Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Dec 15th, 2019, 3:42pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board Post from LizziesMom


   Clusterheadaches.com Message Board
   Supporter's Corner
   Children and Cluster's
(Moderators: Margi, DJ)
   Post from LizziesMom
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Post from LizziesMom  (Read 679 times)
Margi
CH.com Moderator
CH.com Alumnus
New Board Hall of Famer
Canada 
*****




Nuthin like a good neck rub!

   
Email

Gender: female
Posts: 3757
Post from LizziesMom
« on: Apr 24th, 2003, 11:24am »
Quote Quote Modify Modify

Here's Lizzie's Mom's post that was under the header topic on this board....
 
 
 Re: Cluster Kids
Reply #14 on: Today at 9:46am  
------------------------------------------------------------------------ --------
Hi I'm a mom that needs to know that kids can deal with this. If anyone wants to talk let me know. My 14 yr old daughter has had these since she was 6 years old. We deal with them the best we can but it would be nice to have others to talk to about this beast. Thanks in advance.  
 
 
IP Logged

http://askusaboutourgrandkids.photosite.com/

And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown

IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
jonny
Guest

Email

Re: Post from LizziesMom
« Reply #1 on: Apr 24th, 2003, 6:13pm »
Quote Quote Modify Modify Remove Remove

Hi Lizzies Mom,
 
My names jonny and I started chronic CH at the age of 14, it was really tough at that age but I never told my mom or let her see me in pain. When Mom finaly did see what I was going through it didnt matter because we were on welfare and no Docs wanted to find out what was wrong, they just wanted to get you in and out like cattle.
 
I for one can say that your child will be ok in life, Hell!!!, im 40 now and own a company, fine home, fine cars and im still chronic.
 
You are so lucky that you have this website that I did not......That to me means your kid will turn out even better than I did.
 
Good luck and e-mail me if you would like.
 
...........................Tears in eyes..................jonny
IP Logged
Azrael
New Board Hall of Famer
USA 
*****




Sometimes... Being good just ain't worth it.

27810130 27810130   kennkurr  
WWW Email

Gender: male
Posts: 1786
Re: Post from LizziesMom
« Reply #2 on: Apr 24th, 2003, 8:35pm »
Quote Quote Modify Modify

The best advice I have is not to let the docs just brush you and your daughter aside.  All too often, doctors can be very worthless when it comes to childhood ailments that can't be proven on a bloodtest, or seen on an X-ray.  See a neurologist, or a pediatric neurologist if one's available in your area, and get your daughter a treatment plan.  Like Jonny said, she'll still be able to live her life with these things, but it'll be alot better for her if y'all can find a treatment plan that works, and affords her many many pain free days.  Good luck!
 
PFDAN to you and your's.................................... Drk^Angel
IP Logged

"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
kim
New Board Newbie
USA 
*



I love YaBB 1G - SP1!

   


Posts: 7
Re: Post from LizziesMom
« Reply #3 on: May 20th, 2003, 8:59pm »
Quote Quote Modify Modify

Hi Lizzie's Mom,
 
I have been episodic cluster sufferer since childhood - about 13.  I had pain episodes when very young, but I was too young to be able to communicate/pin point, and my folks treated as ear-aches.  
Kids are resilient and much more optimistic minded than grown ups Smiley  
I can only urge you to seek out all the information you can, and try and establish a relationship with a good neurologist.  The more tools you have the better equipped you and Lizzie will be.
 
Wishing you and Lizzie all the best!
Kim
 
IP Logged
Camerooskis_Mom
New Board Newbie

*



I love YaBB 1G - SP1!

   


Posts: 39
Re: Post from LizziesMom
« Reply #4 on: May 30th, 2003, 3:02pm »
Quote Quote Modify Modify

Hi Lizzy's Mom,
 
{{{{{Hugs}}}}} to you & your daughter.  As a newbie (CHs started for my son last August) I do not have much advise to depart but I do empathize with what you are going through.  
 
It is soon June which means another round of DR appts (one w/ the HA clinic, another w/ the the Pedio Neuro and then the followup consult w/ our Pediatrician.  At 14, you have many options that aren't yet open to us (my son is 7 and a very small 7).  I like the advise of keeping at those doctors.  
 
Good Luck!
Camie's Mom
IP Logged
Ree
New Board Hall of Famer
USA 
*****




2008's my year to shine~SUN IS OUT!!!YAY

64720087 64720087   Reespirit   Ree16Angel
WWW Email

Gender: female
Posts: 5236
Re: Post from LizziesMom
« Reply #5 on: May 30th, 2003, 4:04pm »
Quote Quote Modify Modify

Hi My daughter hasnt yet been diagnosed with CH but definately has a headache issue... I felt that the neuro that we saw knew nothing about CH and just brushed us off... $250 bucks from the insurance company later ... I am disgusted.  Good thing for my daughter that we have the experience that we have with Dave if it is CH... Keep coming here we have a wealth of information and the price is right... Experience is the best teacher.  love and luck to you and your little one... love Ree
IP Logged

Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespockethttp://www.prohawaiian.com
cathy
CH.com Alumnus
New Board Hall of Famer
United_Kingdom 
*****



Not all those that wander are lost......

  cathy_lucas47   cybersis1965
Email

Gender: female
Posts: 2267
Re: Post from LizziesMom
« Reply #6 on: May 30th, 2003, 5:12pm »
Quote Quote Modify Modify


 
Lizzie...soooo sorry to hear that your daughter has to go through this. Take the advice being given here.
 
Love and Hugs to you and your family.
 
Cathy
IP Logged

My own tears would mean nothing to me, if I could stop you from just shedding one....

Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB 2000-2003. All Rights Reserved.


1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss