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Topic: Letter to Employers & Colleagues (Read 23130 times) |
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E-Double
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Letter to Employers & Colleagues
« on: Apr 25th, 2005, 6:18pm » |
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As well all know it is very difficult to explain what it is we go through....
Many look at us as if there is no way in hell something can be that debilitating.
Here is a letter that you can give your employers, colleagues, professors, fellow students that will explain in very simple language what it is that we go through.
How CH is a misnomer!!
It is known to us as "Simon's Letter" 
Simon is a UK CH'er who had the wherewithal to develop this perfect letter.
http://www.ouch-us.org/chgeneral/colleagueletter.htm
Wishing you all Pain Free Days!!!!!!and Nights
Eric
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| « Last Edit: Nov 26th, 2005, 9:51am by E-Double » |
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Redneck
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Re: Letter to Employers & Colleagues
« Reply #1 on: Apr 25th, 2005, 10:38pm » |
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And a good letter it is, when this cycle started last Thanksgiving I gave it to everyone in the office and emailed it to all my counterparts around the state. They may not really understand but at least some of them have a better understanding of what is goning on now.
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LadyLuv
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Re: Letter to Employers & Colleagues
« Reply #2 on: Apr 28th, 2005, 12:22pm » |
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This is a great letter... and it will come in handy
Peace & Blessings
Lady Luv
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wifesupporter
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Re: Letter to Employers & Colleagues
« Reply #3 on: Apr 29th, 2005, 6:57pm » |
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awesome link and letter thanks. My wife is the sufferer and I am thankfull that she is not working at this time so she can try to cope the best way she can however I have a lot of explaning to do at work as to why I am so tired all the time and this will help I am gratefull I work with a bunch of wonderful people who can understand all I have been teaching them about this thing.
Thanks again for bringing this to everyones attention
Steve
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E-Double
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Re: Letter to Employers & Colleagues
« Reply #4 on: May 2nd, 2005, 9:15pm » |
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on May 2nd, 2005, 9:06pm, maffumatt wrote:The suicide part of the letter isn't that cool to give to your employer. It would be alot better if that was edited out. My employer had issues with that part.
Matt
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considering that Dr's throughout the world have called CH "suicide HA" for yrs.....that gets the point across that headache is a misnomer.....
I guess edit it as you deem fit but at the same time your employer should not take issue with any disease that one has.
Stay positive
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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mynm156
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Re: Letter to Employers & Colleagues
« Reply #5 on: May 4th, 2005, 7:23pm » |
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Cool Thanks!
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"Half of the modern drugs could well be thrown out of the window, except that the birds might eat them."
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ArCane
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Re: Letter to Employers & Colleagues
« Reply #6 on: May 11th, 2005, 12:22pm » |
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on May 3rd, 2005, 5:46pm, maffumatt wrote:only speaking from experiance. Anyone that has the safety of others in their hands ( where if you screw up they die kind of safety) may want to consider editing that part out. That is unless you feel unsafe. If you don't feel safe working, i wouldn't risk others safety.
After reading the letter, issue was taken with the fact that if I were to commit suicide at work and others were also hurt, the employer would be held responsible for the others death. After giveing the letter to the employer he has foreknowledge that this is a possibility, and would therefore be held liable, perhaps criminally. Its still a very good letter, it explains alot. It some cases it might cause undue concern. |
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Why would you hurt or kill others when commiting suicide? Going "postal" has nothing to do with suicide. If you go "postal" you have bigger problems than CH. The subject on suicide in this letter is just letting everyone know just how painful these things really are. Who here hasn't thought about suicide, atleast for a second, during day in-day out kip 9-10 headaches? I know, I have. It isnt a realistic option for me (have to many loved ones) but I have thought about it during an attack.
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Alchemy’s First Law of Equivalent Exchange: To obtain, something of equal value must be lost.
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E-Double
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Re: Letter to Employers & Colleagues
« Reply #7 on: May 11th, 2005, 12:24pm » |
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This post isn't supposed to be a debate. It's there for a resource to all that could use the link.
PF wishes!
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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ArCane
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Re: Letter to Employers & Colleagues
« Reply #8 on: May 11th, 2005, 12:26pm » |
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on May 11th, 2005, 12:24pm, E-Double wrote:This post isn't supposed to be a debate. It's there for a resource to all that could use the link.
PF wishes! |
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Sorry bro. Ill shut up now  .
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Alchemy’s First Law of Equivalent Exchange: To obtain, something of equal value must be lost.
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Candycane
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Re: Letter to Employers & Colleagues
« Reply #9 on: Jun 1st, 2005, 8:41pm » |
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Thanks for the great info! 
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Jonny
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Re: Letter to Employers & Colleagues
« Reply #10 on: Jun 2nd, 2005, 5:24pm » |
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Thanks DJ....You Da Man, Dude!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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E-Double
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Re: Letter to Employers & Colleagues
« Reply #11 on: Jun 2nd, 2005, 5:28pm » |
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Thanks DJ
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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iain_bridge
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Re: Letter to Employers & Colleagues
« Reply #12 on: Jun 3rd, 2005, 6:13am » |
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What a great letter, not only for employees but anyone you deem close enough to understand this hell that we are all going through.
