Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Sep 19th, 2020, 7:40am

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « preventives »


   Clusterheadaches.com Message Board
   Cluster Headache Help and Support
   Medications, Treatments, Therapies
(Moderator: DJ)
   preventives
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: preventives  (Read 808 times)
troy
Guest

Email

preventives
« on: Jan 5th, 2006, 7:29pm »
Quote Quote Modify Modify Remove Remove

Hello all, it's been a long time since I posted. Had been pain free for over a year and thought maybe I had gotten rid of the beast for good. Have suffered from this disorder for eight years. My question is for those of you taking verapamil as a preventive. Are you in complete remission on this med or do you still get hits that arent as strong? The reason I'm asking is when this cycly started on nov 2nd I began taking verapamil 480 mg daily didn't miss any doses and still got hit two sometimes as many as 8 times a day. Used o2 to abort but it would come right back usually within an hour. I work the night shift so my sleep time is during the day. This is when I get hit the most only getting about 2 hours of rest per day. Any suggestions would be appreciated. I just finished a prednizone taper hoping to break this cycle but unfortunatly still getting the sleep time hits.   Troy Cry Huh
IP Logged
BMoneeTheMoneeMan
CH.com Alumnus
New Board Hall of Famer
USA 
*****



In remembrance of KingCazman. RIP

   
Email

Posts: 2082
Re: preventives
« Reply #1 on: Jan 5th, 2006, 7:34pm »
Quote Quote Modify Modify

Sorry to have you back Troy.  
Its been since Nov 2 since you have been taking 480 per day?  
Do you think you are past the peak of your cycle or are you still getting hit more than 5 times per night?
 
You might wanna talk to your doc about upping the verapimil.  
Have you been taking the melatonin/benadryl cocktail when you try to sleep?  Lots here get reduced activity during sleep with the use of melatonin, it might be worth a shot.
PF wishes
BMonee
IP Logged

"Fool me once, shame on, shame on you. Fool - can't get fooled again"


Think of how stupid the average person is, and then realize half the population is stupider than that.

E-Double
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Are we ourselves?

  Edoubleitk   Edoubleitk1
Email

Gender: male
Posts: 6458
Re: preventives
« Reply #2 on: Jan 5th, 2006, 8:11pm »
Quote Quote Modify Modify

Could consider increasing.
 
Also, are you on Extended or Standard release.
 
Once I switched to Standard (or immediate) thngs got much better.
IP Logged

I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
USA 
*****




If I can do it, it ain't art.

6108764393 6108764393   Randy   Piscatorus
WWW Email

Gender: male
Posts: 2217
Re: preventives
« Reply #3 on: Jan 5th, 2006, 11:30pm »
Quote Quote Modify Modify

on Jan 5th, 2006, 8:11pm, E-Double wrote:
Once I switched to Standard (or immediate) thngs got much better.

If you're going to take verapamil........Amen to Standard release. Equal amounts, EVERY eight hours, like clockwork. It was a night and day difference for me, but no fooling around on the timing. You may or may not need more than 480 mg/day........but give the 8 hour dose stuff a shot. Standard release pills only. Breaking Extended/Time release pills is a 15 yard penaly ~  
 
Pharmaceutical Foul.
RJ
IP Logged

May those who don't want any
Have memories of never getting any.
Lizzie2
CH.com Alumnus
New Board Hall of Famer
USA 
*****




"L'Chaim"~Hebre w Toast~"To Life"

  Lizzie52004  
Email

Gender: female
Posts: 4458
Re: preventives
« Reply #4 on: Jan 5th, 2006, 11:48pm »
Quote Quote Modify Modify

Don't quote me on this, but I think you can actually split the extended release verapamil (depending on brand) if they have score marks.  I used to split mine, and due to knowing that you don't break extended release tabs, I questioned this, but was assured I could.  That's something to ask about very carefully before doing, however!  Every brand could be different.  But as a general rule, no breaking open time release meds.
 
Standard release wins hands down for me, too. Smiley
IP Logged





E-Double
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Are we ourselves?

  Edoubleitk   Edoubleitk1
Email

Gender: male
Posts: 6458
Re: preventives
« Reply #5 on: Jan 5th, 2006, 11:54pm »
Quote Quote Modify Modify

on Jan 5th, 2006, 11:48pm, Lizzie2 wrote:
Don't quote me on this, but I think you can actually split the extended release verapamil (depending on brand) if they have score marks.  I used to split mine, and due to knowing that you don't break extended release tabs, I questioned this, but was assured I could.  That's something to ask about very carefully before doing, however!  Every brand could be different.  But as a general rule, no breaking open time release meds.
 
Standard release wins hands down for me, too. Smiley

You can split them but they still don't work as well.
 
Go Standard!! lol
IP Logged

I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
Lizzie2
CH.com Alumnus
New Board Hall of Famer
USA 
*****




"L'Chaim"~Hebre w Toast~"To Life"

  Lizzie52004  
Email

Gender: female
Posts: 4458
Re: preventives
« Reply #6 on: Jan 5th, 2006, 11:58pm »
Quote Quote Modify Modify

True true...OK you win. Smiley
 
Since I almost died taking the extended release by having a blood pressure of 60/40 and was lying on the bathroom floor throwing up for hours...I'm not a big fan of that form!
 
Plus if you split them, you don't really know how much you're really taking.......  No split pill is exactly half!
 
So to quote you: Go Standard!  Smiley  Wink
IP Logged





troy
Guest

Email

Re: preventives
« Reply #7 on: Jan 6th, 2006, 6:10am »
Quote Quote Modify Modify Remove Remove

thanks for the input, I will be switching to standard relief starting today. Also by using this does it put you in complete remision or are the hits less frequent, and hard? Sorry for repeating the same question I'm just trying to understand and hope that remision is possible while in the middle of a cycle. This one has been really hard. It seems as I get older it's harder to recover than it used to be, really starting to affect my job.
IP Logged
chewy
Guest

Email

Re: preventives
« Reply #8 on: Jan 6th, 2006, 8:43am »
Quote Quote Modify Modify Remove Remove

Verapamil will lessen the frequency.
IP Logged
E-Double
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Are we ourselves?

  Edoubleitk   Edoubleitk1
Email

Gender: male
Posts: 6458
Re: preventives
« Reply #9 on: Jan 6th, 2006, 9:06am »
Quote Quote Modify Modify

on Jan 6th, 2006, 8:43am, chewy wrote:
Verapamil will lessen the frequency.

 
 
yup.
IP Logged

I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss