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Topic: problems socialising ...... (Read 1138 times) |
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jazzy1uk
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problems socialising ......
« on: Dec 6th, 2007, 10:53am » |
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hi everyone im jay from the uk new to ch.com ive had ch for about 10 yrs now i lost my partner of 10yrs and alot of friends due to not being able to go clubbing cos the temp would set of a ch attack /loud music / and cant drink on the pills felt like a outcast plus got a bit depressed cos of all the meds i tried till finally im on the imigran injections with verapamil tabs i now have my life back and im trying to get back into a normal kinda life and get my confidence back anyone else had the same problem and fancy a chat email me at jamie16346@googlemail.com
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LeLimey
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OUCH-US - Less "ME" and more "WE"
 
 
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Re: problems socialising ......
« Reply #1 on: Dec 6th, 2007, 11:21am » |
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Hi Jay
Welcome!
I'm going to drop you an email too but I wanted to say hello here. We'll do all we can to help you out, rest assured, there IS life with CH and a bloody good life too. Its what you make it hon, we'll help you learn how.
Helen
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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Brew
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Re: problems socialising ......
« Reply #2 on: Dec 6th, 2007, 12:13pm » |
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Jay,
Welcome to the jungle. Any "friends" who would trash your friendship because you can't go out on the town due to a physical problem would be no friends of mine. Fuck 'em. Find new friends.
Glad to see your regaining control. You'll find, as you read and learn around here, that many of us lead very normal lives. This is the hand you've been dealt, now it's up to you to learn how to live with it. Pain is inevitable, joy is optional.
As Morgan Freeman said in The Shawshank Redemption, "You can get busy livin', or get busy dyin'."
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Always remember that you're unique, just like everyone else.
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jazzy1uk
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Re: problems socialising ......
« Reply #3 on: Dec 6th, 2007, 12:28pm » |
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I KNOW WHAT UR SAYING brewcrew I HAVE A FEW FRIENDS THAT ARE REAL FRIENDS 1 IS MY EXS BEST MATE WHO I NEVER GOT ON WITH IM NOW REALLY GOOD MATES SHE HAS BEEN A ROCK BUT I GUESS ILL FIND MORE GOOD FRIENDS ON THIS SITE THANKS brewcrew
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DennisM1045
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Re: problems socialising ......
« Reply #4 on: Dec 6th, 2007, 12:34pm » |
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Like Brew said, lots of people lead very productive lives in spite of the pain. The trick is to learn to live between or when that fails, in spite of the hits.
Welcome to the nut house cluster brother.
-Dennis-
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Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
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Guiseppi
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Re: problems socialising ......
« Reply #5 on: Dec 6th, 2007, 1:01pm » |
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We all "live our lives between the hits!" 
Welcome to the board, read up on the treatments currently available, fire away with any questions you have. No one has figured out how to "cure" these damned things yet but given the right regimen they are certainly manageable! Glad you found us!
Guiseppi
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Melissa
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Re: problems socialising ......
« Reply #6 on: Dec 6th, 2007, 3:35pm » |
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Many of the people on this site are my friends for life. No one understands me, or what I go through, as well as they do. I've met many in person and for the most part, they are more than worth their weight in gold.
I agree, they are no friends if all they care about is you going clubbing with them. Real friends would find other things to do with you.
*hugs*
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Annette
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Re: problems socialising ......
« Reply #7 on: Dec 6th, 2007, 4:29pm » |
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Hi Jay
Welcome to Ch.com and I for one will be more than glad to have you as a friend.
My husband has CH and I understand very well how hard it is to maintain a social life when one is getting hit hard.
He is out of cycle now but last year there were many times we had to cancel meetings or reschedule them or just had to leave early due to the devil wanted to have a solo dance with him !
We used to sit home bracing, waiting for the next hit, hoping that the cycle would end soon and was literally putting our lives on hold waiting for the end. Well ! That cycle lasted 8 months !!
In the end we got sick of not having a life, so we decided that just to make it simpler, we started to act as if he was already chronic. That was such a blessing, it freed us believe it or not. Once we changed our mindset and decided that we would live anyway, by hook or by crook we were going to do it, we focussed on the painfree time and lived .... then the cycle stopped !
I love what Jonny says " chronic is a state of mind " and what Chewy says " Never postpone life for CH " . Live by that motto and you will be set free.
Hugs and painfree wishes to you. 
PS: dropped you an email too.
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Mediocrity knows nothing higher than itself; but talent instantly recognizes genius.
Arthur Conan Doyle
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jazzy1uk
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Re: problems socialising ......
« Reply #8 on: Dec 7th, 2007, 6:58am » |
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thanks everyone its wierd but this site is helping cos i know everyone is either in the same boat or has someone around with ch so thanks and i hope to make some good friends on ch.com
jay
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aloneuk
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Re: problems socialising ......
« Reply #9 on: Dec 7th, 2007, 7:12am » |
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Ck your pm's and email,
Welcome home ! good to have another brit in the house !
all the best Ike
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If you dance with the devil the devil don't change,
the devil changes you !
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clusterwife
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Re: problems socialising ......
« Reply #10 on: Dec 13th, 2007, 7:21pm » |
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Hey Jay, my hubby's middle name is jay, so we are instant friends. Hang around and you will have so many friends in no time. I'm leah, My hubby is Kevin, he has chronic clusters. Welcome!!!
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BarbaraD
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Hugs to ya
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Re: problems socialising ......
« Reply #11 on: Dec 15th, 2007, 8:46am » |
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Hey and welcome to the nut house,
We're all here to help and someone is up all the time...
I've been chronic since 97 and do pretty well trying to be normal (wasn't too normal before then ).
Don't worry about the clubbing mates - you'll meet new people and things will work out. There will just be things you'll learn to avoid, but life will go on.
Keep your attitude positive and you'll do fine.
Hugs BD
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What don't kill ya, Makes ya stonger!
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