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Topic: Kudzu Survey - First Week (Read 22780 times) |
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floridian
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Some people have recently reported good results using the herb kudzu to prevent cluster headaches (it is a traditional treatment for migraine as well).
This post is a quick survey for people who have taken Kudzu for atleast a week, or took it for up to a week and then stopped. Please DO NOT post general discussion in this thread, except when filling out the survey - others threads exist for that (see http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action= display;num=1107368408).
If you are taking kudzu and it has been less than a week, please wait until you either make it to a week, or decide to stop. If you have taken kudzu for more than a week, try to answer these questions from your experiences for the first 7 days after you started.
Also, please consider registering for CHATS if you haven't done that already. This quick survey is not a substitute for the CH data that can be gathered through CHATS.
The easy way to respond to this is to hit the 'quote' option for the post below with the questions - it will copy all the questions into a new post, and you can add your answers.
Thanks, Jonathan
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| « Last Edit: Mar 12th, 2005, 11:58am by floridian » |
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floridian
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Re: Kudzu Survey - First Week
« Reply #1 on: Feb 28th, 2005, 9:07pm » |
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1) Your Age
2) Your Gender
3) Are you Episodic or Chronic?
4) How many years have you had cluster headaches?
5) If episodic, how many cycles in a typical year, what time of year, and how long?
6) If episodic, how many weeks into a cycle did you start on kudzu?
7) If chronic, how long have you been chronic?
8) What brand of kudzu do you use?
9) What dose did you take during the first 24 hours that you started on kudzu?
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur?
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc.
15) Have you noticed any side effects? If so, what are they?
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant).
16) Are there other observations, comments or questions that you would like to add??
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| « Last Edit: Feb 28th, 2005, 9:07pm by floridian » |
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clarence
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Re: Kudzu Survey - First Week
« Reply #2 on: Feb 28th, 2005, 10:44pm » |
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1) Your Age - 28
2) Your Gender - Male
3) Are you Episodic or Chronic? - Episodic
4) How many years have you had cluster headaches? - 4
5) If episodic, how many cycles in a typical year, what time of year, and how long?
About 2/year, spring and fall. Until this last cycle they were 4-6 weeks. This last cycle started 1 August 2004 and has continued to the present, with peaks within the cycle.
6) If episodic, how many weeks into a cycle did you start on kudzu? - 6 1/2 months
7) If chronic, how long have you been chronic? - N/A
8) What brand of kudzu do you use? - Solaray
9) What dose did you take during the first 24 hours that you started on kudzu?
2 pills the first 24 hours, one in the morning, one in the evening.
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur?
There was limited relief from the start. I was able to sleep through the night. Daytime hits were dull and muted. Mostly feeling like shadows. The relief increased. There was a minor setback on day 5 when I had a beer, and it triggered some more severe CH's. I upped the dose to 3 pills a day, and have been experiencing considerable relief. Today is day 12.
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
7
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
5 - but I really think that beer screwed me up.
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
7
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc.
At the beginning I was on Verapamil - 320mgs/day (160 2X). I have now tapered down to 240 mgs, soon to be 160. No change since tapering the verap. I also take a multi-vitamin for men from GNC in the morning, and a B complex vitamin in the evening.
Also, I take 20mgs/day Prozac for depression
15) Have you noticed any side effects? If so, what are they?
Not really. I have had a couple of headaches that have been bad, but not CH's. Dual sided headaches, centered in the temples and across forehead. Aborted with Midrin, which does nothing for my CH. Wether that is from the Kudzu, from tapering the Verap, or just other headaches I have I really don't know.
I have also been very tired. Again, I don't know if it is from the Kudzu, or if it is because my body is adjusting to the new amount of sleep it is getting.
Edited to say: My BP may have dropped a little bit. After a few days on Kudzu I began to feel a little light headed and short of breath when I slept at night. Symptoms similar to when I was on 480 mgs of Verap, and I am sure my BP dropped then. As I have tapered the Verap, this effect has begun to disappear.
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant).
0-1
16) Are there other observations, comments or questions that you would like to add??
One thing that raises a question for me is the dosage. Some people here have posted that they take a blend which is like 750 mgs. Mine say Kudzu extract, 150mg, 2% daidzin. On the back of the bottle it lists Kudzu root - 165mg; Kudzu root extract 150mg, of which is guaranteed 2% daidzin. When asking about the dosage, is it more accurate to ask about the "active" ingredients? I wonder because I have found significant relief with this mixture, which could be construed as a much smaller dosage than say, the brand taken by nani which is something like 750 mgs. Is it better to speak of the amount of Kudzu in the mixture rather than the size of the actual pill?
Thanks,
Casey
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| « Last Edit: Feb 28th, 2005, 10:48pm by clarence » |
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nani
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Re: Kudzu Survey - First Week
« Reply #3 on: Feb 28th, 2005, 11:10pm » |
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on Feb 28th, 2005, 9:07pm, floridian wrote:1) Your Age 47
2) Your Gender F
3) Are you Episodic or Chronic? Chronic
4) How many years have you had cluster headaches? 32
5) If episodic, how many cycles in a typical year, what time of year, and how long?
6) If episodic, how many weeks into a cycle did you start on kudzu?
7) If chronic, how long have you been chronic? 4.5 years
8) What brand of kudzu do you use? Planetary formulas Kudzu Recovery
9) What dose did you take during the first 24 hours that you started on kudzu? 750 mg/ day (edited to correct mistake - again)
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur? 24 hours later
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)? 9
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc. Verapamil, lithium. Neurontin, B Complex 50, magnesium, calcium
15) Have you noticed any side effects? If so, what are they? none
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant). 0
16) Are there other observations, comments or questions that you would like to add?? no
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| « Last Edit: Mar 1st, 2005, 3:44pm by nani » |
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Shiraj
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Re: Kudzu Survey - First Week
« Reply #4 on: Mar 1st, 2005, 12:14am » |
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on Feb 28th, 2005, 9:07pm, floridian wrote:1) Your Age
21
2) Your Gender
Male
3) Are you Episodic or Chronic?
Episodic
4) How many years have you had cluster headaches?
7
5) If episodic, how many cycles in a typical year, what time of year, and how long?
1 cycle every year during winter. Usually 4-6 weeks.
6) If episodic, how many weeks into a cycle did you start on kudzu?
Started near the first week into it
7) If chronic, how long have you been chronic?
8) What brand of kudzu do you use?
Planetary Formulas
9) What dose did you take during the first 24 hours that you started on kudzu?
2 750 MG tablets
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur?
I got clusters at night after the second day of taking the kudzu. Before that they were only coming during the day
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
8
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
9.5 (Just some shadows now)
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
10
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc.
9mg of melatonin at night
15) Have you noticed any side effects? If so, what are they?
No side effects noted
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant).
0
16) Are there other observations, comments or questions that you would like to add??
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ozzy
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Re: Kudzu Survey - First Week
« Reply #5 on: Mar 1st, 2005, 9:12am » |
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1) Your Age 31
2) Your Gender M
3) Are you Episodic or Chronic? Chronic
4) How many years have you had cluster headaches? 16
5) If episodic, how many cycles in a typical year, what time of year, and how long? N/A
6) If episodic, how many weeks into a cycle did you start on kudzu? N/A
7) If chronic, how long have you been chronic? 2 Years
 What brand of kudzu do you use? Nature's Plus - Each capsule: 150 mg. / 1.5% Daizen, 0.95% Daidzen
9) What dose did you take during the first 24 hours that you started on kudzu? 300 mg
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur? First night some twinges on the Trigeminal Nerve, from then on, got hit only a couple of times, mostly due to external circumstances
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
9
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
7
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
9
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc.
Men's Multivitamin, Melatonin 3mg
15) Have you noticed any side effects? If so, what are they?
No noticeable side effects
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant). 0
16) Are there other observations, comments or questions that you would like to add?? Again, like Casey said, we should all note the percentage of Daizin and Daidzin to make some sense of how much. Also as a follow up question......What is your current dose? Mine is 900 mg a day 2 caplets with each meal
Ozzy
edited to add: Kudzu did not work as an abortive on three occasions when 300 mg where taken at once. Waited approx an hour each time. At the end of the hour, i used a combination of cold water head submersion and then O2
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| « Last Edit: Mar 1st, 2005, 9:15am by ozzy » |
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Major
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Re: Kudzu Survey - First Week
« Reply #6 on: Mar 4th, 2005, 10:46am » |
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Hi - I'm a supporter - filling this out for my husband.
1) Your Age 39
2) Your Gender M
3) Are you Episodic or Chronic? Episodic so far
4) How many years have you had cluster headaches? <1 - First cycle started June/04
5) If episodic, how many cycles in a typical year, what time of year, and how long? n/a
6) If episodic, how many weeks into a cycle did you start on kudzu? 8 1/2 months
7) If chronic, how long have you been chronic?
What brand of kudzu do you use? Nature's Way Nature's Way, 613mg/1mg daidzin
9) What dose did you take during the first 24 hours that you started on kudzu? 1 cap 3x/day (note that the label said to take 2caps 3x/day. Dosage was increased on day 5)
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur? Yes - on day 7 (two days after increased dosage)
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)? 7
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc. Multivitamin. Haven't used trex since starting kudzu.
15) Have you noticed any side effects? If so, what are they? Occassional episodes of lightheadedness.
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant). 3
16) Are there other observations, comments or questions that you would like to add??
There has been a definate change in his ha pattern since starting this. He normally gets evening hits, and these have continued, but the major difference is that they are now "tolerable" - hasn't had to use 02 to abort, but has been able to ride them out. Still bad, but nowhere in comparison to what they were. They are less painful, and quite short in duration (now only about 5 minutes max). Also, he has had some shadows during the day lately which haven't happened in a long while - appears to be another change related to the kudzu.
We are trying to source another brand with more daidzin as he is a big guy.
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| « Last Edit: Mar 4th, 2005, 10:48am by Major » |
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seasonalboomer
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Re: Kudzu Survey - First Week
« Reply #7 on: Mar 4th, 2005, 11:25am » |
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1) Your Age
42
2) Your Gender
Male
3) Are you Episodic or Chronic?
Episodic
4) How many years have you had cluster headaches?
>13 years
5) If episodic, how many cycles in a typical year, what time of year, and how long?
2 cycles usually per year – 2-5 weeks per cycle
6) If episodic, how many weeks into a cycle did you start on kudzu?
1and 1/2 weeks
7) If chronic, how long have you been chronic?
N/A
What brand of kudzu do you use?
Nature’s Way
9) What dose did you take during the first 24 hours that you started on kudzu?
2-613mg capsules three times per day
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur?
Yes, the first night (after two doses)
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
10
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
7
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
7
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc. I took a couple Tylenols the first night before bed. Also stopped drinking any alcohol and stopped any vigorous exercise for a few days upon starting the Kudzu. Once HA’s stopped I picked back up on ALL activity to previous levels.
15) Have you noticed any side effects? If so, what are they?
No side effects.
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant).
0
16) Are there other observations, comments or questions that you would like to add??
I’ve been updating on the Kudzu string as to the experience I had. Again, I have some uncertainty as to whether it was the Kudzu or an abnormal cycle. I’m going with the Kudzu for now and will try it again when I get my next cycle, starting day 1 with the Kudzu as soon I get the first shadow.
I don’t believe it totally wipes out a cycle. I’m of the opinion that it is muting it. The only question that remains for me for days 8-14 is that the cycle eventually goes away completely as it normally would and that it is not holding it back to rear its head when I stop taking the Kudzu -- ultimately extending the length of the cycle.
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Re: Kudzu Survey - First Week
« Reply #8 on: Mar 6th, 2005, 11:33pm » |
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on Feb 28th, 2005, 9:07pm, floridian wrote:1) Your Age 58
2) Your Gender Female
3) Are you Episodic or Chronic? Episodic
4) How many years have you had cluster headaches? 3 1/2
5) If episodic, how many cycles in a typical year, what time of year, and how long? Had a cycle in August, cycle was stopped by using Prednisone. Headaches returned after 6 months. Broke another cycle w/Pred. Guess I need to say I cannot determine a specific cycle
6) If episodic, how many weeks into a cycle did you start on kudzu? Started Kudzu after 2nd Pred taper. Had gone 42 days total PF after Pred. CH returned on day 43. Started Kudzu on Day 45.
7) If chronic, how long have you been chronic?
8) What brand of kudzu do you use? Nature's Way, with 1mg. Daidzin
9) What dose did you take during the first 24 hours that you started on kudzu? took 1 3x's a day
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur? Went 2 days PF, hit w/Kip 10 on day 3. I only get hit at night. No change in CH pattern.
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)? 5
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc. Multi Vitamin, Magnesium, Melatonin, B Complex 50, B-12, CoQ10, B 12.
15) Have you noticed any side effects? If so, what are they? none
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant). NA
16) Are there other observations, comments or questions that you would like to add?? |
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Seems that all the hits I do have, are Kip 10's. I can go a couple days w/no hit. Will get hit around day 3. Then I get 2 or 3 days PF, then I get hit again. I am not certain I was taking the correct dosage. Have increased the dosage tonight, to what is on the bottle. 2 3x's a day. Will take the last 2 of the dosage before bed.
BTW, on the Melatonin, I take 6mg along w/3mg TR Melatonin.
Jean
Modified to add that I take Frova for my CH. This has worked well for me. Have taken nothing for my CH since the Kudzu.
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| « Last Edit: Mar 6th, 2005, 11:38pm by TxBasslady » |
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godsjoy777
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Re: Kudzu Survey - First Week
« Reply #9 on: Mar 7th, 2005, 2:21pm » |
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on Feb 28th, 2005, 9:07pm, floridian wrote:1) Your Age51
2) Your Gender Female
3) Are you Episodic or Chronic? Episodic.....but it has been 6 months now and not looking like it is stopping nytime soon... >:(
4) How many years have you had cluster headaches?15 or 16
5) If episodic, how many cycles in a typical year, what time of year, and how long? one cycle....Almost exactly 10 months after the last Cluster Headache of the last cycle....Used to be 2 1/2 to 3 months....went up to 5 months last year when I got on Verapamil....off Verap...now on Zonegran as preventative of choice....and now in uncharted territory....month #6.
6) If episodic, how many weeks into a cycle did you start on kudzu? Not until around 22 weeks
7) If chronic, how long have you been chronic?N/A
8) What brand of kudzu do you use? I started on the Soloray and now on the Nature's Way
9) What dose did you take during the first 24 hours that you started on kudzu? 300mgs 2X day
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur?no
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 7
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc. Zonegran 250mgs, magnesium melate, multi vitamin, synthetic thyroid, zocor, sometimes Excedrine...O2....oh....and meletonin 3mgs per night...stopped the Maxalt
15) Have you noticed any side effects? If so, what are they? Tightness of chest around heart...but I was having that when I was taking all the Maxalt as well...
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant). 2
16) Are there other observations, comments or questions that you would like to add?? Wish it was working for me like others on this board... [smiley=huh.gif]
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| « Last Edit: Mar 7th, 2005, 2:22pm by godsjoy777 » |
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Jeepgun
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Re: Kudzu Survey - First Week
« Reply #10 on: Mar 8th, 2005, 8:29am » |
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1) Your Age:
35
2) Your Gender:
Male
3) Are you Episodic or Chronic?
Episodic
4) How many years have you had cluster headaches?
Eight
5) If episodic, how many cycles in a typical year, what time of year, and how long?
Typically, my cycle has hit every autumn. The autumn before last, the cycle skipped and I got hit in February with a cycle. Once again, this February, I am being hit with a cycle, after an absence of a cycle this past autumn.
6) If episodic, how many weeks into a cycle did you start on kudzu?
Two weeks, I guess. I bought kudzu the morning after having a Kip-6, last Monday.
7) If chronic, how long have you been chronic?
N/A
8) What brand of kudzu do you use?
Planetary Formulas 750mg tablets, two tablets 3 times per day. (although I have experimented with the dosage: Some days, taking only two doses, and other days, taking as many as four.)
9) What dose did you take during the first 24 hours that you started on kudzu?
1 pill=750mg. Two pills, three times per day.
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur?
I first noticed a major difference after 48 hours.
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
10
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
10. In fact, I have been completely pain-free for the past four days.
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
10.
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc.
GNC's Mega Men multi-vitamins.
15) Have you noticed any side effects? If so, what are they?
Some light acne, and increased frequency of bowel activity.
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant).
1
16) Are there other observations, comments or questions that you would like to add??
Thank you. Thank you. Thank you.
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| « Last Edit: Mar 8th, 2005, 9:38am by Jeepgun » |
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PaulL
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Re: Kudzu Survey - First Week
« Reply #11 on: Mar 9th, 2005, 12:42pm » |
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on Feb 28th, 2005, 9:07pm, floridian wrote:1) Your Age
2) Your Gender: Male
3) Are you Episodic or Chronic?: Episodic
4) How many years have you had cluster headaches?: > 40 years
5) If episodic, how many cycles in a typical year, what time of year, and how long? Every other year; usually in winter; 2 months
6) If episodic, how many weeks into a cycle did you start on kudzu? My last episode was over by about a month when kudzu showed up on the message boards, but I was still getting heavy shadows every other day.
7) If chronic, how long have you been chronic?
8) What brand of kudzu do you use? Planetary Formulas Kudzu Recovery
9) What dose did you take during the first 24 hours that you started on kudzu? two 750 mg tablets at bedtime
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur? Yes, felt "ice picks" for a short period and no shadows the next day
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)? 6-7
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 6-7
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc. Pravachol, atenalol, enteric aspirin, multivitamin
15) Have you noticed any side effects? If so, what are they? Upset stomach
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant). 3
16) Are there other observations, comments or questions that you would like to add?? I took kudzu out of curiosity to see if it had any effect. It's a bit hard to tell if it did anything for me since I am just dealing with the tail end of an episode and what I experienced could easily be the cycle ending naturally. Didn't feel like it though. The "ice picks", which other people have reported, were definintely a new experience, unpleasant, short lived, but not painful.
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Sandy_C
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Re: Kudzu Survey - First Week
« Reply #12 on: Mar 9th, 2005, 5:50pm » |
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]1) Your Age 58
2) Your Gender F
3) Are you Episodic or Chronic? Episodic
4) How many years have you had cluster headaches?
4-1/2 yrs
5) If episodic, how many cycles in a typical year, what time of year, and how long? Varies - first in July 1999 - 4 mos.
None in 2000, March 2001 - 3 wks, none 2003, Sept 2004 - 2 wks, February 2005 - am in 4th week.
6) If episodic, how many weeks into a cycle did you start on kudzu? 1st week
7) If chronic, how long have you been chronic?
8) What brand of kudzu do you use? Nature's Way
613 mg capsules
9) What dose did you take during the first 24 hours that you started on kudzu? 2 capsules 3 times per day as
directed on bottle
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur? Within 24 hours - CH pain level decreased, duration decreased markedly.
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)? only a 2, unfortunately
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc. Multi vitamin, B Complex 100,
Calcium. Was taking Imitrex but stopped when started on
Kudzu.
15) Have you noticed any side effects? If so, what are they? Used to have CH only 1 or 2 times/day, in evenings only. On Kudzu, started getting CH at all different times during the day and at night - not just shadows, real hits, although manageable with water and ice. Also had other headaches - across forehead, on opposite side, etc. Very tired because was losing sleep because of HAs.
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant). 10 - could NOT continue to have
CH while at work.
16) Are there other observations, comments or questions that you would like to add?? Noticeable improvement in duration and pain levels but definite increase in number of hits per day. Started Kudzu on 2/24 - stopped Kudzu on 3/4. CH hits are back to my normal one or two in the evening. None during the day or at night. It just wasn't working for me.
[b][/b]
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dougchunyo
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Re: Kudzu Survey - First Week
« Reply #13 on: Mar 9th, 2005, 11:05pm » |
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1) Your Age - 43
2) Your Gender - Male
3) Are you Episodic or Chronic? - Episodic
4) How many years have you had cluster headaches? - 38
5) If episodic, how many cycles in a typical year, what time of year, and how long? - Generally 1 per year early summer, but I have had cycles at various times normally a cycle lasts 6-8 weeks.
6) If episodic, how many weeks into a cycle did you start on kudzu? - 2
7) If chronic, how long have you been chronic? - n/a
What brand of kudzu do you use? - Nature's way 613mg.
9) What dose did you take during the first 24 hours that you started on kudzu? - 4 Capsules
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur? - Yes, day 2
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). - 7
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)? - 7
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). - 8
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc. - multi-vitamin, b-12
15) Have you noticed any side effects? If so, what are they? - No
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant). - n/a
16) Are there other observations, comments or questions that you would like to add??
Right about now in my cycle I should be getting a CH Kip 8-10 at least every other night. I had one this week. Since I normally get hit at night, I adjusted the Kudzu to 1 in the AM, 2 around noon and 3 before bed. I have had only a couple of Kip 4's other than the one bad one this week. Seems promising, but if history repeats, this will be ineffective for my next cycle.
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rickyshot
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Re: Kudzu Survey - First Week
« Reply #14 on: Mar 10th, 2005, 7:59am » |
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) Your Age 50
2) Your Gender f
3) Are you Episodic or Chronic? episodic
4) How many years have you had cluster headaches? 20 years
5) If episodic, how many cycles in a typical year, what time of year, and how long? usually 2 cycles lasting up to 8 weeks each
6) If episodic, how many weeks into a cycle did you start on kudzu? was not in cycle when started , started it for migraines as well which occur more often in me
7) If chronic, how long have you been chronic?
na
What brand of kudzu do you use? natures way
9) What dose did you take during the first 24 hours that you started on kudzu? 2 capsule 613 mg each
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur? got no headaches and only one shadow
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). quite certain was on a migraine bender for two weeks when starting
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)? 8
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). quite certain (am hoping)
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc. maxalt, verapamil, vit b complex, vit b2, homeopathic for ha, baby aspirin, IV meds and steroids when needed during cycle (have tried everything else)
15) Have you noticed any side effects? If so, what are they? none
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant). na
16) Are there other observations, comments or questions that you would like to add??
week two here and will taper off at the end of the month. When next attacks occur will start again. Is this coincidence , I don't know but really PF
« Last Edit: Feb 28th, 2005, 9:07pm by floridian » IP Logged
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Dave_Emond
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Re: Kudzu Survey - First Week
« Reply #15 on: Mar 10th, 2005, 11:45am » |
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1) Your Age 44
2) Your Gender M
3) Are you Episodic or Chronic? Chronic
4) How many years have you had cluster headaches? 9
5) If episodic, how many cycles in a typical year, what time of year, and how long? (NA)
6) If episodic, how many weeks into a cycle did you start on kudzu? (NA)
7) If chronic, how long have you been chronic? 5 Years
What brand of kudzu do you use? Natures Way (613 mg) (w/ 1mg Daidzin)
9) What dose did you take during the first 24 hours that you started on kudzu?
3678 mg’s (2 pills – 3 X daily)
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur?
Within 2 days there was a decrease in shadows, no effect on Cluster attacks.
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
5
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
2
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
1
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc.
(None for CH)
Amour Thyroid, Ketoconazole, Amitriptyline, Testosterone, Xanax and B Complex 100
15) Have you noticed any side effects? If so, what are they?
Dizziness
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant).
3
16) Are there other observations, comments or questions that you would like to add??
Other health issues and experimentation with medications before, during and ongoing may make my comments on Kudzu not very reliable. 
The “decrease in shadows” may actually be better described as a “masking of the shadows.” I still feel something going on during times that I attribute to shadows or low level CH attacks. Instead of pain, I feel dizzy, lightheaded and confusion. This was scary at first, as it felt like minor stokes, but over time, I’m getting more used to these feelings and prefer them over the shadows. I have literally slept more hours in the last week than I have in the last 3 ½ months totaled! Is Kudzu the reason? I can’t be sure on that yet due to the other health medication experimentations. But, if I’m getting sleep for any reason, I’m not going to stop what I’m doing!
I saw in another post a suggestion that Kudzu was the “Ultimate Placebo.” I personally do not believe there is any possibility of any type of placebo having any effect on CH sufferers whatsoever. If a placebo is said to work on CH, I contest that the trial patient never in fact suffered from CH. Kudzu is not a placebo, it, as many other meds or alternatives, will probably help some people, but not everyone. I plan to continue use long enough to determine if it does in fact prove to be helpful or not.
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Hirvimaki
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Re: Kudzu Survey - First Week
« Reply #16 on: Mar 12th, 2005, 12:56pm » |
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1) Your Age
34
2) Your Gender
Male
3) Are you Episodic or Chronic?
Episodic
4) How many years have you had cluster headaches?
Approximately nine.
5) If episodic, how many cycles in a typical year, what time of year, and how long?
Two cycles per year. Usually at the change of winter to spring and summer to fall. Two to three months.
6) If episodic, how many weeks into a cycle did you start on kudzu?
About 6.
7) If chronic, how long have you been chronic?
n/a
8) What brand of kudzu do you use?
Sunflower Market KUDZU.
9) What dose did you take during the first 24 hours that you started on kudzu?
2 ml (666 mg/ml Herb Wieght Equivalence).
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur?
Yes. I typcially get hit Wednesday or Thursday and then again Satruday or Sunday, after taking Kudzu on a Friday (in the afternoon), I was not hit the following Saturday or Sunday. I did, however, experience a very strange shadow, kind of a shadow of a shadow on Sunday.
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
10
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
8
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
10
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc.
I use O2 as an abortive. That is all.
15) Have you noticed any side effects? If so, what are they?
None.
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant).
n/a
16) Are there other observations, comments or questions that you would like to add??
Thank you!! Oh, and THANK YOU!
Hirvimaki-Isi
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Boyce
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Re: Kudzu Survey - First Week
« Reply #17 on: Mar 13th, 2005, 2:56pm » |
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on Feb 28th, 2005, 9:07pm, floridian wrote:1) Your Age
2) Your Gender
3) Are you Episodic or Chronic?
4) How many years have you had cluster headaches?
5) If episodic, how many cycles in a typical year, what time of year, and how long? Cycle comes every 2-3 anywhere from 4-12 weeks cycles duration
6) If episodic, how many weeks into a cycle did you start on kudzu?
7) If chronic, how long have you been chronic?
8) What brand of kudzu do you use?
9) What dose did you take during the first 24 hours that you started on kudzu?
2 x 300mg (morning, and evening)
now taking 4x 150mg (morning, noon, evening, bed)
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur? Immediately, no more 9am hits
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10, I used to get a 9AM hit, every day, haven't had one since I started Kudzu
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc.
prevent = o2
2 aspirin 3x a day (usually with the Kudzu)
9mg melatonin at bedtime
25mg benadryl at bedtime
done 3 different prednisone tapers 60mg, 60mg, 50 mg, 50mg, 40mg, 40mg, etc.....
15) Have you noticed any side effects? If so, what are they? Dizziness, tiredness when I took 300mg at a time....
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant).
16) Are there other observations, comments or questions that you would like to add??
I have more shadows on Kudzu than on Relpax, but have only had to abort a real full-blown HA with o2 one time in the week that I've traded Replax for Kudzu.... |
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toolong
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Looking for an answer
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Re: Kudzu Survey - First Week
« Reply #18 on: Mar 13th, 2005, 2:57pm » |
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1. Age 55 2.Male 3.Chronic 4.14 years Chronic,23 years Episodic 5.N/A 6.N/A 7.14 Years 8.Solray Extract 150 mg. 9.150 mg.X2 10.Yes,24/30 hours 11.9 12.8 13.8 14.Nadolol,Melatonin,Voltaren,Zetia,Vasotec,Fish Oil,Norvasc,Flo-Max,Nexium,asprin.15.No 16.N/A 17.Still having hits but not as frequent,still experimenting with dosage and time taken.David
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jokrs2
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Eventually He will make us pain free!
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Re: Kudzu Survey - First Week
« Reply #19 on: Mar 14th, 2005, 2:30am » |
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1. 48
2. Male
3. Chronic
4. About 30 years
5. n/a
6. n/a
7. 20 Years
8. Planetary Formula Kudzu Recovery
9. 750mg pill 2 times the first day
10. Yes. After the 2nd pill
11. 10
12. 6-7
13. 10
14. Just went through my 5th day of Morphine withdrawal and doing fine. Multivitamin with B complex and Chromium. Melatonin 6mg at night for sleep aid. Zanax 1mg for Restless Leg Syndrome when necessary.
15. No
16. n/a Pleasant fragrance in the sinus senses.
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Roxy
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Re: Kudzu Survey - First Week
« Reply #20 on: Mar 14th, 2005, 12:25pm » |
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1) Your Age 47
2) Your Gender F
3) Are you Episodic or Chronic? Chronic
4) How many years have you had cluster headaches? 4 years
5) If episodic, how many cycles in a typical year, what time of year, and how long? N/A
6) If episodic, how many weeks into a cycle did you start on kudzu? N/A
7) If chronic, how long have you been chronic? 4 years
What brand of kudzu do you use? Natures Way
9) What dose did you take during the first 24 hours that you started on kudzu? 3678 mg’s (2 pills – 3 X daily)
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur? No
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)? 0
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 10
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc. Verapamil, lithium, magnesium, multiple vitamin, lipitor
15) Have you noticed any side effects? If so, what are they? No
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant). 0
16) Are there other observations, comments or questions that you would like to add?? No
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LeLimey
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Re: Kudzu Survey - First Week
« Reply #21 on: Mar 15th, 2005, 6:13am » |
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1) Your Age: 39
2) Your Gender: Female
3) Are you Episodic or Chronic?: Episodic. (First cycle)
4) How many years have you had cluster headaches?: First cycle
5) If episodic, how many cycles in a typical year, what time of year, and how long? :Can't answer, First cycle, 27 weeks so far
6) If episodic, how many weeks into a cycle did you start on kudzu?: 26 weeks
7) If chronic, how long have you been chronic?: NA
8) What brand of kudzu do you use?: Nature's Way
9) What dose did you take during the first 24 hours that you started on kudzu?: 6 x 613mg Tablets
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur?: Within between 24 and 48 hours. Hard to pinpoint.
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). : 8
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?: 7
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain): 10
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc : oh bloody hell! Verapamil 480mg, Magnesium, B Complex, Kudzu 3678mg, Ferrous Gluconate 1800mg per day, Calcichew D3 forte 6 tablets a day, Calciferol 6 tablets per day
15) Have you noticed any side effects? If so, what are they? Dizzyness when taking tablets two at a time which ceased when I split the dose over a longer period, tiredness? not sure of that is the kudzu.
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant). It was about a 7 while dizzy.
16) Are there other observations, comments or questions that you would like to add?? I would recommend that if anyone else feels dizzy taking them to take the tabs one at a time an hour or more apart. It worked for me.
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sandie99
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Re: Kudzu Survey - First Week
« Reply #22 on: Mar 15th, 2005, 12:56pm » |
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1) Your Age 25
2) Your Gender female
3) Are you Episodic or Chronic? chronic
4) How many years have you had cluster headaches? since 2001
5) If episodic, how many cycles in a typical year, what time of year, and how long?
6) If episodic, how many weeks into a cycle did you start on kudzu?
7) If chronic, how long have you been chronic? since 2003
8) What brand of kudzu do you use? Kudzu strong
9) What dose did you take during the first 24 hours that you started on kudzu? 2 tablets
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur? HAs became milder
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain). 7, my verpamil went up to 600mg also
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)? around 7
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc.
verpamil 600mg/day, magnesium, multi-vita, calcium tablets
15) Have you noticed any side effects? If so, what are they? nope
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant).
16) Are there other observations, comments or questions that you would like to add?? nope
Sandie
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hzzz
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Re: Kudzu Survey - First Week
« Reply #23 on: Mar 15th, 2005, 9:28pm » |
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1) Your Age
40
2) Your Gender
Male
3) Are you Episodic or Chronic?
Episodic
4) How many years have you had cluster headaches?
12
5) If episodic, how many cycles in a typical year, what
time of year, and how long?
1, usually fall for 1 1/2 months. This year it came 3 weeks ago
6) If episodic, how many weeks into a cycle did you start on kudzu?
2 1/2
7) If chronic, how long have you been chronic?
8) What brand of kudzu do you use?
Nature's way
9) What dose did you take during the first 24 hours that you started on kudzu?
2 pills, three times a day
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur?
One attack on the 5th day of taking them and that is all in the first week. Some shadows, increasing in intensity as the week has gone on.
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
10
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
8
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
10
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc.
Imitrex when I got attacks, Melatonin before bed
15) Have you noticed any side effects? If so, what are they?
not yet
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant).
16) Are there other observations, comments or questions that you would like to add??
Worked great for the first 4-5 days and then one attack. I feel like I'm on the verge of more attacks, but haven't gotten any since day 5. Still very much worth taking.
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Damon
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Re: Kudzu Survey - First Week
« Reply #24 on: Mar 20th, 2005, 2:56am » |
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1) Your Age
32
2) Your Gender
Male
3) Are you Episodic or Chronic?
Chronic
4) How many years have you had cluster headaches?
5
5) If episodic, how many cycles in a typical year, what time of year, and how long?
N/A
6) If episodic, how many weeks into a cycle did you start on kudzu?
N/A
7) If chronic, how long have you been chronic?
4 1/2 years
What brand of kudzu do you use?
Planetary Formulas
9) What dose did you take during the first 24 hours that you started on kudzu?
4 Tablets
10) Did a change in your cluster headache pattern occur after taking kudzu? If so, how soon after you started did it occur?
No Change
11) How certain are you about the answer to question 10 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
9
12) At the end of the first week on kudzu, how effective would you rate kudzu (0-10, where zero is not at all effective, 10 is complete remission)?
0
13) How certain are you about the answer to question 12 (scale of 0-10, where 0 is not at all certain, 10 is completely certain).
9
14) What other medicines are you taking? Include preventive and abortive medicines for CH, non-CH medicines, vitamins, etc. Verapamil, Depakote, Lithium, Trex Injections, O2, Multivitamins
15) Have you noticed any side effects? If so, what are they?
Not from the Kudzu
16) On a scale of 0-10, how intolerable are the side effects? (0-no side effects, perfectly tolerable; 10 - extremely unpleasant).
N/A
16) Are there other observations, comments or questions that you would like to add?? Didn't seem to help me, hope it helps others
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