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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Capzasin HP....my miracle treatment!
        
(Message started by: Imhealed732 on Dec 21st, 2005, 10:22pm)
Title: Capzasin HP....my miracle treatment!
Post by Imhealed732 on Dec 21st, 2005, 10:22pm
Hello all. I am in my mid 20's and have suffered from cluster headaches for about 7 years. I know how difficult this is and I can certainy understand why everybody has turned to this board for help. Cluster headaches nearly destroyed my life. Imitrex works well, but I cannot take more than 2 shots a day or I begin to feel woosy. Furthermore, this is not a completely safe drug for your heart. I also take verapamil which has taken some time to work, but now succesfuly limits headaches to once a week on a good month. I have made a recent discovery, however, that I am really excited about. Capazasin HP cream succesfully aborts my headaches! I simply apply a small amount onto my nose and over the region of pain on my face. Be sure not to use too much....this cream burns like hell at first, but mellows after 15 minutes. After the burning subsides, my headache is gone. Even better news is that this prevents headaches for me on a bad day. Please try this out if you are looking for a natural alternative to imitrex. Capzasin is derived from cayenne peppers, and its healing qualities are well documented in medicine. if you have any specific questions for me, please feel free to reply. I wish everyone the fortune of finding the cure for thier cluster headaches. Happy hiolidays.

Scott  :)
Title: Re: Capzasin HP....my miracle treatment!
Post by mcf69 on Dec 21st, 2005, 10:48pm
Thanks for the tip Scott, it makes sense since capsaicin is used in the treatment of CH.  I was just reading an article the other day on CH treatment which mentioned it:

Quote:
Intranasal capsaicin, which is hypothesized to deplete substance P from sensory nerve terminals, is used in treatment of other pain states, including herpes zoster. In a study of patients with cluster headache, it reduced the severity of headaches after seven days of treatment.


Keep us updated on how it works for you.  Best of luck.
Title: Re: Capzasin HP....my miracle treatment!
Post by chewy on Dec 22nd, 2005, 7:37am

Quote:
this cream burns like hell at first, but mellows after 15 minutes.


How long does your CH last without meds?
Title: Re: Capzasin HP....my miracle treatment!
Post by seasonalboomer on Dec 22nd, 2005, 8:50am
Boy, there sure are some great stories of how people have used products like this on previous threads. First time I've seen a topically applied cream as the answer. Glad it works for you.

I would be afraid that I end up rubbing it in my eye as I tend to push in on my face and eyes a lot during a hit. Then I think we're only talking about a diversion for the pain as I'd be screaming bloody murder with Cap-z in my eye.

Take care with claims of "I'm healed" and "miracle treatments". As it has worked for you, great. But, often the same treatments don't or haven't worked so well universally. CH is a cunning condition and we all try to avoid referring to things as miracles and cures out of respect for each other, and those that don't get the same results from certain treatments or medications.

Scott
Title: Re: Capzasin HP....my miracle treatment!
Post by catlind on Dec 22nd, 2005, 9:46am
While the topical capsaicin  never worked for me, there was a study conducted on Civamide, a nasal spray derived from capsaicin.  The trials didn't have much success as showing it's efficacy as an abortive, but the anomaly that showed up was that it seemed to have preventative qualities.  I don't know where the official study results are, but I will try to find them and post them here.

Glad it works for you, but sadly, you shouldn't get too hopeful that it has healed you in anyway.  The beast is good that way.

Cat
Title: Re: Capzasin HP....my miracle treatment!
Post by vig on Dec 22nd, 2005, 1:52pm
good luck on that one....

it's a MIRACLE!!!!
Title: Re: Capzasin HP....my miracle treatment!
Post by mynm156 on Dec 22nd, 2005, 2:24pm
BUT WAIT!!!!  IF YOU ORDER NOW WE WILL INCLUDE NOT ONE BUT TWO SETS OF GINZU KNIVES!!!  [smiley=stfu.gif]  
Title: Re: Capzasin HP....my miracle treatment!
Post by thomas on Dec 22nd, 2005, 2:58pm

on 12/22/05 at 14:24:40, mynm156 wrote:
BUT WAIT!!!!  IF YOU ORDER NOW WE WILL INCLUDE NOT ONE BUT TWO SETS OF GINZU KNIVES!!!  [smiley=stfu.gif]  


I don't think he's selling it, you can walk into any pharmacy and buy it, just like melatonin or kudzu.
Title: Re: Capzasin HP....my miracle treatment!
Post by cazman on Dec 22nd, 2005, 10:27pm
im just gonna back up what others have said the beast is one tricky sob case in point relpax i came on here screaming i found the answer got told to wait and see by alot of peeps , two weeks later it just plain stopped working and the beast kicked my ass again like it never even heard of relpax, dont get me wrong thats great it works for you but wait and see come back here in two months with the same results nad we'll start to get excited. and to the wise ass with the gizu knives shut the hell up not a very nice person.
Title: Re: Capzasin HP....my miracle treatment!
Post by cazman on Dec 22nd, 2005, 10:30pm
just so ya know at the end of my last reply i did not say "not very nice person"  lol gotta love censorship. [smiley=finger.gif]
Title: Re: Capzasin HP....my miracle treatment!
Post by mynm156 on Dec 23rd, 2005, 3:07am

on 12/22/05 at 14:58:43, thomas wrote:
I don't think he's selling it, you can walk into any pharmacy and buy it, just like melatonin or kudzu.


Nah  he just happend to find a CURE to this terrible problem and rushed out to his computer, found us just HAD to join and let us know all about it in his first post.  He may not bo linking you to a web site but he's trying to get you to buy.
Title: Re: Capzasin HP....my miracle treatment!
Post by mynm156 on Dec 23rd, 2005, 3:12am

on 12/22/05 at 22:30:39, cazman wrote:
just so ya know at the end of my last reply i did not say "not very nice person"  lol gotta love censorship. [smiley=finger.gif]

 [smiley=moonwiggle.gif]   [smiley=laugh.gif]  W
Title: Re: Capzasin HP....my miracle treatment!
Post by nani on Dec 23rd, 2005, 10:19am

on 12/23/05 at 03:07:51, mynm156 wrote:
Nah  he just happend to find a CURE to this terrible problem and rushed out to his computer, found us just HAD to join and let us know all about it in his first post.  He may not bo linking you to a web site but he's trying to get you to buy.



I've done that. And I have no financial interest in selling kudzu or CB treatments. I just want to get out there and spread the word. There are other CH sites that I've joined ONLY to get the info out there. Over 1000 people have viewed my kudzu thread at Braintalk Communities.  :)
Title: Re: Capzasin HP....my miracle treatment!
Post by mynm156 on Dec 23rd, 2005, 11:35pm
This MAY be true.   This MIGHT be me with a knee jerkreaction to a thread that regardless of how many we have all read before all sound the same.  However,  We all know that this has the RING to it if its true or not.

We ever we can find help for us then thats all that matters regardless of what YOU or I think right.  This is a forum that lets us speak our minds and how we feel.

PFDAY AHEAD 4 US ALL
Title: Re: Capzasin HP....my miracle treatment!
Post by cmoore on Dec 28th, 2005, 5:16pm
i have used the capzasin hp on my nose, cheek bone, and temple on the right side where i am affected. I am not sure if it has directly given me relief, but I noted in another thread that I enjoy the diversion it provides. While the burning itself is not necessarily painful, it is something else to feel, something else to occupy your mind when it seems as though the ch attack is the only thing that could possibly be on your mind.

I like using it, the only problem is it turns my face red as hell where I apply it and i look like a damned fool!

-chris
Title: Re: Capzasin HP....my miracle treatment!
Post by vig on Jan 1st, 2006, 6:50pm

on 12/28/05 at 17:16:38, cmoore wrote:
i have used the capzasin hp on my nose, cheek bone, and temple on the right side where i am affected. I am not sure if it has directly given me relief, but I noted in another thread that I enjoy the diversion it provides. While the burning itself is not necessarily painful, it is something else to feel, something else to occupy your mind when it seems as though the ch attack is the only thing that could possibly be on your mind.

I like using it, the only problem is it turns my face red as hell where I apply it and i look like a damned fool!

-chris


LOL
Title: Re: Capzasin HP....my miracle treatment!
Post by StressFree on Jan 6th, 2006, 4:04pm
Capzasin cream vs. up the nose - interesting. Sounds kind of like the lidocaine nasal spray I used for a while. Numbed the whole inside of my face and nose pretty well and worked for a few days to abort attacks, but then the beast found it's way around it and hit me harder than ever. I had the same effect using menthol creams on my temple, face, and neck. Works amazingly well for one or two attacks, and then won't touch it!!! Best of luck with it though, Rich
Title: Re: Capzasin HP....my miracle treatment!
Post by beezee on Jan 18th, 2006, 4:25pm
For all you people out there making fun of this treatment .. Guess what? It works and I have been using it successfully on cluster cycles for about 7 years.  There was a clinical trial on this in Sweeden about 10 years ago. The proper way to use it is to rub a small amount on the temple (headache side) 3  to 4 times a day. It takes about a week to reach full effect. The headache still carries on with the tearing and nasal symptoms but ZERO PAIN. It works as it blocks the pain signal to the brain. I've used it for 15 episodes and it worked 12 out of the 15. The other times I had to use Oxygen.  I guess it depends where the headache originates.  A tube of this cost about $10 in any pharmacy. With all the money and suffering you have went through is a $10 investment that sounds like total quackery worth a shot? I initally had the same reservations. Now I would pay a $1000 a tube if I had to.
Title: Re: Capzasin HP....my miracle treatment!
Post by thebbz on Jan 18th, 2006, 9:22pm
If it worked for me I would fill the tub with it and soak. If kudzu worked I would roll in it.
It is a fact for me, what works once or twice does not work the next time. The demon has this way of getting around meds. If trex was all I had and it had to be injected in the neck,,,,look out neck. Wish it worked for me. Glad it is providing some relief.
jb [smiley=pokeeye.gif]
Title: Re: Capzasin HP....my miracle treatment!
Post by chewy on Jan 19th, 2006, 7:21am

Quote:
.. Guess what? It works and I have been using it successfully on cluster Meeegrainecycles for about 7 years.
Title: Re: Capzasin HP....my miracle treatment!
Post by vig on Jan 19th, 2006, 11:54am
First...
Capsaicin is a treatment, not a cure.
IF it helps, it will not prevent future hits.

again, these are the ONLY posts from these two people.
We have no idea who they are and if they even truly suffer.

We get marketeers here regularly who will be glad to lie and be phony and pretend they are a real sufferer when their only intent is to push products....

I personally have NO reason to believe beezee and imhealed732....
Title: Re: Capzasin HP....my miracle treatment!
Post by chewy on Jan 19th, 2006, 8:51pm

Quote:
I personally have NO reason to believe beezee and imhealed732


I ahve plenty of reasons NOT to.
Title: Re: Capzasin HP....my miracle treatment!
Post by pubgirl on Jan 19th, 2006, 8:59pm
and lets not forget that although there may be two people it has helped, there were LOTS of Ch sufferers involved in the two trials that were halted without being finished as there was no evidence that capsaicin was helping attacks at all.

W
Title: Re: Capzasin HP....my miracle treatment!
Post by mcf69 on Jan 19th, 2006, 9:47pm

on 01/19/06 at 20:59:28, pubgirl wrote:
and lets not forget that although there may be two people it has helped, there were LOTS of Ch sufferers involved in the two trials that were halted without being finished as there was no evidence that capsaicin was helping attacks at all.

W


I was going to ask what happened to those trials.....
Title: Re: Capzasin HP....my miracle treatment!
Post by beezee on Jan 20th, 2006, 6:01am
I just posted my experiences to help people. If it worked for two people already don't you think it's worth a shot? A placebo effect just doesn't work for Cluster headaches. For those idiots that think I am pushing a product for some drug company ... I never mentioned any brand name. It comes in many different brands.  So just keep posting negative replies to fellow sufferers that are trying to help you. Try all the dangerous drugs and still have a cluster scale #10. I'll be using my Capsaicin and smiling thinking of you the fool ... suffering. It may or may not work for you but for a lousy $10  .. try it and thank me later.
Title: Re: Capzasin HP....my miracle treatment!
Post by chewy on Jan 20th, 2006, 7:55am

Quote:
I'll be using my Capsaicin and smiling thinking of you the fool ... suffering.


Thats right you fools!

This site sucks. I'm going home and snort some pepper!
Title: Re: Capzasin HP....my miracle treatment!
Post by vig on Jan 20th, 2006, 6:21pm

on 01/20/06 at 06:01:12, beezee wrote:
I'll be using my Capsaicin and smiling thinking of you the fool ... suffering..


you're not helping your case.

who said I was suffering?
you haven't done your homework.
come back after you have.
Title: Re: Capzasin HP....my miracle treatment!
Post by jmorgan52 on Jan 21st, 2006, 6:56am
chill out Beezee. Thes guys are often tough on newcomers who think they have found a cure. See if the cream really helps you long term, then you can say its a miracle.

I personally have found that Tiger Balm (it burns like hell for a few minutes) rubbed on the sore side temple helps to ease a low kip CH if you catch it quickly enough, but for a full blown CH you might just as well eat the jar and rather use a trex inj.

Stick around mate

John
Title: When I fiRe: Capzasin HP....my miracle treatment!
Post by beezee on Jan 21st, 2006, 7:22am
That tiger balm is probably Capzasin which burns like hell when you first start using it. The fact that it works for a mild cluster to me shows if you use it the way I mentioned it just might work for the monster ones. It must be used 3 to 4 x daily for a few days to reach full effect. Don't wait fo the headache to use it as that won't work fully. Morning noon and night. When I first started it It mildly worked on the fist couple then after a few days it wokred on all of them. I was a doubter just like most of you. Do a google search of the newsgroups and you'll see posts dating back years of people this has worked for.
Title: Re: Capzasin HP....my miracle treatment!
Post by beezee on Jan 21st, 2006, 7:24am
Try the search for Zostrix which is the brand name here in the USA.
Title: Re: Capzasin HP....my miracle treatment!
Post by chewy on Jan 21st, 2006, 8:08am

Quote:
Thes guys are often tough on newcomers who think they have found a cure.


Want to know why? Because posting howash cures and treatments leads the yet to be educated CH sufferers who are already on a path of desperation, down yet another path of frustration.

You want appropriate treatment ? Save time,money, and emotional chaos by  going to a cluster educated neuro.
Title: Re: Capzasin HP....my miracle treatment!
Post by beezee on Jan 21st, 2006, 8:21am
Just to let you know I go to one of the best neuroligsts in the USA. I have MS and have to go once every six months. Unlike you my Dr. is open minded and has had other patients try it, some successfully. She has filed a report of information on it to the AMA. I won't bother posting anymore on this. I feel I did my job to help people here. If most people here are like you then I wasted my time. If one or two try it and get relief I'll feel it was worth it.
Title: Re: Capzasin HP....my miracle treatment!
Post by chewy on Jan 21st, 2006, 8:31am

Quote:
I won't bother posting anymore on this


Thank you.
Title: Re: Capzasin HP....my miracle treatment!
Post by Ueli on Jan 21st, 2006, 10:31am
"It has been tested ..... " is an often used phrase in advertising all sorts of useless "novelties" for every situation in life, from clean(s)ing agents to meegraine clamps.

But WTF is a test good for if its results are not disclosed, because they could not be fudged into the desired direction?


BTW, did I mention how much I love newbies that come in with a now-it-all attitude and already in the 2nd post call other idiots?

Beezee, please give my regards to Wayne Perry.

                 [smiley=smokin.gif]
Title: Re: Capzasin HP....my miracle treatment!
Post by mynm156 on Feb 12th, 2006, 6:22pm
I can just FEEL the love wraping around my pocket book. Good luck with that guys!  
Title: Re: Capzasin HP....my miracle treatment!
Post by Dragnlance on Feb 12th, 2006, 8:22pm
As far as I know, topicals will not work on CH. I will sometimes use IcyHot on my neck and shoulders, and lightly on the temples to try and relax the tension HA that always come with a CH. Nothing in IcyHot that I am aware of that will help a CH, but you are welcome to buy some and find out ;;D
Title: Re: Capzasin HP....my miracle treatment!
Post by karrie35 on Feb 14th, 2006, 3:59pm
I have tried Capzasin HP... I think it just gives me another way to be miserable during an attack and might help with some lower level shadows/pain by confusing things a bit.

It does burn like hell, a minute or two after you apply it and think nothing is happening------(warning)

Karrie
Title: Re: Capzasin HP....my miracle treatment!
Post by kcopelin on Feb 14th, 2006, 11:00pm
Years ago I tried a capasin cream (Doctors Friend or some such name).  Hey I was desperate. Loaded up a q-tip and swabbed the inside of my right nostril, and rubbed it on the entire right side of my face.  It did not stop the clusters.  HOWEVER, it blistered my face and I ended up with a sinus infection.  But, hey, it was worth a try.  Have also heard that bleu cheese (any brand) and vinegar (any brand) rubbed on the chest can bring relief ;;D
Red flag words/terms:  cure, cured, amazing, cheap, so glad I found this site becasue now I can save others from suffering needlessly... :-/ guess we might be reactive but with good cause.
PFDAN to all who deal with cluster headaches,
kathy
Title: Re: Capzasin HP....my miracle treatment!
Post by jon019 on Feb 15th, 2006, 1:09am
Hello All,

"The third rate mind is only happy when it is thinking with the majority.
The second rate mind is only happy when it is thinking with the minority.
The first rate mind is only happy when it is thinking."

A.A. Milne

I am so tired of being protected because I am just too dumb to know what's good for me.

Long before I came to ch.com I relentlessly researched treatments for this demon bitch condition. Short of some alternates, I have tried as many "treatments" as I could find. (doubt there are many here who deny the same). While I don't have the troll radar that Jonny has (and it's damn good) I don't fall for the Dr Ho's or Wo's or whatever the f**k they call themselves.

What i do do is make reasoned decisions based on cost:benefit. One of these is the infamous "capsaicin" of this thread. First read about it in the NHF newsletter and saw it in other reputable (my judgement, argue if you wish ) places. My first attempt was tabasco sauce on a q tip up the nose. Hoo boy, that'll get your attention and do nothing for a hit. Then moved to ointment on the temple and, believe it or not ,(desperation is the mother of desperate acts) cayenne powder snorted in the affected nostril. Burn baby burn, damn right, but for about a year it actually worked. Not a placebo effect, and you can think me a knothead cuz I probably am. But dumb as I may be, I can recognize when I get hit and when I can stop it. No longer works and more's the pity. Would be doing it still if it wasn't so.

Anyone who says this is a miracle cure or even uses the word cure at all, is a bigger knothead than I'll ever be. But anyone who dismisses, out of hand, the POSSIBILITY of it  being effective is shortsighted and narrow minded.

Anyone who's tried it and it doesn't work, fine, tell us that. Anyone who hasn't tried it, yet derides it, fine, tell us that too. Just don't tell us dumbies that you KNOW.
Because what I do know is just how much I don't know about Ch. Yet, I do know more than most Dr's who have tried to treat me.

Thomas Edison said, " We don't know one millionth of one percent about ANYTHING" Please, don't assume you do either.

There, I've said what I think and thought deeply about what I said, floors yours.

I love you all and will no matter what.

Regards

Jon
Title: Re: Capzasin HP....my miracle treatment!
Post by FramCire on Feb 15th, 2006, 10:45am
I hope this stuff works for you guys but anyone with CH that says this:  "I'll be using my Capsaicin and smiling thinking of you the fool ... suffering. " is not a good person in my book.  I can't smile when I am pain free thinking about others who are suffering.  To say this is classless, childish, and honestly shows a lack of compasion for others.

This guy sounds like jfrench when he/she/it said: "so u can accept my offer or continue to suffer, seeing what jerks and doubters u all are i actually hope u don't try it and keep suffering." because people didn't think he found "THE CURE" after mere hours of trying some herbal remedy.

Folks, if you have something that works... please share it but when you say stuff like this, you have 0 cred in my book.  I begin to wonder if these guys are the same person googling CH cures and trolling this board with every obscure reference they find.  

Anyway, here's to PF days for EVERYONE!
Title: Re: Capzasin HP....my miracle treatment!
Post by Dragnlance on Feb 15th, 2006, 11:49am
*Applauds*

WEll SAID FramCire!!
Title: Re: Capzasin HP....my miracle treatment!
Post by FramCire on Feb 15th, 2006, 2:15pm

on 12/21/05 at 22:22:17, Imhealed732 wrote:
Imitrex works well, but I cannot take more than 2 shots a day or I begin to feel woosy.



BTW, unless you are splitting the dose (see imitrex tip on left) you shouldn't be taking more than 2 doses a day anyway.  I may be wrong, but imitrex should be 2 doses in a 24 hour time period (unless you are splitting the dose).


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