Author |
Topic: Guys? (Read 295 times) |
|
Pezman
New Board Newbie
Not all who wander are lost.
Gender: 
Posts: 1
|
Howdy. I'm starting my second "go 'round" of CH's since I was diagnosed a year ago. I've actually been sufering with them for awhile but it was never "figured out". I'm 36 and this sucks. I've discovered that O2 really does help. I've also discovered that I hate Prednisone. I'm still trying to rid myself of the 15 pounds it bestowed upon me last time. I haven't gotten the prednisone filled this time. I don't wanna. I'm wondering if O2 will get me through. I've caught this cycle really early. Any thoughts? Please? My shoulder's starting to tighten up. I better go "strap up". G'night.
|
|
 IP Logged |
|
|
|
Dragnlance
New Board Hall of Famer
Monster bait
 
 
Gender:
Posts: 1129
|
 |
Re: Guys?
« Reply #2 on: Mar 3rd, 2006, 10:29am » |
 Quote  Modify
|
Other options
SLam a can of Red BUll at the onset.
Take a look at Kudzu to prevent a hit.
Verapamil helps many keep the attacks from coming as often.
Imitrex injections, (pills are a waste of time and money)
will help many abort a hit.
Hope this adds to what Bob posted
Lance
BTW, Welcome to the board, welcome home
|
|
IP Logged |
|
|
|
Guiseppi
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2703
|
|
Re: Guys?
« Reply #3 on: Mar 3rd, 2006, 7:08pm » |
Quote Modify
|
Prednisone used to be my first line of defense. I still use it when I absolutely need a pain free period, I can even drink a little alcohol when using pred, but I agree, the weight gains, irritability, the damage long term to joints...it's nasty.
I now use 1200 mg of lithium when on cycle, oxygen and cafergot to abort the ones that break thru the lithium. As I'm sure you have already read, it seems no combo works for two people, it's a lot of trial and error. Wish you luck finding a combination that works.
Guiseppi
|
|
IP Logged |
Why are all sensors, seeking intelligent life, pointed AWAY from earth?
|
|
|
marlinsfan
New Board Hall of Famer
I love this place!
Gender:
Posts: 876
|
|
Re: Guys?
« Reply #4 on: Mar 3rd, 2006, 7:15pm » |
Quote Modify
|
Pez, prednisone is a transitional med used while your preventive one kicks in. Lithium and verapamil are preventatives.
O2 is an abortive, used to kill the attack, not break the cycle.
Very different meds. If you don't like prednisone, skip the transitional and go to a preventative. Read the doc that Bob posted, it has all the info on meds.
PF wishes
|
|
IP Logged |
|
|
|
Beastfodder
New Board Old Timer
O2 and clusterbusters - naturally
Gender:
Posts: 294
|
|
Re: Guys?
« Reply #5 on: Mar 7th, 2006, 6:34pm » |
Quote Modify
|
Hi Pez,
Sounds oh so familiar - glad the O2 is helping.
Prednisone never had it - but was precribed pizotifen, an antihistamine, for a while and it piled on the pounds.
Didn't say if it's a non-rebreather mask(www.clustermasx.xom) is a good option. Lots of reading including a trip to clusterbusters.com might help you on the road to aborting cycles.
|
|
IP Logged |
O2 and clusterbusters - naturally
|
|
|
Richr8
New Board Hall of Famer
It's all about today...
Gender:
Posts: 1396
|
|
Re: Guys?
« Reply #6 on: Mar 7th, 2006, 7:49pm » |
Quote Modify
|
on Mar 2nd, 2006, 11:40pm, Pezman wrote:I hate Prednisone. I'm still trying to rid myself of the 15 pounds it bestowed upon me last time.
I haven't gotten the prednisone filled this time. |
|
I feel the same about the pred, but succumbed after three weeks of no relief any other way. It's a bitch that you have to spend several months getting back in shape after a bout. My joints still aren't right even though I load up on all the appropriate supplements. I think after I get just a little exercise going I will be fine. I am planning on an alternative approach for next year.
|
|
IP Logged |
pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
|
|
|
Kris_in_SJ
New Board Hall of Famer
There's no place like home.
Gender: 
Posts: 1539
|
|
Re: Guys?
« Reply #7 on: Mar 7th, 2006, 8:13pm » |
Quote Modify
|
Hi and welcome.
While Prednisone can sometimes completely knock out an attack, as said above, it's usually used as an interim med until good preventatives like Verapamil at high doses kick in. For me, that's usually about a week to 10 days.
Follow the link Bob gave you. It's one of the best and latest guides to medical treatment around.
Good luck!
Kris
|
|
IP Logged |
I'm a small woman in small town being chased by a VERY BIG BEAST!
|
|
|
Jasmyn
CH.com Alumnus
New Board Hall of Famer
Each day will be a new trick in life's journey
Gender:
Posts: 2762
|
|
Re: Guys?
« Reply #8 on: Mar 8th, 2006, 4:47am » |
Quote Modify
|
Welcome and hang in there!
|
|
IP Logged |
Jazz 
Madness is proclaimed by society’s inability to accept its own infallibility
|
|
|
Kirk
CH.com Alumnus
New Board Hall of Famer
VINIMUS, VIDIMUS, DOLAVIMUS
  
Gender:
Posts: 1914
|
|
[smiley=smokin.gif]
« Reply #9 on: Mar 9th, 2006, 7:03am » |
Quote Modify
|
I hate pred.
I found that Imitrex shots were the fastest abortive around. But everyone is different. Because of a heart condition Triptans are out of the question now.
O2 and Olanzipine are the abortive of choice for me these days.
Read up on the left, and print out what you think is appropriate to take to your doc. I hope you find what works best for you.
Please be well
|
|
IP Logged |
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: Guys?
« Reply #10 on: Mar 10th, 2006, 1:25pm » |
Quote Modify
|
Prednipoison. 
This in not the only thing for CH. Try the other prevents.
I didn't see if you had been to the neurologist? Probably the one who perscribed the pred. 
anyway
all the best.
jb
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: Guys?
« Reply #11 on: Mar 10th, 2006, 2:16pm » |
Quote Modify
|
Welcome! 
I'm sorry that you're hurting... 
I hope that you'll find a med which works. Pred didn't help me, it was the very first prevention med I tried back in 2003.
Best wishes & PF days,
Sanna
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss