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(Message started by: reechz on Jan 28th, 2006, 12:15am)

Title: new here -- cluster / sinus headaches
Post by reechz on Jan 28th, 2006, 12:15am
Hi- New 'round here.
My story.
I get horrible headaches behind my right eye-never my left eye-- the "knitting needle stabbing my eyeball" type. It get so bad that I can't function and even makes me nauseaus.

these come and go in cycles year round. I generally wake up with them and they are with me all day until (most times) I fall asleep.

Nothing works to eliminate them...although Vicodin dopes me up enough that I can get some relief. Cold remedys and sprays do not help either.
Ice packs don't work, heat doesn't work. Only sleep helps.
I am 43 and have suffered with this for at least 20 years.

These could be triggered by my sinuses. I have awful sinuses... had an operation to fix a deviated septum 20 years ago and another one to burn out my turbinades and open the passages about 4 years ago. Neither has relieved me of the headaches.

Oddly enough, the headaches also seem to be triggered if I get too much sleep...anything more than 8-9 hours (which only happens on weekends...during the week I get about 6 hours at most). other trigger points are alcohol and smoke (i don't smoke but if i am around it alot it messes with me)



My wife has been after me to visit a neurolgist..
Here are my questions:

can cluster headaches be related to sinus headaches?
does seeing a neurolgist make any sense?
can anyone recommend remedys (homepathic, OTC, perscriptions) that work for my symptons?

thanks for any advice!

rich




Title: Re: new here -- cluster / sinus headaches
Post by RichardN on Jan 28th, 2006, 12:49am
Hi Rich

 First, take the "cluster quiz" (4th link down on the left) and let us know how you do.  Look at the "kip scale" and see if the progression is similar to your headaches.

 Cluster headaches don't usually last all day . . . . except for what we call shadows which sometimes will linger between attacks.

 Your wife is right . . .  you need to see a neurologist for a proper diagnosis.  So far (and be grateful) it doesn't sound like CH.  If it is, you've come to the right place and, yes there are several options for abortives and preventives.

 Please take the quiz and be as specific as you can in describing your headaches . . . .  there is a wealth of ha information on this site and others might have suggestions to offer your doc when you see him/her.

 Be Safe,  

    Richard

Title: Re: new here -- cluster / sinus headaches
Post by Bob_Johnson on Jan 28th, 2006, 8:17am
There is no relationship between clusters and sinus problems.

Correct Dx is critical. Suggest you look for a headache clinic or, if you must use a neurologist, ask--very directly--about the doc's experience with headache. (We have had too many experience reported of neurologists who lack experience/interest in working with the complexity of headache.)

No OTC meds really work for cluster except Melatonin. Pain meds are barely helpful for most folks.

Here is a link to read and print and take to your doctor.  It describes preventive, transitional, abortive and surgical treatments for CH.  (2002)
 
http://www.brightok.net/~mnjday/chtherapy.pdf  


MANAGEMENT OF HEADACHE AND HEADACHE MEDICATIONS, 2nd ed. Lawrence D. Robbins, M.D.; pub. by Springer. $49 at Amazon.Com. It covers all types of headache and is primarily focused on medications. While the two chapters on CH total 42-pages, the actual relevant material is longer because of multiple references to material in chapters on migraine, reflecting the overlap in drugs used to treat. I'd suggest reading the chapters on migraine for three reasons: he makes references to CH & medications which are not in the index; there are "clinical pearls" about how to approach the treatment of headache; and, you gain better perspective on the nature of headache, in general, and the complexities of treatment (which need to be considered when we create expectations about what is possible). Finally, women will appreciate & benefit from his running information on hormones/menstrual cycles as they affect headache. Chapter on headache following head trauma, also. Obviously, I'm impressed with Robbins' work (even if the book needs the touch of a good editor!) (Somewhat longer review/content statement at 3/22/00, "Good book....")

HEADACHE HELP, Revised edition, 2000; Lawrence Robbins, M.D., Houghton Mifflin, $15. Written for a nonprofessional audience, it contains almost all the material in the preceding volume but it's much easier reading. Highly recommended.


Title: Re: new here -- cluster / sinus headaches
Post by chewy on Jan 28th, 2006, 11:27am

Quote:
There is no relationship between clusters and sinus problems.



Sinus problems will sometimes trigger a cluster with me. So there is a relationship in that sense.

Title: My life as a cluster head
Post by Richr8 on Jan 28th, 2006, 12:01pm
started with a sinus infection in 1992.  Coinkydink?

Title: Re: new here -- cluster / sinus headaches
Post by mcf69 on Jan 28th, 2006, 1:25pm
Hi Rich,
Welcome to the board, sounds like you've been having a bit of a rough time?  Like Rich N said, take the cluster quiz in the links to the left, you have some symptoms of CH like the stabbing pain, but some of the other traits don't fit the CH pattern.  By all means go see a neurologist, they have a broad base of knowledge concerning headache disorders, and may be able to help you pin down your problems.  In a word, sinus problems can't cause clusters, many of us find that sinus problems do aggravate the CHs though.  Take it easy with the OTC and prescription pain killers, CH or not, they will cause rebound pain if taken too much, that said, get to a neuro to see whats going on.  Please let us know how you make out and if you have any more questions, don't be afraid to ask.  Best of luck to you.........

Title: Re: new here -- cluster / sinus headaches
Post by Kris_in_SJ on Jan 28th, 2006, 8:22pm
Hi Rich,

Sorry you've been having such a hard time of it.

You've been given some very sound advice.  From what you've described so far, it doesn't sound like clusters, but each of us is different.  Be grateful if it isn't clusters.

There are many different headache syndromes out there - each with it's own specific treatment regimen.  Get thee to a headache clinic or neurologist who specializes in HA's.  Take the results of your cluster quiz with you - along with a headache diary that notes the specifics of each time you suffer.  Briefly ... note the time of day, duration, intensity, what works and doesn't, etc.

Keep us informed,

Kris

Title: Re: new here -- cluster / sinus headaches
Post by Beastfodder on Feb 6th, 2006, 4:13pm
Snap - even had the sinus surgery too.

Read up, do the tests and get fully diagnosed (fortunately my GP agreed with me!).

Best abortives for me are O2 and clusterbusters.



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