Author |
Topic: ........UPDATE.......HEARTFELT THANKS... (Read 1886 times) |
|
debOUCH
New Board Veteran
..i think to myself, it's a wonderful world..
Gender: 
Posts: 211
|
 |
........UPDATE.......HEARTFELT THANKS...
« on: Mar 24th, 2008, 9:27am » |
 Quote  Modify
|
My last big hits, were Friday March 14, all nite, every 2 hrs, 8-9 on KipSacale........ with a Level 7 @ 6am on March 18, and a Level 5 on March 21 @ 9pm..........i am getting shadows, but they "seem" to be getting milder.....Pred taper ending today.....I am taking 10mg of Elavil @ bedtime, which seems to giving me some much needed sleep, tho some evenings i am restless..............2nd neuro appt today @ 1.........I am going to ask for some prescriptions, just in case, tho i am hoping & praying my first bout with the Beast is over...........I want to once again thank all of you wonderful people for your support and much needed information............i NEVER could have done it without you...........................you are all appreciated more than you will ever know.................... 
deb
xo
|
|
 IP Logged |
|
|
|
Guiseppi
CH.com Alumnus
New Board Hall of Famer
Gender: 
Posts: 2703
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #1 on: Mar 24th, 2008, 10:07am » |
Quote Modify
|
That's awesome Deb, anybody beats the beast we all win! Now stick around and help the next clueless soul that shows up here wondering why their eye is trying to pop out of their skull! 
Joe
|
|
IP Logged |
Why are all sensors, seeking intelligent life, pointed AWAY from earth?
|
|
|
debOUCH
New Board Veteran
..i think to myself, it's a wonderful world..
Gender:
Posts: 211
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #2 on: Mar 24th, 2008, 10:12am » |
Quote Modify
|
without a doubt, joe!!!!!
|
|
IP Logged |
|
|
|
DennisM1045
New Board Hall of Famer
One wave at a time!
  
Gender:
Posts: 1639
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #3 on: Mar 24th, 2008, 8:47pm » |
Quote Modify
|
Hi Deb,
I'm glad to hear you seem to be finding your way out of the woods. Stick around... I like the sound of your thoughts here 
-Dennis-
|
|
IP Logged |
Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
|
|
|
LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
Gender:
Posts: 11720
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #4 on: Mar 25th, 2008, 9:38am » |
Quote Modify
|
I hope it IS the end of your cycle Deb and I hope you never have another  I also hope you stick around 'cos I'm enjoying getting to know you!
PF wishes winging their way to you
Helen
|
|
IP Logged |
The arsehole I'm divorcing needs to get a life and stop stalking mine
|
|
|
debOUCH
New Board Veteran
..i think to myself, it's a wonderful world..
Gender:
Posts: 211
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #5 on: Mar 25th, 2008, 9:54am » |
Quote Modify
|
i am not going anywhere, helen! i 2, am enjoying getting to know u as well as others on here!! i so love to read your posts as well as viewing your awesome pic's of homemade goodies!!! you are absolutely a wonderful "ray of sunshine" on this website!! PF wishes coming your way.......NOW..
deb
|
|
IP Logged |
|
|
|
Superdave
New Board Veteran
Gender:
Posts: 128
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #6 on: Mar 25th, 2008, 4:54pm » |
Quote Modify
|
I'm so happy you made it through Deb
Pain Free Living from now on.............
Superdave
|
|
IP Logged |
Wow! you mean it's just in my head?
|
|
|
CostaRicaKris
New Board Veteran
Currently training for AFC half Marathon
Gender:
Posts: 179
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #7 on: Mar 25th, 2008, 10:10pm » |
Quote Modify
|
Hi Deb,
I haven't had the chance to get to know you yet but hopefully I will. I totally understand where you are coming from. I joined this site in Sept of last year when I came out of a four year remission. I started feeling better a few months later and dropped off, but the beast came back a few weeks ago and so did I and I've realized how much I've missed all the great people here. I'm sorry you've been in such pain and I hope you will have some relief soon 
|
|
IP Logged |
Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
|
|
|
debOUCH
New Board Veteran
..i think to myself, it's a wonderful world..
Gender:
Posts: 211
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #8 on: Mar 28th, 2008, 7:37pm » |
Quote Modify
|
costaricakris!!! tks for the sweet words...i c u r from san diego, love it there! also, i guess u like costa rica!! i have been there 2 & loved it!!! i have not had a hit, shadows almost gone..................if i didnt find this site i dont know what i would have done.it was meant to b!!!!
|
|
IP Logged |
|
|
|
KatzPurr
New Board Newbie
10+ OUCH!
 
Gender:
Posts: 43
|
 |
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #9 on: Mar 28th, 2008, 8:54pm » |
Quote Modify
|
Doin' the happy dance for you right now Deb! Thanks for sharing such awesome news. There is nothing greater than hearing a fellow sufferer is PF. I hope the Beast never comes knocking on your door again! I celebrate your Victory with you!
|
|
IP Logged |
KatzPurr's Purrrrrrr Palace
http://www.myspace.com/jlabax
|
|
|
debOUCH
New Board Veteran
..i think to myself, it's a wonderful world..
Gender:
Posts: 211
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #10 on: Mar 28th, 2008, 9:07pm » |
Quote Modify
|
tks katzpurr!!! i hope so too, tho gettin some shadows, but trying to stay positive!!! all u peeps r so sweet! i dont know what i would do without! it's so nice to have others who understand cuz most are so damn ignorant!
deb
|
|
IP Logged |
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #11 on: Mar 28th, 2008, 9:13pm » |
Quote Modify
|
But "ignorant" doesn't mean stupid. It simply means they don't know. It then becomes incumbent upon us to educate - and not with an iron fist.
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
debOUCH
New Board Veteran
..i think to myself, it's a wonderful world..
Gender:
Posts: 211
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #12 on: Mar 29th, 2008, 8:50am » |
Quote Modify
|
brewcrew, possibly you may be able to guide me on how to educate those who are not aware of what CH is..........i would say that @ least 1/2 of the people in my life, whether be friends or family, are very quick to dismiss and even after explaining a bit, giving them the OUCH description of a CH, are quick to dismiss,,,,,,,,,,,,,,my Winemaker told me yesterday it is probably PSYCHOSOMATIC!!!!  and also the instances with my nose ring is the cause, and i need a colon cleansing! I have even lost a a friendship with a woman who i THOUGHT was a good friend............thanks!
deb
|
|
IP Logged |
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #13 on: Mar 29th, 2008, 10:01am » |
Quote Modify
|
Best way I know - print this letter, make multiple copies, and give them to anyone and everyone who needs to be educated:
http://www.ouch-us.org/chgeneral/colleagueletter.htm
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
DennisM1045
New Board Hall of Famer
One wave at a time!
Gender:
Posts: 1639
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #14 on: Mar 29th, 2008, 2:31pm » |
Quote Modify
|
Ya know Deb... some people just aren't going to get it. They might mean well and by making suggestions within the scope of their experience they are probably really trying to help. Unfortunately they just end up trying your patients instead.
I find it best to only discuss what is going on with those that either witness an attack or are likely to witness an attack. I'm not sure your Winemaker qualifies within that narrow definition.
While it can be difficult to keep such a devistating condition to a small circle of those that are understanding and in a position to help but, in my experience at least, it is far less stressful.
Some people just can't deal with the fact that there are problems for which there are no easy answers.
-Dennis-
|
|
IP Logged |
Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
|
|
|
CostaRicaKris
New Board Veteran
Currently training for AFC half Marathon
Gender:
Posts: 179
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #15 on: Mar 29th, 2008, 4:44pm » |
Quote Modify
|
on Mar 28th, 2008, 7:37pm, debOUCH wrote:| costaricakris!!! tks for the sweet words...i c u r from san diego, love it there! also, i guess u like costa rica!! i have been there 2 & loved it!!! i have not had a hit, shadows almost gone..................if i didnt find this site i dont know what i would have done.it was meant to b!!!! |
|
Yes, I'm a San Diego native and it's a great place but as my screen name suggests, my idea of paradise is a bit further south.
I'm so glad you're feeling better!
|
|
IP Logged |
Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
|
|
|
CostaRicaKris
New Board Veteran
Currently training for AFC half Marathon
Gender:
Posts: 179
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #16 on: Mar 29th, 2008, 4:46pm » |
Quote Modify
|
on Mar 29th, 2008, 8:50am, debOUCH wrote:| my Winemaker told me yesterday it is probably PSYCHOSOMATIC!!!! |
|
You have your own Winemaker?
Can I come live with you?
|
|
IP Logged |
Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
|
|
|
debOUCH
New Board Veteran
..i think to myself, it's a wonderful world..
Gender:
Posts: 211
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #17 on: Mar 29th, 2008, 10:16pm » |
Quote Modify
|
haha.costarica chris!! best laff of day!  i am a Tasting Room Mgr @ a Vineyard, and the Winemaker makes our wines..........i do refer to him as mine!! sure, come on out east!! i do have an awesome hook up!! brewcrew, i did make copies of that letter as soon as joined site........some peeps care, some dont...wateva .....dont care any more, dont need them..i guess in instances like this, you find out who has your back.................dennis....... my winemaker really should be aware, for if i do have a CH @ work, he may have to cover........my GM and Vineyard Mgr are extremely understanding, as well as my staff........and i spend most of my days there..............my children are aware, my good friends,.......... that is it.........i dont advertise, dont want sympathy, hell! dont need no one else if i have my fellow clusterheads on here , right!!!! it's all GOOD................................ 
|
|
IP Logged |
|
|
|
DennisM1045
New Board Hall of Famer
One wave at a time!
Gender:
Posts: 1639
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #18 on: Mar 30th, 2008, 12:58pm » |
Quote Modify
|
Sorry Deb! Didn't realize that you worked with the winemaker  That puts him in the circle that needs to know.
-Dennis-
|
|
IP Logged |
Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
|
|
|
debOUCH
New Board Veteran
..i think to myself, it's a wonderful world..
Gender:
Posts: 211
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #19 on: Apr 4th, 2008, 10:04pm » |
Quote Modify
|
ya ok.................."THE BEAST CAME FOR A ------ VISIT" ....1 week, nothing, shadows all this week, just didnt feel "right".....kinda had the feeling something up.................not 2 bad, like a 5, WTF..........he's messing with the wrong damn person.........i am fuming.................k, thanks...ahhhhhhhhhhhhhhh....feel better.......................................
|
|
IP Logged |
|
|
|
Superdave
New Board Veteran
Gender:
Posts: 128
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #20 on: Apr 4th, 2008, 10:33pm » |
Quote Modify
|
Don't sweat it Deb, your well armed now, and you know wer'e thinking about you
PF vibes your way girl......ooooo
|
|
IP Logged |
Wow! you mean it's just in my head?
|
|
|
debOUCH
New Board Veteran
..i think to myself, it's a wonderful world..
Gender:
Posts: 211
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #21 on: Apr 5th, 2008, 8:17am » |
Quote Modify
|
so like, am i beginning another cycle or still in the same one!!!!!!!!!!
|
|
IP Logged |
|
|
|
LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
Gender:
Posts: 11720
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #22 on: Apr 5th, 2008, 8:54am » |
Quote Modify
|
Hi Deb, unless you have had 28 days pain free then it isn't a new cycle, it's the same one.
I hope that helps, I hope it IS all over soon for you too (HUG)
Helen
|
|
IP Logged |
The arsehole I'm divorcing needs to get a life and stop stalking mine
|
|
|
debOUCH
New Board Veteran
..i think to myself, it's a wonderful world..
Gender:
Posts: 211
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #23 on: Apr 5th, 2008, 8:57am » |
Quote Modify
|
tks helen.another thing u just taught me........................gta go to work!!!
deb
xo
|
|
IP Logged |
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #24 on: Apr 5th, 2008, 9:05am » |
Quote Modify
|
glad u had a break but bumbed it is still around...hang in there and call me if needed you have my number
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss