, 2004, 5:13pm Sorry to hear it's been so long. That sux... You might suggest a prednisone taper to your doc. It helped me and alot of others. Not everyone, but alot of us. Get some O2! And imitrex injections are fabulous! |
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Title: Re: 20 yrs is to long Post by 9erfan on Apr 30th, 2004, 6:52pm Definitely get your Dr. to hook you up with some Oxygen! Read the O2 info on the left. V. |
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Title: Re: 20 yrs is to long Post by Cathi04 on May 3rd, 2004, 2:22am Eddie...you've got mail...check yer PM's, please.. |
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Title: Re: 20 yrs is to long Post by Cathi04 on May 3rd, 2004, 2:27am heyyy!!! I'm not the perfect person, but I am here!! it's been a rotten weekend, huh?? Man, I am sorry!! NOw, at the very least, bring some info for your Neuro tomorrow...there is plenty here at the left....print some out, and then, when you get to him/her..please, calmly, but emphatically, tell this DR what you need....now, all ya have to do is get thru this night....you can DO this.. |
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Title: Re: 20 yrs is to long Post by Lizzie2 on May 3rd, 2004, 7:22pm Good luck tomorrow, Eddie!!! It's gonna go great!!!!!!! [smiley=hug.gif] Let us know how it goes. :) Lizzie |
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Title: Re: 20 yrs is to long Post by Big Dan on May 3rd, 2004, 7:24pm Hey Eddie!... Glad you finally made it to the board... Stick around and be sure to read the whole site... alot of information that you can take to your doctors appointment... Good luck at the Neruo's... and let us know how it went, Bro.. ;;D -Big Dan |
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Title: Re: 20 yrs is to long Post by TxBasslady on May 4th, 2004, 1:29am Hi Eddie, Welcome to the board. Sorry you have been suffering for so long. Hopefully you will get what you need to fight the beast. Good luck at the doc's office! PF vibes, Jean |
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Title: Re: 20 yrs is to long Post by Lizzie2 on May 4th, 2004, 9:30pm Hey Eddie, I'm really sorry to hear that it didn't go well. Did you ask him about O2? What did he say? Could you possibly call them tomorrow and ask them about it? Hang in there, and know we are here to support you!! Effexor is used for some headache conditions, but I don't think CH really. Vioxx is also used for some headache conditions, too. It is a NonSteroidal AntiInflammatory Drug. Keep on posting!! Take care! Lizzie |
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Title: Re: 20 yrs is to long Post by OneEyeBlind on May 4th, 2004, 9:37pm Eddie, hang in there. Call and DEMAND some O2. It's cheap and doesn't have any side effects so your doc can't say NO. Just tell him it worked for you and works for other CH sufferers as well. Hang tough ! |
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Title: Re: 20 yrs is to long Post by Big Dan on May 4th, 2004, 10:20pm Hey, Eddie... Like the others said... call him back tomorrrow.. and DEMAND O2... he's a neuro... he know's that it'll help headaches... so it can't hurt to try. Let us know how it goes, and hope you can get some relief... We're here for ya, Bro.. -Big Dan |
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Title: Re: 20 yrs is to long Post by HypnoticFreddy on May 4th, 2004, 11:41pm Vioxx? For CHs, I have never heard of any Neuro prescibing that. Did he diagnose you with CHs? See a different doctor. Take the CH quiz too. Why would a Neuro prescibe Vioxx for CHs (am I missing something?) -Scott |
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Title: Re: 20 yrs is to long Post by Lizzie2 on May 4th, 2004, 11:55pm freddy, unfortunately...some docs don't have a clue... lizz |
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Title: Re: 20 yrs is to long Post by HypnoticFreddy on May 5th, 2004, 12:11am Yeah I just saw someone elses post that they recently FDA-approved Vioxx for migraines. I have never heard of NSAIDs being successful for CHs. God, if I saw a new Neuro, after all these years, after all this sufferring and pain beyond description and he said to take Vioxx and an anti-depressant I would have had a fit of agitation and prolly punched the guy. Sort of a joke. Sort of? Of course, Eddie if you are new.....keep reading and getting yourself informed because as unfortunate as it sounds, often we, the patients have to educate the doctors. As a tip, when in cylces I keep a headache diary and when I do see a NEW Neuro I bring a bit of literature. It only helps. Unless the Neuro is some reject. Most Neuros I have seen (hmmmm 4,5), all but one knew CH treatment fairly well. One even publishes in the medical literature as she is head of the Neurology Department at the Univ of Hartford. Key is proper diagnosis and finding an educated doctor. -Scott |
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Title: Re: 20 yrs is to long Post by HypnoticFreddy on May 5th, 2004, 8:12pm Eddie, Sounds like you are taking good steps in getting oxygen and finding a high flow rate regulator. Good job. You have done some reading!!! Good luck and hope you get relief! -Scott |
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Title: Re: 20 yrs is to long Post by Lizzie2 on May 5th, 2004, 8:36pm Eddie, That is GREAT!!!!!!!! Knew something would work out for ya!! Keep on fighting, buddy!! Lizzie :) |
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Title: Re: 20 yrs is to long Post by HypnoticFreddy on May 7th, 2004, 8:10am Eddie, I have never had these problems in the ear. Perhaps other CH'ers do though. I might be concerned you have something other than CHs. Have you been diagnosed? Good luck. -Scott |
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Title: Re: 20 yrs is to long Post by Cathi04 on May 8th, 2004, 11:01am Eddie.... keep talking, please....there are many here who are thinking about you and sending positive vibes..... I wish I could fix it, but all I can do is tell you there are friends here for you, and I wish you PF SOONEST!!!! Cathi |
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Title: Re: 20 yrs is to long Post by HypnoticFreddy on May 11th, 2004, 10:53pm Um Eddie.....I am a little worried about your mental state. Either you rush through your posts, and if you are in pain I understand but you said, and I quote, Quote:
Dude......I don't understand you. I asked if you have been DIAGNOSED with clusters. Pain on the top of the head is unusual for CHs. At least for me. It's all about the eye. -Scott |
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Title: Re: 20 yrs is to long Post by Little Deb on May 11th, 2004, 10:56pm Uhhh............since you are so close Eddie, are you going to Nashville???????????????????????????? Just wondering. |
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Title: Re: 20 yrs is to long Post by HypnoticFreddy on May 12th, 2004, 8:35am Eddie, For Crying out loud see another doctor. I think he must have you on medicine that makes your writing completely incoherent. You need to see a doctor who has "at least heard of" clusterheadaches. Take action!!! -Scott |
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Title: Re: 20 yrs is to long Post by Cathi04 on May 13th, 2004, 12:47pm Eddie...there are many here who want to help...sometimes they are quite direct, but as a CH er, you KNOW what they are going thru as well.... Have you checked your PM's??? Please keep reaching, Eddie... Constantly wishing you were PF, Cathi |
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Title: Re: 20 yrs is to long Post by eddie on Jun 17th, 2004, 1:10am http://www.healthsquare.com/newrx/EFF1153.HTM click on this and see what i have had to take it has made everything worse the side affects are bad eddie >:( some people here has pissed me off i have read so much i know im not stupid freddy but neuro are hard to find not all of them give a shit i paid cash to see him. i dont need crap from anybody im sick of it and catshit yea right. i know if you go to this web sight above the info is there. this stuff was killing me. so im on my on again. >:(EDDIE |
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Title: Re: 20 yrs is to long Post by eddie on Jun 17th, 2004, 1:17am http://search.atomz.com/search/?sp-a=000620ae-sp00000000&sp-q=cluster+headaches GREAT SITE FOR MED INFO GO HERE AND SEE THE INFO ON ALL MEDS FOR CH I HAVE DONE MY HOME WORK I DO KNOW WHAT CH IS EDDIE |
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