|
||||
|
Title: new to site, couple ?'s Post by hockeyhead on Dec 25th, 2005, 11:23pm I've suffered from ch for just over 10 yrs. ..been on Verapamil and get clusters for a few weeks about once a yr. Prednisone helps along with Imitrex during a cluster. I currently have a cluster that wont seem to go away...about 2 1/2 months in. Just went to Neuro and started Topamax and have an MRI next wk. Here's the ? Anyone ever have a tooth problem, like a wisdom tooth that was supposed to be pulled, cause ch? Will something like this show up on the MRI? I have a strange taste and feeling on the same side as my headache eye. Thought it might be related, but didnt want the dentist to kick my butt unless he has to. Thanks for any feedback. |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 25th, 2005, 11:36pm Not an unusual question Hock, alot of people here pulled all thier teethe years ago before the docs knew much about CH in hopes that the pain/clusters would go away. I had my wisdom teeth pulled but still got clusters. Unfortunately its not the link. Dopomax is a tough med to use, I wish you luck with that. Has your doc tried any of the other meds like Verapamil with Lithium? Lots have found relief with that cocktail combo. There's also Oxygen, do some reading if you can on the meds board, lots of great info and people here. Don't be afraid to ask questions if you need any help. Cheers. Sean.................................... |
||||
|
Title: Re: new to site, couple ?'s Post by BobG on Dec 25th, 2005, 11:52pm A few years after my clusters started I had all 4 wisdom teeth removed, because my teeth were crooked, not to try to stop CH. I had not even been diagnosed with clusters yet. My dentist knew about my headaches and told me the teeth had nothing to do with the attacks. It did not stop the attacks nor make them worse. Many people here have reported having teeth removed hoping to relieve the clusterpain. Did not help. Just down the message list is a title "Dental Work and CH". You might want to read that. Welcome to the board hockeyhead. Sorry you had a reason to come looking for us. Have you had a CAT scan or MRI yet? It may show nothing and can rule out many things. About the taste.....over on page 2 of this section is a title "Strange oders during CH hits". Since smell and taste are related maybe there is something to be learned. |
||||
|
Title: Re: new to site, couple ?'s Post by hockeyhead on Dec 26th, 2005, 12:02am Thanks Sean & Bob I haven't even heard of the O2 until reading this site, or mixing litium with the verapamil. I've great success for years with Verapamil until this current cycle. Pardon the ignorance, but is the O2 like the large tank type of deal, or something more portable? On a side note, i've been on Topamax for a week without any side effects, but it hasn't stopped the headaches yet either. It seems like a lot of people on the site have had issues with it. The doc seemed to like it, but maybe it's the sales pitch. Has it worked for anyone? This cycle better kick by New Years, cause I need a drink!! |
||||
|
Title: Re: new to site, couple ?'s Post by BobG on Dec 26th, 2005, 1:30am On the left side of your screen is an 'oxygen info' button. Lots of good stuff there. Your tanks need not be big ones. Save those for home. O2 tanks come in small sizes that are portable. Many folks have tried the Topomax. Some with success and some without. But, many refer to it as Dopeymax. It might screw with you mind. Be careful. A drink for New Years? If you're in a cluster now it might be a good idea NOT to try it, yet. Bummer, huh? |
||||
|
Title: Re: new to site, couple ?'s Post by zwibbs/Scott on Dec 26th, 2005, 1:56am Hey hockeyhead--I used to be a season ticket holder to the Rangers--but the nonsense of a year ago turned me off. .......I used to think that it was my teeth because the pain would sometimes centralize in my left jaw, BUT it never had anything to do with it. I agree about using oxygen with the prednisone and verapamil, as my neurologist has me on it---and I have suffered for 28 years. At first ( two weeks) it wasn't all that great --but someone on this board said to give it time as the verap needs to become therapeudic(?)----The ox comes in small cannisters---or large tanks..I got the small---left it beside my bed, and when I would awaken with a bell-ringer I'd put the mask on and it would do the trick.....Only thing is with this most recent cycle it just doesn't seem to want to go away. I am having minor attacks and they come very infrequently. It is just that in past cycles they would go away completely after about 10--to--12 weeks of a major cycle. Good Luck and let us know what happens ! Scott-NYC |
||||
|
Title: Re: new to site, couple ?'s Post by Jasmyn on Dec 26th, 2005, 4:06am Hi, Hockeyh. Tooth problem? No, I don't think so. Before I got CH, as a teenager, I went to this vet posing as a dentist. Where I live, professionals in those days use to multitask. He relieved me of all four of my wisdom teeth, at once, in his consulting rooms. Needless to say, I didn't keep consciousness but at least I am rid of those beauties. So the crux of the matter is that I do not have any wisdom or wisdom teeth and that I still suffer from pain in my teeth on the CH side. So being toothless does not help with CH. It is quite common to have your senses in hyper-drive, so it is not psychological although we all here rock to the coo-coo clock. Like Sean and Bob said Dopeymax, yes, it works for some but you might loose some of your precious mind, a cocktail of meds sometimes works when the one you're on starts to fail. Cheers, I hope you are PF by the turn of the new year. |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Dec 26th, 2005, 4:23am on 12/25/05 at 23:36:16, Sean_C wrote:
http://im1.shutterfly.com/procserv/47b3d701b3127cce9fbec03f699400000016108AZM2bNk5bM6 If only I could turn back the clock :'( |
||||
|
Title: Re: new to site, couple ?'s Post by Jasmyn on Dec 26th, 2005, 4:38am on 12/26/05 at 04:23:28, Jonny wrote:
Jonny they are supposed to be in a glass ::) Now bite me if you can [smiley=laugh.gif] |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Dec 26th, 2005, 4:42am on 12/26/05 at 04:38:44, Jasmyn wrote:
Id do more than bite you, Baby ....Hee Hee Hee ;;D |
||||
|
Title: Re: new to site, couple ?'s Post by Jasmyn on Dec 26th, 2005, 4:49am on 12/26/05 at 04:42:36, Jonny wrote:
You're a real sucker for punishment ;) |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Dec 26th, 2005, 4:54am on 12/26/05 at 04:49:38, Jasmyn wrote:
Each day will be a new trick in life's journey ;) |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 26th, 2005, 8:28am I think if I am not mistaken I have had CH but brief episodes lasting not more then a day or a few days in the past 20 years. Because I thought they were just headaches I didn't pay any attention to them and it just went away. I truly believe that there is a psychological component to this. Much like OCD ( Obsessive Compulsive Disorder ) I am also sure that most people will disagree with me. OCD also has it's roots in the drop of Seratonin levels and Neurepinephrine levels and the anxiety associated with it revolves around the Hypothlmus. I would be interested to know how many sufferers also have either mild to sever OCD either ritualistic or thought related. Getting to your question about dental work. About a month ago as I posted before I went in for a simple re-root canal. There was a small pocket the dentist noticed at the top of the old root canal I had done a number of years ago. I went to a reputable endontist. When she drilled through the crown to get to the root she perforated my tooth. This means instead of entering the tooth correctly she went through the side of the tooth under the gum line. MALPRACTICE! The treatment for this is either extraction with insertioin of implant or what's know as a crown legnthening. A periodontist exposes the tooth by dissecting the gingiva or gum back to expose more of the tooth above the perforation. This allows the dentist to insert a crown over the perforation farther up the tooth. I had that done. A week or two later I became a clusterhead. Now this was done on the opposite side of the cluster sites. I would think that if this was associated with the Oral Surgery it would been on the same side. The psychological aspect of this may be my concern over what's known as life changes or the empty nest syndrome. My daughter is living in NYC and working there, she graduated college last may. My son was just accepted early to college and he will be going away this coming August and our lives are about to change. My opinion is the following. Yes there is a pathology to this malady but it may be sort of like the intrusive thought form of Obsessive Compulsive Disorder. The event comes which produces the thought. The thought gets stuck by being frightened by it. You are sensitized to it. It continues to repeat until either you accept it as being normal every day thought that everybody has. Fight it and it gets worse. With all this the level of seratonin drops in the brain. How do we make the analogy. For me when I wake up in the morning I have absolutely no pain and no sensitive head or forhead pain or anthing. After a few minutes of rising out of bead and thinking about it the pain comes back. Why is this? Because I am expecing it to because I have become sensitized to it. Most people think that this is anatomical. That there is a pathology to it. You know the gray matter thing the trigeminal nerve thing and I agree it is. But how did this brain structure change and how are these nerves sensitized and why does Biofeedback and Cognitive Therapy help CH. Because I believe it's not just pathological there is a pysychological component to this. If you expect it it will come. As for the dental work, possibly but I would say it would have to be on the same side as the infliction. Burt |
||||
|
Title: Re: new to site, couple ?'s Post by BobG on Dec 26th, 2005, 8:23pm on 12/26/05 at 08:28:27, cardogman wrote:
More than once it has been mentioned that someone feels fine until they start to read this message board, then they feel a shadow or attack coming on. Power of suggestion? Heck, I don't know. |
||||
|
Title: Re: new to site, couple ?'s Post by burnt-toast on Dec 26th, 2005, 8:51pm on 12/26/05 at 08:28:27, cardogman wrote:
Your first few sentences are quite telling - Cluster Headaches are not likely to be viewed as "just headaches" My first CH attack made me think I had a brain tumor or aneurism behind my eye that was about to explode. The way the pain manifested itself in a specific quadrant of my head, came during rest or sleep and had such terrible intensity - I knew it wasn't "just headaches". Then as now I absolutely can not ignore them. Regarding OCD - no such issue in my case. Regarding psychological possbilites you're barking up the wrong tree and pain associated with the Trigeminal nerve is only a symptom not a root cause of CH. Recent studies on the enlargement of the Hypothalamus in CH patients and unusually high activity in CH suffer's Hypothalamus' during attacks clearly points to pathological causes over your OCD and psychological theories. The symptoms as you describe them seem to indicate you may not be suffering from CH. You may want to seek another diagnosis. Tom |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 26th, 2005, 10:13pm on 12/26/05 at 20:51:29, burnt-toast wrote:
Butch how would you even know you had CH if you only had it a day or so in twenty years? I agree with Tom, your not a clusterhead by a long shot. Sorry for the disappointment. Sean.................................... |
||||
|
Title: Re: new to site, couple ?'s Post by Redd715 on Dec 26th, 2005, 10:58pm Quote:
Hold up a moment her folks...this is exactly how CH manifested in me for the first 20 or so years. Every week for all those years...between 1 and 4 days of attacks with a few days off every week. This is where all the numerous mis Dx came in. Allergies, TMJ, Migraine, braces, months of chiropractors, months of physical therapy including cervial traction. Nothing helped. Trying to rip my own teeth out in the middle of the night to try to ease the pain thinking it was continues misalignment even after the braces they said would stop the headaches and never did. Pegg |
||||
|
Title: Re: new to site, couple ?'s Post by BobG on Dec 26th, 2005, 11:09pm on 12/26/05 at 22:58:37, Redd715 wrote:
Mine started sort of like that. The first year or two the attacks only came when I drank a beer (which was almost every other day). Then they started the wakeup calls with or without the beer. After about the second year they were 'normal' clusters. Every night and day. I also was misdiagnosed. My doc had no idea what they were. I saw a dentist, an ear-nose-throat doc, an eye doc, had an CAT. Nobody knew the the heck was causing the headaches until about the tenth year when I finally got to see a neurologist. Sucks to be us. |
||||
|
Title: Re: new to site, couple ?'s Post by E-Double on Dec 26th, 2005, 11:13pm I'm with you Pegg. Though I never had teeth pulled until this yr for an infected wisdom toothe. I used to get random attacks prior to full on cycles. I used to think it wad sinusitis on roids per se. Then I developed cycles, brief but full cycles. Then they came and went heywire and finally after a decade of "cycles" I was diagnosed. They haven't left since. Based on what I have read of many people's history it appears that prior to full cycles developing there were random attacks that literally came a few at a time then left for months or yrs then they came back and gained a hold. Others have random attacks when out of cycle. Hit and runs if you will. It all sucks. I do not think that acting as Pygmalion facilitates a CH though. |
||||
|
Title: Re: new to site, couple ?'s Post by Redd715 on Dec 26th, 2005, 11:19pm on 12/26/05 at 23:09:56, BobG wrote:
Beast morphed to additional daytime attacks instead of just night time and wake me up almost 2 years ago when I quit smoking cold turkey. Went to every damned day too without the couple days break. Messed with the brain chemistry and *POW* beast took off willy nilly. When you don't have insurance you just do what you have to do to maintain, specially when I'd get those few days breaks. But the morph made me convinced something more serious than the migrains, teeth issues or allergies were at play, mostly that I was dying of some brain tumor or something, and work requires anything more than 2 days sick you need a doctors slip, and the 2 days turned into 3 months..... :-/ |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 26th, 2005, 11:21pm Tom, I would just about give my right pinky not to have cluster headaches but unfortunately I have spent a lot of money getting the right diagnosis. I have had those headbangers but you know people react to pain differently and any reputable Neurologist or headache specialist will tell you that it is very possible to have CH with mild to moderate pain. I truly believe their is a psychological component to it. For example: Today My wife and kids and I went to a Knick game. I have had a headaches on one side of my head all day. The scalp is burning the eye is tearing the forehead over my eye feels like some hit me. As Vince Carter is going off on the Knicks and the game is getting intense I sat back in my chair and realized that the pain was there but I hadn't felt it for awhile. In the Am I oxygenated myself and got relief. A few hours later like clockwork bang it hit and it usuallty doesn't go away for the rest of the day. Burt |
||||
|
Title: Re: new to site, couple ?'s Post by zwibbs/Scott on Dec 27th, 2005, 12:45am Today My wife and kids and I went to a Knick game. I have had a headaches on one side of my head all day. The scalp is burning the eye is tearing the forehead over my eye feels like some hit me. ------------------------------------------------------------------------------------I forgot to list the "Knicks' AS A TRIGGER---BUT I ALWAYS THOUGHT THE TRIGGER WAS THE DOLANS !!! |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 27th, 2005, 1:05am on 12/26/05 at 23:21:23, cardogman wrote:
on 12/26/05 at 23:21:23, cardogman wrote:
Burt, you don't have clusters. You have a headache, its just not a cluster headache. :-/ Why is it that people want this affliction anyway? I'd give both my legs and my arms to not have it.[smiley=huh.gif] Sean............................... Burt its very possible that you suffer from this, please check out the link :-/ http://www.ninds.nih.gov/disorders/hemicrania_continua/hemicrania_continua.htm#What_is |
||||
|
Title: Re: new to site, couple ?'s Post by burnt-toast on Dec 27th, 2005, 7:29am on 12/26/05 at 23:21:23, cardogman wrote:
I'm not a doctor Burt and can't diagnose your condition. But I find nothing in my CH research that describes all day headaches as a CH symptom. A few to several hous, hypersensativity in the affected areas yes - all day CH headache no. Let's all thank the Good Lord for that. You may be exactly right, in your case there may psychological causes for your headaches and you may have some rare/mild form, or CH that has yet to fully manifest itself. In my case the only truely consistent triggers are rest, sleep, alchohol, extended physical exertion and seasonal factors - Fall, Winter, Spring are bad, Mid. to Late Summer is somewhat better. I have logged other factors (stressful situations, food triggers, temperature, etc.) but have not found consistent association between them and my CH attacks. A variety of "other factors" may seem to have triggered attacks but when logged/tracked at best these "other factors" are very inconsistent if they are indeed true triggers. Everyone seems different - my knowledge of CH is limited to symptoms associated with my condition, my research, and more than a decade of developing one-on-relationships with Neurologists, I can only relay what I know. I am just pointing out that the symptoms as you describe them seem to indicate you may not be suffering from CH. You may want to seek another diagnosis. Tom |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 27th, 2005, 6:19pm Sean and Tom, Let's play Headache Specialist and Neurologist. But before we do that find out if it is possible to have mikd cluster headache all day. I think you will find out that it is. So here we go 1. Drooping eye 2. Red Sclera 3. Eye weeping 4. Pain on one side of the head radiating in to the eye and forehead on that side and sometimes in to the ear. 5. Discomfort at the base of the neck on the affrected side. 6. Pain around the temporal area. 7. Sometimes it stays with me 1-2 hours sometimes most of the day/ 8. Sometimes responds yto Oxygen. Now what's ypour diagnosis Sean and Tom. I would love not to have this malady. However as they say if it walks like a duck and quacks like a duck it a duck. Two headache specialists and two Neurologists say yes. As Bill O'reilly would say What Say You. Burt |
||||
|
Title: Re: new to site, couple ?'s Post by Melissa on Dec 27th, 2005, 6:35pm Here's a film of a fellow CH'er having a Cluster Headache attack. If there is nothing in what you see that you can be familiar with, then it is very possible that you do not have clusters... WARNING: File is very graphic... http://www.clusterbusters.com/chuckattack2.wmv |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 27th, 2005, 6:59pm on 12/27/05 at 18:19:02, cardogman wrote:
What is Hemicrania Continua? Hemicrania continua is a rare form of chronic headache marked by (4., 6. & 7.)continuous pain on one side of the face that varies in severity. Superimposed on the continuous but fluctuating pain are occasional attacks of more severe pain. Symptoms fall into two main categories: autonomic, including runny nose, (3.)tearing, (2.)eye redness, eye discomfort, sweating, and (1.) swollen and drooping eyelids; and migraine-like, including nausea, vomiting, and sensitivity to light and sound. The disorder has two forms: continuous, with daily headaches, and remitting, where headaches may occur for as long as 6 months and are followed by a pain-free period of weeks to months until they recur. Most patients experience attacks of increased pain three to five times per 24-hour cycle. This disorder is more common in women than in men. Physical exertion and alcohol use may increase the severity of headache pain in some patients. The cause of this disorder is unknown. Is there any treatment? Indomethacin, a non-steroidal anti-inflammatory drug (NSAID), usually provides rapid relief from symptoms. Other NSAIDs, including ibuprofen, celecoxib, and naproxen, can provide some relief from symptoms. Amitriptyline and other tricyclic antidepressants are effective in some patients. What is the prognosis? Patients may obtain complete to near-complete relief of symptoms with proper medical attention and daily medication. Some patients may not be able to tolerate long-term use of indomethacin and may have to rely on less effective NSAIDs. Burt, I'm just trying to help you the best I can. I thought you would of opened the link but I guess you didn't so I high lighted areas that pertain to your headache as you described them. It is not uncommon to be misdiagnosed with clusters if you have Hemicrania Continua, I went 10 years chronic before I was diagnosed by a competant nuerologist. Please print a copy of the actual link I gave you and bring it with you to your Nuerologist and give it a go with the Indo. It may actually stop your headaches dead in there tracks ;) Remember all birds have feathers, however not all are the same species.....................................tweet tweet I honestly do not believe you suffer from CH, and I hope I'm right and you'll find relief soon. Cheers [smiley=me&mb.gif] Sean.................................... |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 27th, 2005, 10:06pm Ladies and Gentleman, Been there done that. I have had episodes like that but not this go round. Now if you want to quote text book descriptions of Cluster Headaches that's fine but there is a definite version of a cluster headache that is not a 10 there ones that are 2, 3, 4s and it depends on how you tolerate pain folks. It's amazing you go to a site after you have been diagnosed by two different headache specialists and people are debating me and the CH. This is absolutely unbelievable. I guess you have a monoploly on this malady. Congratulations. hahahahahahahahahahaah |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 27th, 2005, 10:33pm on 12/27/05 at 22:06:29, cardogman wrote:
Go fuck yourself Burt, your a phoney and I know it. You wanna be's are all alike, you love to hear yourselves talk. I offered you valid information and now you withdraw it as if its a farse. My guess is you haven't looked into shit OK. Next time before you enter a site READ the note on the front door. This one says no meegrainers need apply. Sean................................................. |
||||
|
Title: Re: new to site, couple ?'s Post by E-Double on Dec 27th, 2005, 10:40pm Burt, Keep a thorough journal and when you go to NECH describe completely what it is you are going through. It is very possible that other things are going on as well and honestly the knowledge here is like no where else!!! Many here know more than many of the the so called headache specialists that have us in and out of their offices. There are some docs who do know their CHit yet many do not. Good luck and give me a holla if ya need. E edited for brain farts |
||||
|
Title: Re: new to site, couple ?'s Post by MJ on Dec 28th, 2005, 12:06am Hockeyhead. I would think that teeth issues could certainly aggravate the CH as the nerves run in the same areas. I know I shouldnt get involved in the rest of this thread but I will. To Burt aka cardogman maybe you should run a better description. Yes, of course it is possible to have lower levels of pain. But generally with lower pain levels comes less duration of pain. No its not possible to be a pshycological issue. Yes it is not only possible but highly probable for 2 different neuros to misdiagnose you. (I went through many before a proper diagnosis). Yes its possible to have all day headaches but they will be different than clusters. I often have them and consider them regular headaches or migraines. they are different than CH and they can have many of the similar symptoms. Extreme CH can run all day as well but it is a back to back type of issue. The CH will run its normal duration ramping up then allmost go away but return immediately. Not entirely uncommon with me. This is the reason they are called clusters, they come and they go in clusters. Seldom does the actual attack last longer than 2 hours, 3 and 4 hours are possible but rare. I Know. The likliehood of living beyond a constant 4 hours without relief begins to diminish accordingly. I personally never experience a burning sensation in my scalp, but thats me. I would highly reccomend you do additional research. If it is clusters you have ok, but it wouldnt be right for you to recieve medications for something you may not have, when other meds may kick it right out of your life. I am not debating just stating what I think I know and the others were as well. MJ |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 28th, 2005, 5:17am Big Man Sean with little Man language. Listen Bro I spend most of my life in the Operating Room. I know more about medicine and probably this cluster thing then most. You are absolutely wrong about the pain of CH. CH can and will in some people fluctuate from being severe to almost nothing but a pseudo neuralgia. It can occur chronically throughout the day or episodically once per year or less and everything in between. Are you reading my posts with the symptoms I have or have you decided who and who doesn't have this problem. If you think in a million years that I woke up three weeks ago and said to myself, gee I'd like to have Cluster Headache Syndrome and wished it upon myself your nuts. Do you honestly think that I would want to be typing something on a computer to the likes of a foul mouthed miscriant like you. I DON'T THINK SO SON. The information you posted is right out of medical text and is incomplete for duration and intensity. What's more important is the fact that you seem to have this need to bash people who don't agree with you. That's fine but you best not start in with the language with me cousin or your headaches might get worse. You need to calm down. Take some lithium that will do it. You sure you aren't Bipolar. hahahahahah As for the dental thing. Usually occurs on the same side of the head. As for the Psychological thing Sean you proved my point you are a Psycho and that's why you specifically have CH. Be nice son. |
||||
|
Title: Re: new to site, couple ?'s Post by BarbaraD on Dec 28th, 2005, 6:30am Back to Hock... Yes, the tooth thingy is real. I've had surgery and don't have any feeling in the left side of my head (ch side) but still have tooth pain (figure that one out). No dental problems they can find, but still have the pain. Topamax has worked for me (up to a point). I've just raised the dosage cause I'm having a really bad bout right now, but have been on it for several years (since 99) without too many side effects. I take it at night (the whole dosage). I don't get the dopey feeling that some experience, but forget some things (I'm old so I just blame it on that and write a lot of post it notes). It's been the ONLY thing that's worked for me. I do the O2 and coffee to abort when at all possible. If it I hit over a 5-6 on the Kip scale I do cafergot and phenergan. Can't do the trex. You might try the O2 - it's been so good for so many of us. But read up on it and do it right. Get the proper mask and the right regulator. You can get the small tanks or the large ones. As for the other stuff here --- some of us were not diagnosed right to begin with and spent several years going undiagnosed or improperly diagnosed. Beer triggered me for a while until I just started getting hit with a "brain tumor" all of a sudden and got to a hospital that did diagnose me properly. Then I was the proud owner of Clusterheadaches. Oh what a joyous day - I wasn't dying with a brain tumor - I could just live with CH! Lucky me..... Hugs BD |
||||
|
Title: Re: new to site, couple ?'s Post by zwibbs/Scott on Dec 28th, 2005, 6:53am Barbara is 1,000% correct. I also had dental surgery and at first it appeared to calm the pain--but a week later I was off to the races once again. I also used to be able to have an alcoholic drink---beer--or--rum/coke---NOT THIS TIME. I also started on new meds this time and it took 3 weeks for it to start taking effect. My biggest fear came when I was in my twenties and had no clue as to what was happening to me . Having boxed for 7 years I feared the worst!!! But it took the great doctors in the NY Metro area over 10 years to diagnose CLUSTER HEADACHES.....I have the most respect for ANYONE who truly suffers from these gosh dang things. |
||||
|
Title: Re: new to site, couple ?'s Post by Redd715 on Dec 28th, 2005, 8:07am Cardoggy, I will not argue over the pletora of ways that this disease can manifest in so far as periosidy (sp) but the IHS has formed the criterea as to the nature and duration of individual attacks. While I'll go so far as to say that a rouge attack "may" on extreemly rare occasion last more than 4 hours, I challenge you to post any data from a reputable research facility that points to a single cluster attack ever lasting the course of an entire day. You are barking up the wrong tree to come here and attemt to redefine the nature of this condition. The cumulative knowlege of the sufferers here has pointed many people in the right direction to find relief from conditions that are NOT CH. I've personally been misdiagnosed for 20 years and seen neuros and HA specialists in the past. Don't put all your eggs into one basket dude, because it is very rare to find a neuro who knows his arse from a hole in the ground when it comes to this disease. |
||||
|
