Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Oct 22nd, 2021, 8:56pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Oxygen?? »


   Clusterheadaches.com Message Board
   Cluster Headache Help and Support
   Medications, Treatments, Therapies
(Moderator: DJ)
   Oxygen??
« Previous topic | Next topic »
Pages: 1 2  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Oxygen??  (Read 1489 times)
Lissa
New Board Hall of Famer
USA 
*****






   
WWW Email

Gender: female
Posts: 711
Oxygen??
« on: Jan 5th, 2006, 10:28am »
Quote Quote Modify Modify

I have an appointment with my doctor tomorrow to get some oxygen but the nurse told me that oxygen is only prescribed for certain diagnoses and that clusters wasn't one of them.  Is this true?  How do I get oxygen then?   Undecided
IP Logged

Episodic cluster survivor since 1995 at age 16.
Ghost
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Farting relieves the pressure

   


Gender: male
Posts: 4024
Re: Oxygen??
« Reply #1 on: Jan 5th, 2006, 10:38am »
Quote Quote Modify Modify

The drug company doesnt care what it is for normally but like you I had that problem and a friend of mine gave me a welding tank and gets it refilled for me at cost.
Its the doc wont write it is the problem. there is some links here with info someone help her here please that might help convince doc it didnt for me but you may have better luck.
 
Sorry not much help but I know someone here will be more helpful.
 
Mike
IP Logged

Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?

***WARNING*** Oxygen will rust your pipes!Wink
Bob_Johnson
New Board Hall of Famer
USA 
*****





   
Email

Gender: male
Posts: 1796
Re: Oxygen??
« Reply #2 on: Jan 5th, 2006, 10:47am »
Quote Quote Modify Modify

The nurse is wrong. Print out this article and take to the doc. It's written by one of the best headache docs in the U.S.
 
Here is a link to read and print and take to your doctor.  It describes preventive, transitional, abortive and surgical treatments for CH.  (2002)
   
http://www.brightok.net/~mnjday/chtherapy.pdf  
IP Logged

Bob Johnson
marlinsfan
New Board Hall of Famer
USA 
*****




I love this place!

   
Email

Gender: male
Posts: 876
Re: Oxygen??
« Reply #3 on: Jan 5th, 2006, 10:57am »
Quote Quote Modify Modify

Dumb nurse! If your doc is also dumb, get another one.
 
Bring the document in Bob's link.
IP Logged
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
USA 
*****



If I think hard enough maybe it'll go away.....

   


Gender: male
Posts: 2248
Re: Oxygen??
« Reply #4 on: Jan 5th, 2006, 11:12am »
Quote Quote Modify Modify

on Jan 5th, 2006, 10:57am, marlinsfan wrote:
Dumb nurse! If your doc is also dumb, get another one.
 
Bring the document in Bob's link.

 
Ditto this!
 
Take the link in. And then, if the doc is stubborn or stupid enough to not prescribe, with the right flow rates specified in the article with a non-rebreather mask, then pitch a fit. I did with my doc when he told me he felt it was not the right answer for me and he relented (finally). Put your game face on before you go in to the appointment and tell yourself, "I'm not going to leave the doctor's office without the prescription for O2" and repeat. He'll say that those flow rates are not appropriate, show him the article. He'll say a non-rebreather is not a good idea, show him the article. He'll give all kinds of deflection if he's an idiot. Show him the article and relent.
 
you go!!!!!! Get the O2, it rules! For me it's like damn magic.
 
Scott
IP Logged

-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
Lissa
New Board Hall of Famer
USA 
*****






   
WWW Email

Gender: female
Posts: 711
Re: Oxygen??
« Reply #5 on: Jan 5th, 2006, 11:14am »
Quote Quote Modify Modify

I'll print off that link and give it to her tomorrow when I go in.  Thank you everybody.  
 
I got hit very hard last night and this morning.  I almost threw up.   Cry
IP Logged

Episodic cluster survivor since 1995 at age 16.
E-Double
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Are we ourselves?

  Edoubleitk   Edoubleitk1
Email

Gender: male
Posts: 6458
Re: Oxygen??
« Reply #6 on: Jan 5th, 2006, 12:04pm »
Quote Quote Modify Modify

on Jan 5th, 2006, 10:28am, Lissa wrote:
I have an appointment with my doctor tomorrow to get some oxygen but the nurse told me that oxygen is only prescribed for certain diagnoses and that clusters wasn't one of them.  Is this true?  How do I get oxygen then?   Undecided

 
NO!!!!!!!!!!
 
Present this to them from Dr. Rozen @ MHNI
 
http://www.chhelp.org/mhni.html
IP Logged

I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
Lissa
New Board Hall of Famer
USA 
*****






   
WWW Email

Gender: female
Posts: 711
Re: Oxygen??
« Reply #7 on: Jan 5th, 2006, 12:08pm »
Quote Quote Modify Modify

Thank you.  I'll print both articles off for her.
 
Does anyone experience pain in the teeth during an attack?  My teeth hurt so bad this morning.
IP Logged

Episodic cluster survivor since 1995 at age 16.
Ghost
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Farting relieves the pressure

   


Gender: male
Posts: 4024
Re: Oxygen??
« Reply #8 on: Jan 5th, 2006, 12:15pm »
Quote Quote Modify Modify

Oh yes because of that I have had several pulled even 6 done myself, the CH hurt worse. Getting sinuses scrapped not good either unless actually clogged. been there too. No matter what you do to get the beast out it always seem to get back and more pi55ed than ever. Good Luck and prayn for positive results with doc.
 
Mike
IP Logged

Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?

***WARNING*** Oxygen will rust your pipes!Wink
Lissa
New Board Hall of Famer
USA 
*****






   
WWW Email

Gender: female
Posts: 711
Re: Oxygen??
« Reply #9 on: Jan 5th, 2006, 12:23pm »
Quote Quote Modify Modify

You pulled out your own teeth!?!   Shocked
IP Logged

Episodic cluster survivor since 1995 at age 16.
Ghost
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Farting relieves the pressure

   


Gender: male
Posts: 4024
Re: Oxygen??
« Reply #10 on: Jan 5th, 2006, 12:38pm »
Quote Quote Modify Modify

Yep anything to make the pain stop. was before I knew it was CH though.
IP Logged

Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?

***WARNING*** Oxygen will rust your pipes!Wink
Lissa
New Board Hall of Famer
USA 
*****






   
WWW Email

Gender: female
Posts: 711
Re: Oxygen??
« Reply #11 on: Jan 5th, 2006, 12:57pm »
Quote Quote Modify Modify

Holy Jesus.   Shocked
IP Logged

Episodic cluster survivor since 1995 at age 16.
Lissa
New Board Hall of Famer
USA 
*****






   
WWW Email

Gender: female
Posts: 711
Re: Oxygen??
« Reply #12 on: Jan 6th, 2006, 9:48am »
Quote Quote Modify Modify

I got an oxygen tank!!   Grin  Does insurance usually cover the rental?
 
I also started Kudzu this morning.
IP Logged

Episodic cluster survivor since 1995 at age 16.
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
USA 
*****



If I think hard enough maybe it'll go away.....

   


Gender: male
Posts: 2248
Re: Oxygen??
« Reply #13 on: Jan 6th, 2006, 9:55am »
Quote Quote Modify Modify

on Jan 6th, 2006, 9:48am, Lissa wrote:
I got an oxygen tank!!   Grin  Does insurance usually cover the rental?
 
I also started Kudzu this morning.

 
Congratulations! Way to go girl!
 
Take the time to keep a headache diary on the Kudzu so you can contribute whatever results you get to the thread. You will hopefully, as many have, see some effects from the Kudzu within the first day or two. It might not knock'm right out but you will notice something different going on.
 
Good luck and keep on keepin on.
 
Scott
 
 
IP Logged

-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
marlinsfan
New Board Hall of Famer
USA 
*****




I love this place!

   
Email

Gender: male
Posts: 876
Re: Oxygen??
« Reply #14 on: Jan 6th, 2006, 9:57am »
Quote Quote Modify Modify

Way to go, Lissa! I have AETNA insurance, and they pay the monthly rental for my 3 E-tanks. I only pay $5 copay anytime I need refills.
 
DId you get the high-flow regulator? And the non-rebreather mask?
IP Logged
Lissa
New Board Hall of Famer
USA 
*****






   
WWW Email

Gender: female
Posts: 711
Re: Oxygen??
« Reply #15 on: Jan 6th, 2006, 9:57am »
Quote Quote Modify Modify

I'm crossing my fingers.  I also hope the insurance covers the oxygen.   Undecided
IP Logged

Episodic cluster survivor since 1995 at age 16.
vig
CH.com Alumnus
New Board Hall of Famer
USA 
*****




CHit Happens

    alongivsiuolluap
WWW Email

Gender: male
Posts: 4401
Re: Oxygen??
« Reply #16 on: Jan 6th, 2006, 10:09am »
Quote Quote Modify Modify

good luck Lissa
I hope you find some relief
IP Logged


never, Never, NEVER quit. -Winston Churchill
Lissa
New Board Hall of Famer
USA 
*****






   
WWW Email

Gender: female
Posts: 711
Re: Oxygen??
« Reply #17 on: Jan 7th, 2006, 1:00pm »
Quote Quote Modify Modify

Okay.  I have another question.  I have the tanks...two of them.  I have one at work at one at home.  Does everybody with oxygen carry the tank around every where they go?  It's HUGE.  I think I'm just going to carry around the regulator from place to place, but what about when I go far away?
IP Logged

Episodic cluster survivor since 1995 at age 16.
Guiseppi
CH.com Alumnus
New Board Hall of Famer
USA 
*****





   
Email

Gender: male
Posts: 2703
Re: Oxygen??
« Reply #18 on: Jan 7th, 2006, 6:45pm »
Quote Quote Modify Modify

I keep an e tank at work and an e tank at home, then I have the teeny one I keep in my car. The regulator stays with me! I'm a Kaiser patient so they don't pay any of it. After 25 years they still fight me on the oxygen! I hope it works as well for you as it has for me. Over half of the time it stops the beast in it's tracks. The rest of em it ratchets down to a level you don't cry at. (You do get funny looks from people hauling the tanks around!!!!) Good luck, welcome to the roller coaster!
 
Guiseppi
IP Logged

Why are all sensors, seeking intelligent life, pointed AWAY from earth?
Wingcat
New Board Newbie
USA 
*



I love YaBB 1G - SP1!

   


Posts: 5
Re: Oxygen??
« Reply #19 on: Jan 7th, 2006, 11:47pm »
Quote Quote Modify Modify

Once you find a good Dr. to give you an O2 prescription  it seems to be good for life.  My O2 supplier, Lincare has it on file and hasn't said anything about seeing it again in over 8 yrs.
I had clusters for many years that the docs kept treating with migrain drugs, lotta help they were (not)
When I finally got the correct diagnoses the doc was addiment that prednizone was the preferred treatment.
It worked, but I finally got a new doc to prescribe O2.  
It's been a full blown miracle for me.  Pun intended.
 
Dave
IP Logged
Lissa
New Board Hall of Famer
USA 
*****






   
WWW Email

Gender: female
Posts: 711
Re: Oxygen??
« Reply #20 on: Jan 9th, 2006, 8:34am »
Quote Quote Modify Modify

I'd like to get a smaller tank to carry along with me.  The only problem is I smoke.   Undecided  Oh well.  I have one at home and one at work, but hopefully I won't have to use them at all.
IP Logged

Episodic cluster survivor since 1995 at age 16.
marlinsfan
New Board Hall of Famer
USA 
*****




I love this place!

   
Email

Gender: male
Posts: 876
Re: Oxygen??
« Reply #21 on: Jan 9th, 2006, 10:35am »
Quote Quote Modify Modify

Lissa, I travel a lot for work. Both domestic and international. When I travel domestic, I find ahead of time a medical supply place that has oxygen. I call them in advance and make arrangments to have O2 delivered to my hotel. Most of the times they bill my insurance directly. Only once did I have to pay out of pocket, but it was only $30. International is more complicated.
 
My O2 supplier honors my prescription only for 1 yr, so I need a new script every May.
 
I'm lucky in that i mostly get night-time hits, so I don't need to carry my tank around. I have E-tanks, which are pretty small, so I could carry them with me if I took a road-trip somewhere.
 
My office does not allow me to bring O2, but the infirmary does have O2 and they do have a copy of my script, so they give it to me when I need it.
 
PF wishes.
IP Logged
Lissa
New Board Hall of Famer
USA 
*****






   
WWW Email

Gender: female
Posts: 711
Re: Oxygen??
« Reply #22 on: Jan 9th, 2006, 10:50am »
Quote Quote Modify Modify

Your office won't let you have oxygen?  Huh  That's ridiculous.
IP Logged

Episodic cluster survivor since 1995 at age 16.
John_Townsend
New Board Newbie
Australia 
*



MSN:-  johno@internod e.on.net

   
Email

Gender: male
Posts: 12
Re: Oxygen??
« Reply #23 on: Jan 9th, 2006, 10:54am »
Quote Quote Modify Modify

Lisa,
I'm new to this board although had CH for 30 years.
Just started on Oxygen 3 days ago and I tell ya mate its great best thing ever.  
I have 1 at home and I use 1 thats at work but I use my own non-rebreathing at work as they dont have 1 so I got to carry that with me.
 
CYA and Good Luck
John
« Last Edit: Jan 9th, 2006, 10:58am by John_Townsend » IP Logged
marlinsfan
New Board Hall of Famer
USA 
*****




I love this place!

   
Email

Gender: male
Posts: 876
Re: Oxygen??
« Reply #24 on: Jan 9th, 2006, 2:02pm »
Quote Quote Modify Modify

on Jan 9th, 2006, 10:50am, Lissa wrote:
Your office won't let you have oxygen?  Huh  That's ridiculous.  

 
It's not, really. It is a highly flammable substance, and I work in a building that houses 5000 employees and is open 24/7. It is pretty unsafe to have these things around, plus the infirmary has Oxygen for employees to use.
IP Logged
Pages: 1 2  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss