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Topic: Has anyon ever beat the beast? (Read 6001 times) |
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ClusterChris
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Re: Has anyon ever beat the beast?
« Reply #100 on: Apr 26th, 2007, 11:53am » |
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Come on Barry, where are ya? The suspense is killin me here!
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barry_sword
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Re: Has anyon ever beat the beast?
« Reply #101 on: Apr 26th, 2007, 12:07pm » |
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I'm right here Buddy. We were just getting a couple of things together for this post. Bottom line, I got o2 here in my house!
My neuro asked me what I would like to try this time? I said o2 and he said ok right away. I had all my printed sheets and showed him and he was 100% agreeable with this.
This is where we get our o2 (1km. from my house) and the non-rebreather mask and the tank.
Total cost: $140.00 Canadian.
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Margi
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Re: Has anyon ever beat the beast?
« Reply #102 on: Apr 26th, 2007, 12:16pm » |
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Good for you, Barry! If you have supplemental health care coverage, you should submit your receipts for reimbursement. It took us a couple of tries and, ultimately, a letter from our neuro to Manulife, but they do now fully reimburse for all O2. It's worth a shot!
What size tank is that? Looks like you got the right gear - let us know how it works for you.
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ClusterChris
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Re: Has anyon ever beat the beast?
« Reply #103 on: Apr 26th, 2007, 12:16pm » |
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YOU BASTARD!!!!!!!
Congrats buddy! Wish it was that easy here. Hopefully annettes letter will get through to my doc. Make sure you keep me posted on the results.
Chalk one more up for the Clusterheads!
Talk to ya later, time for me to take a jab and stare t your picture of the tank lol!
Chris
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Linda_Howell
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Re: Has anyon ever beat the beast?
« Reply #104 on: Apr 26th, 2007, 12:21pm » |
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What an ugly looking bottle to be stared at with such reverence and love. 
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barry_sword
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Re: Has anyon ever beat the beast?
« Reply #105 on: Apr 26th, 2007, 12:33pm » |
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Thanks Margi, Angie is summiting the forms today but if it is not covered that is ok with us also. A small price to pay if it works for me.
Chris, hang in there!! I talked to my neuro about neuro's in your area and he does not know of any off hand.
He said he wanted to raise his family and have a practice in a small town setting. He did say you need to get to a neuro with your CH's.
Like Margi said our GP's are over loaded, so you need a referral to a specialist.
You are still welcome to share my o2 but by the time you drove here the CH would be gone and the Hockey NASCAR would be over. 
All kidding aside Chris, I am there for you all the way, Buddy. Talk to me anytime, ok!!
Barry
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BobG
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Re: Has anyon ever beat the beast?
« Reply #106 on: Apr 26th, 2007, 12:37pm » |
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Since Guiseppi mentioned my name in the first reply of this thread I think I should say that I have not had a 'true' cycle for about 7 years. But, that doesn't mean I never have an attack. I still get a yearly cycle (cluster) of shadows (KIP 2-3's) usually January to March. I don't consider them a true cluster, just a minor irritation. I also have a occasional wake-up call, maybe once every 6 weeks. They are strong enough to wake me, usually hit only a Kip 5-6 and are gone in about 20 minutes with an ice pack. They are always during a night after a stressful day.
One more thing...........yes, woodpeckers have lips. "tougher than woodpecker lips" was a favorite saying of my grandfather. I first head him say it when I was a kid, about 55 years ago! It took me a long time to figure out what he meant but I finally caught on.
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Major
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Re: Has anyon ever beat the beast?
« Reply #107 on: Apr 26th, 2007, 12:44pm » |
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Hi Chris,
Shoppers in Ontario definately carry melatonin.
They don't carry kudzu there - I called a bunch of healthfood stores before I found it. We now have a store right near us that carries it, so let me know if you're having trouble finding it out your way.
Good luck with your GP. Jeff's family dr prescribed 02 (right regulator and mask too!) without hesitation after we brought in the printouts. Funny enough, his original neurologist didn't give it to us though - said it was very expensive, hard to get in the house, etc etc. None of that was true though - very inexpensive (especially compared to trex) and very easy to get delivered.
As for headache clinics, there is one in Hamilton - here is the info. You'll need a referal from your GP to get in though.
Dr. Rose Giammarco
Neurologist interested in Headache
Director of the Hamilton Headache Clinic
25 Charlton Avenue E. Suite #808
Hamilton, Ontario L8N 1Y2
905.523.5788
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barry_sword
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Re: Has anyon ever beat the beast?
« Reply #108 on: Apr 26th, 2007, 12:46pm » |
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on Apr 26th, 2007, 12:16pm, Margi wrote:
What size tank is that? Looks like you got the right gear - let us know how it works for you. |
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Margi, this is a "M tank" about hip high as long as one is not a midget.
Linda, you are so right, how can something so ugly on the outside be so beautiful inside! 
Thanks Ladies, now we have to get Chris his o2.
Barry
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ClusterChris
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Re: Has anyon ever beat the beast?
« Reply #109 on: Apr 26th, 2007, 1:57pm » |
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Ya Ya, I know barry your here for me. Bullshit, Your in love with your o2 tank now, forget about the rest of us.
Lmao, sry I just had to do it cause I'm jelous as hell! I'm sure I'll get mine soon enough! Enjoy it, you deserve it! Hope it works like a charm!
The health food store down the road caries kudzu So i'm good there!
Off to work now, talk to you all shortly!
Chris
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barry_sword
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Re: Has anyon ever beat the beast?
« Reply #110 on: Apr 26th, 2007, 3:40pm » |
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on Apr 26th, 2007, 1:57pm, ClusterChris wrote:Ya Ya, I know barry your here for me. Bullshit, Your in love with your o2 tank now, forget about the rest of us.
Lmao, sry I just had to do it cause I'm jelous as hell! I'm sure I'll get mine soon enough! Enjoy it, you deserve it! Hope it works like a charm!
The health food store down the road caries kudzu So i'm good there!
Off to work now, talk to you all shortly!
Chris |
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Yea Chris, there is a certain bond with the tank and it gets it's own room too! I just hope it works for me, time will tell.
Barry
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Guiseppi
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Re: Has anyon ever beat the beast?
« Reply #111 on: Apr 26th, 2007, 5:07pm » |
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Love....int all its forms....is a beautiful thing!!!!!
Guiseppi
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Chillrmn1
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Re: Has anyon ever beat the beast?
« Reply #112 on: Apr 26th, 2007, 5:47pm » |
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Congratulations Barry!
O2 was a godsend for me, I hope it works as well for you as it does me. Will be waiting to read how well you respond.
You're next Chris.
Regards,
Bob
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BMoneeTheMoneeMan
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Re: Has anyon ever beat the beast?
« Reply #113 on: Apr 26th, 2007, 7:52pm » |
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Hugging your tank grinning from ear to ear....thats funny stuff!!
I thought medical stuff was a right in Canada and provided to all. Howcome you had to pay for it?
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"Fool me once, shame on, shame on you. Fool - can't get fooled again"
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barry_sword
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Re: Has anyon ever beat the beast?
« Reply #114 on: Apr 26th, 2007, 8:08pm » |
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Unfortunately not all is free here. This like a prescription med that we pay for and if we have our own insurance we get most of it back, in which I will get about 80% back from the o2.
I can go to my GP Doc and Neuro, and ER and not get billed as long as I have my Ontario Health Card. Any extras like scripts I pay for.
Barry
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pieface_49
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Re: Has anyon ever beat the beast?
« Reply #115 on: Apr 26th, 2007, 10:01pm » |
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I am new, but this is what clusterheadaches.com is about ). For someone to take the time to understand us, who is not one of us, is a blessing. For someone who just wants to help, spending a lot of their time chatting with us, is truly something to be grateful for. Only someone who has seen firsthand can only begin to comprehend. With a tear in my eyes, Thank You Annette.
From the bottom of my heart, Thank You,
Donnie
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When God was passing out stinkers, I thought He said thinkers. I now have a better stinker than a thinker.
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Batch
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Re: Has anyon ever beat the beast?
« Reply #116 on: Apr 26th, 2007, 10:22pm » |
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Chris, Barry,
A little something heading your way...
Great pix of the Rx and home O2 cylinder.
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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, not any before nor after, that’s as lovely as a great airplane. Man has one virginity to lose in fighters, and if it is a lovely airplane he loses it to, there is where his heart will forever be.
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ClusterChris
New Board Old Timer
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Re: Has anyon ever beat the beast?
« Reply #117 on: Apr 26th, 2007, 11:34pm » |
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Very nice bary, just keep rubbing it in ya bastard lol! Have you tried it out yet??
