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Donna_D. Alumnus
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Apology Number 2
« on: Nov 4th, 2003, 3:51am »
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I wrote my first apology of the night over on the Supporter's Corner Message Board.  
I intended to post this message several days ago.  But, all of you with kids know, sometimes we get sidetracked (ie. Halloween and grandparents in 3 different cities).  My sincerest apologies to all of you here in the Children and Cluster's area.  I was not intentionally excluding you, only tending to my kids.
Second apology.  Business Follows.
The O.U.C.H. newsletter is for ALL people affected by CH.  Sufferers, Supporters, Parents, Children, etc.
If we are to properly educate the medical community and the public about CH we need to let them know that ANYONE can suffer from CH.  As a mother (and sufferer) I cannot imagine what it must be like for you, as parents, to have to deal with a child who has CH.  Honestly, I think you have it the worst of all.  Seeing a child in pain, REAL PAIN, must be heartbreaking.  
I won't claim to know exactly how you feel, but I do think that I, along with others, need to know what it is like to have a child with CH.  How you cope, how it affects your child, school, family, marriage, etc.
I am looking for persons interested in writing articles from a Parent's point of view.  Anyone who is interested please contact me at  
Even if you do not want to write a story, any story ideas or suggestions are greatly appreciated.  
Thank you for your patience.  I hope my "late arrival" here on this board will be forgiven.
Donna Delacerda
O.U.C.H. Newsletter
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