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Title: CH medical articles Post by thsa/simon on Mar 29th, 2003, 10:13am Hey all, Am just curious, several weeks ago I suggested using peer-review articles to take to your doctors that discuss CHs in better detail than the medical textbooks. Do you all want references or do you think that this will not help? I have a very good article from a Neuroscience magazine from a doctor that has clusters just like I do. He states, among other things, that clusters 'are the most painful headache syndrome know to humans' and that imetrex may be needed several times a day over several weeks to months. Such information might be useful to you in dealing with docs. If you all wish, I will try to post all that I can find that I think are helpful. let me know simon |
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Title: Re: CH medical articles Post by Frank on Mar 29th, 2003, 10:30am Those articles are helpful, many times are necessary... and may be mandatory in dealing with doctors and insurance companies. Post whatever you've got... at least abstracts. They should include source info (journal name, volume, issue, page#s). You might want to ask DJ about posting full text articles due to concerns about copyright laws. |
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Title: Few more leads to medical info. Post by Bob_Johnson on Mar 31st, 2003, 7:48am We all fuss about the lack of research on CH compared to migraine, and be right in doing so. The reality, however, is that the money goes where the need is and clusterheads are (may we be grateful?) in a distinct minority. I'm listing this information because it represents an extraordinary compilation and review on research on the treatment of migraine--ABORTIVE & PREVENTATIVE MEDICATIONS, AND NONMEDICAL TREATMENTS. For those who are seriously into medical information, this material may lead to a more rational selection of treatments. Go to: www.aan.com (Americn Academy of Neurology) or www.neurology.org; look for button on "guidelines". Be prepared: the section on abortive MEDS. alone is 58-pages! "Cluster headache", Au. Ninan T. Mathew, MD, NEUROLOGY, 42 (Suppl 2), March 1992. I believe the best single article to give to your doc around questions of diagnosis and treatment. "Management of cluster headache:an American view", Au: Lee Kudrow, MD, HEADACHE QUARTERLY, 1:1 (57-63), 1990. Somewhat dated but most of the information still relevant. "Treatment of cluster headache in Europe", Au. Karl Ekbom, MD; HEADACHE QUARTERLY, 1:1 (65-70), 1990. Ekbom is one of the big names in European research. "Prophylactic therapy of cluster headache", Au: Seymour Solomon, MD, CLINICAL NEUROPHARMACOLOGY, V.14, #2, 116-130, 1991. Re. special needs of women. Both of these in HEADACHE QUARTERLY, Vol X, #2, 1991: "Women and headaches:a comprehensive approach", p. 31-36. "Special considerations in the management of headache in women", p. 37-43. The last one focuses on role of hormones in headache and how medications must be altered. Rebound headaches. "Rebound Headaches--A Review", Au. John S. Warner, M.D., in HEADACHE QUARTERLY, 10:3(1999). (There is some confusion on the board about the meaning of "rebound". There appears to be an emerging consensus in the medical literature to define "rebound" as a headache which is caused by the overuse of any medication used to abort a headache or relieve pain. "Recurrence" [of a headache] is being used to refer to the redevelopment of an attack when its "normal" duration is longer than the useful life of the medication which has been taken. That is, the medication effectiveness is reducing before the headache has come to an end; the pain redevelops.) ---------------------------------------------------------------------------------------- BOOKS Doing a search using "headache" on Amazon.com will get you 200+ titles! Seymour Diamond, MD, has a new title aimed at the patient; L. Robbins, MD has a new edition for physicians (see www.headachedrugs.com) and a consumer oriented edition containing much of the same material. But this long list is worth exploring--with care and selectivity. There are many others available but often high priced. I've listed a few at reasonable price. HEADACHE IN CHILDREN AND ADOLESCENTS. Eds: Paul Winner & David Rothner. Hamilton, Ontario: BC Decker, Inc., 2001, $69.95. A review of this book was very favorable, identifying the editors as recognized experts in working with children and adolescents. (I have not seen the book.) HANDBOOK OF HEADACHE, Ninan T. Mathew, M.D. & Randolph W. Evans. Suggest that you do NOT buy this one. As much as I appreciate Mathew's writings on CH this volume is only for physicians or people deeply steeped in medical knowledge. TAKING CONTROL OF YOUR HEADACHE, revised ed, Paul Duckro, et al, The Guilford Press. Aimed at patients and includes a strong focus on the value of stress/cognitive control in addition to medical treatment. HANDBOOK OF HEADACHE MANAGEMENT, 2nd ed., Au. Joel Saper, MD, 1999, Lippincott Williams & Wilkins. A highly condensed volume for doctors but good for "advanced" clusterheads who have a grasp of medical terminology and medications. Covers all types of headache with the section on cluster being brief. Sections on general considerations in treatment and on medications are important. MANAGEMENT OF HEADACHE AND HEADACHE MEDICATIONS, 2nd ed. Lawrence D. Robbins, M.D.; pub. by Springer. $49 at Amazon.Com. This volume is better organized and easier to read for nonprofessionals compared to Saper's book. It covers all types of headache and is primarily focused on medications. While the two chapters on CH total 42-pages, the actual relevant material is longer because of multiple references to material in chapters on migraine, reflecting the overlap in drugs used to treat. I'd suggest reading the chapters on migraine for three reasons: he makes references to CH & medications which are not in the index; there are "clinical pearls" about how to approach the treatment of headache; and, you gain better perspective on the nature of headache, in general, and the complexities of treatment (which need to be considered when we create expectations about what is possible). Finally, women will appreciate & benefit from his running information on hormones/menstrual cycles as they affect headache. Chapter on headache following head trauma, also. Obviously, I'm impressed with Robbins' work (even if the book needs the touch of a good editor!) (Somewhat longer review/content statement at 3/22/00, "Good book....") HEADACHE HELP, Revised edition, 2000; Lawrence Robbins, M.D., Houghton Mifflin, $15. Written for a nonprofessional audience, it contains almost all the material in the preceding volume but it's much easier reading. Highly recommended. |
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Title: Re: CH medical articles Post by Bob P on Mar 31st, 2003, 8:16am You can also try the OUCH Research Library, http://www.clusterheadaches.org/library/index.htm I've had to remove a few articles at the request of the author but it's still a pretty good collection. I have 100's more that I need to index and add to the collection. I may try to paraphrase them to avaoid the copywrite hassle. |
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Title: Re: CH medical articles Post by catlind on Mar 31st, 2003, 8:28am Excellent compilation BobJ!!! Thank you very much for your work! Cat |
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Title: Re: CH medical articles Post by Mark C on Mar 31st, 2003, 8:47am |
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Title: Re: CH medical articles Post by fubar on Mar 31st, 2003, 9:43am Very nice. Any chance we could make this a sticky thread... keep it up top? DJ? -Fu |
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Title: Re: Few more leads to medical info. Post by Roxy on Mar 31st, 2003, 9:46am on 03/31/03 at 07:48:06, Bob_Johnson wrote:
I knew my doctor was informed about ch's, but I didn't realize he had written this article. Thanks Bob, Tracey |
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