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   Author  Topic: Vision Problems  (Read 963 times)
Gilliandrea
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Vision Problems
« on: Apr 13th, 2008, 8:58am »
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I have found that I get a lot of blurring during this cycle.
 
Does anyone else have this as I have only seen it mentioned due to meds? Or maybe I've not searched enough  Smiley
 
If I try to concentrate on anything my vision becomes blurry and tears streaming from my CH side eye (left).
 
Gill
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Re: Vision Problems
« Reply #1 on: Apr 13th, 2008, 9:33am »
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Hi and welcome Gill,
 
I am not sure if this is the same thing as what you are referring to but I also have alot of vision problems.  
Mine started when the cycle began and certainly are worse during and attack but now that the cycle seems to be winding down  Smiley  I am still very blurry eyed and cannot focus Embarassed.  
Not sure what if any medications you may be on but I am on Topamax and I believe this a side effect.
Alas I have  a delightful doctor who told me he would be unavailable to take my phone calls until my next appt.  sooo I will have to remain blurry eyed until then.  At that point I will no longer be seeing him.  
Hope this is of some help.  Good luck to you.
Mary Ann Smiley
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DennisM1045
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Re: Vision Problems
« Reply #2 on: Apr 13th, 2008, 9:50am »
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Hi Gill,
 
If you mean blury due to excessive tearing of the CH eye then yes, I get it too.  I'm a right sider and that eye tears constantly - even between the hits.
 
If you mean a loss of the eye's ability to focus I'd get that checked out by your Neurologist.  Visual disturbances are not a typical cluster symptom.
 
Good luck...
 
-Dennis-
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Gilliandrea
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Re: Vision Problems
« Reply #3 on: Apr 13th, 2008, 9:53am »
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Thanks for the feedback
 
I just got the beast back on 9 April and I am still on my build up with verapamil which I hope will take true effect from about 24 April at the latest. In the meantime I am using the Imigran (Imitrex) nasal sprays and injections with the hopes of getting O2 from my consultant on wednesday.
 
During my HA's I don't even think about looking at anything.
However I find that I have constant shadows throughout the day with 2/3 HA's kip 4/5 and a kip 7 to 10 waking me at 2.30am. And being totally exhausted all the time.
 
Mary Ann
Your current Dr seems to be a real idiot, hope you find better luck with a new Dr.
 
Dennis
It is focusing that I meant, as I am seeing the consultant on Wednesday I will definitely bring this up.
But I do find that the tearing in my CH eye is almost constant.  
 
Gill
« Last Edit: Apr 13th, 2008, 9:58am by Gilliandrea » IP Logged
purpleydog
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Re: Vision Problems
« Reply #4 on: Apr 13th, 2008, 6:40pm »
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When I'm getting hit, I can't focus on anything. When a high cycle hits me, I can't focus for days, even to the point of not being able to drive.
 
When I was episodic, and was in cycle, the side I'd get hit on, that eye was blurry. After I turned chronic, I'd get into a "cycle" and have blurry vision on the side I'm getting hit on. My neuro says this is normal. It goes away after the "cycle" is over. My normal hits, I have a bit of blurriness, but it goes away within a few hours of the hit ending.
 
edit to add: I couldn't get new glasses I needed during my first cycle, due to the not quite being able to focus for months. I saw an opthamologist first, because of the pain in my eye, and he said it was neurological. So did my neuro.  
 
When I'm in a cycle, there's no going to the eye doc for glasses, I can't focus, even with corrective lenses...
« Last Edit: Apr 13th, 2008, 6:44pm by purpleydog » IP Logged

BarbaraD
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Re: Vision Problems
« Reply #5 on: Apr 14th, 2008, 7:07am »
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After my surgery (I had some optic nerve damage from that) my left eye is blurred some days and other days it's clear -- never know till I wake up which way it's gonna be...   glasses don't help.  My right eye is fine most of the time, so I just look at things half blurred.  
 
Sometimes drops help. Since Jonny shared his Visine secret, I've been using them when I'm blurred and they seem to help.  
 
Hugs BD
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midwestbeth
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Re: Vision Problems
« Reply #6 on: Apr 14th, 2008, 3:36pm »
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I've noticed this too.  I'm a lefty (ch) and the vision in my left eye has always been worse than in my right.  I was just thinking last night that my vision must be getting worse because even with my glasses, I still have a problem seeing clearly.  My Rx for my glasses is only a little over a year old.
 
Beth
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Re: Vision Problems
« Reply #7 on: Apr 14th, 2008, 8:32pm »
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I thought I was getting old. I bought reading glasses at the drug store.
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Gilliandrea
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Re: Vision Problems
« Reply #8 on: Apr 16th, 2008, 11:36am »
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Thanks to everyone who gave me the "low down" on their own experience. Wink
 
I was at the consultant today and she has said that it is not uncommon for CH sufferers to have blurry vision throughout their cycle.  Undecided
 
I am quite badly short sighted anyway so I can't get a new prescription from the optician until the current cycle ends, and as far as trying to drive, not a chance!!! Sad
 
Well at least I have a good looking chauffeur  Grin Grin in my DH.
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Rosebuddy
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Re: Vision ProblemsA
« Reply #9 on: Apr 17th, 2008, 7:54am »
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Well, I feel like a complete dope!  Just like most of you, when I started this cycle I was desperate to figure out what triggered it, and my vision was less than perfect.  So I went in to see the optometrist, and after a prolonged session got a new prescription.  Got the glasses, and couldn't see out of them at all!  So I made another appointment, and by then the cycle had ended. Cheesy  Another exam, new lenses, and now I can see.  It just never occurred to me that the CH's were causing the vision problems.  Duh.  Once again, you fellow sufferers have been the source of a revelation.  PF days to all of you!
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