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Cluster Headache Help and Support >> Cluster Headache Specific >> New Meds...
(Message started by: scorpiorisingina2 on Apr 17th, 2008, 10:11pm)

Title: New Meds...
Post by scorpiorisingina2 on Apr 17th, 2008, 10:11pm
I was on Propanol, as previously indicated.  No luck with it.  Well it did prevent any headaches, but I was dizzy and lightheaded, and sleepy... I asked my doctor for something else.  She put me on Verapamil 240MG ER.  So far no dizzyness or lightheadedness.  So thats a bummer, a bit sleepy still.  That I am guessing is going to fade away with time once I am used to the meds.  So far no headaches, some shadows, but using my 02 @ 7lpm with a non-rebreather mask has gotten rid of those.

Title: Re: New Meds...
Post by Jonny on Apr 17th, 2008, 10:23pm

on 04/17/08 at 22:11:48, scorpiorisingina2 wrote:
I was on Propanol, as previously indicated. No luck with it. Well it did prevent any headaches, but I was dizzy and lightheaded, and sleepy... I asked my doctor for something else. She put me on Verapamil 240MG ER. So far no dizzyness or lightheadedness. So thats a bummer, a bit sleepy still. That I am guessing is going to fade away with time once I am used to the meds. So far no headaches, some shadows, but using my 02 @ 7lpm with a non-rebreather mask has gotten rid of those.


Huh?....am I reading this wrong?

It must be me.....im going to bed!

Title: Re: New Meds...
Post by Guiseppi on Apr 17th, 2008, 10:24pm
That's a low level for verapamil, don't be suprised if you have to ramp it up a bit. If the oxygen starts to lose it's effectiveness, consider ramping it up to 15 LPM. Glad to hear you're getting some relief, here's hoping you're coming to the end!!!

Guiseppi

Title: Re: New Meds...
Post by scorpiorisingina2 on Apr 17th, 2008, 11:32pm
The piece that regulates the amount of 02 given out only goes up to 8lpm.  So I guess if it doesn't work as well after a while I will talk to my doctor about getting one that will go higher.

Title: Re: New Meds...
Post by mezza on Apr 18th, 2008, 12:02am
I too took propranolol - very briefly-  i was skeptical when my first neuro ( who has since been fired and replaced by a neuro who knows what they are talking about)  put me on it-  Propranol never prevented any headaches for me

Good luck with verap-  have been having great success with it but at a  higher dose ( 660 mg)

Hope you continue to be HA free-

Title: Re: New Meds...
Post by Gator on Apr 18th, 2008, 10:17am

on 04/17/08 at 22:23:07, Jonny wrote:
Huh?....am I reading this wrong?

It must be me.....im going to bed!



No, Jonny.  It's not just you.   :o


Title: Re: New Meds...
Post by Bob_Johnson on Apr 18th, 2008, 1:42pm
Propanol is an old migraine med which was used for CH many years ago--and demoted to the junk pile some time ago.

Mos current therapies:

http://www.headachedrugs.com/pdf/ha2006.pdf Dr. Robbins site. Then explore the entire site by deleting
everything following. com/ and then hit enter.
====================================================================
Here is a link to read and print and take to your doctor.  It describes preventive, transitional, abortive
and surgical treatments for CH. Written by one of the better headache docs in the U.S.  (2002)
 
http://www.plainboard.com/ch/chtherapy.pdf


Title: Re: New Meds...
Post by Sandy_C on Apr 18th, 2008, 2:04pm

on 04/17/08 at 22:11:48, scorpiorisingina2 wrote:
I was on Propanol, as previously indicated.  No luck with it.  Well it did prevent any headaches, but I was dizzy and lightheaded, and sleepy... I asked my doctor for something else.  She put me on Verapamil 240MG ER.  So far no dizzyness or lightheadedness.  So thats a bummer, a bit sleepy still.  



Huh?  I think maybe this is part of the problem that both Jonny and Gator are confused, as am I.  It's a "bummer" that you no longer have dizzyness or lightheadedness?

[smiley=huh.gif]

I think a little clarification on that statement might help.

I can't speak to the Verapamil dosage because I've never used it.  But, I can speak to the oxygen levels.  7 lpm is very low, and, based on many posts and feedback, is just about useless to quickly abort a hit.  Most of us who do use o2 have regulators that go to at least 15 lpm, and we all can abort a hit within minutes.  Check in to getting another regulator with your doc.  If he/she balks, they can be bought on e-bay very cheaply.

Sandy


Title: Re: New Meds...
Post by chewy on Apr 19th, 2008, 9:33am

on 04/17/08 at 22:11:48, scorpiorisingina2 wrote:
So far no dizzyness or lightheadedness. So thats a bummer, .


Huh??

Title: Re: New Meds...
Post by Perediablo on Apr 19th, 2008, 1:01pm

on 04/19/08 at 09:33:52, chewy wrote:
Huh??


maybe they enjoyed the buzz?



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