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Topic: turtlendog intro ( was CH and allergy treatments ) (Read 2114 times) |
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LeLimey
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Re: CH and allergy treatments
« Reply #25 on: Jan 24th, 2008, 9:55am » |
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on Jan 24th, 2008, 9:31am, turtlendog wrote:
1. As you noted. The reason for my conclusion was found in other resouces.
2. This is not my statement. It is a quote from another source. I should have quoted it.
3. I RAREY get below k1, and spend almost every day reaching k5-k7 for a short time before the meds get me back down to k1-k2. These events are reported in my diaries as 2 on a 0-3 scale, for months on end.
This month I came east to see if I could somehow break the cycle, which I mostly have. Most of my time here is spent at k1 with a couple slips to k3. I've been dancing every 2 or three days here, but nothing like at home. On 1/17 I saw several hours at k8 which, needless to say, sucked.
As you might guess by reading the above, most of my diaries are at home. This month's is here, but since I've started trying to track more accurately (by the hour), there hasn't been as much to track. Time will tell. I'm not trying to have this disease. I'm trying to find out if there's anything I can learn here to get me out of this rut. I just hope the relief follows me home!
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Have you ever looked into Hemicrania Continua? It's another in the same group of headaches as CH - TACS (Trigeminal Autonomic Cephalagias) and is characterised by non stop pain with "spikes" for lack of a better word of much more intense pain?
I'm not trying to diagnose you, just offer suggestions that may help you or anyone else reading this.
Helen
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turtlendog
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Re: CH and allergy treatments
« Reply #26 on: Jan 24th, 2008, 10:17am » |
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on Jan 24th, 2008, 9:55am, LeLimey wrote:
Have you ever looked into Hemicrania Continua? It's another in the same group of headaches as CH - TACS (Trigeminal Autonomic Cephalagias) and is characterised by non stop pain with "spikes" for lack of a better word of much more intense pain?
I'm not trying to diagnose you, just offer suggestions that may help you or anyone else reading this.
Helen |
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THANK YOU for bringing that up!
But I respond to triptans and this article says Hemicrania Continua that do not.
http://en.wikipedia.org/wiki/Hemicrania_continua#Cause_and_diagnosis
A quick search indicates that this article is not alone in stating that.
http://www.google.com/search?q=Hemicrania+Continua+triptans
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starlight
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Re: CH and allergy treatments
« Reply #27 on: Jan 24th, 2008, 11:57am » |
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No hard feelings at least on this end.
I do feel you 2 sound a lot alike, but maybe I am mistaken.
I wish everyone here relief from head pain so there was nothing insincere about what I said to you.
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LeeS
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Re: CH and allergy treatments
« Reply #28 on: Jan 24th, 2008, 12:12pm » |
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Please do not always believe Wiki, or Google for that matter 
This report is quite old, but not as old as limey-bird 
It is quoted (and possibly misinterpreted) in at least one of the Google sites on the link. Not saying it's right, of course, just that one can be easily mislead, and of course YMMV:
Quote:Headache. 1998 Mar;38(3):197-200. Links
Chronic paroxysmal hemicrania and hemicrania continua: lack of efficacy of sumatriptan.
Antonaci F, Pareja JA, Caminero AB, Sjaastad O.
University Centre for Adaptive Disorders and Headache (UCADH), Section of Pavia I, C. Mondino Foundation, Italy.