Title: Re: new to site, couple ?'s Post by BarbaraD on Dec 28th, 2005, 9:12am I don't normally get into this stuff, but...... CH is fickle -- we all SUFFER in different ways -- we all handle pain in DIFFERENT ways and we all VENT in different ways.... Now, as for me, I suffer from several different types of headaches CH being the top of the scale, but I also have meegraines as well as post tramatic concussion headaches -- sometimes it's hard to figure out which one is hitting until they reeve up past a 5 or 6. As to the pain -- some of us endure pain better than others. I've lived with CH for so long that my pain tolerance is rather high and things that would put a stong man down are Mickey Mouse to me, but that doesn't mean that I don't hurt - I just tolerate it better than some do. We all have our OWN pain thresholes and it's personal to each of us - what works for one may not work for the next -- that doesn't mean it's right or wrong. It's just the way it is. As to the duration of the pain -- Redd is right -- CLUSTERS is the word -- back to back headaches are COMMON - that's why they call them clusters folks. Yes, I've had "all day" headaches too - my neuro explained (slowly) to me that it was NOT the SAME headache but a CLUSTER of headaches - when one would end another would start. And yes, I wanted to die at the time. THe last few years, I've gotten a break in between - thank goodness, but I DO remember the others. Now, it's about time to cool off some tempers and remember we're all different and we all suffer differently. That's the nature of this damn beast. What works for one of us may just not work for the next one. Now Hock asked a simple question about a toothache and Sean and Card, you guys have started World War III -- cool off and answer the question asked. I know you're both hurting, but so are all of us. Happy New Year..... Hugs BD |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 28th, 2005, 12:22pm on 12/28/05 at 05:17:09, cardogman wrote:
Thats a too funny DR. BURT ;;D Another figment of your imagination we're going to have to deal with I guess.[smiley=laugh.gif] Well first I need some information, as a medical proffessional like yourself Dr. Burt please post ANYTHING medically documented that says Cluster headaches last all day long. Give me documentaion of this and I will leave your sorry asss alone princess ;) Well doc??? As an extremely right winged idiot once said "What say you"??? Sean................................. |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 28th, 2005, 12:25pm on 12/28/05 at 08:07:08, Redd715 wrote:
Spoken by a true clusterhead. Thanks Pegg ;) Sean............................. |
||||
|
Title: Re: new to site, couple ?'s Post by Redd715 on Dec 28th, 2005, 12:29pm on 12/28/05 at 12:22:24, Sean_C wrote:
I challenged him on this already Sean...I see he hasn't chosen to respond. Pegg |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 28th, 2005, 12:57pm on 12/28/05 at 12:29:36, Redd715 wrote:
He won't find anything, I still stand by my original post of Hemicrania Continua. He has the option of getting some relief Pegg, we gave him helpful resources to HIS condition, its up to the doctor to decide himself if he wants to seek relief ;) Sean.............................. |
||||
|
Title: Re: new to site, couple ?'s Post by zwibbs/Scott on Dec 28th, 2005, 1:37pm my money's on sean |
||||
|
Title: Re: new to site, couple ?'s Post by burnt-toast on Dec 28th, 2005, 2:13pm You can lead a horse to water but you can't make it drink. This CH club and its members are great, but the dues is way too steep. Give me a viable alternative and I'll be researching it in minutes - not fighting it. Tom |
||||
|
Title: Re: new to site, couple ?'s Post by E-Double on Dec 28th, 2005, 3:18pm Just being devil's advocate so hear me out. I also have multiple HA types. It's always a fun party in my head. There were times that I would literally be having CH along with icepiks at the same time. There were times when I wasn't in full blown CH but shadowing literally all day long. There were times when "shadows" as I call them felt and do feel like a damn chemical burn running the course of the trigeminal nerve honestly the entire day. That pain sucks but is not a full hit yet it hurts. It fluctuates from bad to really bad yet not a full banger. I have that today. O2 knocks down the pressure and some of the pain but the burn remains. It may be a variant of some kind but it is something that I know that several here have. It is possible to have more than one HA type going on, sometimes at once. It think this dude has multiple types which honestly is no fun. I don't pick sides. I really don't care. I hope everyone finds relief. What I also do hope is that if I ever ask a question regarding another fucking variant that I may experience that someone won't tell me to find another support group (that is not meant for anyone specific, especially the Red-sucks fan ;)) With all my heart I wish everyone well. Go get your teef pulled ;;D |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 28th, 2005, 4:02pm This is getting to be great fun and for those who didn't think I would reply, sorry but some people actually go to work. Now let's see where was I. Woke up this morning with no headache. Just that same old boring burning one sided scalp with the feeling like someone bopped me on my forehead over my left eye and temple. Went to the the office and at about 1:30 here it comes. Eye starts to get heavy and droopy, headache starts probably a 3 and it's now 3:56 and it's still there. Not bad doesn't hurt really that much at all. I have had ones like this all day. I call them headaches you want to call them shadows what the hell do I care, it aint normal. No need to empty the oxygen for this one. Cluster can be construed as an episode of any duration as long as it ends at one point and begins again at another point. What bothers me the most and I am new to this site is the outright ridiculous ownership some of you like Sean thinks he has on Cluster Headaches. Lets re-name the disorder the Seanache and he can be the President of his own Malady. lololololololololololololo Burt |
||||
|
Title: Re: new to site, couple ?'s Post by seasonalboomer on Dec 28th, 2005, 4:17pm okay, now Burt, I think you're taking Sean's posts badly. I took his post to mean that "wouldn't it be great to not have these damn these things, and have something else, that might be treatable?" At no point have I read from his posts that he treats CH and this forum as some form of closed society. And many others have made great contributions that some of them suffer from 2 or, hell even 5 different types of headaches. So, maybe you're in with that crowd of "multi-linguals". You've lost sight of the fact that your description of a cluster lasting 4 or more hours is not consistent with any of the documentation or experience on this site. Does that mean you don't have cluster, hell I don't know. I wish you didn't. I wish no one did. If you've already gone the route of indo and Sean's posted suggestion, just say you've already barked up that tree and the cat wouldn't come down. But, to rail on about how we aren't welcoming or helpful, or rude, you might look at the three fingers in your hand pointing back at yourself when you start pointing like that. scott |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 28th, 2005, 4:20pm You back pedal your way through everything don't you ;;D You don't have any back up for your claims, you bounce back and forth with your symptoms and you dismiss everyone elses opinions but your own. Do yourself a favor Dr. Burt, get treatment for your disorder and get a life. We don't need people who don't have clusters giving advice to tose who desparitely are in need. Your almost troll like in nature I swear. Sean............................. |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 28th, 2005, 4:59pm Oh please help me with my seanaches. I have such a terrible problem lololololololololololololololololololololo Geez you are absolutely pathetic. I'm so glad I found a site where people are willing to tell me to fuck off. Thst's just great and all you folks think that's just fine. See ya |
||||
|
Title: Re: new to site, couple ?'s Post by Grandma_Sweet_Boy on Dec 28th, 2005, 6:47pm Given you apparently spend most of your life in the operating room - perhaps on your next shift, you could ask the surgeon in charge to open you up and do a small attitude adjustment. Seems to me that Sean was trying to have you look beyond the end of your nose to some other possibility that could be treated in another fashion. Perhaps you'd do well to read more, and write less. Carol |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 28th, 2005, 9:26pm Hey Granny since your a lady I won't repeat what this guy Sean said to me. Read his posts and have a nice day. |
