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Topic: AAN 2008 Chicago (Read 1016 times) |
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monty
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Posts: 215
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Re: AAN 2008 Chicago
« Reply #1 on: Apr 20th, 2008, 8:52pm » |
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Nice find. The Sodium Oxybate is also known as gamma-hydroxybutyric acid, or GHB. It has valid uses, but has been tarnished by abuse and legal panic in the US. The fact that it seemed to help some people with treatment-resistant CH was interesting - might be even more effective on the average person.
I once read an article that discussed the 'high' some people get from fasting, and how this might be from the body making its own GBH or GBH-like compounds as metabolism switches to burning stored fat. I wonder if a ketogenic diet might help ... this is a very high fat diet. Ketogenic diets have been recognized to be beneficial for certain types of epilepsy for decades.
http://www.ncbi.nlm.nih.gov/pubmed/11043913
http://www.ncbi.nlm.nih.gov/pubmed/17011713
Epilepsy has been linked to mitochondrial energy deficits, and a ketogenic diet seems to help with that. (Mitochondrial energy deficits have also been noted in in CH):
http://www.ncbi.nlm.nih.gov/pubmed/18266755
http://www.ncbi.nlm.nih.gov/pubmed/9077499
http://www.ncbi.nlm.nih.gov/pubmed/11306197
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| « Last Edit: Apr 20th, 2008, 9:10pm by monty » |
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The outer boundary of what we currently believe is feasible is far short of what we actually must do.
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cluster
New Board Veteran
Water X 3 - It works !
Gender: 
Posts: 137
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Xyrem + diets
« Reply #2 on: Apr 22nd, 2008, 3:33am » |
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Hello Monty,
I found some more information about Xyrem here:
http://www.ncbi.nlm.nih.gov/books/bv.fcgi?log$=drug_bottom_one&rid=m edmaster.chapter.a605032
btw:
Quote:
Xyrem, a drug prescribed for narcolepsy, contains as its active ingredient gamma-hydroxybutyrate or GHB, a date-rape drug that appeared in the 1990s. A national registry to monitor the drugs’ use and distribution could minimize the risk of misuse, Halpern says. “If we can do that for GHB and thalidomide, then I believe we can for LSD and psilocybin.”
Source: http://www.maps.org/sys/nq.pl?id=1147
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Looking at the side effects I think I'd rather have some psilocybin prescribed by my neuro and not Xyrem.
The links you posted about Ketogenic diets and a possible relationship to CH are very interesting. Unfortunately nobody seems to be interested to do (and therefore to spend money on) research about relationsships between food and CH (if there are any), I think.
My personal experience with a "drink a lot of water, eat no fish, no MSG and avoid histamine diet" as described => here <= is quite good. This is in addition to 2 x 120 mg verapamil per day.
pf wishes,
Friedrich
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"The greatest obstacle to discovery is not ignorance - it is the illusion of knowledge"
Daniel J.Boorstin
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