Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Mar 29th, 2024, 5:42am

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « episodic to chronic question »


   Clusterheadaches.com Message Board
   Cluster Headache Help and Support
   Cluster Headache Specific
(Moderator: DJ)
   episodic to chronic question
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: episodic to chronic question  (Read 1324 times)
Giovanni
New Board Hall of Famer
USA 
*****




I love YaBB 1G - SP1!

   
Email

Gender: male
Posts: 764
episodic to chronic question
« on: Apr 10th, 2008, 5:48pm »
Quote Quote Modify Modify

I guess that I’ve officially turned the corner from episodic to chronic at this point as it has been many months (over a year) since total remission of symptoms.  The difference now is the pain levels are much less and headaches are not exclusive but concentrated to night time.  I consequently do not get a lot a sleep as I have numerous wakeup calls and O2 for relief.  On occasions, I might have middle to upper kipper, but not often.  I usually can not have any booze without triggering a headache.
My last substantial cycle was the summer of 2006, the mother of all cycles as far as I was concerned.
I’m just curious about your thoughts here on the board.  Anybody else like this?  Everything that I’ve tried in the past seems to have promise in the beginning and then fizzle out.  I’d give $100 now for one absolut martini that wouldn’t blow my head off.  Angry
Thanks,      
John
IP Logged
E-Double
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Are we ourselves?

  Edoubleitk   Edoubleitk1
Email

Gender: male
Posts: 6458
Re: episodic to chronic question
« Reply #1 on: Apr 10th, 2008, 7:38pm »
Quote Quote Modify Modify

These days things are a lot easier or less intense than they used to be.
I'm starting to have an increase in intensity but they definitely seem to be less of the real bangers than when episodic.
 
I do not believe that we habituate to the pain as one may with anything else they encounter so often but I do believe that for me it became easier to cope and "cleaner" when I came off meds a couple of yrs ago.
 
The only real blip was last summer when I was at my breaking point moreso because I didn't sleep more than 2 hours for a couple of months = inpatient DHE set that straight.
 
All the best,
 
E
IP Logged

I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
beachmusic
Guest

Email

Re: episodic to chronic question
« Reply #2 on: Apr 10th, 2008, 8:07pm »
Quote Quote Modify Modify Remove Remove


 
If I could send a magic wish your way it would be to put an end to your being chronic but since I obviously cannot do that I wish I could send you an absolut martini...(shaken not stirred, two olives) that would made your head feel like heaven vs. blowing your head off!!!   Have you tried leavin off the olives or perhaps that other stuff Embarassed Embarassed
If worse comes to worse leavin out the vodka  Cry
Your Pal, Mary Ann
IP Logged
jon019
CH.com Alumnus
New Board Junior
USA 
**



"Ya gotta believe!"

   


Gender: male
Posts: 75
Re: episodic to chronic question
« Reply #3 on: Apr 10th, 2008, 9:33pm »
Quote Quote Modify Modify

on Apr 10th, 2008, 5:48pm, Giovanni wrote:
I guess that I’ve officially turned the corner from episodic to chronic at this point as it has been many months (over a year) since total remission of symptoms.  The difference now is the pain levels are much less and headaches are not exclusive but concentrated to night time.  I consequently do not get a lot a sleep as I have numerous wakeup calls and O2 for relief.  On occasions, I might have middle to upper kipper, but not often.  I usually can not have any booze without triggering a headache.
My last substantial cycle was the summer of 2006, the mother of all cycles as far as I was concerned.
I’m just curious about your thoughts here on the board.  Anybody else like this?  Everything that I’ve tried in the past seems to have promise in the beginning and then fizzle out.  I’d give $100 now for one absolut martini that wouldn’t blow my head off.  Angry
Thanks,                
John

 
 
From one Gio to another. That is EXACTLY my experience. Almost spooky. By my math, it has been 2 years chronic, April is my anniversary. I'm craving a beer right now!
 
Regards,
 
Jon
IP Logged

"The beginning of wisdom is to call things by their right names." (that's cluster headache doc)

Chinese proverb
Linda_Howell
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Hearing is one thing.  Listening is another.

  N/A   N/A
WWW Email

Gender: female
Posts: 6721
Re: episodic to chronic question
« Reply #4 on: Apr 10th, 2008, 10:02pm »
Quote Quote Modify Modify


and John?   As a chronic you will experience cycles too.  Some times will be really bad and others not so bad.  you might even have a week or so between hits and then only get light KIP 4 or 5's for 15 mins.
 
There is hope that you will once again either be episodic or they will go away entirely.
IP Logged

Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
Barry_T_Coles
CH.com Alumnus
New Board Hall of Famer
Australia 
*****






  http://mushys.com/kiwi  
WWW Email

Gender: male
Posts: 1348
Re: episodic to chronic question
« Reply #5 on: Apr 10th, 2008, 11:21pm »
Quote Quote Modify Modify

Hi John
Your description of going chronic is as good as verbatim to my experience in going chronic, I only had one session with the beast then had a five year break before getting it again & it simply never left.
 
Interesting to note that the cycle you had before going chronic was your worst as this is what happened for me; the first one was nothing to laugh about but the second was a real killer & the Hypathally really did a burn out, along with the clusters I developed R.L.S. & exploding head syndrome all 3 conditions coming from a wonky hypa.
 
For me beer is definitely out of the question but I can drink stout, white wine & scotch but not when in a high cycle, I had 1 beer about 3 months ago to see what would happen & within 20 minutes I was shadowing real heavy, so beer’s of the shopping list.
 
I’m not sure yet just how my high cycles are going to pan out; my first big break was 261 days, then a 50 day high & currently sitting on a 246 day low, if I’m going to stay constant I should be starting again in around 15 days time, right in the middle of my annual leave break, but I guess only time will tell.
 
Cheers
Barry
IP Logged

Worry is like a rocking chair it gives you something to do but gets you nowhere.
http://mushys.com/kiwi


[img]
Giovanni
New Board Hall of Famer
USA 
*****




I love YaBB 1G - SP1!

   
Email

Gender: male
Posts: 764
Re: episodic to chronic question
« Reply #6 on: Apr 11th, 2008, 7:24am »
Quote Quote Modify Modify

Thanks so much to everyone here for their insight into what to expect here.  On a positive note, I am highly functional and can do most anything I want.  I drink a couple generic Red Bulls per day along with lots of coffee.  My oxygen orders have diminished over the last couple months to about 2 Ms and 1 E every three weeks.  I do have nights that are good occasionally.  I’m able to take my motorcycle road trips (just returned from Florida).  Ambient CR helped when on these trips with the night wake ups that a friend had given me.  
And Mary Ann, you are on with the absolut martini—I don’t care if the head explodes  Wink
Thanks Again,
John
IP Logged
AussieBrian
New Board Hall of Famer
Australia 
*****




Got beer?

   


Gender: male
Posts: 1695
Re: episodic to chronic question
« Reply #7 on: Apr 11th, 2008, 7:37am »
Quote Quote Modify Modify

on Apr 11th, 2008, 7:24am, Giovanni wrote:
On a positive note, I am highly functional and can do most anything I want.  

  Victim or Victor?
 
I've been danced by the devil,
Now it's my turn to lead.
Been trounced by a demon,
I've since cut down like weed.
Lanced that old dragon,
Rejoiced to see it bleed.
I've beaten the beast,
Didn't concede, I'm freed.
 
Did it last time, not the first time,
I'll do it again.
Square up to the monster,
Anywhere or when.
Take a broom to the witch,
And drown the old bitch,
Prance and dance on the grave,
Adieu and amen.
 
Elves in my temples
And imps in my head.
Hobgoblins, snot-weevils,  
It's bed that I dread.
Nightmares and fright-scares,
Who cares 'cos I dare
Say I've won!  You bum-scum,
And now you're all dead.  
 
IP Logged

Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
Giovanni
New Board Hall of Famer
USA 
*****




I love YaBB 1G - SP1!

   
Email

Gender: male
Posts: 764
Re: episodic to chronic question
« Reply #8 on: Apr 11th, 2008, 9:50am »
Quote Quote Modify Modify

on Apr 11th, 2008, 7:37am, AussieBrian wrote:

  Victim or Victor?
 
I've been danced by the devil,
Now it's my turn to lead.
Been trounced by a demon,
I've since cut down like weed.
Lanced that old dragon,
Rejoiced to see it bleed.
I've beaten the beast,
Didn't concede, I'm freed.
 
Did it last time, not the first time,
I'll do it again.
Square up to the monster,
Anywhere or when.
Take a broom to the witch,
And drown the old bitch,
Prance and dance on the grave,
Adieu and amen.
 
Elves in my temples
And imps in my head.
Hobgoblins, snot-weevils,  
It's bed that I dread.
Nightmares and fright-scares,
Who cares 'cos I dare
Say I've won!  You bum-scum,
And now you're all dead.  
 

 
Thanks Brian, I'm going to print this one.
 
John
IP Logged
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss