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Cluster Headache Help and Support >> Cluster Headache Specific >> The headache from HELL.....
(Message started by: BarbaraD on Apr 29th, 2008, 1:50pm)

Title: The headache from HELL.....
Post by BarbaraD on Apr 29th, 2008, 1:50pm
For the oldtimers who tell the newbies (and I count myself in this group) that a CH doesn't last for hours -- we may have mis-spoken....  

This morning Mr. Demon woke me up bright and early with an 8-9. As of this writing - it's still NOT gone. I've done O2, Red Bull, coffee, ergotomine (twice), scalded my head in the bathtub, froze it in the shower, hot pack, ice bags -- any other suggestions. Got it down to a 5-6 a couple of times, but am back up to about an 8 again right now.

I don't normally have one I can't get rid of eventually, but this one wants to hang in there. I'm at the exhaustion stage (don't think I'll bitch about arthritis again anytime soon). I've NEVER had one do this, but I'm here to tell you -- IT CAN HAPPEN... I'm on about the 10th hour right now.

Hugs BD

Even the dogs are staying out of my way right now.

Title: Re: The headache from HELL.....
Post by FK5 on Apr 29th, 2008, 2:30pm
Re-group if you can!

One more energy drink and get on the o2 again and suck it down!!!!!

Hang in there!

Title: Re: The headache from HELL.....
Post by pattik on Apr 29th, 2008, 2:30pm
I feel for you.  Long CH attacks can, an do happen.  Reading your post made me dig out my old CH diary from two years ago.  One memorable attack vascillated between a level 4 and 8 for over seven hours.  I think that when the so-called experts place a time frame on CH for diagnostic purposes, it's good to remember that they're just guidelines, and everyone can be a little different from the standard.  Personally, I think there could be some gender differences when it comes to deviating from the "standard" attack duration.  But since girls don't get CH, no one will step up and do the research.   ;)

It sounds like you've tried almost everything...do you have any ginger tea in the house?  That might be the straw that breaks this one.  Hang in there.

Title: Re: The headache from HELL.....
Post by Guiseppi on Apr 29th, 2008, 2:33pm
I am so sorry Barbara.... :'(  Love ya.

Joe

Title: Re: The headache from HELL.....
Post by BarbaraD on Apr 29th, 2008, 3:00pm
Ok,

More O2, 3 Excedrin, 2 naproxin (I know I know, but....  do as I SAY - not as I DO)

right now I'm down to about a 2 and hope it stays there. This one has about done me in.

May get thru this one without inflicting bodily injury on myself or anyone else.   :)

Hugs BD

Title: Re: The headache from HELL.....
Post by beachmusic on Apr 29th, 2008, 3:03pm
Barbara,   I am so sorry [smiley=hug.gif]
Hope this is gone before you even read this!
Mary Ann xoxoxoxo

Title: Re: The headache from HELL.....
Post by John Michael Smith on Apr 29th, 2008, 3:03pm

on 04/29/08 at 13:50:04, BarbaraD wrote:
For the oldtimers who tell the newbies (and I count myself in this group) that a CH doesn't last for hours -- we may have mis-spoken....


Yep, had a few "old-timers" insinuate that I was full of shit when I said I had a 10 that lasted over four hours. Hope you get some relief soon.

Title: Re: The headache from HELL.....
Post by jjslugdog on Apr 29th, 2008, 4:53pm
Any of y'all who've not had one last hours on end should say a double "thank you God".  { I think most of us say that when even a 30 minute K8-10 hit }.  I'm not as brave as you, Barb.  After the first 90 minutes, I'm headed to the ER to get knocked out.

Title: Re: The headache from HELL.....
Post by nani on Apr 29th, 2008, 5:15pm
Yeah... I still don't think we know it all.

I've had 'em last for hours. Sometimes just clusters, other times clusters and a related neuralgia that would trigger clusters (hence some serious spiking to k9 and 10) The abortives would work on the CH (feeling like it was knocking it back to a lower kip level) but not work at all on the neuraligia.

Feel better, Barb.
hugs, nani

Title: Re: The headache from HELL.....
Post by DennisM1045 on Apr 29th, 2008, 7:31pm
Hang in there Barb.  He has to get tired sometime soon.  The get some sleep and regroup.

[smiley=hug.gif]

PF vibes are coming your way...

-Dennis-

Title: Re: The headache from HELL.....
Post by Garys_Girl on Apr 29th, 2008, 7:49pm
My heart goes out to you.  There's nothing worse.

And they definitely DO happen.  Gary suffers 3 - 8 hours attacks fairly regularly.

Hang in there!

Laurie

Title: Re: The headache from HELL.....
Post by coach_bill on Apr 29th, 2008, 9:30pm
Im sorry to hear about this, worst i can remeber was about a hour and 15mins, and i lost track after that till it faded and i passed out. and after reading the last couple of days im begining to see that im very lucky compared to some others. Feel better soon i hope. coach bill

Title: Re: The headache from HELL.....
Post by Argonaut on Apr 29th, 2008, 9:50pm
Sorry to hear of your day, Barbara. I can relate to your experience, though.

At the peak of my cycles, I'm in constant pain for at least 12 hours of my waking day. I'll have a few "proper" headaches[headaches at the 8+ KIP scale] which will last between 1-3 hours, and the rest of the time would be filled with shadows [at the 5-6 KIP scale]. If I'm lucky, I would have a few hours' of pain-free respite. I would have this experience for around two weeks, before the beast finally relinquishes its hold.

It does get VERY exhausting! The best way to describe them is that I'd get "spikes" of pain [that's the 8+ KIP headaches].

Title: Re: The headache from HELL.....
Post by BarbaraD on Apr 30th, 2008, 8:23am
I'm human again today, but that's an experience I don't want again any time soon.  

The darn thing finally broke sometime yesterday afternoon and I think I passed out from exhaustion.

In the past I've always said (when someone said their CH lasted this long) that it was probably several headaches back to back - BUT I won't say that again -- they CAN last this long...

Thanks for being there - I needed the support - you guys are great.

Hugs BD

Title: Re: The headache from HELL.....
Post by beachmusic on Apr 30th, 2008, 8:36am
Great News Barbara :)
I imagine you are still exhausted!  Get some rest and here is to no repeats of anything like that again!  
Mary Ann [smiley=hug.gif]

Title: Re: The headache from HELL.....
Post by Superdave on Apr 30th, 2008, 6:33pm
Hi BD
Welcome back from hell, I've been there.

Last January thought I could have a couple of whisky and cokes at a B-day party in a bar with a great band playing. It was the worst ch experiance I ever had and I'll never forget it, or will I ever drink liquor again.
Took a good 20 hours to be able to sleep :-[

A few weeks later I found this website :)

Hugs Your Way
Superdave

Title: Re: The headache from HELL.....
Post by mattus on May 1st, 2008, 6:38am
Glad it's over for you, Barbara.

Take it easy.



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