Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Mar 28th, 2024, 7:32am

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « What's the "average" for episodic events »


   Clusterheadaches.com Message Board
   Cluster Headache Help and Support
   Medications, Treatments, Therapies
(Moderator: DJ)
   What's the "average" for episodic events
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: What's the "average" for episodic events  (Read 1758 times)
Mybelle
New Board Junior
USA 
**



Cluster what?

   


Gender: female
Posts: 89
What's the "average" for episodic events
« on: Mar 31st, 2008, 3:42pm »
Quote Quote Modify Modify

Just as a measuring stick to go by - how long have your episodes lasted? and did they taper off in duration and intensity? What are the chances that after almost 7 weeks it's over? We had 4 nights with the cocktails and uninterrupted sleep and in the morning upon awakening just one morning he had a kip2 and had coffee and it was gone and he's been fine for the last 3 days...... shadows here and there, and he's scared it will start a headache - which he hasn't has since last wednesday or thursday - but I've heard shadows are common even after a cycle is over.......
IP Logged
Jonny
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Give me a shovel Ill dig my own grave!

   
WWW Email

Gender: male
Posts: 26213
Re: What's the "average" for episodic ev
« Reply #1 on: Mar 31st, 2008, 6:36pm »
Quote Quote Modify Modify

on Mar 31st, 2008, 3:42pm, Mybelle wrote:
Just as a measuring stick to go by - how long have your episodes lasted?

 
My first cycle lasted 31 years, what a ride that was!!!
IP Logged

It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.

- Guiseppi


mezza
New Board Junior
USA 
**



I love YaBB 1G - SP1!

   


Gender: female
Posts: 95
Re: What's the "average" for episodic ev
« Reply #2 on: Mar 31st, 2008, 7:10pm »
Quote Quote Modify Modify

my first cycle was 3 days ( 10 years ago)  second cycle 4 years ago 1 week because prednisone taper stopped it.   This time has been 4 weeks so far- but preds didnt stop it- On verap now and still have weak shadows but no real hits since friday
 
Sounds like your hubby is getting some rest!  Probably more hopeful too -  Hope the cycle is over!
IP Logged
DennisM1045
New Board Hall of Famer
USA 
*****




One wave at a time!

  DennisM1045   DennisM1045
Email

Gender: male
Posts: 1639
Re: What's the "average" for episodic ev
« Reply #3 on: Mar 31st, 2008, 7:18pm »
Quote Quote Modify Modify

Cycles are all different.  Mine never start the same, end the same or last the same amount of time.  The only thing that appears to be consistent is two periods per year of high activity.  Other than that all bets are off.
 
I hope it is the end of his cycle.  But just tell him to enjoy the PF time and try not to think about it.  He'll know if he's out of the woods soon enough.
 
Wishing you both PFDAN!
 
-Dennis-
IP Logged

Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
kevmd
New Board Veteran
USA 
***



Who needs a hypothalamus anyway?

   


Gender: male
Posts: 148
Re: What's the "average" for episodic ev
« Reply #4 on: Mar 31st, 2008, 8:29pm »
Quote Quote Modify Modify

To me it sounds like its ending.  mine just ended the same way.  One week of shadows with 1 or 2 kip 3's.  The day is not over yet but this could be my first day withou even a shadow.  My last full blown CH was on Easter, 8 days ago
IP Logged
George_J
CH.com Alumnus
New Board Hall of Famer
USA 
*****




White-Breasted Nuthatch

   
Email

Gender: male
Posts: 4222
Re: What's the "average" for episodic ev
« Reply #5 on: Mar 31st, 2008, 10:26pm »
Quote Quote Modify Modify

Mine are very consistent--almost always 6 to 8 weeks in length.  
 
Lots of variation out there, though.
 
Best wishes,
 
George
IP Logged

Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
Guiseppi
CH.com Alumnus
New Board Hall of Famer
USA 
*****





   
Email

Gender: male
Posts: 2703
Re: What's the "average" for episodic ev
« Reply #6 on: Mar 31st, 2008, 10:27pm »
Quote Quote Modify Modify

For the first 20 years you could set your watch by my cycles, last 10 years they are all over the board. Help him learn to enjoy the pain free time, and always be ready to do battle. Thanks again for riding the board for him!
 
Guiseppi
IP Logged

Why are all sensors, seeking intelligent life, pointed AWAY from earth?
Brew
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Low Four!

   


Gender: male
Posts: 6515
Re: What's the "average" for episodic ev
« Reply #7 on: Apr 1st, 2008, 12:08am »
Quote Quote Modify Modify

5 weeks, 4 days, 13 hours, 47 minutes, 19 seconds.
 
 
 
 
You can slap me now cuz I'm being a smartass.
IP Logged

Always remember that you're unique, just like everyone else.
Mybelle
New Board Junior
USA 
**



Cluster what?

   


Gender: female
Posts: 89
Re: What's the "average" for episodic ev
« Reply #8 on: Apr 1st, 2008, 12:40am »
Quote Quote Modify Modify

Consider yourself slapped!!!! I'm new here...just trying to get some encouraging info!!! PFDAN to you all even Brewcrew
IP Logged
Brew
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Low Four!

   


Gender: male
Posts: 6515
Re: What's the "average" for episodic ev
« Reply #9 on: Apr 1st, 2008, 12:52am »
Quote Quote Modify Modify

Well, some of my cluster periods have been as short as 4 weeks. I've also had two periods that lasted about 18 months, which meant that I was chronic during those times. I'm back to being episodic, but I've stopped keeping track of how long they last. I suppose I could reconstruct them from my journal, but alas, I'm too lazy.
IP Logged

Always remember that you're unique, just like everyone else.
Qazpur
New Board Newbie
Netherlands 
*





   


Gender: male
Posts: 19
Re: What's the "average" for episodic ev
« Reply #10 on: Apr 1st, 2008, 4:48am »
Quote Quote Modify Modify

on Mar 31st, 2008, 10:26pm, George_J wrote:
Mine are very consistent--almost always 6 to 8 weeks in length.  

 
same here, always 6 - 8 wks. yesterday first day in 6 weeks no need for intervention, here comes the sun...
IP Logged
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
USA 
*****



If I think hard enough maybe it'll go away.....

   


Gender: male
Posts: 2248
Re: What's the "average" for episodic ev
« Reply #11 on: Apr 1st, 2008, 5:08am »
Quote Quote Modify Modify

I used to be able to practically schedule my vacations around them. Not so anymore. One thing that is certain, whenever they come is the wrong time.
 
I've had them last a few weeks and some last a couple months. I've rationalized that I prefer the inconsistency as it means that any present cycle could end at any time, as opposed to having to wait out 8 weeks for sure.
 
 
 Smiley
 
Scott
IP Logged

-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
barry_sword
CH.com Alumnus
New Board Hall of Famer
Canada 
*****




Mountain Biking Keeps Me Sane

   
WWW Email

Gender: male
Posts: 1988
Re: What's the "average" for episodic ev
« Reply #12 on: Apr 1st, 2008, 7:05am »
Quote Quote Modify Modify

My cycle's usually run for about 2 years then I get a one year break from them. This cycle was a little shorter than some of the other one's in the past.  
Shadows are there most days to remind me not to let my guard down.
IP Logged

QUIT SMOKING SEPT. 03 2005,

http://barrysword.blogspot.com

Trooper
New Board Junior
USA 
**



I ain't skeert!

   
Email

Gender: female
Posts: 93
Re: What's the "average" for episodic ev
« Reply #13 on: Apr 1st, 2008, 6:59pm »
Quote Quote Modify Modify

For the first 12 yrs. mine were kinda all over the place. Seemed lack of sleep and stress could trigger them. Sometimes I could go 18 to 24 mos. without one at all. As the years went on they started coming every fall and spring for a couple of weeks max. Over the last 5 years they primarily come only in spring or early summer. They now last between 2-4 mos. I usually start out with a few shadows and get hit every couple of nights. Then I go for a good 30 days of being hit every night with K-8+ then they slow down again.  
 
Based on how my cycles are, it sounds like his cycle is breaking. We are all different but I hope in this case we are the same! Smiley
IP Logged
pattik
CH.com Alumnus
New Board Hall of Famer
USA 
*****






  northcolor4  
WWW

Gender: female
Posts: 2404
Re: What's the "average" for episodic ev
« Reply #14 on: Apr 1st, 2008, 7:06pm »
Quote Quote Modify Modify

I'm one of those who's episodes have been fairly consistant (although not as precise as brewcrew's)   Wink
 
They usually last 6 to 7 weeks, and things taper off during the last two weeks or so.  It might help for him to keep a headache diary of some sort, so that he can compare his current episode to previous ones.  If he sees pattens happening, at least he will have a written history to make comparisons.
 
Pat
IP Logged

The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
coach_bill
New Board Veteran
USA 
***




gimmie my imitrex!!

   
WWW Email

Gender: male
Posts: 118
Re: What's the "average" for episodic ev
« Reply #15 on: Apr 1st, 2008, 8:28pm »
Quote Quote Modify Modify

hello, mine last anywhere from 8-10 weeks, but my last one just didnt wanna leave and scared the hell out of me, it lasted about 3 1/2 months. thanks coach bill
IP Logged

boy i cant wait till it's my turn to give him a headache. paybacks a bitch
StressFree
New Board Veteran
USA 
***



James4:8 I'm a moral failure, but there is hope...

   


Gender: male
Posts: 158
Re: What's the "average" for episodic ev
« Reply #16 on: Apr 2nd, 2008, 3:08pm »
Quote Quote Modify Modify

Hopefully they are gone. It sounds like it. I started chronic as a teenager, once a day like clockwork. Chronic attacks broken in early 20's with headache specialist & verapamil. The verapamil didn't seem to work very well once I was episodic. 6 to 8 week cycles now. Seems like I get a longer break between each cycle, but extremely bad cycles - multiple hits each day and night - with mostly KIP10s the last couple of weeks of a cycle - then shadows for a few days and all clear. I've had up to 7 years between episodes. They may be gone for good now, but I'm always in fear of the unexpected return. Best of luck and prayers for you, Rich
IP Logged
Becky
New Board Junior
Great_Britain 
**



Welcome to my world   Now go home!!!

   
Email

Gender: female
Posts: 84
Re: What's the "average" for episodic ev
« Reply #17 on: Apr 2nd, 2008, 4:53pm »
Quote Quote Modify Modify

Mine usually last about 6 weeks, but I will get them in between for a couple of days if I get stressed or tired.
IP Logged
marlinsfan
New Board Hall of Famer
USA 
*****




I love this place!

   
Email

Gender: male
Posts: 876
Re: What's the "average" for episodic ev
« Reply #18 on: Apr 2nd, 2008, 10:47pm »
Quote Quote Modify Modify

4 weeks to 3 months. Never really have an average cycle. The last one ended like the one you're describing, though after a few days of only shadows, I got hit with a doozy K8 in the middle of the day (my hits are almost exclusively while I sleep, unless I eat/drink something that triggers it).
 
If he's brave or dumb, he can try the beer or wine test. Have a drink, if he gets hit, it ain't over  Roll Eyes
IP Logged
MJ
New Board Hall of Famer
USA 
*****





   


Gender: male
Posts: 911
Re: What's the "average" for episodic ev
« Reply #19 on: Apr 2nd, 2008, 11:52pm »
Quote Quote Modify Modify

Shortest cycles 4 months, longest ones 3 years. Least amounts of hits in a 24 hr period 8, average hit 1-2 hrs
lowest pain level rare 9 usually 10, 33 or so years in and out of cycles.  
 
Life is grand between the hits and even in the hits knowing you get to whup another one. Its like talking face to face with God while kicking the devils ass whilst his minions are pouring hot lava on me and twisting all 3 prongs of his forked staff in the side of my head, while I swing the devil around by the fork of his tail thats stuck in my temple like a shark hook trying to tear its way out but driving ever deeper.
 
Then its over.  
Averages: Me 59,600 knockouts, Devil zero.
Oops got carried awaaay.
 
2 years 2 months now I've kept that devil away.
« Last Edit: Apr 3rd, 2008, 12:08am by MJ » IP Logged

MJ
Judge_Smails
New Board Newbie
USA 
*





   


Gender: male
Posts: 47
Re: What's the "average" for episodic ev
« Reply #20 on: Apr 3rd, 2008, 4:11pm »
Quote Quote Modify Modify

My "cycle" didn't really emerge until about 14 years ago. Prior to that I just got random hits.  
 
My cycles have been pretty consistent for the last 14 years: around 2-5 hits every day lasting about 5 weeks every 1.5 years.
IP Logged
Beastfodder
New Board Old Timer
United_Kingdom 
****



O2 and clusterbusters - naturally

   


Gender: male
Posts: 294
Re: What's the "average" for episodic ev
« Reply #21 on: Apr 4th, 2008, 11:22am »
Quote Quote Modify Modify

Pre-diagnosis and meds - 10 to 12 weeks.
 
With clusterbusters the cycles since then haven't lasted more than four pretty gentle weeks and even forgot all about last Autumn for the first time in about 10 years!
IP Logged

O2 and clusterbusters - naturally
mudplugga
New Board Newbie
United_Kingdom 
*




Clinging to the wreckage.

   


Posts: 39
Re: What's the "average" for episodic ev
« Reply #22 on: Apr 4th, 2008, 7:07pm »
Quote Quote Modify Modify

This one has lasted 8 weeks, and I'm just about certain it's gone - until the next time  Roll Eyes
 
I was chronic for over 20 years and for the last 10 years I seem to be getting clusters every other year.
 
I actually feel that they have gone today, I feel different in every way. This morning I slept in until lunchtime, I can taste my food again, I feel ok. And that's something I have never noticed before, I never realised that the clusters made me feel so bad in so many different ways.
 
I hope this day comes for you very soon, take care.
IP Logged
Barry_T_Coles
CH.com Alumnus
New Board Hall of Famer
Australia 
*****






  http://mushys.com/kiwi  
WWW Email

Gender: male
Posts: 1348
Re: What's the "average" for episodic ev
« Reply #23 on: Apr 6th, 2008, 8:52pm »
Quote Quote Modify Modify

First one when episodic 13 weeks.
Went chronic on the next one 2 years without a break.
Started taurine/ magnesium in April 06 & got a 261 day break from Oct 06 to July 07.
Hit a high cycle in June 07 & went for 50 days.
Currently 241 days PF.
 
How long’s a cycle “Who Knows”
 
Barry
IP Logged

Worry is like a rocking chair it gives you something to do but gets you nowhere.
http://mushys.com/kiwi


[img]
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss