Clusterheadaches.com Message Board (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> Longtime Reader, First Time Poster
(Message started by: malkidm on Sep 25th, 2007, 3:21pm)

Title: Longtime Reader, First Time Poster
Post by malkidm on Sep 25th, 2007, 3:21pm
Hi Everyone.

My name is David.  I'm a right-handed episodic and have had clusters for approximately 19 years.  I started my first cluster at the ripe old age of 13.  Over the years, I've just learned how to deal with it.  

After reading posts on this board, I've decided to do something about it.  I'm getting too damned old for this crap and some friends and family members agree.  My first Neuro appt is in November and I hope that we can find a treatment that provides relief.

Thanks to all of you for being here

David.

Title: Re: Longtime Reader, First Time Poster
Post by Beastfodder on Sep 25th, 2007, 5:47pm
David,

First post is always the hardest!

Through here you'll find no end of support and ideas.

Like keeping a diary and do look at O2 as a first port of call as an abortive and getting lots of questions together for your neuro appointment.

all the best


Title: Re: Longtime Reader, First Time Poster
Post by Sometimes on Sep 25th, 2007, 6:51pm
Welcome David!

Don't forget, the OUCH website has great information too, here is a direct link to it: http://www.ouch-us.org/chinfo1.htm

Good luck to you and I hope your pain goes away soon!

Title: Re: Longtime Reader, First Time Poster
Post by Rosybabe on Sep 25th, 2007, 9:39pm
Welcome HOME David!!

Please don't forget to mention to your Doctor about O2. It wil be the safest way to keep the beast under control.

Come back and let us know what happened and what meds you will be taking.

Wishing you lots and lots of pain free time.

                                             Rosy.

Title: Re: Longtime Reader, First Time Poster
Post by malkidm on Sep 26th, 2007, 10:30am
Thanks for the warm welcome guys.  O2 therapy is definately on my list of questions for the doc.  Just out of curiosity, have any of you had trouble convincing your insurance company to pay for oxygen and related supplys?  

David

Title: Re: Longtime Reader, First Time Poster
Post by Wayne on Sep 26th, 2007, 5:41pm
Howzit David, welcome!

I just read your bubblegum post, one thing I have learned mate, whatever works for you works for you. This is your board too and you're welcome to share anything here. I've never tried gum but I do smoke incessantly, your way is cheaper.

Good Luck

Wayne

Title: Re: Longtime Reader, First Time Poster
Post by Rosybabe on Sep 26th, 2007, 8:58pm
David, if you get the RX from a Doctor it shouldn't be a big problem to make the insurance company give you the O2. But if you do, there is always welders Oxygen.

                               Good Luck  :)


                                                Rosy.

                                                   

Title: Re: Longtime Reader, First Time Poster
Post by Guiseppi on Sep 26th, 2007, 10:57pm
I'm a kaiser patient...normally a really tight wad bunch......compared to imitrex...the cost of oxygen looks pretty good to them! Good luck and welcome to the board.

Guiseppi

Title: Re: Longtime Reader, First Time Poster
Post by malkidm on Sep 27th, 2007, 11:40am
Guiseppi wrote...

Quote:
compared to imitrex...the cost of oxygen looks pretty good to them!

Just a few questions (I'm assuming from your response that you use O2/[sub]).
1.  Generally how much does a tank O[sub]2
cost?  
2.  How big of a tank do you usually have to get?  
3.  How long does a tank typically last in your case?

Wayne wrote...

Quote:
I just read your bubblegum post, one thing I have learned mate, whatever works for you works for you. This is your board too and you're welcome to share anything here.

Thanks, but after some of the ridicule i've seen over what is (in my mind, at least) a very serious topic, I think I'll keep my "non-mainstream" tricks and experiments to myself.  I was kind of hoping for more of a discussion.  I may be out of line, but it seems like if the discussion is not about O2, 'shrooms, or Imitrex, then the poster is automatically assumed to be a prankster, a nut job, or a faker.  I get enough of that at work  [smiley=laugh.gif]

Have a PFD, everyone!



Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.