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   Author  Topic: New and kinda scared  (Read 572 times)
Gavinouch
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New and kinda scared
« on: Jan 7th, 2008, 6:08pm »
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Hello
   My name is GAVIN   47    San Francisco
I just was diagnosed last week
I dont know what I am called yet   I havent had enough
hits
But I am just finishing an 8 hour  fun --fest
Im so glad I found this site
IM NOT ALONE!!! YAAAAAAAAA    [smiley=laugh.gifb
buckww2@aol.com
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Linda_Howell
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Re: New and kinda scared
« Reply #1 on: Jan 7th, 2008, 6:21pm »
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  Welcome Gavin,  
 
     I'm north of you in Redding.   Nope you certainly are not alone.  
 
     Can you tell us little about what the Dr. who diagnosed you has you on?  Did he give you a script for Oxygen? What  Preventatives and abortives?  
 
  Don't be scared...you will learn to control them and we  will help with any questions you may have that  come up. None of us are Dr.s here, but Collectively I can safely say we have thousands of years of experience in dealing with this.  
 
  Linda
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Re: New and kinda scared
« Reply #2 on: Jan 7th, 2008, 6:39pm »
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Dang you're as old as I am, I have a 30 year head start on the head aches though! What Linda said....
 
Tell us what medications he is giving you, what has and hasn't worked for you in the past,  and how you were diagnosed! None of us are doctors so we don't give "medical" advice, we will tell you what has and hasn't worked for us, to arm you with information to take to your doctor.
 
Also what linda said, you'll never be alone with this stuff again.!!! Welcome to the board.
 
Guiseppi
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PollyPocket
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Re: New and kinda scared
« Reply #3 on: Jan 8th, 2008, 10:28am »
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Hi Gavin, welcome to the board  hiya
 
What you're called is a clusterhead, but don't let that scare ya. You aren't alone - you're among the family of clusterheads. Let us know more about you and definitely feel free to ask questions. We're all here to help you manage and deal with this.
 
Again, welcome.
Jen
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Rosybabe
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Re: New and kinda scared
« Reply #4 on: Jan 8th, 2008, 12:23pm »
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HI Gavin!!
 
Welcome aboard!!
 
Like everyone said, you are not alone but you are among friends now  Smiley.
 
Wishing you lots of pain free time!!
 
        Rosy.
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Re: New and kinda scared
« Reply #5 on: Jan 9th, 2008, 6:04pm »
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I thought I had a bad toothach at first
But it would compleaty go away---just like that
I was on the phone with my doc. talking about anouther matter    and   bang   I got a hit
I told her what was going on  
She ----  right off the bat----- said cluster headaches
I went in the next day----and while i was talking to her
My lower jaw started to ache     onnnnnnnn tooo
my teeth   she put me on O2
bam went away
Im still new to this I can count my bad days on 2 hands
I guess its wait an see     oh boy
I take imitrex nasal spray--I dont think it works
BUT BUT BUT    3 glasses of wather HAS
Stopped it 3 times now     try it
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thebbz
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Re: New and kinda scared
« Reply #6 on: Jan 9th, 2008, 10:48pm »
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Three glasses of water...where's the can?
Imitrex N/S is too slow and doesn't work all that well. Try the injectors and 02. Or just 02
all the best
thebb  aka: scared shitless of CH
Edit: Dont be scared. CH will not kill you. Hang tough.
« Last Edit: Jan 9th, 2008, 10:50pm by thebbz » IP Logged

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Re: New and kinda scared
« Reply #7 on: Jan 10th, 2008, 9:12am »
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Hi Gavin!
 
Welcome to the family!!  Sorry it is under the circumstances that we all share though.  Try to share as much info with us as you can and ask as many questions as you can think of so we can help you out as much as possible.  This is a great support group here and without everyone here I dont know what I'd do.
 
I wish the best for you and many Blessings to you!
 
Tess
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imfareware
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Re: New and kinda scared
« Reply #8 on: Jan 14th, 2008, 9:42am »
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Hello!  Welcome, these people are great here.  When your free check out some of the links that are here.  I've had these demons for over 20 years and this site has helped answer some questions that I had.
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Gavinouch
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Re: New and kinda scared
« Reply #9 on: Jan 14th, 2008, 1:42pm »
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Hi Everybody
    Just leting you know how the newbi is doing
I havent had a hit since my 8hr  14 hits day in hell
8 days ago
Iv managed  to stop 5 attacks with water
As soon as I feel the pain start in my lower jaw
3 glasses of cool tap water
God I hope im done with this for awhile
Every little pain-------Oh no!!!!  here he comes!!!!
Anyway    tell me how you are doing
       GAVIN ouch
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imfareware
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Re: New and kinda scared
« Reply #10 on: Jan 14th, 2008, 3:08pm »
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Hey dude hang in there.  Put ice on it also!
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