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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> I did it!
        
(Message started by: E-Double on Feb 26^th, 2006, 5:37pm)

Title: I did it!
Post by E-Double on Feb 26^th, 2006, 5:37pm

I'm completely med free for the first time in nearly 2 yrs.

I still have daily attacks but they seem to be much shorter in duration.

It was a difficult detox but I stuck to my guns and I am now completely free and clear.

I can also say that I feel like I have much more energy despite the wake up calls and that I am definitely more lucid!

E

Title: Re: I did it!
Post by Melissa on Feb 26^th, 2006, 5:42pm

YeeFuckenHaw!!!!

Alright E2!!!

That is way cool. ;;D

Title: Re: I did it!
Post by BikerBob on Feb 26^th, 2006, 5:55pm

Congratulations E2. That's a fabulous step in the right direction. I'm sure you've read all the threads about RC seeds.

BB ;)

Title: Re: I did it!
Post by Guiseppi on Feb 26^th, 2006, 6:12pm

Congrats, I've heard lots of good results from the chronics who detox. I'm blessed to be an episodic so I stay fairly short duration on my meds. I tip my hat to anyone with the courage to cold turkey it.

Guiseppi

Title: Re: I did it!
Post by E-Double on Feb 26^th, 2006, 6:29pm

on 02/26/06 at 18:12:12, Guiseppi wrote:

Congrats, I've heard lots of good results from the chronics who detox. I'm blessed to be an episodic so I stay fairly short duration on my meds.I tip my hat to anyone with the courage to cold turkey it.

Guiseppi

It was far from cold turkey.
I'm not stupid ;)
I started detoxing @ a slow rate of 40mg per week.
This took me from the beginning of Decmeber until now.
Thanks for the support y'all

Title: Re: I did it!
Post by nani on Feb 26^th, 2006, 6:30pm

Yeah, baby!!

I'm so proud of you, Eric!! :-*

Title: Re: I did it!
Post by purpleydog on Feb 26^th, 2006, 9:32pm

Congrats, Eric. Makes you wonder how effective meds really are... and will they make things worse in the long run... or not.

Glad yer feeling better. :)

Title: Re: I did it!
Post by Pinkfloyd on Feb 26^th, 2006, 10:24pm

Good for you E2

If "normal" people knew how tough that was, they certainly wouldn't ever want to meet you in a dark ally.

Well, maybe some of the women would but that's a different story. ;;D

Good luck on your journey

Bobw

Title: Re: I did it!
Post by AussieBrian on Feb 26^th, 2006, 10:26pm

Onya, EE. Did the same thing myself 10 years ago and never looked back.

Title: Re: I did it!
Post by FramCire on Feb 26^th, 2006, 10:40pm

Congrats E.

Is this a complete detox? You don't use any meds as abortives? How about melatonin?

Just wondering.

Title: Re: I did it!
Post by MJ on Feb 27^th, 2006, 12:23am

Way to go Eric. You have my respect.

Not an easy job.

I think you may also find the hits a lot cleaner as well. More so, the recovery from a hit may be faster.

Like Aussie above, other than the seeds this year, I hadnt taken meds in over 10 years.

Hope relief comes soon.

MJ

Title: Re: I did it!
Post by LeLimey on Feb 27^th, 2006, 2:52am

Way to go cutiepie! I'm so impressed with you and I'm so very glad that you are already feeling the benefits.
Where's that Jonny bloke? I'm sure he came off his meds for other reasons.. I know he is currently PF and I wonder if the two could be connected? It would be worth asking him and getting a little survey going don'tcha think??

Title: Re: I did it!
Post by Chillrmn1 on Feb 27^th, 2006, 5:11am

Congratulations Eric! Glad to see you're doin better. I know it took alot of strength.

Title: Re: I did it!
Post by kayarr on Feb 27^th, 2006, 8:15am

You are DA MAN!

Good job Mr. That takes serious courage:) Always happy when you feel better.

Title: Re: I did it!
Post by Beastfodder on Feb 27^th, 2006, 11:33am

Result, well done can't have been easy.

Treat yourself to a Guinness on me!

Title: Re: I did it!
Post by lionsound on Feb 27^th, 2006, 12:54pm

never a doubt! :-*

Title: Re: I did it!
Post by Ghost on Feb 27^th, 2006, 1:36pm

Great to hear! Hope it helps and hope you are soon PF. Thanks for leting us know! ;;D ;;D ;;D

Title: Re: I did it!
Post by miapet on Feb 27^th, 2006, 1:41pm

*YAY* we're sooooooooooooo proud of you!!!

*positive light and energy*
D & miapet

Title: Re: I did it!
Post by marlinsfan on Feb 27^th, 2006, 1:46pm

Nice Job, E! Are you still taking melatonin adn aborting with O2?

Title: Re: I did it!
Post by E-Double on Feb 27^th, 2006, 5:38pm

Only Oxygen

Title: Way to...
Post by Richr8 on Feb 27^th, 2006, 8:27pm

...buck up Eric. That's great news! Very glad you were able to get it done, but there wasn't much doubt once you put your mind to it.

Congrats!

Rich

Title: Re: I did it!
Post by thebbz on Feb 27^th, 2006, 8:30pm

Yea!!! EE [smiley=bow.gif]
2yrs here as well. You rock!
Tougher than hobo poop you are.
All the best
jb

Title: Re: I did it!
Post by ArCane on Feb 27^th, 2006, 11:20pm

Awesome news bro. Glad to hear your doing so well. Keep up the good work ;).

Title: Re: I did it!
Post by pfunk on Feb 28^th, 2006, 1:02am

E-dub-
That's great news bro. I've cut it down to verap, melatonin and o2, which is a big cahnge for me. I really am happy for you. You have been one of the biggest helps to me here, whether you wrote directly to me or I used your advice from another thread. Sounds like evreything continues going in the possitive directions that it sounds like for you. I can't wait til I can be completely off this 'garbage' myself. Much luv, congrats and PFDANs to you!

Pfunk 8)

Title: Re: I did it!
Post by Jasmyn on Feb 28^th, 2006, 9:29am

Great stuff Eric!

Title: Re: I did it!
Post by Dragnlance on Feb 28^th, 2006, 10:06am

Fantastic!!

Being med free has both positive and negative. But I like the med free lifestyle better.

Glad to hear it, and pain free wishes my friend

Lance

Title: Re: I did it!
Post by LeeS on Feb 28^th, 2006, 11:31am

Very well done E - good luck and all the best with it.

-Lee

Title: Re: I did it!
Post by wildhaus on Feb 28^th, 2006, 12:34pm

[smiley=bow.gif]

are you giving up

[smiley=smokin.gif]

I did.........(?!)

......Michael

Title: Re: I did it!
Post by godsjoy777 on Mar 3^rd, 2006, 6:33pm

Wow....Eric....kudos to you....I've gotten my Zonegran down to 100 mgs per night and then I take Meletonin....Cycle seems to be starting up...I'm praying for the ability to stay off everything but O2.......Might try the seeds but we shall see.....

Blessings,
Karen

Title: Re: I did it!
Post by sandie99 on Mar 4^th, 2006, 3:02am

Eric,

that's fantastic! Congrats! :)
I'm so happy to hear that you're feeling better. :)

Best wishes,
Sanna

Title: Re: I did it!
Post by nadaharba7 on Mar 4^th, 2006, 3:40am

First Thank you Mrs Indie Cooper-Guzman, and all workers in this web site, www.webmd.com, This is part of my results after more than 7 years only in migraine study,. Maybe you will be surprized if I tell you that all peoples has some kinds of migraine headaches,,,. Migraine headaches is one of allergic reactions in the body,,,more detalis later,,,. When you see un allergic reaction in the skin you well see a red zone, (due to exagerate vasodilatations in small vessels,). ,, Now to understand the mechanism of pain producing, just go in your think to pain producing from herniated disk, the disease it self is in the lombar vertebra not in legs itself but the pain is more in the legs,,,Why? of cours because of the pressing over the nerve in the lombar vertebra not in legs, but pain appear in all spread of nerve,. Now back to migraine headaches, what we have , We have the superfficial temporal artery and the Trigiminal nerve ramure surrended all the superficial temporal artery and all its branches. Trigiminal branches are too sensitive ramure and its inervate the forhead and top of head and face sensitive feeling, and most important to know that Trigiminal nerve also inervate tha external sensitive eyes layers,,,,,. As I said some allergic agent internal or external can be different (sun, chees, conserved foods, ice creams, some smalls, etc,,,) will cause un alleric response from superfficial temporal artery, and the response will be by ACTIVE SUPERDILATATION of wall vessels that will cause a SUPER EXTENS of very sesitive trigiminal ramurs arround this arteries,. That will cause the migraine headaches, and explain why the patients said that the headaches is pulsatile sensations, (due to super dilatations of vessels walls every time pass throught it the blood wave,),. My pressure points in Place # 1 And #2, prove that by disappear of all migraine headaches by cloosing the artery in this places and stop th fizical effects over the trigiminal ramure so the headaches will stop in maximum 60 secounds, if pressure points done by un experts,. This allergic reaction must complicated than that, its legated to alarm system in the brain, which know before the pain in some cases and due to some chmical vasoconstrictores released as a defense for this allergic reaction cause less blood in brain vessels and cause the aura and accompanied symptoms,,,,HERE YOU MUST UNDERSTAND ME WHEN I TALK ABOUT THE TRIPTANS DANGER,,,. Sorry I have to go;;I will continue later,, Thank You Good Indie Good Wishes to all migraine patients only and for migraine drugs agents I dont care if I let you in depression situations,.
www.migrainesurgery.4t.com

Title: Re: I did it!
Post by AussieBrian on Mar 4^th, 2006, 3:56am

To all our new-found friends at CH.com please understand that everybody is welcome to voice an opinion here, but they remain simply opinions.

Take nothing at face value but read up on all the great information posted elsewhere around the boards and make up your own mind as to what seems most reasonable.

Feel free to ask all the questions you wish and not take posts like the one above purely at face value.

Welcome aboard and enjoy the ride.

Title: Re: I did it!
Post by E-Double on Mar 4^th, 2006, 8:15am

Well anyway..................... ::)

Attacks are still shorter and I feel good overall.

This is very strange but good :)

Title: Re: I did it!
Post by Melissa on Mar 4^th, 2006, 10:20am

Sorry for the hijack Eric. ::)

Awesome news hon!!!

;;D

Title: Re: I did it!
Post by kcopelin on Mar 4^th, 2006, 11:37am

Eric, that is awesome! Was there something in particular that made you decide to do this? Getting abit tired of taking meds myself, but not brave enough to totally stop.
You Rock!!!
kathy

Title: Re: I did it!
Post by E-Double on Mar 4^th, 2006, 1:48pm

on 03/04/06 at 11:37:57, kcopelin wrote:

Eric, that is awesome! Was there something in particular that made you decide to do this? Getting abit tired of taking meds myself, but not brave enough to totally stop.
You Rock!!!
kathy

I had a period of nearly 3 weeks in November of which I was nearly PF.
I decided that regardless of outcome I wanted to give it a shot.
I was tired of side-effects.
It just came down to being tired of meds and wanting the option to try "alternatives" if I chose to do so.
Slowly I tapered and despite having an increase in attacks with every step down, I started to realize that they were shorter in duration.
They became more stable. They were like clockwork again.
This is not to say that if desperate I would not try it again, however, I would really have to be past the breaking point.....I think.
I feel healthier overall now.
That's my story.

Title: Re: I did it!
Post by broomhilda on Mar 4^th, 2006, 10:40pm

I am so happy for you Eric! Fantastic news!!! May pf times shine down on you soon, all my best to you and Jo!

Title: Re: I did it!
Post by mynm156 on Mar 5^th, 2006, 12:00am

ROCK ON BROTHER GOOD LUCK!!!

Title: Re: I did it!
Post by JenniferD on Mar 5^th, 2006, 11:00am

:D :D :D :D :D

That's 5 smiley news!! Good for you Eric!!