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        Cluster Headache Help and Support >> Getting to Know Ya >> New to CH.com
        
(Message started by: AtomicTwinStix on Mar 24^th, 2008, 11:02pm)

Title: New to CH.com
Post by AtomicTwinStix on Mar 24^th, 2008, 11:02pm

Wow...so glad I found this website! And just in the nick of time. I just finished a cycle about 2 weeks long with at least 2 headaches a day lasting anywhere from 30 minutes to more than 4 hours. Very persistent......8pm every day.

Glad to be here. Hope to meet some great folks, get some advice/help, and maybe offer some of my own.

Title: Re: New to CH.com
Post by thebbz on Mar 24^th, 2008, 11:05pm

Welcome,
Houdy from Montany.
thebb 8)

Title: Re: New to CH.com
Post by DragonSlayer on Mar 25^th, 2008, 12:25am

Hey Atomic [smiley=wave.gif]

So sorry you came looking But damn glad you found us!

Welcome to the Clusterville Nuthouse [smiley=grin2.gif].

What have you used for treatment so far??

I'm always interested to hear what works for others.

Again Welcome! There is alot of info here pull up a chair and read... Read... Read...

Title: Re: New to CH.com
Post by Guiseppi on Mar 25^th, 2008, 10:12am

And I too am glad you found us! What dragon boy said. Let us know what you've used in the past, what has and hasn't worked etc. This board is all about sharing info and helping each other out. Here's hoping that was your last cycle ever! (I know but we're a damned optimistic bunch! ;))

Guiseppi

Title: Re: New to CH.com
Post by Rosybabe on Mar 25^th, 2008, 1:11pm

Welcome Home Atomic!!

now grab and oar and row!!!

pain free wishes!!

Rosy.

Title: Re: New to CH.com
Post by George_J on Mar 25^th, 2008, 7:16pm

Big welcome from Idaho, ATS.

It's a pleasure to meet you.

Best wishes,

George

Title: Re: New to CH.com
Post by Batch on Mar 25^th, 2008, 8:19pm

ATS,

Welcome to CH.com... Yer are down in the same neck of the woods as ClusterChuck. If you want to meet a fellow CH'er face to face and discover the other world we share, he's in the book. Shoot him a PM with your POC info. He's busy as a beaver, but I'm sure he'll find a way to make time for a meet.

V/R, Batch

Title: Re: New to CH.com
Post by AtomicTwinStix on Mar 25^th, 2008, 9:35pm

Thanks to everyone for the welcome....

As far as treatment...I have not gone the medication route as of yet because my cycles are so randomly spaced apart. I guess in the beginning I thought it was something I'd just have to deal with. And I got sick and damn tired of hearing people with migraines compare their condition to mine. Don't get me wrong, I feel for those folks too, but they just don't know.

Let's see....homegrown treatments that have worked in the past...(worked on some occasions, didn't in others)

Medium warm shower (sitting down with head between knees), and letting water cascade on my head

Water....tons and tons of water during cycles.....since my headaches are typically triggered by alcohol during cycles, I try to avoid it at all costs....I do love a cold beer though :)

My headaches are typically centered on the right side of my head, and originate behind my eye, gradually taking over the entire right side of my face and head. I've found that in some cases, squeezing both temples with the butt of my palms reduces some of the torment during a 8-10 Kip moment

I'd like to get some comments on "standby" medications, for when I have a cycle that lasts longer than 3 weeks

I know these "remedies" may sound stupid, but it's just what I do to cope. It varies sometimes for me.....being on my feet is sometimes better than being in the bed. Or sitting in a recliner with no lights or noise. I'd like to hear what others have to contribute...

Title: Re: New to CH.com
Post by thebbz on Mar 25^th, 2008, 9:53pm

http://www.plainboard.com/ch/chtherapy.pdf
O2 and coffee is a good standby , for aborts. My prevents are secret. :D Pick your poison
all the best
thebb

Title: Re: New to CH.com
Post by Guiseppi on Mar 25^th, 2008, 10:48pm

With such a short cycle the preventative meds probably wouldn't help much. Most take about 2 weeks to build up to a therapeudic level.

Bzz mentiioned oxygen, it should be your first line abortive. My cycles last 8-12 weeks, been doing battle for 30 years and oxygen is still my most consistent weapon. Read the link on the left, I can be pain free in as few as 6-8 minutes using only oxygen. The key points:

Pure oxygen, at a high flow rate, at least 15 LPM, from a non re breather mask, started at the first hint of an attack. Read the link on the left, oxygen info, for more details.

Try slamming an energy drink at the first hint of an attack, Monster, Rock Star, any containing the combo of caffeine and taurine, many can abort or substantially reduce an attack that way.

So glad you found us, I hope we can help you!

Guiseppi

Title: Re: New to CH.com
Post by CostaRicaKris on Mar 25^th, 2008, 11:01pm

on 03/25/08 at 21:35:18, AtomicTwinStix wrote:

Let's see....homegrown treatments that have worked in the past...(worked on some occasions, didn't in others)

Medium warm shower (sitting down with head between knees), and letting water cascade on my head

squeezing both temples with the butt of my palms reduces some of the torment during a 8-10 Kip moment

I know these "remedies" may sound stupid, but it's just what I do to cope. It varies sometimes for me.....being on my feet is sometimes better than being in the bed. ..

Those don't sound stupid to me at all. I've been known to do the same thing. Especially before I knew what I was dealing with.
~Kris

Title: Re: New to CH.com
Post by Callico on Mar 28^th, 2008, 7:16pm

Welcome aboard! We have a couple of other clusterheads in Greenville. Used to live there myself back in the 70's.

Jerry

Title: Re: New to CH.com
Post by KatzPurr on Mar 28^th, 2008, 10:40pm

Welcome ATS! You will find a wonderful group of supporters here. I've only been posting and reading here for a few weeks and the information on these boards has been invaluable. The best suggestion was for me to re-visit the whole O2 option, which has proven to be a godsend thus far. I've only been using it for two days, but man has it made a huge difference in aborting my hits. Many times my ch will begin with a more migraine type ha evolving into a full blown cluster and the O2 has kept those at bay too.