Attacks of chronic paroxysmal hemicrania are prevented by the continuous administration of indomethacin. Sumatriptan, an agonist of 5-HT1-like receptors, has proven effective in the treatment of cluster headache attacks. There are clear clinical similarities between chronic paroxysmal hemicrania and cluster headache. A natural consequence of these considerations would be to establish whether chronic paroxysmal hemicrania also responds similarly to sumatriptan. Since hemicrania continua is another unilateral headache responsive to indomethacin, it would be meaningful to also include hemicrania continua in such a study. Sumatriptan, 6 mg subcutaneous, was tried in an open fashion in 7 patients (6 women and 1 man) with chronic paroxysmal hemicrania and 7 patients (5 women and 2 men) with hemicrania continua. In chronic paroxysmal hemicrania, the mean interval between the last three attacks prior to sumatriptan treatment (40 +/- 23 minutes) was not statistically different from the mean interval between the three attacks subsequent to sumatriptan treatment of an attack (32 +/- 20 minutes). In none of the patients did the mean duration of the "test attack" decrease as compared to the attacks antedating the test attack (25 +/- 11 minutes and 19 +/- 9 minutes, respectively) (P = 0.027, Wilcoxon). In 2 patients with chronic paroxysmal hemicrania, placebo (saline) administration did not lead to any change in the interval between attacks. There was a mild, but statistically significant reduction in visual analog scale values for headache intensity in hemicrania continua (P = 0.04, Wilcoxon). There was no clear, i.e., clinically meaningful, reduction in visual analog scale values in any particular patient with hemicrania continua. Taken together, these results seem to show that sumatriptan is of no benefit in chronic paroxysmal hemicrania, but may have a partial efficacy in hemicrania continua. However, the latter effect is clinically unimportant. This minor difference in regard to the clinical effect may, nevertheless, be of some interest pathogenetically, indicating minor differences between the two headaches. The lack of sumatriptan effect in chronic paroxysmal hemicrania clearly and markedly strengthens the nonalignment concept in regard to chronic paroxysmal hemicrania and cluster headache. |
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Have you tried an indotest?
-Lee
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turtlendog
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Re: CH and allergy treatments
« Reply #29 on: Jan 24th, 2008, 12:24pm » |
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on Jan 24th, 2008, 12:12pm, LeeS wrote:
-snip-
Have you tried an indotest?
-Lee |
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I have not, but I'll be sure to suggest it to my neurologist.
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LeLimey
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Re: CH and allergy treatments
« Reply #30 on: Jan 24th, 2008, 1:22pm » |
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Indo is only an nsaid so it's both dirt cheap and you can get it from your GP. It's also very fast acting, if you aren't seeing a change in 10-14 days then it isn't working so it's a quick easy trial. All you DO need to dois take something at the same time to protect your stomach as it's pretty rough on it.
Hope that info helps!
Helen
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turtlendog
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Re: CH and allergy treatments
« Reply #31 on: Jan 24th, 2008, 10:30pm » |
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http://www.mayoclinic.com/health/cluster-headache/DS00487/DSECTION=9
Quote:| Be cautious in high altitudes. During a cluster period, the reduced oxygen at altitudes over 5,000 feet may trigger a headache. There may be drug interactions between medications for cluster headache and medications for mountain sickness such as acetazolamide. |
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Maybe there was something to my altitude hypothesis after all. I wonder if that admonishment applies to people who live at that altitude as well, or just those who would travel and not be acclimated?
I live at 5500 and seem to have an airplane trigger thought it's my understanding they pressurize the cabin to a pressure altitude of 7000.
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Groov
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Re: CH and allergy treatments
« Reply #32 on: Jan 25th, 2008, 12:41am » |
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on Jan 24th, 2008, 10:30pm, turtlendog wrote:http://www.mayoclinic.com/health/cluster-headache/DS00487/DSECTION=9
Maybe there was something to my altitude hypothesis after all. I wonder if that admonishment applies to people who live at that altitude as well, or just those who would travel and not be acclimated?
I live at 5500 and seem to have an airplane trigger thought it's my understanding they pressurize the cabin to a pressure altitude of 7000. |
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I live at 6500, but I bought a hyperbolic chamber from Michael Jackson. He used to keep Bubbles in it because his monkey Bubbles has a bad case of CH. There is good news tho. Bubbles discovered "Sinus Buster" and he is fine now...AND I have a new pressurized chamber to browse the porno sites in....headache free. Oh happy day 
Cheers, Divine
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