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Title: Sensitive Head? Post by Melissa on Dec 15th, 2005, 5:15pm Is anyone else's head so sensitive that it hurts to touch it? This is new to me, it being this sensitive. It hurts to brush my hair or touch any part of the areas where I feel pain during an attack. |
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Title: Re: Sensitive Head? Post by E-Double on Dec 15th, 2005, 5:18pm on 12/15/05 at 17:15:15, Melissa wrote:
Yup! Feels like it's really bruised. |
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Title: Re: Sensitive Head? Post by Beastfodder on Dec 15th, 2005, 6:59pm on 12/15/05 at 17:18:37, E-Double wrote:
exactly |
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Title: Re: Sensitive Head? Post by taraann on Dec 15th, 2005, 8:17pm Mine gets like that after a bad bout after repeated hits ontop of one another for a few days.....like someone actually punched me in the head. |
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Title: Re: Sensitive Head? Post by nani on Dec 15th, 2005, 8:21pm Yup, me, too. |
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Title: Re: Sensitive Head? Post by Kris_in_SJ on Dec 15th, 2005, 8:23pm Yep - by the peak of my cycle, just combing my (very short) hairs hurts. Sometimes, I actually can feel swelling over my temple. Actually, when that feeling goes away, I know I'm on the down side of my cycle. Hugs and wishes for good days ahead, Kris |
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Title: Re: Sensitive Head? Post by Jonny on Dec 15th, 2005, 8:34pm Nope, if it hurt to brush my hair I would shave it. |
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Title: Re: Sensitive Head? Post by Karla on Dec 15th, 2005, 9:29pm Yup it hurts. Feels brused. |
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Title: Re: Sensitive Head? Post by HeadhurtinMama on Dec 15th, 2005, 9:34pm I get this too. Sometimes, I have to wash my hair in the tub because it hurts to have the shower run on my head. Bridget |
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Title: Re: Sensitive Head? Post by zwibbs/Scott on Dec 15th, 2005, 11:43pm Hey Melissa. Oh positively. But with me not only is my head very sensitive, I cannot blink my left eye too hard. I have always had the sensitive head through my many cycles. A doctor explained it as almost like how you feel when you have the flu. The nerves in your scalp have a virus -like syndrome. Nothing to worry about though, just a by-product of these damn , ridiculous, painful bastards.I guess we get a free pass into Heaven, as hell is having these headches ! |
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Title: Re: Sensitive Head? Post by gobby on Dec 16th, 2005, 12:11am Dittos here, but also the back of my head, just above the neck hurts also(on the same side as my attacks-- left) Sometimes before an attack, this part of my head tightens up, like a tension headach. Anyone else have this? |
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Title: Re: Sensitive Head? Post by zwibbs/Scott on Dec 16th, 2005, 12:25am Good morning Gobster---yes---my left side-back of neck tightens badly. Sometimes I grab it and massage it , but 9 out of 10 times it does nothing. Basically, when I am in a cycle I could walk in the Macy's Parade on my hands and it would do nothing. The combination of prednisone and verapamil has helped me on this present cycle. The amazing thing is that NOBODY in my family has ever experienced these----------just me. And I pary that my children NEVER get them. When they tell me that they have a headache I jump, but to date nothing near a cluster...THANK GOD !!! |
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Title: Re: Sensitive Head? Post by MJ on Dec 16th, 2005, 12:31am The whole upper side of my head feels bruised and beaten. especially my temple area. Now a whole day without too much pain and it feels moreso. Now that you made me press on it, it hurts more. Oouch! |
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Title: Re: Sensitive Head? Post by Mr. Happy on Dec 16th, 2005, 1:40am Leave it to Mel to start a thread on Sensitive Head... http://mushys.com/pix/Mel.jpg Even tho I'm a guy, I'm sensitive also. The bag of ice/peas applied to the scalp is to LAFF. Not on your life. Every single hair follicle is it's own foray into a hectare of excruciating pain. Sensitive Head; a double edged sword. RJ |
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Title: Re: Sensitive Head? Post by Jasmyn on Dec 16th, 2005, 1:59am Yea Mell if I didn't know better, that hair don't have nerves... it sure feels like it does and Oi!... that bruised feeling of the scalp always leaves me wondering if I've been at the receiving end of some or other caveman's club. |
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Title: Re: Sensitive Head? Post by Bob P on Dec 16th, 2005, 6:50am Yep. In fact, my years of clsuters have now left me with a numb, swollen feeling on the left side of my face constantly, even out of cycle. Left side sinus also gives me a lot more trouble than the non-cluster side. Sometimes I'm not so sure about clusters doing no permanent damage. |
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Title: Re: Sensitive Head? Post by Sean_C on Dec 16th, 2005, 7:50am Yup :) |
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Title: Re: Sensitive Head? Post by Sandy_C on Dec 16th, 2005, 9:05am Yup here too. |
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Title: Re: Sensitive Head? Post by Gena on Dec 16th, 2005, 10:33am Me too! :-/ |
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Title: Re: Sensitive Head? Post by Melissa on Dec 16th, 2005, 10:52am Ok, now I don't feel so strange. I at first thought it had something to do with the meds I'm on, but at least I know I'm not alone. I will say tho, I look like Medusa because brushing my hair hurts like a mofo. :-/ |
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Title: Re: Sensitive Head? Post by sundancer on Dec 16th, 2005, 11:21am Oh yes, a sensitive head after a hit is the aftermath of the beast. |
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Title: Re: Sensitive Head? Post by lionsound on Dec 16th, 2005, 3:18pm I believe that there was a med student doing reseach on skin sensitivity and CH at the convention this past July.....he gave it a name that escapes me at the moment. |
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Title: Re: Sensitive Head? Post by Sean_C on Dec 16th, 2005, 3:23pm on 12/16/05 at 10:52:01, Melissa wrote:
LMMFAO [smiley=laugh.gif] |
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Title: Re: Sensitive Head? Post by Wendy on Dec 16th, 2005, 4:19pm on 12/15/05 at 20:34:20, Jonny wrote:
LMAO!! Only you Jonny [smiley=laugh.gif] [smiley=laugh.gif] |
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Title: Re: Sensitive Head? Post by burnt-toast on Dec 16th, 2005, 5:21pm For me it has always been a common side effect of attacks. It's tough to think positive when even your hair hurts. Tom |
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Title: Re: Sensitive Head? Post by BlueMeanie on Dec 16th, 2005, 8:21pm Yesiree. Very sensitive scalp. The temple area gets kinda numb too. |
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Title: Re: Sensitive Head? Post by broomhilda on Dec 16th, 2005, 9:09pm Oh yes, sore :-/ |
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Title: Re: Sensitive Head? Post by zwibbs/Scott on Dec 17th, 2005, 2:49am Hey Mel----I hope that you are feeling better ! I could have had my first pain free week of nights in 9 weeks---but I resorted to stupidity and ate a Klondike Bar--and whamo I had the normal reaction..........So now I am eating Rabbit food and not drinking and no chocolate. My son is graduating from CIA in April and tonight I am going with my family to one of their restaurants. I'll be having a very nice bottle ( vintage 2005) of water. |
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Title: Re: Sensitive Head? Post by Phil L on Dec 17th, 2005, 9:26pm Yep, me too. The only advantage to getting a tad older is that there is less hair to zing and more scalp for the frozen peas. |
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Title: Re: Sensitive Head? Post by cardogman on Dec 17th, 2005, 10:48pm Yes I know what you are going through because I have right at this very moment the same exact symptoms. Pain on my forhead in the location of my left eybrow, on or around the temple area of my head and a burning type sensitive to touch farther up on the left side of my head. I am going to post a question but let me tell you that I have all sorts of weird things in my life but this tops the cake. |
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Title: Re: Sensitive Head? Post by Kate in Oz on Dec 18th, 2005, 6:58pm Yep I get that too.. always thought of it like a prickly cold burning sensation - if that makes sense. You could just about draw a line down the centre of my face - left side fine right side arghhhh. Temple often feels swollen and sore too. Melissa hope you get some relief soon. Kate |
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Title: Re: Sensitive Head? Post by cardogman on Dec 24th, 2005, 9:01pm It's called Neuralgia. I too have the sensitive head and temple and orbital bone syndrome. I went to get a haircut the other day and kept flinching everytime the guy put the comb through it. Interesting feature about the sensitive head thing. If I scratch it hard it almost feels good. Weird huh. This is absolutely the most bizarre thing I think I have ever had this cluster thing. God must be punishing me for being an not a very nice person. I must have done something wrong because this malady tops the cake. As I have said before I am doomed and I think we all are. Burt |
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Title: Re: Sensitive Head? Post by cardogman on Dec 24th, 2005, 9:04pm Interesting I used a bad word in the last post and it was instantly changed to " not a nice Person " I wish the CH went away like that. Burt |
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Title: Re: Sensitive Head? Post by Sean_C on Dec 24th, 2005, 10:09pm I always thought it was from my clusters :-/ Thanks for the info. Sean............................. Trigeminal Neuralgia Trigeminal Neuralgia is known to be a painful disorder of the cranial nerves. Trigeminal Neuralgia is also referred to as tic douloureux. The affected nerves are responsible for sensing touch, temperature and pressure in the facial area from the jaw to the forehead. Trigeminal Neuralgia generally causes epdisodes of excruciating pain that last between one and two minutes. There can be a variety of ways that the pain can be described as itchy, burning, stabbing, and sharp. In Atypical Neuralgia the pain can also present as severe or merely aching and lasts for extended periods. The pain of Neuralgia is known to be one the most excruciating forms of known pain. Simple stimuli such as eating, talking, washing the face, or any light touch or sensation can trigger the pain. In some cases the sensation of a gentle breeze can be enough to trigger an attack. The attacks may occur in clusters or as an isolated attack. Some patients will have a muscle spasm which led to the original term "tic douloureux" with tic meaning spasm and douloureux meaning painful in French. Neuralgia is considered a form of chronic pain and the duration can be unpredictable. Since there is no clear consensus on the cause, and it may begin at any age it can be extremely difficult to diagnose. Patients usually show no physical abnormalities, and with the attacks generally lasting a very short time, it is nearly impossible to reach a doctor before the attack is over. Post Herpetic Neuralgia is the easiest to diagnose because it follows an obvious cause (Shingles). Insider Tip: Medication for seizures has shown promise in managing Neuralgia and some people have found relief with surgery, though not always permanent relief. There is no known way to prevent Neuralgia. |
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Title: Re: Sensitive Head? Post by pam s on Dec 24th, 2005, 11:27pm I posted about this about a year ago, even saw a doctor, who did a test of some kind to see if it was what I had self-diagnosed myself as having -- Giant cell arteritis, or temporal arteritis (http://www.mayoclinic.com/health/giant-cell-arteritis/DS00440) -- because it can apparently cause blindness. I don't know how thorough the test was, but I am not blind yet. Feels like a bruise. I get it all the time (like now), even between episodes, all over the top of my head. |
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Title: Re: Sensitive Head? Post by cardogman on Dec 24th, 2005, 11:29pm Actually this is not Trigeminal Neuralgia. TN is a completely different problem not associated with Cluster Syndrome. You can have a neuralgia in many parts of the body. This plain old Neuralgia that is an aftermath of the Headache. |
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Title: Re: Sensitive Head? Post by pam s on Dec 25th, 2005, 12:06am on 12/24/05 at 23:29:37, cardogman wrote:
I don't have plain old neuralgia, because I have it off and on all the time, whether in episode or not, and not necessarily where the CH was. I don't know if what I have is Giant Cell Arteritis, either, although the symptoms are the same. But I still think it's related somehow to CH, since so many of us have that bruised feeling. |
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Title: Re: Sensitive Head? Post by cardogman on Dec 25th, 2005, 10:44am Just about anyone looking for a diagnosos should have a Sedimentation rate that rules out Temporal Arteritis if the sed rate is negative. That is a defining blood test for temporal arteritis. Use to be a practicing R.N so I am familiar with all of these things. So if your sed rate is negative you don't have temporal arteritis . The symptoms are different anyway. Surgery cures temporal arteritis with a simple vascular graft. Seen it done a number of times in the O.R. pretty much instant cure. Burt |
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Title: Re: Sensitive Head? Post by Carol_Hackler on Dec 28th, 2005, 2:24pm Yeppers, my scalp hurts - even my hair hurts. |
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Title: Re: Sensitive Head? Post by Goblin on Dec 28th, 2005, 4:43pm Got to agree hair hurts even down to the pores. Major pain in the patutie. during hit to mee feels like head and temple area swollen but its not ive had people check. |
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Title: Re: Sensitive Head? Post by GingerS224 on Dec 29th, 2005, 2:29pm on 12/15/05 at 17:15:15, Melissa wrote:
Yes, I have experienced this as well. Ging... |
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Title: Re: Sensitive Head? Post by ScottEinDC on Jan 11th, 2006, 10:44am yes. sometimes it seems my hair is connected right to the nerve endings...and sometimes my temples feels bruised...when that's happening I buckle down and get ready for a hit! |
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Title: Re: Sensitive Head? Post by suziq on Jan 12th, 2006, 9:14am Me, too. I'm fighting an episode now, and the left side of my head feels bruised. Very tender to the touch. |
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Title: Re: Sensitive Head? Post by vig on Jan 12th, 2006, 4:11pm the left/back side of my head feels like I've been hit with a baseball bat for hours and a good barrage. |
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