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Topic: 'Ello! (Read 613 times) |
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Spartan1128
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Re: 'Ello!
« Reply #25 on: Nov 12th, 2007, 9:36am » |
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Ok thanks for the answers!
Oh yes... I know I'm more than fortunant to have her... not only as a friend but a little more  We're a bit more... serious... than most kids our age. But at any rate, she's great!
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"I can do all things through Him who strengthens me."
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Spartan1128
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Re: 'Ello!
« Reply #26 on: Nov 12th, 2007, 9:48am » |
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Oh here's another question. Does looking at a computer screen trigger/make CH worse? I've read that for most people there isn't much if anything that actually triggers them... But it just begs to ask 
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"I can do all things through Him who strengthens me."
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Raikana
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Re: 'Ello!
« Reply #27 on: Nov 12th, 2007, 9:51am » |
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I've thought of another question, too...
Spartan works at his family's quail farm. Would that be any cause for headaches?
I don't think so. If it were, he'd get them in the Summer when he does most of his work. Not the winter. And it would have become evident a LOT sooner. But... I just had to ask.
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sldrswyfe
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Re: 'Ello!
« Reply #28 on: Nov 12th, 2007, 10:14am » |
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Welcome Spartan.
You are at the best place possible for a diagnosis of CH. By finding this site you have saved yourself a long, long(and frustrating) journey many of us have made through trial and error for years. I didn't get here unitil I had already tried every possible treatment for CH.
Still...I learn so much here. Just by reading other's questons...and experiences.
Until yesterday, I didn't understand that when drinking Red Bull, it has to be guzzled down at the first twinges of a hit.
I have only once tried a Red Bull..and was just drinking it slowlly...therefore it wasn't effective...I thought, "Ok, this tastes like alka seltzer with a tart citrus(?) flavor..it's doing nothing for my pain", etc.
My point is there is so much you will find out by reading here...please, read, read and read. Don't stop trying until you find YOUR effective treatment. Best of Luck, Sherri
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"Great spirits have always found violent
opposition from the mediocrities." -Einstein
"I'll DIE on MY FEET, before I LIVE on MY KNEES"...thanks Jonny...that meant alot
"Oh, say does that star spangled banner yet wave?"....Your damn right it does.
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kcopelin
CH.com Alumnus
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good grief
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Re: 'Ello!
« Reply #29 on: Nov 12th, 2007, 10:17am » |
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So glad y'all found us! Never heard of quail farming being a trigger-but I know that if I do alot of physical stuff involving my neck muscles it makes things worse. Since your cycles aren't lined up with the quail thing, I doubt that's it.
1. keep a headaches diary/log.
2. Print everything you can from the OUCH website about CH symptoms, treatments, medications. I have a binder with CH info in it.
3. Take the above with you to your doctor.
4. Take Raikana with you as well.
5. Best practices: transitional medication (such as prednisone taper), preventative meds (such as verapamil), and abortive (oxygen high flow non-rebreather mask, or imitrex).
Hang in there and keep the faith. CH will not kill you, but it is the most excruciating pain known.
Personally I hope you don't have them, but if you do you are in the right place.
Prayers for you both,
PFDAN y'all
kathy
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DennisM1045
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One wave at a time!
 
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Re: 'Ello!
« Reply #30 on: Nov 12th, 2007, 11:39am » |
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Hi Spartan! I'm happy to see you found your way here. Welcome home son 
That Megan of yours is pretty amazing. We exchanged a few posts on the supporter board. So I was relived to see you finally register with us yourself.
The most important thing you can do (besides grabing a few Red Bulls like Adam said) is to get your Doctors to listen, read and refer you to a Neurologist that can properly diagnosis and deal with CH. They've wasted enough of your time already from the sounds of it.
Anyway, I am episodic. Have had clusters for 12 years. They come twice a year in the late winter/early spring and at the end of the summer. So they are very much seasonal for me.
I am a software engineer and spend a lot of time "deep thinking" and on the computer. Both can trigger a CH when I'm in cycle. I find that stopping what I'm doing every 20-30 minutes or so and walking around really helps. If I spend a couple of hours looking at the screen concentrating on an algorithm or debugging a problem I can get hammered.
-Dennis-
edited because I can't spell
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| « Last Edit: Nov 12th, 2007, 11:40am by DennisM1045 » |
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Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
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LeLimey
CH.com Alumnus
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OUCH-US - Less "ME" and more "WE"
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Re: 'Ello!
« Reply #31 on: Nov 12th, 2007, 2:08pm » |
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Oh hells bloody bells, as the mother of a kid with CH this thread has made me cry. I hate seeing kids go through this. Jasper is a lot younger than you but I hope when he is bigger he has as good a friend as Raikana is to you Spartan. Raikana my hat is off to you, I just hope my daughter grows up with attributes like yours too (((HUG)))
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Spartan1128
New Board Newbie
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Re: 'Ello!
« Reply #32 on: Nov 12th, 2007, 9:13pm » |
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*sigh* It's so troubling that those still young have to go through such pain... I too hope your son will find someone as wonderful as Raikana... It makes all the difference in the world.
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"I can do all things through Him who strengthens me."
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