||||
|
Title: Re: new to site, couple ?'s Post by MJ on Dec 28th, 2005, 9:29pm Dog I'm glad you dont ride in my car man. You are a headache. |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 28th, 2005, 9:35pm on 12/28/05 at 21:29:47, MJ wrote:
ROTFLMMFAO!!!! He loves to bark doesn't he [smiley=laugh.gif] I think its time jonny put a muzzle on this pooch ;;D Cheers [smiley=me&mb.gif] Sean..................................... |
||||
|
Title: Re: new to site, couple ?'s Post by E-Double on Dec 28th, 2005, 11:21pm Burt my friend, We spoke and it was a pleasure. Over here though you're talking out your tush. What you describe is most likely a variant. TRUST me write them down. Make salient notes that doctor can decipher. 4 hrs. plus is not a CH. and if it is YOU are screaming for death. Those are the ones that send you to the hospital. Lower level shadows can linger and can be an annoyance even painful yet........ It is most likely a variant. Sean is a hell of a dude who knows his CHit. and don't be messin' with Carol. Let's cut the BS and help ya find relief. Peace!!!! E |
||||
|
Title: Re: new to site, couple ?'s Post by zwibbs/Scott on Dec 29th, 2005, 1:50am EVERYBODY HAS TO TAKE A DEEP BREATH AND CALM DOWN. The way I look at it---It is an unpublished rule that you do not be critical of a fellow cluster sufferer !! Because 1) you know something of what they are experiencing--2) you yourself have been there and done that ---3) You learn to respect whatever a fellow Ch-er says regarding their own individual remedies and solutions----------A person I just met ( from New Hampshire) says that he has to go outside in the dead of winter---in his underwear !!!! Now your normal John Doe would think---what the heck is wrong with this guy, BUT as a fellow CH sufferer------I said--that I understood. I respect anyone who might think they are a sufferer, BUT I reserve the most respect for the individual who makes an appointment with a Neurologist to confirm their fears, and TRY TO RID THEMSELVES OF THE PAIN ASSOCIATED WITH THE FEARS. |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Dec 30th, 2005, 6:32pm on 12/28/05 at 16:59:11, cardogman wrote:
Lookie here!, a troll that cant believe that he cannot get us to side against each other ;;D We are family shit-head...YOU LOSE 8) |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 30th, 2005, 7:38pm To all of Johnies Family, You may want to consider disowning him. I think the headaches have gotten to this foul mouth miscriant. Big man on the computer Huh Johny real big man. No wonder why you have headaches. Are you sure the last guy you said that to didn't hit you over your head. What an not a very nice person. |
||||
|
Title: Re: new to site, couple ?'s Post by Redd715 on Dec 30th, 2005, 7:43pm With that last post, I'll fore-warn you it's time to put your head between your knees and kiss your sorry butt goodbye. You have been warned... |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Dec 30th, 2005, 7:45pm on 12/30/05 at 19:38:55, cardogman wrote:
Fat chance, Nun-Hung-Lo ;;D Im King of this joint!! :-* YOU LOSE!! 8) ....hahahahahahah [smiley=laugh.gif] |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 30th, 2005, 7:52pm Hey Redd is that how you got the headaches. You must know something about putting your head between your kness and kissing your ass goodbye. You know if you keep it down ther too long the blood will rush to your Hypothalmus and give you a headache. hahahahahahahahahahahahahahahahahahahahahaha He's a Hall of Famer ooooooh what an acomplishment. A Hall of Famer with the other guy. The Dirty Mouth Hall of Fame. You guys have a lot of free time on your hands. Instead of being a bunch of turds why don't you try to help me out since you got so much experience with this CH thing. Oh sorry I forgot you are in the family and I'm not and no new family members are alowed in. What a joke. I hope this isn't your whole life bros. Burt |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 30th, 2005, 7:58pm Hey Big Man king of the place Johny That's one hung lo You weren't even listening in 3rd grade when you first heard it. Do all your family member know that you're King of the Place. Does that mean that all your family members are below you. Sort of your servents Johny old boy. Johny King of the Place here he comes Big Man Johny with the big Mouth. What an absolute joke. |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Dec 30th, 2005, 7:59pm on 12/30/05 at 19:52:41, cardogman wrote:
ISP#>>>>>>>>>>>>>>>>>>*POOF*....Soon ;;D |
||||
|
Title: Re: new to site, couple ?'s Post by nani on Dec 30th, 2005, 7:59pm STFU, Burt You have no idea how hard it is to get me to do that. >:( |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 30th, 2005, 8:06pm on 12/30/05 at 19:52:41, cardogman wrote:
This guy is definately a troll [smiley=laugh.gif] Now we didn't offer him help. ;) Somebody give this guy a scooby snack and send him on his way ;;D Sean................................... |
||||
|
Title: Re: new to site, couple ?'s Post by Redd715 on Dec 30th, 2005, 8:09pm Now look what you gone and done...you pissed Nani off and that is not an easy task... TskTskTsk.... Why do those with such narrow minds have such big mouths? |
||||
|
Title: Re: new to site, couple ?'s Post by Grandma_Sweet_Boy on Dec 30th, 2005, 8:10pm Ohhhh Nani - I can't believe you said that! You go Girl! ;;D Burt - cool your jets and back away. You've had several fine people trying to help you out here and you've insisted on behaving like a jackass. There are many of us who frankly don't think you do have CH and have suggested other ideas for you look into. Anyone with half a brain would be thrilled to think there might be something going on that would be more easily treated. You, however, seem to have decided that your best behaviour should be saved for somewhere other than here. I can promise you this - a pi$$ing contest between you and Jonny will not result in you winning anything other than more scorn. Take your best shot. Carol |
||||
|
Title: Re: new to site, couple ?'s Post by Redd715 on Dec 30th, 2005, 8:19pm I'm sharpening up my poking stick.... My sister troll hunter is down and out sick tonight so I'll be doing battle for two. Bring it on Burt.... |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 30th, 2005, 8:31pm HOLD IT GUYS, we might owe Dr. Burt an extended appology. I found this site and what he claims about his attacks MAAAAAY be true, maybe he wasn't full of shit after all :-/ WTF is with this disease!!!!!!!!!!!! htp://med/clusters/prolongattacks/patients/rare (http://www.albinoblacksheep.com/flash/youare.swf) Sean...................................... |
||||
|
Title: Re: new to site, couple ?'s Post by Guiseppi on Dec 30th, 2005, 8:34pm Thank you for that last post Jonny. I've been watching from the side lines on this one. I know it got a little heated on this thread, but we're still here to help. Hell Jonny, when I first came to the board you used to scare the heck outta me! And like I always tell my brat kids, people only have as much power to make you mad....as you give them. Love Y'all. peace and a pain free new year. Guiseppi |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Dec 30th, 2005, 8:35pm Sorry Joe....I removed it |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 30th, 2005, 8:39pm on 12/30/05 at 20:35:55, Jonny wrote:
Thats a first, and I missed it too [smiley=huh.gif] |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Dec 30th, 2005, 8:52pm STOP!!!! This is bullshit, nobody is getting anything out of this thread anymore, damn it! Sorry, Hockeyhead. Let it die!! |
||||
|
Title: Re: new to site, couple ?'s Post by Jasmyn on Dec 30th, 2005, 8:57pm Wise words Carol: Quote:
|
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Dec 30th, 2005, 9:40pm Ok, I try to be nice. on 12/30/05 at 20:16:03, cardogman wrote:
And this is what I get in email From: Cardogman1@aol.com Date: 12/30/05 21:20:47 To: jonnymule@comcast.net Subject: Dude Listen DUDE No one calls me a shit head ok. I didn't go to this web site to be abused by an not a very nice person like you. Now if you want to copy and paste it to the site so all your buddies can see what a big man you are that's fine. The problem is you don't know what a big man I am now do you. I don't need piece of shit like you abusing me and being a big shot. So cut the bull shit ok. I didn't speak to you that way and I don't expect you to speak to me that way. Got it I hope you do. You don't know who the hell I am but if you want to I invite you to meet up with me someday and we can discuss it in person big shot. Be nice Like I have been and be careful who you are callin names because I'm losing my patience with you. I wasn't rude to you so have some respect. ............................................................................ Can anyone see where I abused him before he became a shit-head? |
||||
|
Title: Re: new to site, couple ?'s Post by cardogman on Dec 30th, 2005, 9:45pm Well I tried t get help from this site but it's obvious that some of you are just not to helpful. So I'm out of here. Good luck to all of you. I'll find a place where their are actually people who care about helping each other instaed of bashing each other. I hope I don't evolve in to this. |
||||
|
Title: Re: new to site, couple ?'s Post by Jasmyn on Dec 30th, 2005, 9:49pm on 12/30/05 at 21:45:31, cardogman wrote:
It is better then you leave, I don't like you. |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 30th, 2005, 9:49pm He has issues other than Ch I think. Its obviously clear there. In no way did anybody do anything other than try to help that kid, but he insists on having Ch so, what can I say. He's manipulating everything to his personal reasonings. He'd be better off getting properly diagnosed and getting his proper medication so he can get relief from whatever it is he suffers from. Thats about all I got to say. Its been real Dogman. Sean.................................. |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Dec 30th, 2005, 9:52pm Fucking nut job!!!! From: Cardogman1@aol.com Date: 12/30/05 21:32:29 To: jonnymule@comcast.net Subject: Fwd: One more thing In a message dated 12/30/2005 9:29:14 P.M. Eastern Standard Time, Cardogman1 writes: Anybody can use four letter words. I can go with the best of them. I prefer not doing that because I happen to be a gentleman especially in a public forum. But you know I will make an exception if you keep fucking with me. So lighten up jack or I will wash your filthy mouth out with the soap of your choice along with your buddies Sean and Tom and you can get a hold of them and tell them how I feel. The only reason I'm wasting my time with you is because you emailed me other then that I don't give a rats ass about ya. I hope you completely understand now and we can move on and be cordial to each other. You can go ahead and post this too. |
||||
|
Title: Re: new to site, couple ?'s Post by Grandma_Sweet_Boy on Dec 30th, 2005, 9:56pm Oh Crap - was it something I said? ;;D I think you're right Sean - he does have other issues - most of which could be addressed by a good psychotherapist (happen to know a few in my line of work - could get a recommendation for him!). I feel badly though for the originator of the thread, Hockeyhead. I hope that somewhere along the line his questions got answered and that he sticks around. Guess you can all put your sticks away for another time. Carol |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Dec 30th, 2005, 10:00pm on 12/30/05 at 21:56:37, Grandma_Sweet_Boy wrote:
Yeah, when I asked for his address he deleted his own self.......LOL ;;D |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 30th, 2005, 10:23pm on 12/30/05 at 21:52:50, Jonny wrote:
"Over the years I got to be quite a connossieur of soap. Though my personal preference was for Lux, I found that Palmolive had a nice, piquant after-dinner flavor - heavy, but with a touch of mellow smoothness. ;)" OK, who said that quote ;;D Quite fitting I thought ;) Sean.............................. ;;D |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 30th, 2005, 10:26pm Next clue:................He didn't say fudge he said the F-dash dash dash word ;;D |
||||
|
Title: Re: new to site, couple ?'s Post by Grandma_Sweet_Boy on Dec 30th, 2005, 10:41pm I know! I know! It's Ralphie on the Christmas Story!!! Okay, Sean, what do I win for that one? ;;D |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 30th, 2005, 10:51pm I love you maa [smiley=laugh.gif] Sean....................... ;;D |
||||
|
Title: Re: new to site, couple ?'s Post by Redd715 on Dec 30th, 2005, 11:25pm Sean and Ma...you two are cracking me up here... my belly hurts..thanks you guys... |
||||
|
Title: Re: new to site, couple ?'s Post by FramCire on Dec 30th, 2005, 11:46pm Burt, If you are still around I hope you will come back and give this place a second chance. I think that we can probably all wipe the slate clean and just forget this thread even happened. If you have CH this place seems to be too valuable to ignore and walk away from. As for egos and crap, folks I couldn't care less who did what. CH sucks and we all could use to blow off some steam. If Burt comes back, maybe we can all chaulk it up to little bit of steam blowing and let it go. If he is a troll, well, good ridance. I can't ever understand it, but whatever. I am just glad we have mods who do a good job. Someday someone can explain to me what joy someone would get from pretending or wanting to have CH or trolling this MB. To everyone, here's to a PF tomorrow! |
||||
|
Title: Re: new to site, couple ?'s Post by E-Double on Dec 31st, 2005, 12:11am Every story has 3 sides...... A damn shame what happened!!!! I don't care who is who here but to run someone off like that is a shame. The guy was alright and I made a new friend. Eric modified b/c ya made me look like a dick |
||||
|
Title: Re: new to site, couple ?'s Post by zwibbs/Scott on Dec 31st, 2005, 1:09am I agree with you Eric--enough already ! |
||||
|
Title: Re: new to site, couple ?'s Post by Sean_C on Dec 31st, 2005, 11:18am on 12/31/05 at 00:11:45, E-Double wrote:
I would never make you look like a dick, you posted before you opened the link :-/ Anyway thats in the past. Sean........................ |
||||
|
Title: Re: new to site, couple ?'s Post by burnt-toast on Dec 31st, 2005, 12:04pm I've purposely left this thread alone when it became obvious that cardogman wasn't interested in the help being offered. Running someone off (who isn't a troll) is never a thought in my mind. I even provided cardogman with a couple of useful links on another thread after he displayed his obvious lack of interest in the help being offered and after he began repeatedly bashing me out of the clear blue in this and other threads. Nowhere in any posts did I bash him, threaten him or swear at him. Yet he insists that I did and that I was somehow rude and not offerering help. WTF - show me. Show me anywhere that I even insisted he didn't have CH. I consistently stated "The symptoms as you describe them seem to indicate you may not be suffering from CH. You may want to seek another diagnosis". Sean even provided him with a viable possibility that he could research. I've given "may not be CH" advice on numerous occasions and will continue to do so. Someone either wants/accepts help being offered or they don't. cardogman clearly didn't want to hear anything other than confirmation that he had CH. His problem, his decision to go out of control, his decision to view advise as some form of personal attack, but most important - his decision to ignore advice with potential to steer him towards relief. Tom |
||||
|
Title: Re: new to site, couple ?'s Post by hockeyhead on Dec 31st, 2005, 12:06pm Wow My first post and I started a war!! It's good to see you guys back each other up. I don't care what that guy says, cause you all have been a huge help. I've learned more about my condition on this site in the past week than from any combination of doctors in the past ten years. Thanks. |
||||
|
Title: Re: new to site, couple ?'s Post by BobG on Dec 31st, 2005, 12:27pm on 12/31/05 at 12:06:08, hockeyhead wrote:
ROTFLMAO [smiley=laugh.gif] And a good war it was. Waytago Dude! Not many have that talent. P.S. Did you ever get your question answered? |
||||
|
Title: Re: new to site, couple ?'s Post by hockeyhead on Dec 31st, 2005, 12:59pm Yeah, I got plenty of feedback on the ?'s. |
||||
|
Title: Re: new to site, couple ?'s Post by llreed on Dec 31st, 2005, 1:30pm Are you going to be nice? :) I have read a few threads that have had similiar symtoms to yours and could relate to some of your issues at hand.... Ask them more questions (suggestion) You are dealing with Chronic, Episodic and Seasonal suffers in here, we know what we have learned by educateing ourselves. What works for one will not work for another. We all hurt, we are all tired, we all want a cure...................... llreed |
||||
|
Title: Re: new to site, couple ?'s Post by Linda_Howell on Dec 31st, 2005, 1:34pm Quote:
Jonny doesn't spell his name with an "H' Guess he can't read either. Linda |
||||
|
Title: Re: new to site, couple ?'s Post by MJ on Dec 31st, 2005, 5:42pm on 12/30/05 at 19:38:55, cardogman wrote:
OK FOR SALE One slightly used Jonny, mostly well behaved, has tendency towards occasional outbursts, But generally may make a quality companion, has high aspiratiions to owning his own kingdom, Slightly marred but doesnt appear rusty, May require additional training, with proper care can be an asset to all. We are hoping to recieve at least $7.50 as a down payment with low monthly payments to follow. All proceeds from the sale must be donated to CH.Com. There will be a one time discount of 5% untill the end of this year 2005. If no bids are recieved before 2006 the price will be adjusted as we see necessary. Hurry you dont want to lose out on this one. He may make a loyal and trusty companion to someone but as yet I couldnt imagine who that would be. New ownership would require extreme care and patience as he is prone to bite on occasion. We the posters on CH.com feel that the price is fair and anyone who is willing to take on the ownership of Jonny would be provided with an interest free loan if needed. He will need to be fed at least once a day and provided with fresh water or beer at all times. It is our hope that he is provided with love as well as clean clothing. Would like to keep him but on the above reccomendation have decided to list him for sale to see if a market may exist. Please call if interested 1-123-456-7890 Leave a message and dont be suprised if we dont call you back. |
||||
|
Title: Re: new to site, couple ?'s Post by BobG on Dec 31st, 2005, 5:52pm Quote:
disowning? Oh, shit. I misread that as drowning him. Damn! I was about to get 8) modified the bibs.....LMAO [smiley=laugh.gif] |
||||
|
Title: Re: new to site, couple ?'s Post by MJ on Dec 31st, 2005, 6:07pm Depending on the price we could sell the boots separately. |
||||
|
Title: Re: new to site, couple ?'s Post by Melissa on Dec 31st, 2005, 7:02pm on 12/31/05 at 17:52:07, BobG wrote:
Not to split hairs or anything, but at what store can you buy bibs for boots? And, do they have any with sayings on them? :)mello |
||||
|
Title: Re: new to site, couple ?'s Post by Jasmyn on Dec 31st, 2005, 8:55pm Jonny doesn't need bibs on his Socks have various uses like: Stuff a pouty politically puckering pleasure seeking plumb paterfamilias orifice. A Ninja headband for the CH impaired fighting force. Socks look like condoms if you condone his active sensible self serving fornication with Don's plastic girl or with himself (tennis elbow in his future but then again that is one of all CHers symptomatic disorders). Can always be used as cover to prevent rust. You can stash your money in it for down payments on the particular Jonny with no "H". It can be used as a leash on stray Mules. You can paint it as a peace flag (buy white socks instead) It makes a great bag for curing cheese. It filters Hops well. Cover your phone with a sock and you won't get flu. You can drown anything in a sock if it is smaller than a Jonny. Piece for the New Year! |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Jan 1st, 2006, 2:05am on 12/31/05 at 20:55:47, Jasmyn wrote:
Ok girlfriend!...heres your damn socks.....LOL ;;D http://im1.shutterfly.com/procserv/47b5cc10b3127cce962234bd4f8a00000016108AZM2bNk5bM6 It took me nine damn weeks to get these socks for my boots that people want bibs on ;;D Next time...overnite the fuckers....LMMFAO [smiley=laugh.gif] |
||||
|
Title: Re: new to site, couple ?'s Post by Pinkfloyd on Jan 1st, 2006, 4:42am Whatever you people do, please don't suggest the clusterbuster's treatment to the car man. http://www.clusterbusters.com/warning.htm Happy New Year Bobw STFU BobP...cause I know what you're thinking. :-/ |
||||
|
Title: Re: new to site, couple ?'s Post by Jonny on Jan 1st, 2006, 12:36pm on 01/01/06 at 04:42:14, Pinkfloyd wrote:
LMAO BobW...That dude is seeing enough colors....LOL http://bestsmileys.com/fireworks/7.gif |
||||
|
Title: Re: new to site, couple ?'s Post by Jasmyn on Jan 1st, 2006, 4:53pm on 01/01/06 at 12:36:08, Jonny wrote:
... and some imaginary friends ;) |
||||
|
Title: Re: new to site, couple ?'s Post by crausman on Sep 1st, 2006, 4:49pm For Tom, Sean and all other well-read CHs: I am new to this, and my question is: can I have a root canal done without making CH worse? It is a needed root canal in the tooth that seems to have brought all this on, but my dentist referred me to an endodontist, who said to go see a neuro. Wow, imagine a dentist and endodontist too "scared" to treat me! When this tooth started to go (about 3 months ago), the CHs came. This is all too much of a coincidence for me, since it is that tooth that is also felt during the headache, especially at the end. From my reading, it is quite possible that having a root canal will alleviate the pain (see the last line in the Wikipedia article on cluster headaches). The CHs started out really vicious and got a lot better when I stopped my nightly beer drinking. Now I can stop them by chugging quickly a double-strength coffee. I am a 50-year-old female, 3 years past menopause. I have bad gum disease, so I have no idea what will happen as each tooth goes bad. I have read about a lot of you going to doctors, trying various and sundry drugs and other therapies. It sounds like a lot of hit-and-miss that I cannot afford. It's hard enough, even with insurance, affording the dental work as it's needed. Actually, I strongly suspect that having this needed root canal done would alleviate my CHs, but I, like my endodontist (who doesn't know much about CH), am also scared it might make them worse! What do you think? Thanks Candi |
||||
|
Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1! YaBB © 2000-2003. All Rights Reserved. |