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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Indomethacin 
        
(Message started by: nanbibb on Oct 13^th, 2007, 11:39am)

Title: Indomethacin
Post by nanbibb on Oct 13^th, 2007, 11:39am

Is anyone taking indomethacin?

I am waiting to go to the neuro and my dr. prescribed indomethacin as needed for headache. I have a lot of pain along my trigeminal nerve and he was thinking this would help. I was just curious with anyone's luck with it. I took some last night to try and break the headache but it didn't work so I took a percocet that he prescribed as well. This morning the ch and shadow is gone but my neck hurts really bad and I feel like I am getting a regular headache. I am guessing a rebound.

Any thoughts on indomethacin?

I am so glad I found this site and the info. I just wish I could give some info back to everyone else but there is so much out there to learn. :)

Nancy

Wishing everyone a painfree day & night.

Title: Re: Indomethacin
Post by sandie99 on Oct 13^th, 2007, 12:17pm

Nancy,

I can only speak for myself. A neuro put me on indomethacin to make sure that I really do have ch and not something else. It made my life worse; I got 8-hour migraines twice and ch hits kept on coming. My instructions were to take first 25mg for a week, then 50mg for a week and finally 75mgs, but I quit at 50, got back to 25 and then dropped it.

While I was on indo, I also ate another med to protect my stomach. What I've read in here, it can cause stomach problems.

Best wishes & PF days,
Sanna

Title: Re: Indomethacin
Post by Karla on Oct 13^th, 2007, 3:50pm

I took it for 5 months at 50mg 3x/day. It stopped my ch dead in its tracks after the third day on it. Nothing. It was wonderful. However, it quit working after 5 months of treatment the ch came back full force. I am chronic. I had no problems with side effects taking it. Good luck.

Title: Re: Indomethacin
Post by Katherinecm on Feb 7^th, 2008, 9:35pm

My new neuro put me on it today, theorizing that it may not help at all but given my medical history there is a possibility that the CH is a symptom of an autoimmune disease like lupis, she said if it is and I get the right dose it could put my CH into remission. Good luck!

Title: Re: Indomethacin
Post by Bob_Johnson on Feb 8^th, 2008, 8:32am

Indo is not an effective treatmen for Cluster but is the treatment of choice for a wee sub-set of related headache type. If you doc is a headache specialist, then I'd follow his lead on this but if not skilled with complex headache--trying giving him this article and use it a tool to discuss you options.

http://www.plainboard.com/ch/chtherapy.pdf

Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)

Title: Re: Indomethacin
Post by birdman on Feb 11^th, 2008, 11:20am

Ditto to the previous post! Also, watch the stomach, I needed nexium to keep my stomach from going crazy. I take indo for Paroxsymal hemicrania(ph) not CH. My nuero suspects that I have both. Yeah me!

Title: Re: Indomethacin
Post by Gator on Feb 11^th, 2008, 1:23pm

I took it up to 300mg. It did stop the jolts and jabs I was getting along with the CH, but did nothing for the ch itself. My doctor warned that it was rough on the stomach and had me take an antacid (I used the otc generic zantac) with it.

Because it usually does not work for CH, but is almost 100% effective for Paroxysmal Hemicranias, some doctors use it as part of their diagnostic routine. Taking a patient's particular symptoms and description of their attacks into consideration, if it works, it's more likely the patient has Paroxysmal Hemicranias. If not, they possibly have ch.