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Supporter's Corner >> Children and Cluster's >> Its been awhile, but we're back
(Message started by: Connors_Mom on Aug 27th, 2002, 10:19pm)

Title: Its been awhile, but we're back
Post by Connors_Mom on Aug 27th, 2002, 10:19pm
Some of you may remember me, My son Connor has clusters and migraines, and there wasnt a doc anywhere to help him. Well we found one who actually believes children can have clusters!! We pick up the prescription for Topamax tomorrow. We still have the Imitrex spray and need a refill on that also. Cant run out! Connor sleeps in his OUCH tshirt from Johnny all the time. Its his FAVORITE and still hangs to his ankles. He is 5 now and started Kindergarten.  Glad to see that this message board has grown since we have been gone. The support has always been great here.  

Title: Re: Its been awhile, but we're back
Post by Drk^Angel on Aug 28th, 2002, 1:34pm
I really hope that Connor gets all the help he can, and that the treatments keeps the beast away.  I couldn't imagine having to go through these at his age.  It was bad enough when I started getting them at 11.  My parents know first hand how hard it can be to convince doctors that the pain is real.  Keep up the good work, and good luck!

PFDAN...................................... Drk^Angel

Title: Re: Its been awhile, but we're back
Post by 2late on Aug 28th, 2002, 6:53pm
i feel bad for the little guy,kid's should not have to go thru this,i'm glad u found a good doc,wishing yu & your son all the best!!!!!                                                                                                                                      ............2late

Title: Re: Its been awhile, but we're back
Post by StanTheMan on Sep 13th, 2002, 2:01pm
Many sympathies to you and Conner.
I had NO IDEA this was something that struck children!  I didn't start having encounters with "the beast" until I was 32, so I too, cannot imagine what you folks must be going through.  I certainly learned something new today...

Sending hugs and prayers!

Stan

Title: Re: Its been awhile, but we're back
Post by Svenn on Sep 27th, 2002, 5:58am
i have to copy Drk^Angel here
Sending hugs and prayers!

Svenn

Title: Re: Its been awhile, but we're back
Post by Ree on Oct 15th, 2002, 9:16pm
Hey Connors mom how are you and the little guy doing...?  Could ya check in and let us know... I was wondering how the topamax is working for him and if there are any sides... I know another little person not yet diagnosed but a close running second to CH maybe CPH... I would love to hear from you... ree16angel@aol.com thanks and God Bless Ree

Title: Re: Its been awhile, but we're back
Post by netniet on Nov 24th, 2002, 6:29am
5 years old!!! life isn't fair >:(
The most of us are adults and we can't stand the pain.

that poor boy



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