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Cluster Headache Help and Support >> Cluster Headache Specific >> Cluster Cure
(Message started by: KatzPurr on Mar 23rd, 2008, 1:52am)

Title: Cluster Cure
Post by KatzPurr on Mar 23rd, 2008, 1:52am
Has anyone purchased this e-book and if so is it worthwhile?

Cluster Cure http://www.clusterheadachecure.com/?gclid=CI2mmKC9opICFQE8xwodB3spQQ

Title: Re: Cluster Cure
Post by Ray on Mar 23rd, 2008, 2:28am
I haven't bought the book, but I doubt that it would contain a "cure".  I don't have the money to burn to buy the book and find out.

I bet you'd find nearly all, or potentially more information within this forum!

Just my thoughts and I'm sticking to em.

Wishing you well,

Ray

Title: Re: Cluster Cure
Post by Qazpur on Mar 23rd, 2008, 7:52am
i believe that people who profit from the pain and misery of others by rehashing and packaging freely available information as a must-have cure should be hung, drawn and quartered...

but then that's just my humble opinion, by no means aimed at the publication mentioned as i won't be spending $47 to read it.

a couple of links to some of the information referred to on the home page of the site, after a quick search:

http://www.medicalnewstoday.com/articles/79557.php
(does make me a little concerned about my verapamil intake)

http://www.obgyn.net/newsrx/general_health-Cluster_Headache-20010108-3.asp
(study from 2001 it seems)

at the top of his list of resources is, rather unsurprisingly,  clusterheadaches.com  :P

i just notice a google ad at the bottom of this page for said "definitive guide". makes me feel like buying the e-book and plastering it anonymously all over the fucking internet. i feel another hit coming on....

Title: Re: Cluster Cure
Post by BarbaraD on Mar 23rd, 2008, 8:10am
NOTE TO NEWBIES::::   There is NO CURE at this time for CH. Occasionally we get people advertising cures, but these are just something to take your money - THEY DO NOT WORK.

After reading the ad for this book, I think I can safely say (as an oldtimer to this type of hype) this is another one of those "fake" cures...

If you've got $47 to blow, hit the paypal button at the bottom and send it to DJ to help keep this website running. Now that's what HELPS CH and all those of us who suffer....

Hugs BD

Title: Re: Cluster Cure
Post by chewy on Mar 23rd, 2008, 8:56am
If I were new to CH and didn't have the time to search around years of CH.com then I'd buy it in a minute.

Title: Re: Cluster Cure
Post by outofcommission on Mar 23rd, 2008, 12:02pm
if there is a cure i'm sure one of us would figure it out, and i don't think any clusterhead would put a price on helping out another clusterhead. as far as information goes i have clusterheadaches.com.

                                                                       johnny

Title: Re: Cluster Cure
Post by chewy on Mar 23rd, 2008, 12:44pm

on 03/23/08 at 12:02:42, outofcommission wrote:
if there is a cure i'm sure one of us would figure it out, and i don't think any clusterhead would put a price on helping out another clusterhead. as far as information goes i have clusterheadaches.com.

johnny


Then no medical practitioners who have CH. should be allowed to charge for their services?

Title: Re: Cluster Cure
Post by Charlotte on Mar 23rd, 2008, 12:50pm
I didn't get the internet until after I had joined this site at the library. (This site is why I got the internet at home.) I have a stack of papers printed at the library well over a foot high.

1-22-02, I bought, CLUSTER HEADACHES, treatment and relief for cluster, cluster migraine, and recurring eye-stab pain by Michael Goldstein with foreward by Seymour Diamond, MD. I had to wait for it to be ordered and it was a little bit worthless for actual help. From the title, I expected to find info on treatment and how to get relief, but I didn't really.

It had the internet address for this site, but I did not have the internet then. That was the best thing in the book. I think this site is the most valuable thing I've found so far.

The letter writer said we'd probably spend more that $47 on one prescription, and that may be be true, and I also know a (non-med) case of Red Bull is over $34 at Smart N Final and would not last a month.

It is all relative. The same information is probably available on this site, but if you don't already have a foot high stack of papers, and you are just getting your information together, it may be invaluable.

I think it could be summed up better:
1. Moral Support
2. Good Docs - if you have a bad one, fire him, he works for you
3. O2 - at least ask about it
4. Verapamil
5. Prenisone tapers
6. Kudzu, Red Bull, ice, and alternatives
7. Being a guinea pig, always trying something new or trying it again
8. Back to Moral Support, and you will get that here

Charlotte

p.s. I see I left out imitrex,etc., and probably more. But this would still be an ok start.

Title: Re: Cluster Cure
Post by mc_ashes on Mar 23rd, 2008, 5:06pm
Well said Charlotte, this site IS invaluable.
Mark

Title: Re: Cluster Cure
Post by Annette on Mar 23rd, 2008, 5:30pm

on 03/23/08 at 12:44:28, chewy wrote:
Then no medical practitioners who have CH. should be allowed to charge for their services?



The difference here Chewy, is the medical practitioner will have to put his or her credential behind the work ie would be responsible for the information gathered and published. He or she would need to do work to verify the accuracy and authenticity of the information. The consumers would be covered by his or her insurance in case something goes wrong. The medical practitioner would also be available for follow up or to answer any question or concern.

This is not the case here.

I dont know who this person is, but it is very likely that the person wouldnt even have or live with someone who has CH. He would just search the internet and visit sites like ch.com gathering information and then simply compiling into the book.

I very much doubt that he would be able to fully understand or be able to substantiate any of the information with personal experience. I also doubt very much that he would be able to answer any question or concern.

Its unethical to sell for a profit information that you dont own.

Title: Re: Cluster Cure
Post by andrewjb on Mar 23rd, 2008, 6:32pm

on 03/23/08 at 17:06:32, mc_ashes wrote:
Well said Charlotte, this site IS invaluable.
Mark

:). andrew.

Title: Re: Cluster Cure
Post by KatzPurr on Mar 24th, 2008, 1:34pm
Thank you all for your input. There is pretty much an e-book out there for any ailment or problem known to mankind and I doubt that any of them provide cures or are particularly helpful. I just wondered if anyone had purchased this ch information, especially since there is an ad for it on the bottom of the page.

Title: Re: Cluster Cure
Post by Linda_Howell on Mar 24th, 2008, 7:41pm



 There's THAT word again.

   Cure.  


insults our collective intelligence.    >:(

Title: Re: Cluster Cure
Post by thebbz on Mar 24th, 2008, 10:39pm
I think he's a headache pimp.. 8)
thebb

Title: Re: Cluster Cure
Post by Qazpur on Mar 25th, 2008, 6:43am

on 03/24/08 at 13:34:00, KatzPurr wrote:
Thank you all for your input. There is pretty much an e-book out there for any ailment or problem known to mankind and I doubt that any of them provide cures or are particularly helpful. I just wondered if anyone had purchased this ch information, especially since there is an ad for it on the bottom of the page.


indeed it's a little unfortunate that this is the only ad to appear at the bottom of every page on this site  - it has to do with relevance of keywords on google ads rather than the choosing of the webmaster but it does give the impression that the product is endorsed by ch.com (which I sincerely hope isn't the case).


Title: Re: Cluster Cure
Post by brewcrew on Mar 25th, 2008, 7:23am
Katzpurr and Qazpur?

I think you're the same person, and I think you're here to attempt to promote that sham of a book, i.e., there's no such thing as bad publicity - only publicity.

Title: Re: Cluster Cure
Post by Qazpur on Mar 25th, 2008, 7:58am

on 03/25/08 at 07:23:05, brewcrew wrote:
Katzpurr and Qazpur?

I think you're the same person, and I think you're here to attempt to promote that sham of a book, i.e., there's no such thing as bad publicity - only publicity.


lol, i have to admit the names are rather remarkably similar, i considered mentioning it myself, though can i assure you it is merely coincidental.

i do however take offence at your suggestion that i might be promoting something which i strongly believe to be a large pile of horse manure.

i fail to see the logic in your "bad publicity" remark - are you going to rush out and buy something after a numerous people have justified perfectly why you shouldn't??

i'd like to believe that folks on this board have a little more common sense than you give them credit for...




Title: Re: Cluster Cure
Post by brewcrew on Mar 25th, 2008, 8:00am
My, oh my.

Methinks the lady doth protest too much.

Title: Re: Cluster Cure
Post by Annette on Mar 25th, 2008, 8:09am

on 03/25/08 at 07:58:40, Qazpur wrote:
i'd like to believe that folks on this board have a little more common sense than you give them credit for...



Its not lack of common sense but lack of experience. Thats why we need to exert caution at all times and warn people of possible fraudulent claims.

When people are in bad pain and desperate for a cure, common sense may go out the window.


This does happen


on 03/23/08 at 08:56:30, chewy wrote:
If I were new to CH and didn't have the time to search around years of CH.com then I'd buy it in a minute.



Title: Re: Cluster Cure
Post by Qazpur on Mar 25th, 2008, 8:26am

on 03/25/08 at 08:09:06, Annette wrote:
Its not lack of common sense but lack of experience. Thats why we need to exert caution at all times and warn people of possible fraudulent claims.

When people are in bad pain and desperate for a cure, common sense may go out the window.


This does happen


i'm afraid stupidity and not inexperience would cause people to go and buy something that others with experience tell them not to.

why don't we do the inexperienced folks a favor and ask DJ to remove the google ads from this site - i shudder to think the damage it has done.

brewcrew, your misquote from Hamlet i'll take as an apology for an unfounded accusation.

Title: Re: Cluster Cure
Post by LeLimey on Mar 25th, 2008, 9:16am
Hi Qazpur I just thought I'd say hello since my brother lives and works in Rotterdam. I see you're in Amsterdam though. There are several other Dutch ch'ers, maybe you could all get together sometime. If I'm able to go to visit my brother at the same time I'll join you!

Helen

Title: Re: Cluster Cure
Post by brewcrew on Mar 25th, 2008, 9:50am

on 03/25/08 at 08:26:49, Qazpur wrote:
brewcrew, your misquote from Hamlet i'll take as an apology for an unfounded accusation.

You are correct in one sense - the line is actually "The lady doth protest too much, methinks."

But no, there is no apology there.

Title: Re: Cluster Cure
Post by Qazpur on Mar 25th, 2008, 9:50am
Hi there Helen, Rotterdam's not too far away (of course not nearly as nice as Amsterdam ;)).

Gatherings are always fun - maybe if we can stop complaining about the weather long enough this side we can organize something. You are of course more than welcome to come and say hi whatever the occassion may be.

Title: Re: Cluster Cure
Post by BMoneeTheMoneeMan on Mar 25th, 2008, 11:54am
http://survivalofthesickestthebook.com/blog/wp-content/uploads/2007/03/child-plugging-nose-2.jpg

Who farted?

Title: Re: Cluster Cure
Post by Linda_Howell on Mar 25th, 2008, 12:45pm

 
Quote:
i'm afraid stupidity and not inexperience would cause people to go and buy something that others with experience tell them not to.


  WRONG.  Desperation and inexperience will many many times cause other-wise intelligent people to do this.  Mostly desperation though.

Title: Re: Cluster Cure
Post by Qazpur on Mar 25th, 2008, 1:50pm

on 03/25/08 at 12:45:19, Linda_Howell wrote:
 

  WRONG.  Desperation and inexperience will many many times cause other-wise intelligent people to do this.  Mostly desperation though.


Hi Linda, I have absolutely no doubt that state of mind can make people see and do things contrary to their supposed intelligence.

When seen (as my comment was meant) in context of this very thread you have to admit that it would be pretty darn stupid of someone reading only negative comments about a product  to promptly go out and buy it, regardless of their state of desperation.

At least the irony of this thread is providing some humorous relief to an otherwise rather shitty day.

hhhhmmmmm - look at the sponsored banner at the bottom of this page, don't buy it, don't buy it, don't buy it, lol

pfdan,

qaz

Title: Re: Cluster Cure
Post by brewcrew on Mar 25th, 2008, 1:59pm
You are a real piece of work.

Title: Re: Cluster Cure
Post by outofcommission on Mar 25th, 2008, 6:09pm

on 03/23/08 at 12:44:28, chewy wrote:
Then no medical practitioners who have CH. should be allowed to charge for their services?

chewy, this is a book not a treatment clinic.  any useful information this book might contain can be found on the net for free.

Title: Re: Cluster Cure
Post by KatzPurr on Mar 25th, 2008, 7:00pm
[smiley=bash.gif] Hmmm... not sure I understand the whole accusation of peddling information that I was simply asking people in this forum to comment about, but perhaps all is just in jest.

I personally think that when people are in extreme pain, they are very vulnerable to scams such as this, and while there may be valuable information in the e-book, I suspect it can be found in various places on the net for free. I will not be spending the required $57 to obtain it anytime soon, but by all means rush right out and buy it so I don't have to... and then send me a copy would ya? j/k  ;;D

Title: Re: Cluster Cure
Post by MR_JESTER on Mar 25th, 2008, 9:32pm
Hi,

I am a medical professional, and I am a clusterhead just like the rest of you.  I have access to all of the latest medical journals as I work at a university affiliated medical center and teaching hospital.  I have read every research book I can find on CH.  I can tell you for sure, there is no cure, and the best information you can get, is probably right here and at CH.com  I talk to every neuro resident who comes through hoping to find a new therapy or idea I haven't heard of.   So far, nothing new

Title: Re: Cluster Cure
Post by thebbz on Mar 25th, 2008, 9:40pm

Quote:
hhhhmmmmm - look at the sponsored banner at the bottom of this page, don't buy it, don't buy it, don't buy it, lol

pfdan,

qaz



They had a stupid Head-On banner down there too. That dont work either. Knowledge is key, I have many a book much better and cheaper, authored by people with letters after their name. They claim no cures. Only treatment
thebb

Title: Re: Cluster Cure
Post by Linda_Howell on Mar 25th, 2008, 11:43pm


Oh Thank you so much monkey-man...

 "Head-on, apply directly to the forehead...."


Talk about an ear worm.   >:(

Title: Re: Cluster Cure
Post by darknight on Mar 26th, 2008, 9:51am

on 03/25/08 at 11:54:34, BMoneeTheMoneeMan wrote:
http://survivalofthesickestthebook.com/blog/wp-content/uploads/2007/03/child-plugging-nose-2.jpg

Who farted?



WASNT ME!! ::)

Title: Re: Cluster Cure
Post by Guiseppi on Mar 26th, 2008, 10:08am
Hi,

I am a medical professional, and I am a clusterhead just like the rest of you.  I have access to all of the latest medical journals as I work at a university affiliated medical center and teaching hospital.  I have read every research book I can find on CH.  I can tell you for sure, there is no cure, and the best information you can get, is probably right here and at CH.com  I talk to every neuro resident who comes through hoping to find a new therapy or idea I haven't heard of.   So far, nothing new


And that is as clear as I have EVER seen it put!

Guiseppi

Title: Re: Cluster Cure
Post by MJ on Mar 26th, 2008, 11:30am
I have not read it, though I would absolutely buy that book in a heartbeat if I ever saw it on a shelf.

There may not yet be a cure but certainly some success with control has been found by many.
We can never have too much info on CH. and the drugs we take.


Title: Re: Cluster Cure
Post by thebbz on Mar 26th, 2008, 7:03pm
Ya, baby Ya!
Quote:
We can never have too much info on CH. and the drugs we take.

I wouldn't know what I do without books, and 5 years prowling this website...Tanks Deej
thebb
[smiley=bow.gif]

Title: Re: Cluster Cure
Post by Gator on Mar 28th, 2008, 11:58pm
If you notice, the mailing address for this e-book is

Cluster Cure, PO Box 111 Waunakee, WI 53597

by Richard Falconi

http://www.clusterheadachecure.com

which coincidentally is also the mailing address for:

Emetophobia Eraser, PO Box 111 Waunakee, WI 53597

by Jillian Stevens

http://www.emetophobiaeraser.com

and

Driving Fear, PO Box 111 Waunakee, WI 53597

by Rich Presta

http://www.drivingfear.com

and

The Panic Book, PO Box 111 Waunakee, WI 53597

by Rich Presta

unfortunately, his website: http://www.panicbook.com no longer exists, but not to fear (pun intended) you can still buy this amazing book here:

http://www.asianpay.cn/mental-health/ENDPANIC.htm



sniff sniff What's that smell?