Thanks it will come in very useful
take care everyone
Iain
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RClarke54
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Re: Letter to Employers & Colleagues
« Reply #13 on: Jun 4th, 2005, 5:10pm » |
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Hello all,
I have been a episodic cluster sufferer for about 10+ yrs now. I recenlty could not have fallen into a cycle in a worse positon. I am talking no car and no job, pretty bad. I recenlty though took this job offer before telling my manager about my ch's. After getting two excruciating attacks at work my boss became curious, and it wasn't until then that I had to tell him about the condition. He then proceeded to tell me that I could not work there anymore because the store could not work around my ch's. What would be anyone elses opinion or advice on how or when I should go for another job at this point?, and if I should tell my next boss about my condition.Email is RClarke54@hotmail.com, just let me know when you can as I am all ears at this point. Thanks.
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Jonny
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Re: Letter to Employers & Colleagues
« Reply #14 on: Jun 10th, 2005, 7:14pm » |
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on Jun 4th, 2005, 5:10pm, RClarke54 wrote:Hello all,
I have been a episodic cluster sufferer for about 10+ yrs now. I recenlty could not have fallen into a cycle in a worse positon. I am talking no car and no job, pretty bad. I recenlty though took this job offer before telling my manager about my ch's. After getting two excruciating attacks at work my boss became curious, and it wasn't until then that I had to tell him about the condition. He then proceeded to tell me that I could not work there anymore because the store could not work around my ch's. What would be anyone elses opinion or advice on how or when I should go for another job at this point?, and if I should tell my next boss about my condition.Email is RClarke54@hotmail.com, just let me know when you can as I am all ears at this point. Thanks. |
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Sue!!...you cant be fired because of a disability
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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KMT
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Re: Letter to Employers & Colleagues
« Reply #15 on: Jun 18th, 2005, 10:06pm » |
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Quote:| What would be anyone elses opinion or advice on how or when I should go for another job at this point?, and if I should tell my next boss about my condition.Email is RClarke54@hotmail.com, just let me know when you can as I am all ears at this point. Thanks. |
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They can't fire you for this.....
If you tell them in the interview they will come up with some reason why they couldn't hire you.
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aka...................................................... KimY
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sean0
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Re: Letter to Employers & Colleagues
« Reply #16 on: Jun 28th, 2005, 8:45pm » |
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Excellent letter. This is the first time I have seen the syndrome explained so clearly and succinct.
It will come in handy.
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Kirk
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Re: Letter to Employers & Colleagues
« Reply #17 on: Jul 7th, 2005, 8:40pm » |
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Is that letter in a different format someplace? Like a PDF?
Thanks
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drivin_blind
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Re: Letter to Employers & Colleagues
« Reply #18 on: Jul 19th, 2005, 2:29pm » |
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What an excellent letter. I am very fortunate to have a G.P. that is a close friend. He spent hours and hours learning everything he could about CH. back in the 80's. He's been a godsend. I've tried to explain to co-workers who are very sympathetic. This hits it on the head. Thank you!! Dick
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The true measure of a hero is when a man lays down his life with the knowledge that those he saves....will never know.
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scarmig
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Re: Letter to Employers & Colleagues
« Reply #19 on: Jul 29th, 2005, 3:28pm » |
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For those who don't have Word, I've htmled a copy onto my website.
http://www.scarmig.com/cluster.html
Feel free to use it, copy it, or link to it, though i make no guarantees on how long it will stay put.
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Jasmyn
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Re: Letter to Employers & Colleagues
« Reply #20 on: Jul 31st, 2005, 3:18am » |
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Great letter!
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Jazz
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marlinsfan
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Re: Letter to Employers & Colleagues
« Reply #21 on: Aug 18th, 2005, 8:55am » |
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So, in my company we have several employee Networks. One is the DAN, which is the network for disabled employees.
Yesterday I went through the anti-harrassment training, and in the ADA (americans with disabilities act) there is mention of severe migraines but not CH.
I approached the folks at DAN and they have asked me to write an article on CH, and I was thinking of using a shortened version of this letter.
I work for a large company, there are 4000 employees in my building alone.
Does anyone have any issues with this?
I will include the last sentence:
"Original draft of this letter written by Simon Bower for http://www.clusterheadaches.org.uk"
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Simon
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Re: Letter to Employers & Colleagues
« Reply #22 on: Aug 30th, 2005, 2:11pm » |
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All I've ever asked was that my name is on it! Just a little bit of conceit on my part. Anyone welcome to use it, and put it on websites. Good to hear that it is still having some use.
Might be worth noting that it has been translated into American....
Baa
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E-Double
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Re: Letter to Employers & Colleagues
« Reply #23 on: Aug 30th, 2005, 2:49pm » |
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Thank you always Simon!
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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bradboy
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Re: Letter to Employers & Colleagues
« Reply #24 on: Aug 31st, 2005, 3:27pm » |
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Thanks Eric. You have been such a big help to me. I just sent this to my boss and a colleague and hopefully it will help them understand as I've been forced to work from home nearly 2 weeks now.
I also called the New England Center for HeadAches as you suggested. Unfortunately they only accept 2 types of insurance and mine (blue cross blue shield) isn't one of them. I need to call my insurance company to see if they will reimburse me the $590 consulation fee and $150 visit thereafter.
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