Batch, Thats awsome, thanks a bunch for that info. Looks like that covers pretty much everything!
I'm going to print it out in the morning.
Going to try and get an appt with my doc on monday, I want to see if she has changed her tune since annette sent in the info. I will also get a referal to the neuro in Hamilton, I forget who gave me that name but that you for that.
I'll keep ya's posted. I might just have to build my livingroom greenhouse this weekend and lock myself inside!
Hope all the noggins are well! Oh yeah, I tried redbull tonight. I tchugged one when i felt the first little tinge of a shadow, after about 5 or 6 minutes I got a touch worse so i chickened out and took a shot of trex. about an hour ago I felt the same thing so I chugged the second one and here I am still pain free. Maybe the (expensive ass hell) shit actually works! Ok thats enough for now.
Catch ya guys later!
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Batch
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Re: Has anyon ever beat the beast?
« Reply #118 on: Apr 27th, 2007, 2:10am » |
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Chris,
Thanks. We should have the User's Guide on line shortly. Sounds like Barry got his O2 kit up and running, shot the beast in the backside, and sent it away in short order. Keep us posted on the results of your next visit with the doc. I've a few good friends at NIH that may be able to fire a warning round across her bow.
Take care, Batch
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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, not any before nor after, that’s as lovely as a great airplane. Man has one virginity to lose in fighters, and if it is a lovely airplane he loses it to, there is where his heart will forever be.
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ClusterChuck
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Re: Has anyon ever beat the beast?
« Reply #119 on: Apr 27th, 2007, 2:48am » |
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Did someone mention OXYGEN ?? ?? ??
Would you believe I used MOST of this up in this past week? Does that tell you what my week has been like?
I LOVE my oxygen!
There are 8 "M" tanks, and 7 "E" tanks ... BTW, Barry, that beautiful tank you are making out with, is what my vendor calls an "M-60" tank.
Ah yes!!! Dear LOVELY tanks!!!
Chuck
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artonio7
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Re: Has anyon ever beat the beast?
« Reply #120 on: Apr 27th, 2007, 2:58am » |
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on Apr 27th, 2007, 2:48am, ClusterChuck wrote:Did someone mention OXYGEN ?? ?? ??
Would you believe I used MOST of this up in this past week? Does that tell you what my week has been like?
I LOVE my oxygen!
There are 8 "M" tanks, and 7 "E" tanks ... BTW, Barry, that beautiful tank you are making out with, is what my vendor calls an "M-60" tank.
Ah yes!!! Dear LOVELY tanks!!!
Chuck
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....now we've got to do the demo video
with warm regards,
Tony
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Batch
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Re: Has anyon ever beat the beast?
« Reply #121 on: Apr 27th, 2007, 6:14am » |
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 Awesome Chuck... To you my friend, a FALCON 101, a FALCON 104, and a FALCON 109 all rolled into one!!!
Looks more like Wendel's Welding Supply even if it is all Medical grade O2.
Tony, the demo video is already in work..
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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, not any before nor after, that’s as lovely as a great airplane. Man has one virginity to lose in fighters, and if it is a lovely airplane he loses it to, there is where his heart will forever be.
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ClusterChris
New Board Old Timer
Damn Head!
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Re: Has anyon ever beat the beast?
« Reply #122 on: Apr 27th, 2007, 7:36am » |
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Damn Chuck, You living in a Rocket Ship?
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barry_sword
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Re: Has anyon ever beat the beast?
« Reply #123 on: Apr 27th, 2007, 7:41am » |
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on Apr 26th, 2007, 11:34pm, ClusterChris wrote:Very nice bary, just keep rubbing it in ya bastard lol! Have you tried it out yet??
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Yes Chris, twice. My first was 9:05pm jumped on the o2 and 15mins. later no CH. 12:05am woke up jumped on the o2 and 15mins later no CH. I like this stuff, and no CH hangover, and Angie said I looked normal(stop right there) instead of being all beat up looking.
I know both these hits would have been real head bashers but the o2 aborted them both. THANK YOU!
Chuck, my heart goes out to you, you are having such a tough time.
Batch, thank you for the o2 manual. Now to get Chris his o2.
Barry 
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Brew
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Re: Has anyon ever beat the beast?
« Reply #124 on: Apr 27th, 2007, 7:55am » |
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Ground control to Major Chuck....
I'm going to have to send you a fingernail clippers.
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Always remember that you're unique, just like everyone else.
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