Author |
Topic: Has anyone ever had (Read 1032 times) |
|
syrs842
New Board Newbie
A GOOD NITE SLEEP ALL AROUND
Gender: 
Posts: 21
|
 |
Has anyone ever had
« on: Apr 23rd, 2008, 5:45pm » |
 Quote  Modify
|
Hi this is Pat
I would like to know if after a severe severe CH if anyone had any side effects like numbing of the face and earache. I had a real bad night last night the worst I've ever had. If it happens tonight emergency room here I come. My poor family didn't know what to do, they did the right thing and just left me to my own vises.
 . I did find out however crying is not good when your in that much pain, it clogs the sinuses more and there is no way to breath.
So back to the after effects, does any get them?
Thanks
Pat
|
|
 IP Logged |
Pat
|
|
|
mezza
New Board Junior
I love YaBB 1G - SP1!
Gender:
Posts: 95
|
|
Re: Has anyone ever had
« Reply #1 on: Apr 23rd, 2008, 6:40pm » |
Quote Modify
|
Hi pat-
Sorry you are having such a painful time- My whole neck and face has lingering pain after a real hard hit especially my temple and brow line.
The numbing- happens after i do an imitrex stat dose-
As for the ER- many here have posted about trips to the ER- looking for any relief only to report that either ha was gone by time they were seen or were given meds that may or may not be effective for CHA since so few dr really understand CH.
Batch ( I think) has provided in the past a link for an emergency medical card that you and your doctor can fill out in case of trips to the er- so that they can be familiar with CH and your treatment - Maybe Batch can tell you more about it?
Have you seen a neurologist yet to help get you with the proper treatment- abortives, and preventatives , and O2?
Hope things get better for you real soon- Those really bad CH are the worst and make you dread nightime again! 
|
|
IP Logged |
|
|
|
Becky
New Board Junior
Welcome to my world Now go home!!!
Gender:
Posts: 84
|
|
Re: Has anyone ever had
« Reply #2 on: Apr 23rd, 2008, 7:13pm » |
Quote Modify
|
Hi Pat, hope you start to get some PFT real soon.
I don't get the numbing, I tend to lose my grip in my right hand(side of cluster) and I am slightly disorientated.
|
|
IP Logged |
|
|
|
syrs842
New Board Newbie
A GOOD NITE SLEEP ALL AROUND
Gender:
Posts: 21
|
|
Re: Has anyone ever had
« Reply #3 on: Apr 23rd, 2008, 7:33pm » |
Quote Modify
|
I have seen a neurologist in the past but can't afford to go back no insurance. He has me on Lyrica, it is not working any more, and I am running out of all the freebies he gave me. I have a perscription but I can't afford to get it filled. (hense the ER) I hoping they can do something for me.
I haven't hand the tingling in my left (CH side) arm yet if I did I probably would think I was having a heart attack, so I hoppe i doesn't happen.
I am going to a clinic in the morning, I know that sounds bad, but maybe after I explain my symptoms and show them a few things I have printed out, they will be able to help me for now.
Thanks for your responses,
Pat
|
|
IP Logged |
Pat
|
|
|
DennisM1045
New Board Hall of Famer
One wave at a time!
 
Gender: 
Posts: 1639
|
|
Re: Has anyone ever had
« Reply #4 on: Apr 23rd, 2008, 7:53pm » |
Quote Modify
|
Hi Pat,
I'm sorry your getting nailed and your weapons are letting you down.
Have you tried energy drinks? Slam one at the first sign of a HA and it can abort or at least keep the hit to a reasonable level.
Is there a fire station near you? If you (can?) explain what is going on they may let you use their O2 in a pinch. 15 minutes on 100% O2 @ 15lpm early enough in the hit can stop a CH dead in its tracks for me.
Others can help you sort out a welder's kit. It's not too expensive and contains the same O2 that finds its way into medical tanks.
I hope you find some relief soon.
-Dennis-
|
|
IP Logged |
Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
|
|
|
mezza
New Board Junior
I love YaBB 1G - SP1!
Gender:
Posts: 95
|
|
Re: Has anyone ever had
« Reply #5 on: Apr 23rd, 2008, 9:11pm » |
Quote Modify
|
Great idea about printing off the information to bring to the clinic- that way you armed to get your treatment going in the right direction- maybe some more samples too
I'm sorry you are having such a bad time- It makes me desparate -
I have used red bulls too to abort definitely a cheaper alternative or a couple of strong black coffees at the first sign of a hit can abort for me sometimes
Some have had success with melatonin at night to avoid night time hits ( i've seen various doses posted - 3 mg up to 12 mg taken before bed)
Read all you can!!
Wishing you the best 
Kelly
|
|
IP Logged |
|
|
|
CostaRicaKris
New Board Veteran
Currently training for AFC half Marathon
Gender:
Posts: 179
|
|
Re: Has anyone ever had
« Reply #6 on: Apr 23rd, 2008, 10:57pm » |
Quote Modify
|
No numbing. I'm very sore and tender after a hit. I get an ear ache type of pain before an attack.
|
|
IP Logged |
Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
|
|
|
bnewman
New Board Newbie
IT CAN'T LAST FOREVER!!!!!
Gender:
Posts: 5
|
|
Re: Has anyone ever had
« Reply #7 on: Apr 23rd, 2008, 10:58pm » |
Quote Modify
|
Hi Pat
You are not alone after a really bad CH the left side of my face from my upper jaw bone to my forehead are numb. And usually the next day I can't stand to chew on that side because it is so sore..I went to ER several time because of this but the only thing I ever get out of the trip is more bills... So anyway GOOD LUCK...
Brenda
|
|
IP Logged |
Brenda
|
|
|
Giovanni
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 764
|
|
Re: Has anyone ever had
« Reply #8 on: Apr 26th, 2008, 3:41pm » |
Quote Modify
|
Sorry you're getting blasted Pat, I really do feel for you. There might be some side effects going on with you with the drug LYRICA. Go ahead and do a google with that drug and its side effects.
In recalling some of my past really big ones, I do believe that I experienced some numbness, temporary.
You might luck up in the emergency room, might not. I never had gone because after taking your family history, getting insurance information, and waiting in line, your headache would probably be gone anyway.
Best of luck to you,
John
|
|
IP Logged |
|
|
|
starlight
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 604
|
|
Re: Has anyone ever had
« Reply #9 on: Apr 26th, 2008, 9:56pm » |
Quote Modify
|
My last cycle I had a lot of ear pain in left ear during attacks. Numbing of face--hmmm--I don't know about that--don't think so. I hope you get some relief soon.
|
|
IP Logged |
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: Has anyone ever had
« Reply #10 on: Apr 27th, 2008, 1:06pm » |
Quote Modify
|
What your having are autonomic symtoms. Topical parathesia, tinnitis, horners syndrome, bruised feeling,sensation of heat, the list goes on. Your not alone. These have been discussed here alot. hypothalamus gone WILD!
all the best
thebb
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
Garys_Girl
New Board Veteran
Kill the Beast!
Gender:
Posts: 240
|
|
Re: Has anyone ever had
« Reply #11 on: Apr 28th, 2008, 11:05pm » |
Quote Modify
|
Yup. Gary's face often feels numb towards the end of a bad attack on that side of his face. He doesn't have the tinnitis or earache - he feels like he pulled a muscle in his neck at the base of his skull on the attack side.
Laurie
|
| « Last Edit: Apr 28th, 2008, 11:06pm by Garys_Girl » |
IP Logged |
____________________________________
Laurie
"It's comin' like a freight train - can't you hear it?" - Gary
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss