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        Cluster Headache Help and Support >> Cluster Headache Specific >> oxygen 
        
(Message started by: wanna_swap_brains on Mar 30^th, 2008, 3:10pm)

Title: oxygen
Post by wanna_swap_brains on Mar 30^th, 2008, 3:10pm

hi,that neuro guy wunt give me oxygen coz we both smoke,summat about blowing the house up.anyway at the doctors on tuesday ill ask her,should i say we dont smoke???or is it that dangerous???stuart

Title: Re: oxygen
Post by Linda_Howell on Mar 30^th, 2008, 4:00pm

What an idiot. The neuro, not you. Do you have a fireplace? A gas stove? Do you burn candles?

Any semi-intelligent person knows not to smoke when using 02 and to respectfully take caution when using anything potentially dangerous. This is an insult to your intelligence in my mind. I suppose if you have to, lie about it.

Title: Re: oxygen
Post by Guiseppi on Mar 30^th, 2008, 4:31pm

I'm with Linda, Lie about it! I have a gas stove in my house, a fire place, and my wife uses candles all over the damned house. Just understand 02 is not flammable, it's an accelerant. So if anything saturated with oxygen, cathes fire, it'll burn fast and hot.

If you take very simple precautions, obviously don't smoke while you're using 02, walk around outside and let your clothes breathe after you use the 02, you'll have no problems. Good luck!

Guiseppi

Title: Re: oxygen
Post by brewcrew on Mar 30^th, 2008, 4:40pm

Technically, oxygen is the catalyst in combustion. It is not by itself flammable - there still needs to be fuel. Fire burns in the regular mix of atmospheric gases, which is approximately 21% oxygen.

Check out this video.

http://www.youtube.com/watch?v=sab2Ltm1WcM

It shows a couple of guys pouring liquid oxygen onto a lit barbeque. Guiseppi's right - it makes a fire that's already burning burn much hotter and much faster. It's what killed the Apollo 1 astronauts - their capsule was pressurized with 100% oxygen, and when a spark inside ignited some cloth, everything inside burned hot and fast - including the astronauts.

Title: Re: oxygen
Post by darknight on Mar 31^st, 2008, 7:08am

Thats ridiculous ive smoked but was given oxygen!!!
Use the leaflet from ouch's website they are not allowed to refuse you use if you have been diagnosed with clusters!!
Linda is bang on, i keep my 02 upstairs away from naked flames like candles!!!

with the infromation on this website and OUCK UK you need to tell the doc what you require otherwise he will use you as a guinnea pig for drugs!!

Helen could help wheres lelimey when u need her!!!lol

Title: Re: oxygen
Post by wanna_swap_brains on Mar 31^st, 2008, 9:16am

thanks you lot,that ouch uk websites changed,any 1 know where i can print what i need elsewhere,thanks in advance.stuart

Title: Re: oxygen
Post by Linda_Howell on Mar 31^st, 2008, 12:12pm

Stuart,

A good place to start.

http://www.maplefallswebdesign.com/misc/oxygen/oxygen1.htm

Print this page out and take it to your Dr. Good luck and do NOT....repeat...NOT take no for an answer. We have to be our own best advocate in matters like this, because no one else will.

Linda

Title: Re: oxygen
Post by wanna_swap_brains on Apr 1^st, 2008, 3:16am

thanks,ive printed off that part filled hoof so all she gotta do is sign it.stuart

Title: Re: oxygen
Post by darknight on Apr 1^st, 2008, 11:48am

Stuart,

here is the link to OUCH UK
http://www.ouchuk.org/html/media_downloads.asp
that should do the trick!!

Title: Re: oxygen
Post by wanna_swap_brains on Apr 2^nd, 2008, 7:36am

hi,doctors faxed off the hoof,any idea how long it will take?doctor dint know.thanks.

Title: Re: oxygen
Post by wanna_swap_brains on Apr 3^rd, 2008, 7:02am

it came this morning,hmmm do i want a headache just to test it ???nah thanks for your help with this,stuart

Title: Re: oxygen
Post by Beastfodder on Apr 4^th, 2008, 11:12am

It's a pretty good service you get now the hoof's done.

D'you have a non-rebreather mask for it?

http://www.clustermasx.com/ is what a few clusterheads swear by and they're UK based. Your O2 suppliers should know what was supplied with your kit - and it is the high flow O2 cylinder that's been delivered isn't it?

Good luck and hope it works as well for you as for me!

Title: Re: oxygen
Post by brewcrew on Apr 4^th, 2008, 11:19am

Clustermasx is no longer available.

Title: Re: oxygen
Post by wanna_swap_brains on Apr 4^th, 2008, 3:00pm

hi,yeh its all set up right,the delivery guy was an old mate of mine who shook his head and called me a poor b*stard when he came,but he sorted it all out for me,he knew all about clusters.up to now ive used it 5 times and it stopped em all except 1 within about 10 mins,which is such a relief. just a little summat else,why wont they give you oxygen before they rule out anything sinister??thanks for replies stuart

Title: Re: oxygen
Post by Guiseppi on Apr 4^th, 2008, 3:09pm

Awesome that it's working for you. Just one more suggestion. Many find the headache keeps coming back when they shut off the oxygen. They have posted that by slogging down an energy drink, or even a strong cup of coffee, as soon as they start the oxygen, they can extend the time between the attacks. Might be worth a try.

Guiseppi

Title: Re: oxygen
Post by wanna_swap_brains on Apr 4^th, 2008, 3:41pm

thanks guiseppe,tried red bull a few weeks ago without oxygen and dint get any benefit from it,i will try again it again though now i have oxygen.tried oxygen and ice pack at the same time though,top quality,thanks again stuart

Title: Re: oxygen
Post by Trooper on Apr 4^th, 2008, 8:51pm

At least your doc was honest enough to say that is why they won't give you O2. I smoke and I think that is why I have always been denied as well.

Thanks to the good info on this board, I finally took matters into my own hands and got O2. I wish I would have known how to do this three years ago. It feels wonderful to not be on so many perscription drugs. :)

Title: Re: oxygen
Post by wanna_swap_brains on Apr 5^th, 2008, 2:17am

hi trooper,my neurologist refused coz of smoking,but the people whos advice i now follow (on here)told me to tell a few porkies,so i filled in the hoof and gave it my normal doctor and "told" her she had to order it,good luck stuart

Title: Re: oxygen
Post by Trooper on Apr 6^th, 2008, 11:46am

Quote:

told me to tell a few porkies,so i filled in the hoof and gave it my normal doctor and "told" her she had to order it,

What?? LOL! can ya put this in plain english, not sure what you are saying here but it is making me laugh ;;D

Title: Re: oxygen
Post by wanna_swap_brains on Apr 6^th, 2008, 1:24pm

ok,neuro refused oxygen due to smoking,people on here told me to twist the truth a little,so i told my doctor that the neuro said he would prescribe the things she couldnt(verapamil & prednisolone)and he told me to give her the hoof part filled form to just sign and fax off.give it a try yourself or you could end up taking crazy medication cocktails that would kill a cow(cattle)but wont help your clusters.stuart

Title: Re: oxygen
Post by Linda_Howell on Apr 6^th, 2008, 2:56pm

Quote:

What?? LOL! can ya put this in plain english, not sure what you are saying here but it is making me laugh

He's been talking to Helen again. lol After a while you get used to their language Trooper and some of us have even started to understand it and use it in our own posts.

"Big girls blouse" is the one that always kills me.

Title: Re: oxygen
Post by wanna_swap_brains on Apr 6^th, 2008, 3:43pm

big girls blouse means mard arse where i live(city)dont know what it means in the hills though.thanks for your advice too linda.stuart

Title: Re: oxygen
Post by beachmusic on Apr 7^th, 2008, 10:29am

Another mean doctor!! I told mine that both my sons smoked in my house and he just gave me instructions on taking safety precautions. Being the angel that I http://im1.shutterfly.com/procserv/47b7db10b3127cceb76ba95dd3bd00000005100Aat27Jw2cMmLA am I didn't mention my own smoking, LOL Good luck

Title: Re: oxygen
Post by brewcrew on Apr 7^th, 2008, 10:59am

You're a right-sider, aren't you? Looks like your right eye is your cluster eye.

Title: Re: oxygen
Post by beachmusic on Apr 7^th, 2008, 1:30pm

Think it is the camera reversing things~~~Clusters in my left eye and then my right eye droops ;) ;) That was taken when out of cycle even and I am still virtually one eyed. Oh these beastly things! They have so much to offer us....