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Topic: Need some employment defense wisdom (Read 1589 times) |
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Dragnlance
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Re: Need some employment defense wisdom
« Reply #25 on: Feb 10th, 2006, 9:10pm » |
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I printed off "Simon's Letter" and gave it to my boss, his boss and his boss above him. All came to my desk and apologized for not understanding. Yesterday my boss's boss called me in his office and asked what I knew of FMLA, and stated that he would get me some answers.
My suggestion, Print off Simon's Letter and also the front page of CH.com. Watch the blood drain from their faces as they read.
It worked for me, and I hope it works for you
Dragnlance
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pierreboni
New Board Newbie
I love YaBB 1G - SP1!
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Re: Need some employment defense wisdom
« Reply #26 on: Feb 11th, 2006, 8:25am » |
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Sadly, there is little or no understanding from people in general and employers in particular. Our suffering is associated with weakness and slacking off. I remember making superhuman efforts to go to work and perform during my first bout, before I actually had CH diagnosed. My employer's suspicion fed off of my own feelings of guilt and the situation deteriorated unitl I left the company.
The second time at a different job, I was actually amazed. After a new series began, I sheepishly went to my boss and told him, "you know, I have this condition called facial neuralgia...". I usually find that it's better to call it that. I first was diagnosed in France where CHs are called "algie vasculaire de la face". When you tell people you have cluster headeaches, they only hear the "headaches" part and become closed off to any explanation. In any case, I was amazed to hear my boss reply, "oh, I know about that. It's terrible..."
My advice, if it can help, is to be as straightforward with your employers as possible. Learn as much as you can about the condition (biomechanisms, prophylactic and curative treatments) and keep your employers abreast of what is going on. Keep a journal of your bouts and the treatment with a timeline: "7 AM: took Prednisone reduced dosage, no bouts today", or "4 AM: wake-up bout, took Imitrex nasal, pain relief in 15 minutes". This will help you forecast your bouts and help your doctor in determining the best remedies for you.
Don't expect, people at your job or elsewhere to be as understanding as the people on this board. YOu do have a cross to carry. Good luck, it's a bitch.
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