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Topic: Superdave New Cronic Guy (Read 392 times) |
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Superdave
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Superdave New Cronic Guy
« on: Feb 10th, 2008, 9:27pm » |
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After 5 yrs, 5 different Medical Doctors, at least 10 Witch Doctors 1 divorce, 10 lbs. of zanex and lots and lots of headaches I've finally found you guys. Bitter sweet I must say, reality runs rampid here, at least I'm not alone in this thing anymore.
Please to meet you'all Superdave here, Cronic cluster headache sufferer of 5 1/2 years. 
You mean just in my head?
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Wow! you mean it's just in my head?
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DennisM1045
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One wave at a time!
  
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Re: Superdave New Cronic Guy
« Reply #1 on: Feb 10th, 2008, 9:44pm » |
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Welcome to your 2nd home Dave. Glad you found your way here. I'm sorry you had to.
What else have you tried for meds Dave? What to you use to abort a headache? What preventatives are you using?
I'm episodic and my heart goes out to you chronic guys. I don't know how you do it.
Anyway, welcome. Let us know how we can help.
-Dennis-
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Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
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Guiseppi
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Re: Superdave New Cronic Guy
« Reply #2 on: Feb 10th, 2008, 10:41pm » |
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Welcome to the nut house! What Dennis is saying, when you get a chance, let us know what meds you have tried, what's worked and what hasn't. There is a combined Gazillion years of experience on this board. Maybe we can tweak your routine to give you some relief.
Sorry you're hurting, we don't like when anyone is hurting, give us a chance to help you out!!!!
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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Superdave
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Re: Superdave New Cronic Guy
« Reply #3 on: Feb 10th, 2008, 10:48pm » |
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Thanks for welcoming me Dennis. Its been quite a time over these last few years of being misdiagnosed mismedicated and blown off by nuorologist who become frustrated by my unknown condition. Its so amazing how these Doctors who claim to be headache specialist
can't recognize a cluster patient.
Any way I subdued the beast for years with valume zanex and soma, pretty much anything I could get my hands on to knok me out cold through the night. I was able to keep working but don't remember a thing 
This past summer I found the right guy, He loaded me up with the usual verapamil, cafergot and steroids to give me 7 weeks of relief. After the those meds ran out
the beast was back in his usual form, basicly when I needed rest. Now they have me on sansert and migrainal. Told me to give about 3 months to take hold,
Its been about 9 weeks and I'm still batteling daily. Hard to say if it's doing any good at this point but at least I can remember yesterday! The migrainal works about 75% of the time but my nose really dose'nt seem to like it much, I get a lot of congestion after a good spray. And yes I will be at my local welding supplier tomorrow morning.
Wow!, it is so refreshing to converse with people about this monster that actually know what I mean. 
Thaks Again Dennis
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Wow! you mean it's just in my head?
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Guiseppi
CH.com Alumnus
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Re: Superdave New Cronic Guy
« Reply #4 on: Feb 10th, 2008, 10:51pm » |
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OXYGEN....OXYGEN...OXYGEN!!!!!!!
You'll hear that a lot around here! 
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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Superdave
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Re: Superdave New Cronic Guy
« Reply #5 on: Feb 10th, 2008, 10:55pm » |
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Thanks Guiseppi,
I knew this cch bs would eventually wind me up in the nuthouse, I'm just glad the nuthouse is in my office @ home. Yea!!! 
You really think it's just in my head?
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Wow! you mean it's just in my head?
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Bob_Johnson
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Re: Superdave New Cronic Guy
« Reply #6 on: Feb 11th, 2008, 8:05am » |
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For chronic CH, Lithium has become a first round med of choice. Oxygen may be less effective for chronic, according to one authority.
This is the most current list of therapies:
http://www.plainboard.com/ch/chtherapy.pdf
Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)
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Bob Johnson
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