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   Author  Topic: riley's not good *update and pics*  (Read 9632 times)
Charlie
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135447360 135447360   mondocharlie   mondocharlie
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Re: riley's not good *update and pics*
« Reply #125 on: Dec 29th, 2007, 9:24pm »
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Beautiful children Ike.  
 
Looks like Riley can use some vibes so I'm sending a few more.
 
Hold on and let us know what's what.
 
Charlie
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Re: riley's not good *update and pics*
« Reply #126 on: Dec 30th, 2007, 10:51am »
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Ike,
 
Baby Riley and your family continue to be in my thoughts and prayers.  hug
 
Beth
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Re: riley's not good *update and pics*
« Reply #127 on: Dec 30th, 2007, 11:02am »
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(((RILEY and his whole family))))
 
and lots of  hugs,
Sanna
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Re: riley's not good *update and pics*
« Reply #128 on: Dec 30th, 2007, 12:21pm »
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Ike, all my best wishes are for Riley today. We are praying until He gets better.  Kiss
            Rosy.
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Re: riley's not good *update and pics*
« Reply #129 on: Dec 30th, 2007, 4:38pm »
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Still praying with all I've got...
 
Much Love
Shari
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Re: riley's not good *update and pics*
« Reply #130 on: Dec 30th, 2007, 4:46pm »
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Ike, Tammy and family-
 
Thoughts and preyers are with you.
 
-p.
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Re: riley's not good *update and pics*
« Reply #131 on: Dec 30th, 2007, 4:54pm »
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Tomorrow is the day  
We will have the full results on little mans head and will know what the plan will be and what can and can't be done..  
Its that not knowing and waiting and now that the time is near for the results i truly don't know if im strong enough to take a bad result you know ?  
 
Been falling apart today and tam is too so we cant bounce strength off each other because we are both running out of it and i truly don't know if we can cope with anymore bad stuff really hoping the tomorrow will be good news and give us a little lift trying to live each min but your mind keeps going to the 'what ifs' even if you try not to....
 
There really arnt enough hours in the day to do everything we want to spend as much time with Riley as we can but also with Louisha too but she only sees him on the good days she is hurting and thats hurting us but we cant be two places at once so there just isnt enough hours in the day to do all we need to....  
 
Today has been a little up and down Riley is taking his feeds really well in the day but not at night his still can't get the hang of feeding and breathing at the same time so stops breathing quite often and at night when he has had his meds he wont wake to feed so needs to be fed through the tube, this makes the morning feeds hard because he stops breathing a lot,  
His right side seems to be getting worse by the day  Cry Cry
This really brakes my heart because he seems to pick up in some parts and really drops in others, its so fucking hard to just watch this and do nothing, i try to give him what strength i can and talk to him as much as possible ..
 
Fuck this really hurts  Cry Cry And the beast thinks he has a place with me about 7 times a day.....
 
anyone up for a chat ?
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Re: riley's not good *update and pics*
« Reply #132 on: Dec 30th, 2007, 4:58pm »
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My heart just breaks for your family. Cry
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Re: riley's not good *update and pics*
« Reply #133 on: Dec 30th, 2007, 5:10pm »
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Ike,
I can only imagine how very hard this is.
 
You all are in our thoughts and prayers constantly.
 
Holding you close in our hearts...
 
Much Love....
 
Jackie
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Re: riley's not good *update and pics*
« Reply #134 on: Dec 30th, 2007, 5:48pm »
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Ike, I do not know where you find the strength. Prayers for your family will never stop. Tammi, here is a hug for you from Angie and I!  hug Riley, you will beat this!! Louisha, you are special to us!
 
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135447360 135447360   mondocharlie   mondocharlie
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Re: riley's not good *update and pics*
« Reply #135 on: Dec 30th, 2007, 9:24pm »
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I'm so sorry Ike.  
 
Damn. I want to be able to open these threads and find better news.  Cry
 
You are all in my thoughts though.
 
Charlie
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