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Topic: How Long... (Read 357 times) |
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AngelinaNina
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How Long...
« on: Oct 25th, 2006, 7:05pm » |
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Hi,
I am a 32 year old female and last year I had ch's every 2-3 days for about a month. They stated on Oct. 17 and ended around Thanksgiving. As we approach a year, I am wondering what was the longest period of time anyone has gone without a ch. I am starting to get nervous, as the neuro said I should expect another episode 4-6 weeks after they ceased. Any insight would be appreciated.
Thanks,
Nina
Vista, CA
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George_J
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White-Breasted Nuthatch
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Re: How Long...
« Reply #1 on: Oct 25th, 2006, 7:19pm » |
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Longest remission I've seen on here was 20 years--before they returned. Lots of people have gone 5 years or so. I've gone 3. There are many, many others who have no break at all.
Far as I'm aware, there's no clear answer to this one. It does what it does.
Best wishes,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: How Long...
« Reply #2 on: Oct 26th, 2006, 5:15am » |
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My ch begun in fall 2001. The longest time they've stayed away during these years in 11 months.
Lots of folkes in here have lived happily without the beast for years and their stories inspire me. 
Best wishes & PF days,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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burnt-toast
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Re: How Long...
« Reply #3 on: Oct 26th, 2006, 5:28am » |
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Your Neuro may be basing this information on you're history of attacks.
If not...
I'm not sure where the 4 to 6 weeks return information came from.
From everything I've read and heard every sufferer will develop some type of cycle(s) in their attacks. That cycle will most likely be specific to the sufferer and will most likely change from time to time.
There is no set set rule in the occurance of cycles that addresses every sufferer.
Best wishes,
Tom
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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chopmyheadoff
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Its only a headache, deal with it - SMACK
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Re: How Long...
« Reply #4 on: Oct 26th, 2006, 6:37am » |
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erm a week i think . . . 
before verapamil that is 
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chewy
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I'm into 5 years.
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JDH
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We will get by, We will survive!
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Re: How Long...
« Reply #6 on: Oct 26th, 2006, 9:22am » |
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Thanks to http://www.clusterbusters.com I haven't had to deal with a ch cycle since my last one ended in Feb. '03....amazing!
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
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floridian
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For about a decade, I had them every summer for 6 weeks or so. Like clockwork. For the past several years, I have dodged them. Other people's experiences are quite different.
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BB
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I love YaBB 1G - SP1!
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Re: How Long...
« Reply #8 on: Oct 26th, 2006, 9:31am » |
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Hi Flo,
How did you dodge them ? Please share ?
Thanks
Annette
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TxBasslady
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Re: How Long...
« Reply #9 on: Oct 26th, 2006, 7:10pm » |
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CH has a mind of it's own.
It comes and goes when it pleases. Doubt you could find any 2 of us alike.
Best of luck to you,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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Tam Tam
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Frank- I have a sick headache*from Bewitched
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Re: How Long...
« Reply #10 on: Oct 26th, 2006, 11:00pm » |
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I'm really new compared to most of the people here but I've read alot and agree, it would be difficult to find two people with the same symptoms.
My first episode was from May - Aug of 2005
When Aug of 2006 passed without one of these devils I thought I was free and it wouldn't return.
They started again Oct 24th........
I'm dreading going to sleep tonight.....................
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I didn't sign up for this!
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kcopelin
CH.com Alumnus
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good grief
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Re: How Long...
« Reply #11 on: Oct 26th, 2006, 11:04pm » |
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I went almost 4 years once-but had two children in that time-
Its a crap shot.
Hang in there, you have come to the right place for support, information and funny people. Just DO NOT SAY THE "C" WORD!!!!
kathy
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Words count, chose carefully.
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