Title: Re: Cluster Cure
Post by Mrs Deej on Mar 29th, 2008, 12:14am

on 03/25/08 at 06:43:53, Qazpur wrote:
indeed it's a little unfortunate that this is the only ad to appear at the bottom of every page on this site - it has to do with relevance of keywords on google ads rather than the choosing of the webmaster but it does give the impression that the product is endorsed by ch.com (which I sincerely hope isn't the case).

Considering the fact that the google ads on this website help fund this site, what people pay for to advertise is there business. If they chose to spend that much money to put it on every page impression so be it.  We have nothing to do with the process. It's one reason you are able to read what you are.

If you are that interested in an absurd book that promises a cure for something that has no cure, that's your mistake. Our family here knows whats bullshit and whats not.

From this time forward...our disclaimer....The ads that are impressed on the pages here at Clusterheadaches.com are not necessarily endorsed by those that live here or run this place!

....that should be good enough!

Title: Re: Cluster Cure
Post by George_J on Mar 29th, 2008, 1:11am

on 03/29/08 at 00:14:11, Mrs Deej wrote:
 

From this time forward...our disclaimer....The ads that are impressed on the pages here at Clusterheadaches.com are not necessarily endorsed by those that live here or run this place!

....that should be good enough!


And that's that.

Thanks, Steph.

Best wishes,

George

Title: Re: Cluster Cure
Post by shipo on Apr 7th, 2008, 3:53pm
I honestly believe there is no cure ...I class myself as being lucky. I've not suffered for about 10 years now but I had clusters for 20 years or so. I'm now 53 years old and can't explain why they eventually left me.
I can only wish that all of you come to the day of freedom from this devastating affliction.
Cheers paul

Title: Re: Cluster Cure
Post by Buzz on Apr 18th, 2008, 12:59pm
There is a cure. Its just not been discovered yet.

Title: Re: Cluster Cure
Post by Sandy_C on Apr 18th, 2008, 1:19pm

on 04/18/08 at 12:59:45, Buzz wrote:
There is a cure. Its just not been discovered yet.



Right on!  There is this little thing called "hope".  It's what keeps us all going, whether CH, cancer, old age, anything.

Hope is what makes the world go round.

Sandy

Title: Re: Cluster Cure
Post by brewcrew on Apr 18th, 2008, 2:17pm
I come from the perspective that maybe there is a cure, maybe there isn't. I don't know, nobody else knows. But I do know this - my days on this earth are numbered and I'm not going to spend much time worrying about it. I gots me some livin' to do.

Title: Re: Cluster Cure
Post by monty on Apr 18th, 2008, 3:20pm

on 03/28/08 at 23:58:34, Gator wrote:
If you notice, the mailing address for this e-book is

Cluster Cure, PO Box 111 Waunakee, WI 53597

by Richard Falconi

http://www.clusterheadachecure.com

which coincidentally is also the mailing address for:

Emetophobia Eraser, PO Box 111 Waunakee, WI 53597

by Jillian Stevens

http://www.emetophobiaeraser.com

and

Driving Fear, PO Box 111 Waunakee, WI 53597

by Rich Presta

http://www.drivingfear.com

and

The Panic Book, PO Box 111 Waunakee, WI 53597

by Rich Presta

.... ..... .....

sniff sniff  What's that smell?


Expect it to reek even more in the coming years. I just read about a guy that "wrote" 200,000 "books."  OK, he wrote software that combs the net and automagically assembles information on a topic into an  e-book.  Can anyone say 'artificial stupidity' ?  

http://www.boingboing.net/2008/04/13/man-writes-200000-bo.html



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