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(Message started by: meganturn on Dec 9th, 2005, 8:22pm)

Title: hello im new
Post by meganturn on Dec 9th, 2005, 8:22pm
hello my name is megan my dad cazman told me about this web site and helped me setup a name to join.
im 14 well almost 15 2 more weeks, ive been diagnosed with clusterheadaches wich my dad has too ,they started last spring but went away after 4 weeks or so , they started again about 3 weeks ago my dad has been spending alot of time explaining them to me and he told me that this is the place to go when i need to talk or i have questions so here i am . i just wanted to say hello im not sure what to say right now. is there anyone else here near my age with theses headaches? i was just wondering.
im going to read all the stuff he told me i should read my moms gonna read it to , well i guess thats all i have to say for now .thank you. :)

Title: Re: hello im new
Post by Melissa on Dec 9th, 2005, 8:41pm
Hello Megan.  I'm so sorry you have cluster headaches.  I don't wish anyone to suffer with them.  :(

I am glad you have a good Dad to help you understand the condition and hope that your cycle ends really soon.

Thanks for the introduction and please feel free to ask as many questions as you need to.

take care,

Title: Re: hello im new
Post by Jonny on Dec 9th, 2005, 8:43pm
Hi Megan,

Sorry to hear that you have these headaches, I was 12 years old when I first got them. I didnt have an outlet like this way back then (Im old ;;D)

Your Dad is a friend of mine and I know he will make sure you get the best of help!

You hang in there and always will stop and you can be pain free again, you will learn to rule the headaches rather than let them rule you!!


Title: Re: hello im new
Post by cazman on Dec 9th, 2005, 11:17pm
im so happy you finally came in meg theses are the people ive told you about dont be shy ask questions and read all the stuff here and we will get thru this together kiddo. jonny is good people he just looks scary lol just kidding .
ill see ya monday!

Title: Re: hello im new
Post by paul_pero on Dec 10th, 2005, 2:05am
Hi and welcome aboard.

I wish you didn't have to be here though.

This site helped me a lot to deal with the CHs and i'm sure it will help you too.


Title: Re: hello im new
Post by MJ on Dec 10th, 2005, 3:10am
Hi Megan.

Cluster Headaches can be a pretty ugly thing if we let them become so. We all understand how hard it can be.

So many of us fight them alone.
You have an advantage over all of us in having a father who knows.
We also know that at times even he will feel a bit helpless. Not only in his own battles but in yours as well.

Ultimately though the strength comes from you. The strength is something that few will ever know. Never ever let the headaches get you down. Because when they do the fight and the pain gets harder every time.

Also remember that when an attack is over its like being set free. Thats the time to smile and live as much as you can live with all the zest you can muster. If only for a little while. Others may never understand the hardship that you have.

Your father will allways understand and so will we when it comes to CH.

We could certainly use your help in here with guidance and understanding because for sure nobody listens to me. Questions you may have are never too simple or too complex as we are all still learning here. Dont make us think too hard though cause it hurts.

So welcome to cazman's funny farm.
How often do your headaches come? what do you do for them? how long do they last?


Title: Re: hello im new
Post by Kate in Oz on Dec 10th, 2005, 7:20am
Hi Megan,


I'm so sorry you suffer from CH too :-/ like Melissa said, you wouldn't wish these on anyone. I am glad tho that you've got someone close, your dad, who understands what you're going through.

I think part of the problem for so many of us oldies was suffering with the pain for years and years alone, not knowing what was going on. (Mine started in my late teens and I'm in my late 30's now.)

I'm sure you're dad will be a wonderful help to you, he's done the right thing by getting you set up on here. Honestly this place is wonderful and I think you will find lots of great people to chat with and get support from when you need it.

And Megan, like Jonny said remember they don't last forever. Stay strong and enjoy the pain free time.

Wishin you all the very best with the CH and have a great Christmas.

See you around,


edited to add:  Happy Birthday for 2 weeks time  ;;D

Title: Re: hello im new
Post by lionsound on Dec 10th, 2005, 9:31am
Hi Megan. It's so nice to see you here. :)

Sorry you are hurting. [smiley=hug.gif]

I am not 15 (I'm 35), but i clearly remembering having CH when I was. I remember trying to sit through an exam at school while having an attack.

I am so glad for you that you and your dad and mom know what's going on and are getting you the help and info you need.

Be well and Pain Free,

Title: Re: hello im new
Post by ben_uk on Dec 11th, 2005, 6:20am

 Hi Megan,
    Nice to meet you ;;D
luv n hugs

Hannah :-* (Ben_uks daughter,aged 13. ECH :'()

Title: Re: hello im new
Post by JenniferD on Dec 11th, 2005, 9:19am
Hi Megan. I'm so sorry that you have CH, but like the others said, you are really fortunate to have a dad who truly understands what you're dealing with.

I'm older too (probably your parents age!) but I remember having NASTY headaches when I was about your age, but the clusters started 20 years ago and it took almost 9 years for the doctors to figure out what was wrong with me!

You'll find lots of help and support here from some really cool people. Sometimes just having someone to talk to about clusterheadaches can be a big relief.

Remember that it DOES end, and enjoy every moment in between.
Take Care,

Title: Re: hello im new
Post by E-Double on Dec 11th, 2005, 9:26am
Hiya Megan,

You have a wonderful guide in you dad Eric.
He's certianly been a great support for many including myself.

I'm glad you came here and you will be given an enormous amount of knowledge to share with your folks and doctors as well as to take the info and make educated decisions on treatments that you will be offered.

It's a terrible condition but one that can surely be dealt with if you stay strong, learn and live ;)


Title: Re: hello im new
Post by nani on Dec 12th, 2005, 7:54pm
Hi Megan.  :)  Sorry you have to be here, but I'm glad you are. I started having these when I was teen and no one understood (or believed) me. We are here whenever you need us. For advice, for help, and just to listen if you need to be heard.
Let us know how things are going now and then, OK?
Girls are tough, so keep enjoying every pain free minute. hugs and pain free wishes, nani

Title: Re: hello im new
Post by burnt-toast on Dec 13th, 2005, 3:43am
Welcome aboard Megan.

Sorry  to hear you are experiencing CH at such a young age but at least you have someone to guide you through them.

The rest of us are also here when you need to vent or get some information as well.

Best Wishes


Title: Re: hello im new
Post by RichardN on Dec 14th, 2005, 12:00am
Hi Megan and Welcome to Clusterville

 You won't meet a finer bunch of caring, informed, helpful lunatics  ;) anywhere.  And we all truly understand your pain.

 If you haven't done so already, there's a "letter to friends & employers" (or similar title) I sure someone will send you the link to.  Make sure your school nurse, teacher(s) and principal get a copy.   Perhaps you could carry an "instant" pass to get out of class and hit 02 in the nurses office when you feel the onset of an attack?  

 Do know you can always come here and question, rant or whatever . . . . there's almost always someone here, someone else up with the beast . . . . but here you will find the tools and information to help you beat our common enemy.

 Be Safe,


Title: Re: hello im new
Post by Jasmyn on Dec 16th, 2005, 3:00am
Hi Megan, you're made of the strong stuff because you will be able to cope with this.

You'll have the support of your dad and all of us.  We here in Clusterville row the same boat and help each other when the going gets tough.

Yea, this sucks big time to hurt so much but you are not alone and life can still be good.

Welcome to our dysfunctional, crazy family and keep your chin up, we will help each other survive.


Title: Re: hello im new
Post by di.b on Aug 22nd, 2006, 2:41pm
Hi, we are new at this also. I say  we because I'm writing in reference to my daughter. She's just got done with an attack for now she's 17 year's old and has recently within the last few day's been released from a 5 day stay in the hospital where FINALLY has been accuratly been digagnosed unfortunattly with cluster headaches with migraine symptoms. At first the doctor's was expecting an anurism. I have swallowed myself up in research on this what I've seen described from a lot of messages as the devil. She is afraid to to anywhere and the early part of the day because this is when most of her attacks happen.  She is now starting to have panic attacks when she feel's it comming on.  She was having them so bad that the introveinious drugs and the strongest there is wasn't fazing them. I know they say this is a rare disorder and expecially in women my less a 17 year old girl and most doctors and even nurses at the hospital thought I was just an overreacting, overexaggerating, overprotecting mother until they wittnessed the attacks themselves. And of all the frustration, anger, fear, etc. that we felt from  their reaction or I must say non-reaction till it was to late, is that maybe if more medical field people see it, this disorder may become less rare and unbelievable to them and they might start treating it more urgently than they do for all clusterheads. I'm so glad I found this family because now my daughter can get on here and see she's not alone and besides her family and neurologist believes her. I pray for her so much that I've asked God to give it to me because I see how much pain she is in and I have to find it so deep down to stay in control of my own sanity for her own sanity because I know she need's to find some safe place and I know right now she only find's it in mom so please also help me pray for strength for my daughter because I love her more than life itself and seeing the fear in her eye's and to be so young and having to experience that kind of fear makes me feel so helpless that it makes me so sick to anger and so many other emotions that I don't want her to see.  Thanks for listening and you all are also in my prayer's.   Diana

Title: Re: hello im new
Post by Margi on Aug 22nd, 2006, 3:21pm
Hugs to you, Diana, I'm so sorry that your daughter (and you) are going through this.

I'm going to copy your post over to the Children With Clusters board - I'm sure you'll get some parents of clusterheads responding to you over there.  

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