Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Jun 20th, 2019, 5:20pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Can CH Cause Brain Damage? »


   Clusterheadaches.com Message Board
   Cluster Headache Help and Support
   Cluster Headache Specific
(Moderator: DJ)
   Can CH Cause Brain Damage?
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Can CH Cause Brain Damage?  (Read 13259 times)
Cynthia
New Board Newbie
USA 
*





   


Gender: female
Posts: 7
Can CH Cause Brain Damage?
« on: May 22nd, 2008, 12:38am »
Quote Quote Modify Modify

Has anyone heard of CH causing brain damage? I have read a couple of studies showing that migraines can cause leisons in/on the brain which can lead to problems. But I haven't found anything relating it to CH.
 
I was wondering because I had a CH cycle that lasted about 2 weeks recently, and I have noticed some changes in me. I am a bit more forgetful, sluggish, out-of-it, and have been having odd feelings (sort of like the auras I get with my partial seizures, but a bit different). Its hard to describe. Its just been some stuff that isn't my usual self.
 
Has anyone had any experiences similar to this? Or has anyone heard of anything that is related to it? Thanks for any info!
IP Logged
AussieBrian
New Board Hall of Famer
Australia 
*****




Got beer?

   


Gender: male
Posts: 1695
Re: Can CH Cause Brain Damage?
« Reply #1 on: May 22nd, 2008, 12:53am »
Quote Quote Modify Modify

None that we're really aware of, Cynthia, though we know what can do to your mind if you let it. The emotional toll can be devastating and can certainly lead to all sorts of lousy feelings.
 
I know I become quite sluggish and forgetful as cycles progress but I reckon most of that is through lack of sleep.
IP Logged

Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
Annette
CH.com Alumnus
New Board Hall of Famer
Australia 
*****




Veni Vidi Velcro

   
Email

Gender: female
Posts: 1874
Re: Can CH Cause Brain Damage?
« Reply #2 on: May 22nd, 2008, 4:52am »
Quote Quote Modify Modify


If you consider the abnormality found in the hypothalamus of some CHers and how common head injury is related to CH, it maybe the other way round, ie some forms of brain damage may cause CH.
 
Forgetfullness and problems with cognition are more likely to be caused by/related to neurotransmitter imbalances in the brain during a cluster cycle than anatomical damages.  
 
IP Logged

Mediocrity knows nothing higher than itself; but talent instantly recognizes genius.
Arthur Conan Doyle
catherinelane
New Board Newbie
United_Kingdom 
*



brain is out please leave a message after the tone

   
Email

Gender: female
Posts: 41
Re: Can CH Cause Brain Damage?
« Reply #3 on: May 22nd, 2008, 5:23am »
Quote Quote Modify Modify

are you on the tapering dose of steroids?
i found that i got extremley forgetful while using that route of medication, even forgetting how to pronounce certain words!
IP Logged
Brew
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Low Four!

   


Gender: male
Posts: 6515
Re: Can CH Cause Brain Damage?
« Reply #4 on: May 22nd, 2008, 6:09am »
Quote Quote Modify Modify

Absolzp[3 w;e. q098r dj pwie/'d  sjdpale duwle ieuuusel as send te2s d ss speof.!
IP Logged

Always remember that you're unique, just like everyone else.
BarbaraD
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Hugs to ya

   
Email

Gender: female
Posts: 5164
Re: Can CH Cause Brain Damage?
« Reply #5 on: May 22nd, 2008, 7:21am »
Quote Quote Modify Modify

Cynthia,
 
don't worry about something you can't change. We're all going thru some tremendous amounts of pain. And yes it's going to effect our thinking somewhat.We take meds that effect our thinking...  
 
I've learned over the years to just write a lot of notes and try to remember where I put them (post it notes work best  Smiley ).  
 
I have auras also, but just take them with a grain of salt (or blame them on the migraines I have occasionally).  
 
What I'm getting at is -- why worry about something when you can't do anything about it? I just "assume" that we're all "brilliant" and until someone proves different I'll just hold on to that assumption. After all we DO have more gray matter than most people so therefore we MUST be brilliant - right? Einstein couldn't remember his phone number (he didn't bother to remember things he could look up - so why should I?).  
 
Now don't you feel better  now that you have my opinion? Cheesy
 
Hugs BD
IP Logged

What don't kill ya, Makes ya stonger!

Redd
CH.com Alumnus
New Board Hall of Famer
USA 
*****






   
Email

Gender: female
Posts: 6661
Re: Can CH Cause Brain Damage?
« Reply #6 on: May 22nd, 2008, 8:30am »
Quote Quote Modify Modify

I have only one other word of advice, and that is...
 
If you are experiencing symptoms that are different or odd "for you"...please see your doctor.  We never know when something more sinister can pop up.  Think Kennedy, and his brain cancer.  He'd had a clean brain scan just 6 months ago.
 
Better to check it out.
IP Logged

I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
Charlotte
CH.com Alumnus
New Board Hall of Famer
USA 
*****




I love YaBB 1G - SP1!

   
Email

Gender: female
Posts: 1932
Re: Can CH Cause Brain Damage?
« Reply #7 on: May 22nd, 2008, 9:02am »
Quote Quote Modify Modify

I'm with Redd.  Please call or email your doc or advice nurse, if you have one.  I do get wierd things, and have multiple types of headaches.  It can be like peeling layers of an onion to get to the cause of different symptoms.  
 
Sometimes it is part of your headache, sometimes something else.  We had a sweet lady called Rapunzel who had several strokes.  
 
I'd feel better if you bounced it off a medical professional.
 
We are here for moral support, but most of us are not docs.
 
Charlotte
IP Logged
Jean
New Board Newbie
USA 
*





   


Gender: female
Posts: 50
Re: Can CH Cause Brain Damage?
« Reply #8 on: May 22nd, 2008, 9:35am »
Quote Quote Modify Modify

Hi,
 
I notice during a cycle I am very forgetful, have trouble concentrating and even have trouble carrying on a normal conversation.  I think my appearance even changes.  CH effects my whole being while in cycle.  All seems to go back to normal after my cycle ends but it does take some time.  
 
Jeannie
IP Logged
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
USA 
*****



If I think hard enough maybe it'll go away.....

   


Gender: male
Posts: 2248
Re: Can CH Cause Brain Damage?
« Reply #9 on: May 22nd, 2008, 10:17am »
Quote Quote Modify Modify

on May 22nd, 2008, 9:35am, Jean wrote:
Hi,
 
I notice during a cycle I am very forgetful, have trouble concentrating and even have trouble carrying on a normal conversation.  I think my appearance even changes.  CH effects my whole being while in cycle.  All seems to go back to normal after my cycle ends but it does take some time.  
 
Jeannie

 
Felt many of the same things during some cycles.
 
Scott
IP Logged

-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
thomas
CH.com Alumnus
New Board Hall of Famer
USA 
*****




"Hit like a phillips head into my brain."

   


Gender: male
Posts: 3281
Re: Can CH Cause Brain Damage?
« Reply #10 on: May 22nd, 2008, 1:52pm »
Quote Quote Modify Modify

I ain't as smart as I once was.
IP Logged

Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
Brew
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Low Four!

   


Gender: male
Posts: 6515
Re: Can CH Cause Brain Damage?
« Reply #11 on: May 22nd, 2008, 1:58pm »
Quote Quote Modify Modify

on May 22nd, 2008, 1:52pm, thomas wrote:
I ain't as smart as I once was.

I'll trade smart for wise any day.
IP Logged

Always remember that you're unique, just like everyone else.
Cynthia
New Board Newbie
USA 
*





   


Gender: female
Posts: 7
Re: Can CH Cause Brain Damage?
« Reply #12 on: May 22nd, 2008, 4:49pm »
Quote Quote Modify Modify

Thanks for the replies everyone.  
 
Annette: Maybe it is from the neurotransmitter imbalance. I had not thought of that yet.
 
Catherine: No, I wasn't on any steroids. I didn't know they could work until I was almost through the cycle, so I didn't know it was an option. I probably wouldn't have wanted them anyway, because they make me feel bad-sweating, feel hot, increased appetite, moody.
 
Barbara: Sorry, I can't just accept this change in me. I am still taking college courses (quite difficult ones at that) and plan on medical school in a couple of years. A mess up in my brain that makes it harder for me to learn is a detrimental blow for me. I want to worry about it because I want to know what it is so that I can stop any progression of the problem or reverse it if possible. I know you're trying to offer support though-so thanks for that.
 
Jean, seasonalbloomer: Thanks, that does make me feel a bit better that it doesn't seem permanent and that it isn't just me.
 
Redd, charlotte: I work at a doctors office, and I did ask him about it today. He said that it might have been due to the sleep problems I had.  I mentioned the auras and everything, but he wasn't very sure if it all was from the CH or not. He recommended that if I keep having problems that I might want to talk to my neuro. I have an appointment with the neuro soon anyway for the seizures, so maybe he might know whats up.
IP Logged
Balanchine
New Board Newbie
USA 
*





   


Gender: male
Posts: 21
Re: Can CH Cause Brain Damage?
« Reply #13 on: May 22nd, 2008, 6:41pm »
Quote Quote Modify Modify

I don't know about smart or wise.... but since I started on Topomax about 10 days ago I'm convinced my IQ has dropped 20 points (and when you start at 80....). Give you an example, yesterday I was trying to give a clerk 20 cents in change and it was a challenge. Jeesh. I used to be able to handle that in less than 5 minutes!
IP Logged
Cynthia
New Board Newbie
USA 
*





   


Gender: female
Posts: 7
Re: Can CH Cause Brain Damage?
« Reply #14 on: May 22nd, 2008, 7:17pm »
Quote Quote Modify Modify

on May 22nd, 2008, 6:41pm, Balanchine wrote:
I don't know about smart or wise.... but since I started on Topomax about 10 days ago I'm convinced my IQ has dropped 20 points (and when you start at 80....). Give you an example, yesterday I was trying to give a clerk 20 cents in change and it was a challenge. Jeesh. I used to be able to handle that in less than 5 minutes!

 
I have heard of that with Topamax. Its why some people have nicknamed it "dopamax" and "stupamax". I used to take it for seizures and I didn't notice anything like that. My Mom takes it for migraines and she noticed it in the first few weeks but it seemed to go away after a while.
 
Did they slowly titrate the dose up or just throw you into a moderate/high dose? It will almost definately cause side effects if it isn't introduced slowly. When I was on it I was started out a 25mg for a few days then went up to 50, and so on. I had to go off of it for a little while and when starting it again I just jumped back into the regular dose thinking my body would recognize it....I was wrong! It knocked me out and I slept all day. I had to reintroduce it slowly again.
IP Logged
Balanchine
New Board Newbie
USA 
*





   


Gender: male
Posts: 21
Re: Can CH Cause Brain Damage?
« Reply #15 on: May 22nd, 2008, 7:35pm »
Quote Quote Modify Modify

Cynthia, yes, my neurologist started me on 25 mg twice a day for 4 days, then upped it to 50 twice a day for 10 days. I'm in the midst of that at present. But I noticed the effect almost immediately. As I wrote somewhere in another post, I'm feeling sleepy, stupid, dopey and drowsy... like half the seven dwarves. I certainly hope I get accustomed to it like your mother!
 
Thanks.
David
IP Logged
Lebowski
New Board Newbie
USA 
*




The Dude Abides!

   
Email

Gender: male
Posts: 36
Re: Can CH Cause Brain Damage?
« Reply #16 on: May 24th, 2008, 5:30am »
Quote Quote Modify Modify

If they do not cause brain damage, I think smashing my head with my fists will during an attack!
IP Logged
kissmyglass
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Don't Mix Triptans

   
Email

Gender: male
Posts: 1398
Re: Can CH Cause Brain Damage?
« Reply #17 on: May 24th, 2008, 11:12am »
Quote Quote Modify Modify

Ummm....What was the question?    Smiley
IP Logged

"It does so fucking look like her" - Picasso
[img][/img]
midwestbeth
CH.com Alumnus
New Board Hall of Famer
USA 
*****





   
Email

Gender: female
Posts: 834
Re: Can CH Cause Brain Damage?
« Reply #18 on: May 24th, 2008, 1:34pm »
Quote Quote Modify Modify

on May 22nd, 2008, 9:35am, Jean wrote:
Hi,
 
I notice during a cycle I am very forgetful, have trouble concentrating and even have trouble carrying on a normal conversation.  I think my appearance even changes.  CH effects my whole being while in cycle.  All seems to go back to normal after my cycle ends but it does take some time.  
 
Jeannie

 
I completely agree with what Jean said.
 
Beth
 
IP Logged

Do more than exist - live
Do more than touch - feel
Do more than look - observe
Do more than read - absorb
Do more than hear - listen
Do more than listen - understand
~ John Rhodes
Trooper
New Board Junior
USA 
**



I ain't skeert!

   
Email

Gender: female
Posts: 93
Re: Can CH Cause Brain Damage?
« Reply #19 on: May 25th, 2008, 11:11am »
Quote Quote Modify Modify

I notice a change in my thinking and attitude as well as the forgetfulness, etc. from the very first hint of a shadow. In a way it kinda lets me know when I am going into cycle. I have had a few rare occasions in the past where I have also felt the aura sensation you speak of. It is a very creepy feeling indeed!
 
If you are having this quite often I would discuss this with your doc. ASAP.
IP Logged
Cynthia
New Board Newbie
USA 
*





   


Gender: female
Posts: 7
Re: Can CH Cause Brain Damage?
« Reply #20 on: May 25th, 2008, 3:25pm »
Quote Quote Modify Modify

on May 25th, 2008, 11:11am, Trooper wrote:
I notice a change in my thinking and attitude as well as the forgetfulness, etc. from the very first hint of a shadow. In a way it kinda lets me know when I am going into cycle. I have had a few rare occasions in the past where I have also felt the aura sensation you speak of. It is a very creepy feeling indeed!
 
If you are having this quite often I would discuss this with your doc. ASAP.

 
Thanks for the input, it makes me feel a bit more reasured that its nothing very serious. I think it may be starting to go away a bit. I did ask my doc, he said it might have been from the sleep problems I had during the worst of the clusters.  He said if they come back or it gets worse that I should either go on a preventative or see my neuro. I went ahead and went on the preventative for the time being, I was still having some of the problems I was mentioning, along with a CH that would pop up every few days and a lingering headache that was just nagging. I probably started the preventative a bit to late, but I figured it was worth a shot at atleast trying.
IP Logged
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss