Author |
Topic: The Jasper News! (Read 536 times) |
|
LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
 
 
Gender: 
Posts: 11720
|
 |
The Jasper News!
« on: Dec 15th, 2006, 3:19pm » |
 Quote  Modify
|
This is going to be a looong post so forgive me but it's been a busy two days for Jabs and myself.
We had an appointment with PG in London yesterday, Jasper was very excited about seeing his magic doctor again and insisted on calling him Professor Dumbledore (which tickled PG no end!) They were sat discussing Harry Potter and the Custard Monster and all sorts 
A while ago Paul suggested I ask about melatonin for Jasper which hadn't ever occured to me (just goes to show how much talking amongst ourselves helps all of us!) PG was quite keen on this so he has prescribed Melatonin for Jasper. Strangely they can prescribe it for kids but not adults - go figure! Anyway it had to be posted on from the hospital and it arrived this morning (Way to go royal mail!) with big stickers saying "Medical Supplies" All I could think of was that joke about the chinese man hiding in the store room and jumping out shouting "Supplies!" I was in the house alone, giggling like a loon.. nothing new there eh?! BIG thanks to Paul too because if this works Jasper's usual 6 month cycle might not be so tough.. fingers crossed please everyone!
We popped in to see Val, one of my friends from OUCH UK who was having DHE and we went to look at the tree while she was having her cannula changed (I'm queasy!) There was a woman with a regular O2 mask on in one of the beds and a nurse said to Jasper "I'll bet you know what that is don't you?" Jasper promptly answered "Yes that's the mask for people who don't breathe properly to make the custard monster come out of their nose" Pretty damning when a 5 yr old slates the old non rebreather!
We had a bit of an incident at Kings Cross (train station) which upset me. Jasper was singing his favourite Christmas carol and a Muslim woman came up to me and said she found it offensive that my child was singing Christian songs. I was very tired, I was very sore and I had no patience. I told her that THIS is a Christian country, we are approaching a Christian Festival and if my son wants to sing Christian carls then that's exactly how it should be. I told her she might be offended by that but Iwas offended by her walking around looking like an advert for Ali Baba's Curtain factory and she backed off rapidly. I have to admit, I was ashamed of myself but at the same time I'm still livid.
Today was Jaspers Nativity play. They did it really nicely with the Snowman morphing into a Christmas Nativity Play (too many kids and not enough parts!) The kids sang loads of carols, had a fantastic time and finished with Do they Know its Christmas? Its very poignant hearing 4-7 year olds singing Feed the World and meaning it. I'll tell you now I was reduced to tears.
Jasper was a Star so he insisted on wearing a T shirt Jean bought him wih the Lone Star on it. He can be quite forceful when he wants to be but I thought it was wonderful and entirely appropriate! We had a little bit of Texas at the Bingham Nativity Play which is exactly how it should be 
I took some pics and here they are if you'd like to see. The Album is Jasper's Nativity.
http://community.webshots.com/user/lelimey
|
|
 IP Logged |
The arsehole I'm divorcing needs to get a life and stop stalking mine
|
|
|
Tara Ann
CH.com Alumnus
New Board Hall of Famer
It's always darkest before the dawn.
Gender:
Posts: 2459
|
|
Re: The Jasper News!
« Reply #1 on: Dec 15th, 2006, 3:25pm » |
Quote Modify
|
He is a one of a kind kid with a one of a kind mum. Prayers and vibes and things all crossed that the melatonin helps him this cycle....... just breaks my heart to hear about a child in pain.... but man o h man he's got some cool spunk...
Wonderful pics Helen.......ya got some gorgeous kids that's for sure!
|
|
IP Logged |
http://www.myspace.com/taraann77
 
|
|
|
The mad viking
CH.com Alumnus
New Board Hall of Famer
Always Look on The Bright Side of Life
Gender: 
Posts: 3135
|
|
Re: The Jasper News!
« Reply #2 on: Dec 15th, 2006, 3:30pm » |
Quote Modify
|
Helen
Jasper is definatly one of a kind
No wonder he is our hero
Svenn
|
|
IP Logged |
Always Look on The Bright Side of Life
|
|
|
LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
Gender:
Posts: 11720
|
|
Re: The Jasper News!
« Reply #3 on: Dec 15th, 2006, 3:43pm » |
Quote Modify
|
I've struggled alot with Jasper and his CH this year, worse than ever before and I don't often talk about it 'cos I can't. I just cry. I cope with it, I deal with it, but don't try and get me to talk about it.. yesterday when he said to PG that the Custard Monster eats his eye - I just wanted to howl like a mad woman. I literally wanted to scream ashard and as loud as I could. He is the bravest person I've ever known. It's all down to him too not me. He is his own person and he is now old enough to speak for himself and in a way I think that's what makes it harder. Up to this year, it was me who spoke for him at appointments. He uses his own words now and I have to listen and its BLOODY tough.
I have got one more funny story though to lighten things again. On the way home a woman got on the train with a Pewter Skull and Crossbones brooch on her top it had black diamante on it. Jasper told her he liked her pirate badge and proceeded to have a conversation about pirates with her and to touch her brooch. It was cute. We got off the train anyhow and as we were walking up the platofrm I said to him "So you liked her pirate badge did you?" and he replied
"No mummy, I liked her boobies but it was better to say badge!" He's just a typical CH Pervert like the rest of you boys after all!!! 
|
|
IP Logged |
The arsehole I'm divorcing needs to get a life and stop stalking mine
|
|
|
Jimi
CH.com Alumnus
New Board Hall of Famer
Who loves ya baby!
Gender:
Posts: 2286
|
|
Re: The Jasper News!
« Reply #4 on: Dec 15th, 2006, 3:44pm » |
Quote Modify
|
Yeah, what Taraann said. My thoughts exactly. I sure am looking forward to meeting him next year. The muslim woman incident just ticks me off to high heaven. You handled it just right. Grrrrrrrrr. Merry Christmas Helen! 
|
|
IP Logged |
I am convinced that life is 10% what happens to me and 90% how I react to it.
|
|
|
Redd
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 6661
|
|
Re: The Jasper News!
« Reply #5 on: Dec 15th, 2006, 3:52pm » |
Quote Modify
|
Helen....that is one very smart (and prematurly mature) young man you have there.
His diplomacy at such an age is a true testiment to his Mum's teachings.
|
|
IP Logged |
I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
|
|
|
Dape
CH.com Alumnus
New Board Old Timer
WHY BOTHER !!!!!!!!!!!!!!! !!
Gender:
Posts: 494
|
|
Re: The Jasper News!
« Reply #6 on: Dec 15th, 2006, 3:57pm » |
Quote Modify
|
on Dec 15th, 2006, 3:43pm, LeLimey wrote:| He is the bravest person I've ever known. It's all down to him too not me. He is his own person and he is now old enough to speak for himself |
|
Well i don't care what you say it is obvious where he gets it from, he has a mum that is the strongest person i know and i have a lot af respect for her.
on Dec 15th, 2006, 3:43pm, LeLimey wrote:"No mummy, I liked her boobies but it was better to say badge!" He's just a typical CH Pervert like the rest of you boys after all!!!
|
|
WTG little buddy 
|
|
IP Logged |
D.I.L.L.I.G.A.F ???
Well i used to 
|
|
|
pattik
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2404
|
|
Re: The Jasper News!
« Reply #7 on: Dec 15th, 2006, 3:58pm » |
Quote Modify
|
What a great kid! We all know where he gets his spunk from.
Quote:| "No mummy, I liked her boobies but it was better to say badge!" |
|
But where does he get his diplomacy?
Good luck with the melatonin. Wouldn't it be wonderful....
|
|
IP Logged |
The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: The Jasper News!
« Reply #8 on: Dec 15th, 2006, 3:59pm » |
Quote Modify
|
on Dec 15th, 2006, 3:19pm, LeLimey wrote:| Jasper was singing his favourite Christmas carol and a Muslim woman came up to me and said she found it offensive that my child was singing Christian songs. |
|
Oh, what you could have accomplished were it legal to carry a handgun in merry old England!
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
Grandma_Sweet_Boy
CH.com Alumnus
New Board Hall of Famer
What Goes Around Comes Around!
Gender:
Posts: 3267
|
|
Re: The Jasper News!
« Reply #9 on: Dec 15th, 2006, 4:25pm » |
Quote Modify
|
Oh Helen - first I felt so sad for Jasper and then I started to laugh at your comments to the Muslim woman and then Jasper and the "boobies". I can't wait to meet this little guy. I'm guessing we're all going to have to get up really early to get ahead of this youngster!!!
I pray the Melatonin works for him.
Pictures are so cute. You have a wonderful family, Helen. They are a credit to you and the way you've raised them. Be very proud, my friend.
Hugs
Carol
|
|
IP Logged |
|
|
|
BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
Gender:
Posts: 5164
|
|
Re: The Jasper News!
« Reply #10 on: Dec 15th, 2006, 4:58pm » |
Quote Modify
|
fingers crossed that the melatonin works. Give him a Texas hug for me...
And you handled the Muslin woman WELL. F*() her and her opinion. When in Rome (or Merry Old England as the case may be) do as the Romans. I've heard that all my life and it's never truer than today with all this political correctness. You were very diplomatic and I admire you for that (I'd probably have decked her and then explained to Jasper that she was a bad woman who needed to be destroyed, but that he shouldn't do that unless I gave him permission.) 
Hugs BD
|
|
IP Logged |
What don't kill ya, Makes ya stonger!
|
|
|
Cathi04
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 1745
|
|
Re: The Jasper News!
« Reply #11 on: Dec 15th, 2006, 5:34pm » |
Quote Modify
|
lol>...SNERK, SNERK..Anyone who knows me knows I am mean! I mean, really mean!!!
If I had been you, standing with my very worldly son, singing carols and this woman had approached and told US what she told you, I think I would've turned to little Jas and said somethin like this.........
"Oh, Jas, Mummy has to tell you something important. It's not really anywhere near Christmas, darling, but my love for you.....and this disease, well, I guess before the cat's out of the bag, I need to tell you, you are quite ill, my love and I wanted you to have a Christmas before it was too late....you know, maybe this woman is right. We should not be singing about something so special when, after all...why!... I can't bring myself to say it!!!"..and THEN Helen, you could collapse in a paroxysm of devastated tears, holding tightly to your son as you slide to your knees....while the woman looks on in horror........and then, ask her if a child's life is any more important than the method of one's worship?
OK, OK, melodramatic......and I thought you let her off easy Helen!
Jasper, you are my hero!!!!
Cathi
|
| « Last Edit: Dec 15th, 2006, 5:37pm by Cathi04 » |
IP Logged |
Life is not measured by the number of breaths we take but by the moments that take our breath away.
|
|
|
Mosaicwench
CH.com Alumnus
New Board Hall of Famer
Find joy in your day
Gender:
Posts: 1657
|
|
Re: The Jasper News!
« Reply #12 on: Dec 15th, 2006, 6:06pm » |
Quote Modify
|
I have to admit, I was ashamed of myself but at the same time I'm still livid.
Funny, I'm not ashamed of you at all.
They sing prayers five times a day and your kid can't sing carols? Well we know who ole Ebeneezer was modeled after now don't we?
|
|
IP Logged |
The difficulties of life are intended to make us better, not bitter. ~Author Unknown
|
|
|
LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
Gender:
Posts: 11720
|
|
Re: The Jasper News!
« Reply #13 on: Dec 15th, 2006, 6:24pm » |
Quote Modify
|
When I said I was ashamed of myself I only meant the bit about Ali Baba's curtain factory.. I descended to her level with that stupid remark but I'm not sorry I gave her what for. In fact she should count her lucky stars Jasper WAS there because that moderated me much more than she deserved!
|
|
IP Logged |
The arsehole I'm divorcing needs to get a life and stop stalking mine
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
   
Gender:
Posts: 14968
|
|
Re: The Jasper News!
« Reply #14 on: Dec 15th, 2006, 6:49pm » |
Quote Modify
|
When in Rome.
She was not ascending to your level either.
When will people get it that it just ain't the thing to do to make life harder than it already is? Screeching about particular verisons of God doesn't help.
Charlie
|
| « Last Edit: Dec 16th, 2006, 1:37pm by Charlie » |
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
Bethany1
CH.com Alumnus
New Board Hall of Famer
Always do whatever's next.
Gender:
Posts: 1612
|
|
Re: The Jasper News!
« Reply #15 on: Dec 15th, 2006, 7:51pm » |
Quote Modify
|
He such a beauty Helen. Those pics of him are just adorable. Prayers, Vibes, Mojo, everything I got will be sent his way in hopes that the Melatonin works. Love to you all-
B
|
|
IP Logged |
I am sofa king we todd did.
crack is wack
|
|
|
Kevin_M
CH.com Alumnus
New Board Hall of Famer
withered branches grow green again.
Gender:
Posts: 6184
|
|
Re: The Jasper News!
« Reply #16 on: Dec 15th, 2006, 8:07pm » |
Quote Modify
|
PG and Jasper can be tattoo buddies next time maybe.  He's always a little twinkly star Helen and a Texas size one too. 
Good job Mom.
|
|
IP Logged |
|
|
|
George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
Gender:
Posts: 4222
|
|
Re: The Jasper News!
« Reply #17 on: Dec 16th, 2006, 12:53am » |
Quote Modify
|
I'm not very good at saying what's in my heart, Helen, but your post reminded me of what's truly important after a day spent fussing over silly concerns about nothing much at all.
Transatlantic hugs to you and to Jasper--he's the bravest of little boys.
Best always,
George
|
|
IP Logged |
Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: The Jasper News!
« Reply #18 on: Dec 16th, 2006, 3:41am » |
Quote Modify
|
Helen, thank you for telling about your & Jasper's adventures. I hope and pray that melatonin will help Jasper and that his cycle will be a very short one indeed. What a brave little man!
I went to see all the pictures as well and I was reminded of my own school plays. I love stars and I wish that we had had a star dance as well.
And I must admit that I have little cousins whose mum has not taught her sons as diplomatic as Jasper...
I have no idea how I would have handled that Christmas carol thing... Back here, in Lutheran Finland, you will hear Christmas songs everywhere this time of year. It will be difficult to anyone who is offended about them. But still school plays and Christmas parties are altering; I don't think that they have Christian Nativity Plays in every school anymore, because schools want to respect other religions, as well. That is quite a lot from a county in which still around 80 percent of the population has the very same religion.
Of course back in here to be able to offend a Finn you must speak and understand Finnish! And I have noticed that our quiet nature is quite contagious; many people who move to Finland are loud when they arrive, but that will change in time! And back in here people are quite shy to approach strangers, that doesn't happen that much, so if someone would say something like that back here, EVERYONE around would look offended as well. Naturally things change and Finland is far more multi-cultural country than what it was even 6 years ago.
Best wishes,
Sanna
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
Langa
CH.com Alumnus
New Board Hall of Famer
So many donuts, such little time...
Gender:
Posts: 4179
|
|
Re: The Jasper News!
« Reply #19 on: Dec 16th, 2006, 4:53am » |
Quote Modify
|
Sounds like you've been busy lady!
Will be praying hard the Melatonin works for Jasp...sure would be a nice Xmas gift!
Loved the pics.
Love,
Langa
|
|
IP Logged |
When you saw only one set of footprints, it was then that I carried you.
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: The Jasper News!
« Reply #20 on: Dec 16th, 2006, 8:53am » |
Quote Modify
|
Professor Dumbledore, LOL... Jasper is just too darn cute! I loved the pics from the play! They are all so cute.
I'm praying that the melatonin works quickly and very well. hugs and lotsa love to all of you, nani
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
Woobie
CH.com Alumnus
New Board Hall of Famer
I luv you guys!!!!!!!!
Gender:
Posts: 3800
|
|
Re: The Jasper News!
« Reply #21 on: Dec 16th, 2006, 9:13am » |
Quote Modify
|
WOW
He's FUNNY... he liked the boobies - THAT cracks me up. I thought he was going to say something about JOnny and the pirate thing - guess NOT. LMAO
And - helen - what you said to that lady on the train was PERFECT.
I hope the melatonin works...
Love the pics!!
And I like Helen's storytime. I can HEAR you talking when I read it.......
miss you 
woobs
|
|
IP Logged |
|
|
|
LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
Gender:
Posts: 11720
|
|
Re: The Jasper News!
« Reply #22 on: Dec 16th, 2006, 10:03am » |
Quote Modify
|
on Dec 16th, 2006, 9:13am, Woobie wrote:WOW
He's FUNNY... he liked the boobies - THAT cracks me up. I thought he was going to say something about JOnny and the pirate thing - guess NOT. LMAO |
|
You know what I found out I was pregnant with Jasper today 6 years ago and I didn't know Jonny then - but given all Jasper's traits I'm beginning to think Jabs IS Jonny's love child
|
|
IP Logged |
The arsehole I'm divorcing needs to get a life and stop stalking mine
|
|
|
Lizzie2
CH.com Alumnus
New Board Hall of Famer
"L'Chaim"~Hebre w Toast~"To Life"
Gender:
Posts: 4458
|
|
Re: The Jasper News!
« Reply #23 on: Dec 16th, 2006, 8:22pm » |
Quote Modify
|
Luv the little guy and YOU too!!
I pray the melatonin works and that he has a long PF time.
I can picture all of these places and him saying certain things, and it makes me smile on the inside being able to "see" you guys at various places and so on.
I take that cannula is your word for IV, eh?
Miss you and love you lots - give my love to the kiddies!
Carrie
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss