Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> stimulator surgery
        
(Message started by: fjb on Oct 17^th, 2006, 12:32pm)

Title: stimulator surgery
Post by fjb on Oct 17^th, 2006, 12:32pm

Has anybody had either of the stimulator surgeries? If so has it helped?

Title: Re: stimulator surgery
Post by unsolved1 on Oct 17^th, 2006, 3:21pm

I had a bi-lateral Occipital nerve stimulator implanted by MHNI in March of 04'.
Painful, uncomfortable, weird, ....and didn't help at all. Had it removed quickly. :-/

UNsolved

Title: Re: stimulator surgery
Post by pubgirl on Oct 24^th, 2006, 8:36pm

I think to date 8 ONSI's have now been done in the UK for CH, not a one of the 8 is pain free but some improvement achieved for some. No improvement at all for others.

We still await official results and papers but even when we get them, 8 isn't a decent number to base a valid assessment on.
Our NHS system won't pay for it for most people as it is still experimental surgery, hence the very small numbers

I don't think the DBS is being done by anyone here for CH- considered too dangerous

Wendy

Title: Re: stimulator surgery
Post by zuesthedog on Oct 29^th, 2006, 2:32pm

I have had the occ. stim. with some sucess back in 03. It migrated and poke out of the back of my head. They removed it dec 05. In feb 06 I had a stim placed on th tri. nerve I have been PF ever since. The best decission I ever made. will give all details if interested. if you have any speciffic ques just let me know pf days john